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Impact of PACHE Outreach Research on
Advancing Cancer Health Equity
K. Viswanath, PhD, DFCI/HSPH
Adán Colon-Carmona, PhD, UMB
University of Massachusetts, Boston - Dana-Farber/Harvard Cancer Center
U54 Partnership to Reduce Cancer Health Disparities
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U54 Outreach Core Goals
• Dissemination and implementation of evidence-based strategies into
faith-based settings
• Building capacity within the faith-based community for program
sustainability
• Increasing knowledge and participation of racial and ethnic minorities
in biospecimens related research
• Leveraging research activities to inform intervention implementation
• Providing resources and support to U54 research projects
• Providing mentorship and training opportunities for students in
outreach research;
• Participating in NCI National Outreach Network (NON) activities
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4 Key Services and Activities
• Capacity-building in health ministries
• Capacity-building among students
• Biobanking capacity-building to address cancer
disparities
• Advising U54 researchers on recruitment and retention
and outreach research project planning
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Capacity Building in Health Ministries
• The Outreach Core has been working with 6 churches (3 Black and
3 Latino) to increase health ministries’ capacity to plan, implement
and evaluate health promotion activities
• Conducted needs assessment (n=312) which drove support for
existing prevention programs and raised participation and retention
in activities
• Health priorities included nutrition/physical activity, diabetes/obesity
prevention, breast cancer, prostate cancer and cervical cancer
• Provided training, technical assistance and mini-grants (30K) to
support delivery of evidence-based cancer prevention strategies
including screening, physical activity and health eating
• Conducted focus groups (n=4) with 27 members from the health
ministries
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Capacity-building among students
• 18 URM students participated in U54 Training Core Education Activities
– Workshops
– Education Day
– Summer Symposium
• 16 (out of 20) students prepared poster presentations for the U 54 Annual
Symposium as well as for national student–centered and professional
conferences with U54 support
• Several students went on to Graduate and Professional schools – Business (n=1)
– Social work (n=2)
– Public health (n=3)
• 5 students obtained jobs in public health and community health education
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Biobanking capacity-building to address cancer disparities
• In collaboration with the CDRN, the Outreach Core adapted NCI
Cancer 101 Biospecimens Education Module for use in Black and
Latino Communities
• 312 participants completed the training including church members,
CBOs and low-income housing sites
• Biobanking Curriculum evaluation
– Demographics
• 21% Latinos, 55% Black, 75% female
• 41% reported having high school education or less
• Mean age was 61
– Findings
• Training increased knowledge about biobanking and tissue donation
• Willingness to donate and trust in research increased significantly
from pre-test to 1-month follow-up
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Consultation and Support with U 54 Researchers
• The Outreach Core advised U54 researchers on:
– Recruitment and outreach plans
– Identifying potential community partners
– Obtaining Letters of Support
– Reviewing formative research plans
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Outreach Core Generated Resources
• Cancer 101 Biobanking and Biospecimens Education
Curriculum Evaluation Report
• Church-Based Needs Assessment Survey
• Logic Model
• Indicators and Metrics table
• Health Ministry Leader Survey
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What
is
known
What
is
done
The science of knowledge translation
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Community-based participatory research
• Creating social change by leveraging strengths and
resources of academic and community partners to
combine knowledge and action
• Population health and health disparities
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KEY PROCESS INPUTS
Institutionalized Participation
• Ongoing engagement • Formal agreements
Investment in Communities
• Human capital
• Social capital
• Resource-sharing
Knowledge Production and Transfer
INFRASTRUCTURE IMPACTS
Individual-level
• KT capacity
• KT activities
• Facilitators / constraints
Organization-level
•Network development
• Facilitators / constraints
• KT activities
Community-level
• Community capacity for KT
• Community mobilization
LONG-TERM OUTCOMES
COMMUNITY HEALTH
• Improved population health
• Reduced disparities
SYSTEM SUPPORTS
Organization-level
• Institutionalization of KT
• Sustained engagement / networks
Community-level:
• Action to improve health
Multiple cycles
Do
Study Act
Plan
The Participatory Knowledge Translation
Framework
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Investment in communities:
Examples from the field
Capacity-building workshops for practitioners
Network development
Sharing staff resources
Training local students as data collectors
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Knowledge production and transfer: Exemplar
products
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Connections among 38 MassCONECT Network Members, at Network Inception
and Year 4 Infrastructure development
Connections among 38 MassCONECT Network Members, at Inception and Year
4
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KEY PROCESS INPUTS
Institutionalized Participation
• Ongoing engagement • Formal agreements
Investment in Communities
• Human capital
• Social capital
• Resource-sharing
Knowledge Production and Transfer
INFRASTRUCTURE IMPACTS
Individual-level
• KT capacity
• KT activities
• Facilitators / constraints
Organization-level
•Network development
• Facilitators / constraints
• KT activities
Community-level
• Community capacity for KT
• Community mobilization
LONG-TERM OUTCOMES
COMMUNITY HEALTH
• Improved population health
• Reduced disparities
SYSTEM SUPPORTS
Organization-level
• Institutionalization of KT
• Sustained engagement / networks
Community-level:
• Action to improve health
Multiple cycles
Do
Study Act
Plan
Ramanadhan & Viswanath, in press
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A range of settings and modalities
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Acknowledgements
National Cancer Institute: PACHE: U54CA156732 and U54CA156734
Community Partners
Institutional Support: Dana-Farber Cancer Institute, U Mass Boston & Harvard
Chan
Grant Numbers: U54CA156732 and U54CA156734
Sponsor: NCI Partnership Website: www.umb.edu/u54 Grant Numbers: U54CA156732 and U54CA156734
Sponsor: NCI Partnership Website: www.umb.edu/u54