Inclusion of people with disability due to leprosy in

C B R & Vice Versa

AIFO CBR EXPERIENCES AND SCOPE

Main focus of AIFO• Inclusive -sustainable development of

marginalised -leprosy -disability - vulnerable children

• To create a long-term positive impact on the lives these persons

• To enable them to become productive members of the society.

A paradigm shift from

- charity to rights mode- compassion to opportunity

paradigm shift

SHG - exclusion into inclusion

- rehabilitation to development.

CBR is a process of change

Changing the attitudes of:

- service providers - persons with disability

-their family members -the community.

Who has to change ?

CBR• CBR suppose to include all the persons with

disability • But in practice, excludes certain categories of

disabled persons owing to various reasons. • Persons affected by leprosy are one such

group who are not included in most of the CBR projects .

Inclusion of people with disability due to leprosy in C B R programme

• The complexity of CBR –it is multi-disciplinary

• To provide assistance , improve the quality of life

• Ideal for leprosy rehabilitation too.

CBR and AIFO• All the SET projects supported by AIFO included

rehabilitation activities. • Results -did not bring desired change in the lives of

the people affected by leprosy. • In 1992 AIFO initiated CBR concept to all our

partners . • Today all the projects view rehabilitation from rights

based approach. • Leprosy and CBR orientation for all personal in the

projects is a priority.

Result • NGOs/projects are working for all kinds of

disability.• DPOs and SHGs included persons with disability

due to leprosy as equal members.• CBR workers collaborating with health

departments . • Leprosy colonies are facilitated for integrated

development.

•

SHG & DPOIt is a movement for the life with • equal respect, • dignity • with equal rights for an independent living.

SHG• Entry point , • Have power & information

MANDYA LEPROSY- CBR

• In Mandya district, Modified-MDT began in 1992. • 1997 initiated a pilot leprosy and CBR integrated

project and extended to whole district.• MOB RHC, SET NGO adapted CBR (GHS)• SRMAB, CBR NGO included leprosy affected.• population of nearly 1.8 million.• 21152 persons (472 are grade II ) with disability

directly benefit.

Combined efforts of people with disabilities their families, organizations in the

community SHGs, DPOs other organisations government and non-government

agencies

Net work

• Network of all self-help organizations of disabled persons established.

• Partnership with concerned Govt. & NGO– exchange of information– Optimum use of facilities– effective advocacy

Indiranagar colony

• The colony is situated on the outskirts of Ranchi town in Jharkhand.

• 150 families with 435 people, • Focussed on education of their children along

with developmental activities.• To bring about a positive change in the

colony.

• 1994 AIFO supported the activities in the colony.• Children went with the elders for begging. • The schools to admit the children from the colony. • Result

- children are accepted by other schools for higher education and they are faring better.

100% Child Literacy in a colony

Combined effort

- Community Members– Community leaders, – Religious leaders – Volunteers – Local NGOs– Government departments

•

• Medical care (ulcer dressing), housing, common well and roads provided by NGOs.

• Drinking water and electricity by concerned govt. departments.

• Formation of SHGs, women’s groups • Vocational training for the youth for gainful

employment has enhanced economical condition. • At present only few elderly persons with disability go

for begging.

Over the period many changes • no more identified as a colony. • In many respects it is better developed,

comparing to nearby villages.

Can we, the leprosy organisations rehabilitate all the persons de-habilitated due to leprosy??

Challenges • To ensure all the agencies providing

rehabilitation services to include persons affected by leprosy.

• To make them realise that it is their responsibility to include leprosy affected persons

Challenges • To include other persons with disability in to

leprosy programmes.• To build trust & mutual confidence among

members • To realize the benefits of co-operative

enterprises. To work together in groups for a common

enterprise.

Challenges

• To ensure the marginalized do not become the marginalized.

• To ensure the proper use of the government schemes.

• To avoid unhealthy competitions among service providers (especially NGOs).

TRASPARENCY

TRUST ACCOUTABILITY

CHHALLENGES

“We will not be able to do everything, but we can do something”

Jose Manikkathan Varghese.AIFO, RepresentativeIndia / Bangladesh Amici di Raoul Follereau

No. 58, 4th Cross, Kavery Layout Bangalore, India – 560029

aifo@airtelmail.in www.aifo.org