Improving Patient- and Family-Centered Care for Hospitalized Persons with Dementia: Partner with Me "

Cynthia Barton, RN, MSN Jennifer Merrilees, RN, PhD!

October 5, 2012!

Background"

•  Hospital stays for people with Alzheimer’s disease are more frequent, longer and more expensive (Alzheimers Assoc Facts and Figures, 2011)!

•  Hospitalization results in adverse outcomes due to atypical presentation, inability to adhere to therapy, difficulty reporting symptoms(Gill, 2004;Doraiwswamy, 2002, Mukadam, 2010, Sullivan-Marx, 1994)!

•  Nurses lack knowledge in acute setting (Nolan, 2006) and report being afraid to care for these patients (Eriksson and Saveman, 2002)!

Background"

•  Active role of family members reduces delirium and depression (Li, 2003)!

•  Implementation of specific interventions can reduce delirium, restraint use, depression and improve satisfaction with care and staff understanding (Inouye, 2000; Inouye, 2004; Li, 2003)!

Inspiration"•  Collaboration between inpatient and outpatient

advanced practice geriatric nurses working with cognitively impaired patients!

•  Outpatient!–  Decline in patients after hospitalization!–  New referrals after hospitalization!–  Caregiver distress with hospital experience!

•  Inpatient!–  Delirium superimposed on dementia!–  New revelation of cognitive deficits!–  Staff challenges in caring for this population ! !!

Opportunity"

•  Picker Foundation Always Events Funding!

•  The Always Event will be that patients with dementia and their families receive care that is targeted to the patient’s type and stage of dementia.!

•  Funding matched by the UCSF Department of Nursing!

Partner with Me"

•  Patient/family preparation!–  Educational video!–  Education packet!

•  Targeted Care!–  Focused screening assessment!–  Dementia specific careplan!

•  Staff training!–  Alzheimer’s Association Training!–  Volunteer Team!

Patient/Family Preparation:Video"

•  “Partnering with Family Caregivers – A Guide for Hospitalization When Your Loved One has Dementia”!

•  On hospital channel 24hrs/day!•  On UCSF MAC website (with ordering information)!•  Distribution to clinics and pre-operative service!!!

Video"

Video Clip"

Patient/Family Preparation: Information Packet"

–  Introductory letter!–  Hospitalization Happens & Hospital Hints (NIA)!–  Video!–  Schedule for family supervision!–  List of items to bring to hospital!–  Handouts about behavioral symptoms and caring for

someone with memory problems!–  Post hospital resources!

Targeted Care:Focused admission assessment"

•  Adapted from Nurses Improving Care for Health System Elders (NICHE) tool!

•  On admission by a trained volunteer with the family caregiver!

•  Questions specific to:!–  Communication !–  Functional abilities!–  Sleep and nighttime behaviors!–  Current strategies for managing behaviors!

Targeted Admission Assessment"

Targeted Care Plan"

Care Plan"

Staff Support:Training"

•  “Dementia-Friendly Hospitals: Care Not Crisis” curriculum by the Alzheimer’s Association!–  Developed by St. Louis Chapter in collaboration with

Washington University ADRC!–  Offered to staff on pilot units, volunteers!–  8 hour class!

•  Medical overview!•  Communication!•  Behavior!!

!

module 2 medical overview:

Recogni(on  and  Management  of  Hospitalized  Pa(ents  with  Cogni(ve  Impairment  

In In Partnership with:

Alzheimer’s Association, St. Louis Chapter Washington University Alzheimer’s Disease Research Center, St. Louis

Staff Support: Volunteer Team"

–  Recruited 13 volunteers!–  Classroom training (8 hours)!–  Competency Based Orientation (4 hours, 1:1 with

Project Coordinator) !–  Interview families and complete careplan!–  Provide diversion activities for patients and family/

caregiver support!–  Created a volunteer communication system!

Volunteer Team"

Results"

•  37 patients enrolled during pilot study!–  Average age 85, LOS = 5 days, 20 discharged to SNF!–  Twenty-four women, 40% Caucasian!

•  Evaluation tools:!–  Interview tool for families!– Web based ‘Survey Monkey’ for staff feedback!– Web based journal for volunteer updates and !feedback !

PWM Evaluation Results Family Caregivers"

•  Was the PWM project clearly explained to me: ! !79%!•  Was the individualized care plan helpful: ! ! ! !79%!•  How often did the hospital staff !!refer to care plan: ! ! ! ! ! ! ! ! ! !53%!

•  Did you view the DVD:! ! ! ! ! ! ! ! !26%!•  How much participation improves communication: !63%!•  How much did participation!!improve care: ! ! ! ! ! ! ! ! ! ! !63%!

•  Overall, how much did your !!family member benefit:! ! ! ! ! ! ! ! !63%!

•  Would you recommend this project: ! ! ! ! !68% !! !

Family Caregiver Comments"•  “Everything was good because my mother has a

tendency to wander and I believe it helped her a good amount especially to keep her safe”!

•  “I definitely feel it helped my mom, and was beneficial to her understanding of what was going on”!

•  “The staff and doctor’s were very caring and concerned with my grandmother’s health. We got well trained to help care for her; feeding, bathing, etc.”!

•  “Your project helps a lot of elderly people. Keep up the good work”!

Feedback from Nursing Staff(via Survey Monkey)"

•  Was the PWM project clearly ! explained to me:! ! ! ! ! ! !55%!•  How often did the hospital staff refer to !!care plan ! ! ! ! ! ! ! ! !88%!

•  How much participation improves !!communication: ! ! ! ! ! ! !75%!

•  How much did participation !!improve care:! ! ! ! ! ! ! !80%!

•  Overall, how much do you think the !!family members benefits: ! ! ! !86%!

•  Would you recommend this project: !81%! !

Comments by Nursing Staff"

•  “I think its great they are doing this. I am sure it means a lot to the families to just have some extra support”!

•  “Great program, lets continue and get the word out to staff about the project so that this project can be utilized better :)'thanks!”!

 !

Volunteer Comments"•  Even though the two patients were in somewhat different situations,

I was really blessed that I was able to meet them and be able to reach out to their families. What you said is really true, that small things does matter. !

•  Told the nurse that if she has any troubles interacting or communicating with Mrs MS, to bring a male nurse, which is a preference of Mrs. MS. !

•  More I’m involved in PWM, the more I think it was just the best thing that could have happen for volunteers like me with medicine in mind for career. Thank you for everything!!

•    According to daughter-in-law she loves to sing and pray, also likes to listen to gospel music played softly. Is very sensitive to medications, daughter-in-law thinks that this is why she sleeps so much. !

Dissemination"

•  Video/project shared with Alzheimer’s Association !

•  Video/project shared with other acute care hospitals via San Francisco City and County Dementia Task Force!

•  Expand to other patient care units!•  Explore partnership with local skilled nursing

facilities!

Shared Resources"

•  MAC website http://memory.ucsf.edu/caregiving/hospitalization !

•  Picker website (webinar)http://alwaysevents.pickerinstitute.org/?p=1402!–  Video !–  Patient packet (checklist, visitor schedule)!–  Admission Assessment!–  Care plan!–  Volunteer documents (training, schedule)!

Acknowledgements"

•  Picker Institute!•  UCSF Medical Center!•  Victoria Kleeman, Director of Volunteer Services

at UCSF!•  Alzheimers Association!•  Our volunteers!

Partner With Me