health and the web: uk experience
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Health and the Web: UK Experience. Professor Sir Michael Rawlins Chairman, National Institute for Health and Clinical Excellence And Professor of Clinical Pharmacology, Newcastle upon Tyne. Scope. 1. Healthcare and the Web: UK Overview 2. NICE and the Web Developing guidance - PowerPoint PPT PresentationTRANSCRIPT
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Health and the Web:UK Experience
Professor Sir Michael RawlinsChairman, National Institute for Health and Clinical Excellence
AndProfessor of Clinical Pharmacology, Newcastle upon Tyne
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Scope
1. Healthcare and the Web: UK Overview
2. NICE and the Web- Developing guidance- Disseminating guidance
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UK overview: general
1. Information- Public- Professional
2. Communications - Between professionals- Between professionals and patients
3. Research- Clinical trials- Patient monitoring
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UK overview: the NHS
Primary care- Health records- Prescribing- Hospital appointments
Secondary care- Patchy
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To provide professional staff with advice on:
• securing the highest attainable standards of clinical care for National Health Service patients
• promoting and sustaining the public health
NICE’s Purpose
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NICE: setting standards
For clinicians:• Use of individual health technologies• Management of conditions
For public health professionals:• Single interventions• Programmes
Effecti
vene
ss in
prac
tice
Cost e
ffecti
vene
ss
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The “virtual” InstituteNICE
AppraisalCommittees
TechnologyAssessment
Groups
InterventionalProcedures
Specialist advisors
Collaborating Centres
(clinical guidelines)GDGs
PDGs(Public health)
Public healthinterventions
CollaboratingCentres
(public health)
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Developing NICE guidance
Critical features:• Clinically/scientifically robust• Inclusive• Transparent• Independent
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Disseminating NICE guidance
Predominantly web-based:• Full guidance• Short forms of guidance• Supporting evidence base
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Monthly page requests
0
1000000
2000000
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2000
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Months
Hits
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Monthly unique visitors
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Monthly visitor sessions
0
100000
200000
300000
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500000
600000
700000
800000
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1000000
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-1
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Months
Visi
tor s
essi
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per m
onth
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Current in May 2006
Page requests: 6.2 million200 Gigabytes
E-mail newsletter: >35,000 registeredE-mail updates: up to 6,000 per day
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Visitors
56.3%43.4%
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Disseminating NICE guidance
Limitations:1. Short formats
• How short?• For what purpose?
2. Patient formats• Access?
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The future?
1. Developing the evidence?
2. Disseminating the guidance?
3. Discovering societal preferences?
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Evidence development
1. Web-based approaches to clinical trial registries
2. Web-based approaches to conducting clinical trials
3. Web-based approaches to developing and maintaining registries
4. Web-based access to results of clinical trials
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Disseminating guidance
Professionals:• PCs, hand-helds• E-mail alerts• Format(s)• Revisions/updates• Self-learning modules (CPD)
Patients, families, carers• ??????
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Societal preferences (1)
NICE’s Citizens Council:• Stratified random sample
– age and gender– socio-economic status– ethnicity and disability– geography
• Thirty members• Cross-section – not representative
Deliberative democracy
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Citizens council (2005)
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Societal preferences (2)
What is needed:• Broader representation (n=300 or 3000)• Retaining the deliberative element
Could the web help?
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For more about NICE….
www.nice.org.uk