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in+care CampaignKick-Off Webinar

October 26, 2011

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Laura W. Cheever, MD, ScM

Chief Medical Officer,HAB Deputy Associate

Administrator

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Agenda

• Welcome & Introductions, 5min• Campaign Expectations and Update,

10min• Intro to Campaign Measures, 20min• Data Reporting, 10min• Local Quality Champions, 5min• Consumer Involvement, 5min• Q & A Session, 5min

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in+care Campaign Expectations & Update

Clemens Steinbock

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This in+care Campaign is designed to facilitate local, regional and state-level efforts to retain more HIV patients in care and to prevent HIV patients falling out of care while building and sustaining a community of learners among Ryan White providers.

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Campaign Framework• participation in the Campaign is voluntary

and Ryan White grantees across all funding streams and sub-grantees are invited to join

• participating agencies enroll for a 12-month commitment

• routine reporting of performance data on up to 4 uniform Campaign-related measures

• routine submission of a simple progress report to highlight improvement strategies and challenges

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Campaign Framework• monthly webinars provide content expertise and

promote peer sharing• routine retention journal clubs by renowned

researchers to review recent publications • participating agencies have access to coaches for

support• regional/local meetings of Campaign participants are

held with the help of Quality Champions, where possible

• content-specific affinity group webinars/Study Groups are conducted and facilitated by peer providers

• consumer are involved as partners in this Campaign

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in+care Participants by Zip Code (as per Oct 26, 2011)

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247 HIV providers representing

220 HIV programs in 133 cities and across 41 States/Territories

have joined the Campaign so far

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caring for 294,298 people living with HIV

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% of Grantees by Part Ryan White Funding (n=182)

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# of Programs by Caseload of Unduplicated Patients per Year (n=222)

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How Do You Rate the Agency’s Level of QI Experience? (n=215)

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To What Extent Has Your Agency Recently Engaged in Retention Activities? (n=215)

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Introduction to in+care Campaign Measures

Bruce Agins, MD, MPH

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Technical Working Group

• Chaired by Drs. Bruce Agins and Laura Cheever

• Comprised of distinguished experts in the field of retention, including clinical experts, researchers, national stakeholders and other strategic thinkers from the Ryan White and other health care communities

• Committee was charged to prioritize and suggest 4 retention measures to be used for this Campaign

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1) Gaps in Care

Definitions of terms as used in the numerators and denominators of this document:Patient – a patient of any age diagnosed with HIV/AIDSProvider – a health care professional who is licensed in their jurisdiction to

prescribe ARV therapy, i.e., MD, PA, or NPVisit – an outpatient/ambulatory medical visit with a health care professional

who is licensed in their jurisdiction to prescribe ARV therapyExclusion criteria:Patients who are documented to be deceased, incarcerated, moved away, or transferred care during the 12-month measurement period are to be excluded from measurement

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2) Visit Frequency

Definitions of terms as used in the numerators and denominators of this document:Patient – a patient of any age diagnosed with HIV/AIDSProvider – a health care professional who is licensed in their jurisdiction to

prescribe ARV therapy, i.e., MD, PA, or NPVisit – an outpatient/ambulatory medical visit with a health care professional

who is licensed in their jurisdiction to prescribe ARV therapyExclusion criteria:Patients who are documented to be deceased, incarcerated, moved away, or transferred care during the 12-month measurement period are to be excluded from measurement

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3) Patients New to Care

Definitions of terms as used in the numerators and denominators of this document:Patient – a patient of any age diagnosed with HIV/AIDSProvider – a health care professional who is licensed in their jurisdiction to

prescribe ARV therapy, i.e., MD, PA, or NPVisit – an outpatient/ambulatory medical visit with a health care professional

who is licensed in their jurisdiction to prescribe ARV therapyExclusion criteria:Patients who are documented to be deceased, incarcerated, moved away, or transferred care during the 12-month measurement period are to be excluded from measurement

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4) Viral Suppression

Definitions of terms as used in the numerators and denominators of this document:Patient – a patient of any age diagnosed with HIV/AIDSProvider – a health care professional who is licensed in their jurisdiction to

prescribe ARV therapy, i.e., MD, PA, or NPVisit – an outpatient/ambulatory medical visit with a health care professional

who is licensed in their jurisdiction to prescribe ARV therapyExclusion criteria:Patients who are documented to be deceased, incarcerated, moved away, or transferred care during the 12-month measurement period are to be excluded from measurement

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Campaign Measures

• Frequency of Visits (every 6 months)• Gaps in Care (no visit in the last 6

months)• Patients New to Medical Provider

(every 4 months)• Viral Suppression (last VL, <200

copies/ml, all pts in care)

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in+care CampaignData Reporting

Jane Caruso

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Campaign Database• Allows participating agencies to self-report

their performance data on this online application

• Individual agencies need to register to access the database

• Form a group of grantees, which would allow them to generate group reports, such as HIVQUAL regional groups, collaboratives, networks

• Immediate access • to individual scores trended over time• to regional/national benchmarking

reports• to reports based on common search

criteria• to group scores of established groupings

• Coaches have access to individual/groups scores to better assist participating agencies

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Registration

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Data Entry

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Data Entry

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Data Reporting

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• First Data Collection Submission Deadline: December 1, 2011

• Measurement Period: 10/01/2010 – 09/30/2011

• Access to in+care Campaign Database: incareCampaign.org

(‘+submit data’) • Testing of in+care Database:

till November 4, 2011 - data are deleted on 11/14

• Database Instructions: incareCampaign.org

Data Collection Details

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Progress Report FormA) What recent interventions have you tried to improve

retention rates? What measurable results, if any, did you have?

Focus on identifying those out of care; re-engaging individuals back into care; preventing those in care from falling out of care

B) What are the major recent barriers/challenges you are facing in achieving higher retention rates?

Focus on barriers your consumers have identified, challenges that your providers have identified; underlying system issues in your organization

C) What lessons did you learn that would be helpful to others? Focus on recent discoveries that made a vast difference to your retention efforts; tools, forms (please attach); observations from provider and consumers

D) What technical assistance needs to you have for NQC, HAB and our Campaign coaches?

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Local Quality Champions

Michael Hager

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Local Quality ChampionsCreate peer learning opportunities for HIV

providers1. Meet locally face-to-face/virtual to discuss

retention issuesTakes advantage of existing meeting structures and communities of learning, including HIVQUAL Regional Groups, cross-Part meetings, network meetings

2. Build regional peer exchanges with minimal input by Campaign coaches

3. Extend the reach and impact of the Campaign

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Quality Champions Wanted!

Responsibilities of Quality Champions:• Conduct at least 2 face-to-face meetings/calls• Reach out to local HIV providers; NQC will assist• Provide logistical support for these meetings• Facilitate the discussions and chair the meetings• Report activities back to Campaign staff

Sign-up to become a Quality Champions – incare@NationalQualityCenter.org

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Consumer Engagement in the in+care Campaign

Bob Tracy

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Promote awareness among consumers about the Campaign and how to improve health by being in care

Encourage self-care among consumers

Reaching out to consumers and step up as partners in quality improvement activities

Partners in+care

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Web Site. Resources. Announcements. Consumer Corner. Sign-up to be in+care partners.

Tools. in+care poster and brochure.

Training. Consumer webinar series for individuals and groups. Quality Academy.

Stories and Tips. People living with HIV sharing in+care stories and tips.

Consumer Engagement

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Time for Questions and Answers

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• Campaign Webinar: November 9, 2011 at 12pm ET

• Meet the Author – Dr. Edward Gardner: November 16, 2011 at 12pm ET

• First Data Collection Submission Deadline: December 1, 2011

Next Steps

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Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floorNew York, NY 10007Phone 212-417-4730incare@NationalQualityCenter.org

incarecampaign.orgyoutube.com/incarecampaign