healthwise wales · healthwise wales a national cohort study that will: 1. actively engage and...
TRANSCRIPT
HealthWise Wales Welsh Public Health Conference
2nd November 2015
Dr Shantini Paranjothy
Clinical Senior Lecturer Cardiff University
Scientific Lead for HealthWise Wales
• Post-industrial legacy of socio-economic deprivation
• Widening inequalities gap in and health and wellbeing
• Rapidly changing environments -- ecology, economy,
demography
• Build resilience for an aging population
The public health challenge:
What we need:
• A new partnership between the public,
researchers and policy makers
• Public at the heart of knowledge
generation and translation into practice
HealthWise Wales A national cohort study that will:
1. Actively engage and encourage the public to be
informed, inspired and involved in research
identification of research priorities
design studies and provide data for analysis
2. Create a database of potential participants for
research studies
1. Create a cohort with regular follow up to obtain
exposure and outcome data that are not routinely
available from other sources
HealthWise Wales research platform
HealthWise Wales research platform
Impact of bundles of
interventions on health and
wellbeing across the life-
course
Multiple causal
pathways and
epigenetic mechanisms
of influence
Research topics
1. Impact of social inequalities on health and
wellbeing
1. Environment, neighbourhood and health
2. Maintenance of health and wellbeing in the
working age population
3. Wellbeing in later life
4. Innovation in health and social care services
Recruitment
May 2015 – Jan 2016 • Testing data collection systems, study materials, recruitment support
systems, record linkage (n=500)
• Task and Finish group to develop strategy for bio-sampling
• Focus groups with the public – community groups
• Workshops with researchers
• Scope research plans for phase 1, data collection modules 2 and 3,
case studies
• Strategy for recruiting children
• Formal Launch 1st February 2016
Recruitment to 7th Oct 2015
0
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400
Week 0
Week 1
Week 2
Week 3
Week 4
Week 5
Week 6
Week 7
Week 8
Week 9
Week 10
Week 11
Week 12
Week 13
Week 14
Week 15
Week 16
Week 17
Week 18
Week 19
Week 20
Week 21
Week 22
500 by December Actual 500 by Launch
Pilot Phase: Current Status
Characteristics of participants
Number (%)*
Sex:
Male
Female
130 (33%)
264 (67%)
Age:
16-24 years
25-59 years
60+ years
35 (9%)
314 (80%)
45 (11%)
* 394 of 418 (94%) registrants have completed “About Me”
Pilot Phase: Current Status
Characteristics of participants
%
Physical activity:
Inactive
Moderately inactive
Moderately active
Active
15
11
25
50
Estimated using the General Practice Physical Activity Questionnaire (GPPAQ)
How the pilot is helping us?
• Identifying bugs in web application
• Identifying ways of improving the user experience
- Automated system for password retrieval
- Automated email to confirm enrolment
- Make the application fully mobile responsive
• Develop study and participant management component
Will allow for:
- Scheduling of all tasks (e.g. module distribution)
- Recruitment and/or data collection by phone or by
“HealthWise Wales champions”
• Understand facilitators and barriers to participation, to
inform the development of a communications strategy
for the project
Public Opinion of HealthWise Wales
Initial thoughts on the idea of
HealthWise Wales
What can we
improve?
Would you
join up?
Would your family / friends /
neighbours / colleagues join
up?
Concerns
?
Incentives?
Communicating the
methodology
How can we sell it?
Get involved
• Join HealthWise Wales
• Visit our stand
• Circulate the link, pens and postcards to your networks
• Tell us what you think:
Complete the “What I think” questionnaire
Send us an email
Complete the feedback form on the website
• Take part in workshops
Thank you for listening
Please let us know what you think
Email: [email protected]
Project team: Lisa Hurt, Luke Heslop, Gareth
Watson, Ameeta Richardson, Julia Townson,
Fiona Lugg, Zoe Roberts, Tin Lau, Shantini Paranjothy, Ronan Lyons, David Ford