health care needs for children with disabilities by patriciah roy akullo katalemwa cheshire home for...
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Health Care Needs for children with Disabilities
By
Patriciah Roy Akullo
Katalemwa Cheshire Home for Rehabilitation Services Founded in 1970
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KCHKCH
Introduction & Facts• Over 1.2 million children have moderate and severe disabilities in
Uganda (UBOS 2002). • The Uganda National Housing Survey 2005/6 indicates that 80% of
children with disabilities live in absolute poverty. • Poverty and cultural beliefs is closely related to disability in our
society• Less than 20% of families with a child with a disability can afford
their rehabilitation needs. • More than 80% of disabilities in developing countries like Uganda
are as a result preventable causes including like poverty, attitudes and practices with regard to disability being shaped by ignorance, cultural beliefs and customs.
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KCHKCH
Introduction & Facts• Research has also indicated that poverty accounts for 58%
of disability causes in Africa. • Retarded growths, post burn contractures, osteomyelitis,
among others are also common with children in poor families Households.
• Due to limited finances children with disabilities are not able to go for specialized rehabilitation services .
• Those who try, end up not completing the rehabilitation cycle leading to a relapse.
• As a result, children with disabilities have ended up with multiple disabilities due to poor management.
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KCHKCH
Health Care Needs • Needs vary depending on the degree of the disability
and the under lying cause of it.1. Medical and Medical Rehabilitation needs• Assessment support• Access to drugs i.e. for children with mental health
disabilities, autism, cerebral palsy and epilepsy.• Therapies i.e. Occupational and physiotherapy .2. Assistive device support• Mobility Appliance i.e. white canes, Wheelchairs• Support Appliance i.e. Eye Glasses, hearing aids,
catheters• Rehabilitation Devices i.e. Walking frames, crutches
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KCHKCH
Health Care Needs 3 Reproductive Health needs• Deaf –Visually Impaired Girls under going monthly
periods• Sex education: Who educates the visually impaired
and those with hearing loss?4.Maternal Health Needs• Antenatal care for Child mothers still lacking5. HIV/AIDS• Information concerning use of protection and other
family planning methods• Information about HIV&AIDS is not translated to
carter for all categories of disability
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KCHKCH
Health Care Needs Urinal Tract InfectionsChildren with mobility challenges especially those that
crawl to access sanitary systems.Other DiseasesMysterious Nodding Disease• Growth is stunted completely and permanently.• The growth of the brain is also stunted, leading to
mental retardation of the affected individual.• Sever Epileptic seizers
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KCHKCH
Health Care Needs
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KCHKCH
Health Care Needs Access to ART is a challenge, Psycho-social support
among those with hearing impairment.3. Economic Needs• Money for basic needs i.e. drugs, food, shelter• Resources to generate income4. Psycho-Social needs• Counsel for sanity purposes i.e. Teenage CWDs• Absence of caregivers • Information• Inclusion
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KCHKCH
Success story/Learning
• How possible is it for CSO’S?
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KCHKCH
In Mandate with
The 1989 Convention on the Rights of the Child (CRC)as the first binding instrument in international law which stipulate the need for the rights of children with disabilities to be respected just like the other children and even calls for placement of favorable measures to this effect…
• (Article 23-CRC).
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Support strategySupport strategy• Addressing abject poverty i.e. through
livelihoods support to increase household income• Teaching in activities of Daily living (ADL)
through the early childhood learning centre.• Attitude change campaigns through advocacy
and awareness campaigns• Psycho-social support• Medical rehabilitation i.e. Therapy and
Surgery.• Community and Home Based care programmes
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Awareness campaigns
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Assistive device support
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Economic Needs
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Economic Needs
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Remarks
• Can we let the children do the talking?
• Can we do the hard service delivery and accord necessary support?
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8 Km Gayaza Road, Mpererwe8 Km Gayaza Road, MpererweP.O Box 16548 Kampala UgandaP.O Box 16548 Kampala Uganda
Tel: +256 414590739Tel: +256 414590739+256782779763+256782779763
Email: Email: katalemwa@infocom.co.ugwww.katalemwacheshirehome.orgwww.katalemwacheshirehome.org