ian loynes chief executive, scil user led organisations : scil’s journey & learning points...
TRANSCRIPT
![Page 1: Ian Loynes Chief Executive, SCIL User Led Organisations : SCIL’s Journey & Learning Points 1984-2009: Celebrating 25 Years of Independent Living Promoting](https://reader036.vdocument.in/reader036/viewer/2022081516/56649ebc5503460f94bc53de/html5/thumbnails/1.jpg)
Ian LoynesIan LoynesChief Executive, SCILChief Executive, SCIL
User Led OrganisationsUser Led Organisations : :
SCIL’s Journey & Learning PointsSCIL’s Journey & Learning Points
1984-2009: Celebrating 25 Years of Independent Living1984-2009: Celebrating 25 Years of Independent Living
Promoting equality across the South
Southampton Centre for Independent Living
![Page 2: Ian Loynes Chief Executive, SCIL User Led Organisations : SCIL’s Journey & Learning Points 1984-2009: Celebrating 25 Years of Independent Living Promoting](https://reader036.vdocument.in/reader036/viewer/2022081516/56649ebc5503460f94bc53de/html5/thumbnails/2.jpg)
Building sustainable ULO’sBuilding sustainable ULO’sJan 1995: Prime Minister’s Strategy Unit ‘s “Improving the Life Chances of Disabled People”:
•‘Disabled people are best placed to take the lead in identifying their own needs and in identifying the most appropriate ways of meeting such needs’
•Recommendation 4.3: By 2010, each locality should have a user-led organisation modelled on existing CILs.
•At a minimum, these organisations should provide:• information and advice; • advocacy and peer support; • assistance with self-assessment; • support in using individual budgets to meet needs; • support to recruit and employ personal assistants; • disability equality training; • consumer audits of local services.
![Page 3: Ian Loynes Chief Executive, SCIL User Led Organisations : SCIL’s Journey & Learning Points 1984-2009: Celebrating 25 Years of Independent Living Promoting](https://reader036.vdocument.in/reader036/viewer/2022081516/56649ebc5503460f94bc53de/html5/thumbnails/3.jpg)
Building sustainable ULO’sBuilding sustainable ULO’sHowever, SCIL’s experiences show that the important aspects to creating and sustaining successful ULO’s are:
WHY users should control their support organisations; and
HOW to ensure these organisations are modeled on existing CIL’s (i.e. working to the Social Model of Disability, Peer-support and
the principles of Independent Living)
What motivates Disabled People to want to set up a ULO
•Common: interests, values, beliefs. •Agents for social change (Campaigning!)
Not Just a provider of services, just another business/charity
Sustainability is as much about the empowerment of individuals as it is about resources
![Page 4: Ian Loynes Chief Executive, SCIL User Led Organisations : SCIL’s Journey & Learning Points 1984-2009: Celebrating 25 Years of Independent Living Promoting](https://reader036.vdocument.in/reader036/viewer/2022081516/56649ebc5503460f94bc53de/html5/thumbnails/4.jpg)
Disabled People Defined:Disabled People Defined:
12 Basic Rights to Independent Living:
• Full ACCESS to our environment• A fully accessible TRANSPORT system
• TECHNICAL AIDS/EQUIPMENT• Accessible / adapted HOUSING
• PERSONAL ASSISTANCE• Inclusive EDUCATION and TRAINING
• An adequate INCOME• Equal opportunities for EMPLOYMENT
• Appropriate and accessible INFORMATION• ADVOCACY (towards self advocacy)
• COUNSELLING• Appropriate and accessible HEALTH CARE provision
?13: Right to social life, relationships?
![Page 5: Ian Loynes Chief Executive, SCIL User Led Organisations : SCIL’s Journey & Learning Points 1984-2009: Celebrating 25 Years of Independent Living Promoting](https://reader036.vdocument.in/reader036/viewer/2022081516/56649ebc5503460f94bc53de/html5/thumbnails/5.jpg)
SCIL’s Range of Enabling ServicesSCIL’s Range of Enabling Services
Supporting the empowerment of Disabled People through:
• Advice and Information on Self-Directed Support• Peer Advocacy & Peer Mentoring• Personal Development & Participation
Promoting Disability Equality through:• Training & Consultancy• Consumer & Access Audits• Practice & Learning Opportunities
Most importantly: SCIL Campaigns for the rights of Disabled People and represents their views.
![Page 6: Ian Loynes Chief Executive, SCIL User Led Organisations : SCIL’s Journey & Learning Points 1984-2009: Celebrating 25 Years of Independent Living Promoting](https://reader036.vdocument.in/reader036/viewer/2022081516/56649ebc5503460f94bc53de/html5/thumbnails/6.jpg)
ULO’s Today:
• Finding it hard to survive – lack of Local Authority support and tendering rules
• Restrictions about what they are ‘allowed’ to do
• Whilst we argue that we should have a right to a place at the table, the reality is that there are many happy to deny that right
• BECAUSE IT IS ABOUT POWER
![Page 7: Ian Loynes Chief Executive, SCIL User Led Organisations : SCIL’s Journey & Learning Points 1984-2009: Celebrating 25 Years of Independent Living Promoting](https://reader036.vdocument.in/reader036/viewer/2022081516/56649ebc5503460f94bc53de/html5/thumbnails/7.jpg)
SCIL Challenges, Successes:
• Drowning in rhetoric, starving of practical support (crumbs from table!)
• Resources: NEVER had core funding
• Tendering rules grossly biased against small ULO’s: Highlight NCIL-ADASS Protocol
• Everything we have is down to refusal of Disabled People to give up
• Total Transformation (etc): Virtually none of these resources have gone to ULO’s
• Paradoxically, such adversity helps...
![Page 8: Ian Loynes Chief Executive, SCIL User Led Organisations : SCIL’s Journey & Learning Points 1984-2009: Celebrating 25 Years of Independent Living Promoting](https://reader036.vdocument.in/reader036/viewer/2022081516/56649ebc5503460f94bc53de/html5/thumbnails/8.jpg)
SCIL Challenges, Successes:• Developed best Direct Payments schemes in UK• Most pro-active CIL in UK• Respected by Disabled People and Government• By maintaining clear aims, values, quality• Only Disabled People control our agenda• Clear vision• Pragmatic: We say what is wrong; but will work with those
committed to improvements• Financial accountability• Strong focus on income generation• Personal Development and Empowerment work is critical in
feeding our sustainability: Obvious funding opportunity• Have little difficulty recruiting Disabled staff• Disabled People drive our constant innovation
![Page 9: Ian Loynes Chief Executive, SCIL User Led Organisations : SCIL’s Journey & Learning Points 1984-2009: Celebrating 25 Years of Independent Living Promoting](https://reader036.vdocument.in/reader036/viewer/2022081516/56649ebc5503460f94bc53de/html5/thumbnails/9.jpg)
Local Authorities cannot implement their Personalisation Agenda or their equality duties without effective ULO’s
•Keepers of Independent Living & Social Model Faith
•ULO’s at the forefront of every progressive social policy advance in last 25 yrs
•ULO’s have a critical role in enabling users to have an empowered voice – no-one else should speak for us
•ULO’s Must be Campaigners (not just service providers)
•ULO’s Must challenge policies (Local & National) which limit the inclusion of Disabled People
![Page 10: Ian Loynes Chief Executive, SCIL User Led Organisations : SCIL’s Journey & Learning Points 1984-2009: Celebrating 25 Years of Independent Living Promoting](https://reader036.vdocument.in/reader036/viewer/2022081516/56649ebc5503460f94bc53de/html5/thumbnails/10.jpg)
But how can ULO’s sustain themselves?
• Successful organisations are successful because they are different – high quality and high principles WILL show through
• MUST BE BASED ON CIL’S
• Must be more business like – what we have is valuable and unique, sell it (social enterprises)
• Must be enabled to provide a range of services that generate income
• Must work to empower Disabled People to develop their skills within ULO’s rather than expect them to just appear
• Thinking “Outside of the Box”….
![Page 11: Ian Loynes Chief Executive, SCIL User Led Organisations : SCIL’s Journey & Learning Points 1984-2009: Celebrating 25 Years of Independent Living Promoting](https://reader036.vdocument.in/reader036/viewer/2022081516/56649ebc5503460f94bc53de/html5/thumbnails/11.jpg)