including kids and teens with mental illness in the church and community
TRANSCRIPT
Stephen Grcevich, MD
Director of Strategic Initiatives, Key Ministry
Global Access Conference presented by Joni and Friends
Calvary Community Church, Westlake Village, CA
February 20, 2015
Including Kids and Teens With Mental Illness in the
Church & Community
See a different world…
Mental illnesses as “hidden disabilities”
A different paradigm for thinking about disability
Barriers to church/community inclusion?
Strategies for overcoming barriers
Next steps…
Most childhood disabilities are
“hidden disabilities”
Significant emotional, behavioral, developmental or neurologic conditions lacking outwardly apparent physical symptoms.
You can’t spot “hidden disabilities” in a still photograph.
Common “hidden disabilities”
ADHD
Anxiety Disorders
Attachment (RAD, Disinhibited Social Engagement) Disorders
Autism spectrum disorders
Bipolar Disorder
Depression
Disruptive Mood Dysregulation Disorder
Learning disorders
PTSD
Social pragmatic language disorder
Sensory processing disorder
How common is mental illness in U.S. kids?
22% identified with at least one mental disorder
11% have been treated with ADHD medication
8-12% of teens experience anxiety disorders
13% identified with developmental disorders
The majority of the 1 in 68 kids diagnosed with autism are of average/superior intelligence!
Carter, AS et al. J. Am Acad. Child Adolesc Psychiatry 2010;49(7): 686-698
Visser et al. J Am Acad. Child Adolesc Psychiatry 2014;53(1): 34-46
http://www.nimh.nih.gov/health/publications/anxiety-disorders-in-children-and-adolescents/index.shtml
Boulet, SL, Boyle CA, Schieve, LA. Arch Pediatr Adolesc Med. 2009;163(1):19-26.
http://www.cdc.gov/ncbddd/autism/data.html
Kids with mental illness are disabled in some, but not
all environments…
“It is our culture that disables.”
“When one is disabled, the problem is not really
that they have impairments and social skill
deficits. The issue at stake is that they live in an
‘ableist’ culture that rarely affords them the
space or opportunity to make their unique
contribution to society and does not lift up the
value of choosing them as friends.”
Ben Conner…Amplifying Our Witness (2012)
What are the barriers?
Church, school, community… Where does she fit in?
Social isolation
Social communication
Self-regulation capacity
Sensory processing
Stigma
Fear of being singled out
Parents with disabilities
Social isolation…
Church, school, community… Where does he fit in?
Difficulty making,
keeping friends
Fewer extracurricular
activities
Child care for “parent
nights out”
Social communication…
Church, school, community… Where does he fit in?
Are social skills
important at church?
The role of anxiety
Transitions between
age-grouped
ministries, activities
Emotional self-regulation…
Church, school, community… Where does he fit in?
Capacity to hide
observable aspects
of
behavior…executive
function
Why “structure”
helps
Sensory Processing…
Church, school, community… What they experience…
Common in ADHD,
anxiety, OCD, autism
More not always better
Transition times
difficult
Stigma…
Church, school, community…What then, is wrong with the
“mentally ill”? Their problem is
autogenic; it is in themselves…
Jay Adams Mental illness as sin, a
parenting problem
Cultural perception that
they’re not welcome at
church
Bullying worse for kids with
more subtle disabilities
If it’s not a disability, why
would disability ministry
serve them?
The fear of being singled out…
Church, school, community… Where does he fit in?
Desperate need to not be
different!
Kids, families FLEE
special education/special
needs
Parents with mental illness…
Church, school, community… Where do they fit in?
The apple doesn’t fall far
from the tree!
Parents who struggle
with executive
functioning?
Kids depend on parents
for transportation
Inconsistent attenders?
Solutions?
Mindset vs. program
“Go and tell” vs. “come and
see”
Serve their families
Key…personal relationships
Welcoming environments
Role for technology
Individualized discipleship
Online church?
Meet the Phillips Family…
Jennifer is raising Aidan (age 9) and Emma (age
6). Aiden was invited to your VBS by a school
friend and wants to come to church every Sunday
and Wednesday night.
Aidan takes medication for ADHD and receivers special
education services for dyslexia.
Emma struggles with separation anxiety
Jennifer has social anxiety disorder and agoraphobia
What barriers might they face in regularly attending
church?
Photo courtesy of freedigitalphotos.net
An inclusion exercise…
Obstacles to “doing church”…
Jennifer:
What might her initial fears about visiting be?
How many people does she need to speak with?
What if it’s crowded?
Is she expected to join a small group?
Emma:
What if kids are discouraged from entering the worship center?
What if she melts down at children’s ministry drop-off?
Aidan:
When might he experience challenges with self-control?
Will any activity embarrass him?
How might his needs differ on Wednesday night?
Takeaway points…
Kids with mental illness and their families represent disability ministry’s greatest outreach opportunity.
A mindset…not a program
Focus on overcoming barriers to social connection, communication
Design environments that promote self-regulation, minimize anxiety
No church/school/organization can do everything, but every church can do something!
Key Ministry provides knowledge,
innovation and experience to the
worldwide church as it ministers to
and with families of children
impacted by mental illness, trauma
and developmental disabilities.
What Does Key Ministry Do?
Stay in Touch!
Key Ministry Website: http://www.keyministry.org
Church4EveryChild…Key Ministry Blog: http://www.church4everychild.org
Key Training Channel/Front Door Online Church Platform: http://www.keyministry.tv
www
http://www.facebook.com/keyministry
http://www.pinterest.com/keyministry/
http://twitter.com/#!/drgrcevich
http://twitter.com/#!/KeyMinistry
Additional Resources:
Resource page on ADHD and spiritual development (includes video from Dr. Russ
Barkley) http://drgrcevich.wordpress.com/teaching-series-adhd-and-spiritual-
development/
Resource page on anxiety and spiritual development
http://drgrcevich.wordpress.com/resource-page-anxiety-and-spiritual-development/
Resource page on Asperger’s Disorder and spiritual development (includes video of
2012 Children’s Ministry Web Summit presentation)
http://drgrcevich.wordpress.com/resource-page-anxiety-and-spiritual-development/
Resource page on Pediatric Bipolar Disorder (includes link to 2010 Grand Rounds
presentation at Children’s Hospital Medical Center of Akron)
http://drgrcevich.wordpress.com/pediatric-bipolar-disorder-a-guide-for-childrens-and-
youth-pastors-and-volunteers/
The Mission Field Next Door (2011 Inclusion Fusion presentation with Katie
Wetherbee) http://youtu.be/PshzmYircCo