Thursday, March 28 – Saturday, March 30, 2019

Fashion Island Hotel Newport Beach690 Newport Center Dr, Newport Beach, CA 92660

We look forward to seeing you this spring.

INFORMATION SHEET

C Y S T I N O S I S R E S E A R C H F O U N D A T I O N F A M I L Y C O N F E R E N C E

FASHION ISLAND HOTEL INFORMATION LOCATED IN NEWPORT BEACH50 miles south of Los Angeles

85 miles north of San Diego

CLIMATE (March)• Average high: 64 degrees

• Average low: 58 degrees

• Mostly dry

DISTANCE FROM AIRPORTS• John Wayne Airport (SNA)

5 miles | 10 minutes

• Long Beach Airport (LBG) 24 miles | 30 minutes

• Los Angeles International Airport (LAX) 45 miles | 60 minutes

• San Diego International Airport (SAN) 85 miles | 90 minutes

DIRECTIONS• FROM THE NORTH

- Take the 405 South to the MacArthur exit

- Take the MacArthur exit south to Santa Rosa Dr

- Continue onto Newport Center Dr

• FROM THE SOUTH

- Take the 405 North to the MacArthur exit

- Head south on MacArthur to Santa Rosa Dr

- Continue onto Newport Center Dr

TRANSPORTATIONRENTAL CARS• AVIS

(888) 583-6369 www.avis.com

• BUDGET (800) 218-7992 www.budget.com

• ENTERPRISE (855) 266-9289 www.enterprise.com

• HERTZ (800) 654-3131 www.hertz.com/rentacar/reservations

SHUTTLE SERVICE• SUPERSHUTTLE

1-800-BLUE-VAN (800-258-3826) www.supershuttle.com

Please take advantage of our ‘company’ discount by utilizing the following details:

- COMPANY — CYSTINOSIS

- DISCOUNT CODE — DFLNB

• PRIME TIME SHUTTLE 1-800-RED-VANS (800-733-8267) www.primetimeshuttle.com

TAXI• JWA YELLOW CAB

(949) 999-8294

DISNEY CALIFORNIA ADVENTURE PARK1313 S. Harbor Boulevard, Anaheim, CA (714) 781-4636 www.disneyland.disney.go.com/destinations/ disney-california-adventure/Welcome to a world where the stories of Disney, Pixar and beyond come to life — to a place beloved Characters from Cars and Super Heroes like Spider-Man & Captain America call home. At Disney California Adventure Park, you’re invited to explore 7 exciting lands with timeless entertainment showcases like World of Color, seasonal celebrations and transformations throughout the year.

DISCOVERY CUBE’S OCEAN QUEST NEWPORT BEACH600 E Bay Ave, Newport Beach, CA (714) 542-2823 www.oceanquestoc.orgOcean Quest’s Science of Sailing showcase integrates ship models with artifacts and connects them to science concepts and hands-on activities. Areas of focus include the science of simple machines and how they incorporate design, navigation and communication. Along the way, visitors will be introduced to the unique and historic elements related to the nautical history of the Newport Harbor.

IRVINE PARK RAILROAD 1 Irvine Park Road, Irvine, CA (714) 997-3968 www.irvineparkrailroad.com Irvine Park Railroad, founded in April 1996, is a one-third scale train that takes both children and adults on a scenic ride through historic Irvine Regional Park. Enjoy the park’s many other activities, including the Orange County Zoo, paddleboat and bike rentals, pony rides, hiking trails and more.

KNOTT’S BERRY FARM 8039 Beach Boulevard, Buena Park, CA (714) 220-5200 www.knotts.com From the atmosphere of the park’s four themed areas to the heart-pounding thrills of the speeding coasters and never ending fun of the award-winning entertainment and unique seasonal events, Knott’s Berry Farm will entertain and amaze the entire family all year long.

TURTLE ROCK NATURE CENTER1 Sunnyhill, Irvine, CA (949) 724-6738 www.cityofirvine.org/parks-facilities/turtle-rock-nature-center Visitors can explore the Nature Center at their leisure and then take a self-guided trail walk. Winding through the nature preserve is a paved trail which displays native Southern Californian habitats, including Riparian, Desert and Woodlands. Frequent visitors to our nature preserve trail include local birds who enjoy swimming in our pond, lizards who bask in the sun on our rocks and rabbits who disappear into the desert brush.

BALBOA PAVILION & FUN ZONE 600 E. Bay Avenue, Newport Beach, CA www.thebalboafunzone.com Since 1936, the Fun Zone at Balboa Village has been providing affordable entertainment for all ages. With no admission costs, you can stroll the bayside boardwalk and play as you like. Take a long, relaxing ride on our Ferris Wheel, which offers fantastic views of the Newport Harbor and Pacific Ocean. Enjoy a narrated harbor cruise and get the inside information on who’s who in the million dollar waterfront homes. You’ll also get a chance to see the harbor’s most playful denizen, the sea lion. Harbor cruises take you right up close and personal at the harbor buoys. Get a little braver and try the bayside bungee jump on the boardwalk, climb a palm tree or ride the giant Happy Swing. Be a kid again in the Arcade & Game room or go whale watching on the Pacific. There are also plenty of shops and restaurants, including the best BBQ around and, of course, Ruby’s Diner at the end of the pier.

BOOMERS 3405 Michelson Drive, Irvine, CA (949) 559-8341 www.boomersparks.com/irvine The best family fun value in Irvine. Indoor attractions include Laser Tag and the Arcade. Outdoor fun can be had at Miniature Golf, Go Karts, the Batting Cages or Bumper Boats. Don’t forget to visit King Arthur’s Carnival with perfectly sized rides for smaller kids.

BOWERS MUSEUM OF CULTURAL ART 2002 N. Main Street, Santa Ana, CA (714) 567-3600 www.bowers.org Discover new worlds in their renowned permanent and visiting exhibitions. Enrich your Bowers experience with a docent-led tour, enjoy a distinguished lecture or film, lunch at the award-winning Tangata Restaurant and browse the rare and exotic at the Gallery Store. There is always something new and something for everyone at the Bowers Museum.

INTERNATIONAL SURFING MUSEUM 411 Olive Avenue, Huntington Beach, CA (714) 465-4350 www.surfingmuseum.org Huntington Beach International Surfing Museum was founded several decades ago by a woman who’s never surfed. Natalie Kotsch recognized an incredible beach vibe and welcoming spirit in Huntington Beach. Thanks to her efforts, many of the great surfboards and local history have an opportunity to be preserved in a huge, cataloged collection that rotates in the museum.

DISNEYLAND PARK 1313 S. Harbor Boulevard, Anaheim, CA (714) 781-4636 www.disneyland.disney.go.com Enter a magical kingdom where you can sail with pirates, explore exotic jungles, meet fairy-tale princesses, dive under the ocean and rocket through the stars! Disneyland Park is a beloved Southern California destination where generations of families have made their Disney dreams come true. Walt Disney’s original Disneyland theme park, which first opened on July 17, 1955, is now divided into 8 extravagantly themed lands: Main Street, U.S.A., Tomorrowland, Fantasyland, Mickey’s Toontown, Frontierland, Critter Country, New Orleans Square and Adventureland.

FAMILY FUN IN ORANGE COUNTY

FAMILY FUN IN SAN DIEGO

LEGOLANDOne Legoland Drive, Carlsbad, CA (877) 376-5346 www.legoland.com/california

See website for admission and operating hours.

SAN DIEGO ZOO 2920 Zoo Drive, San Diego, CA (619) 231-1515 zoo.sandiegozoo.org

See website for admission and operating hours.

SEAWORLD 500 SeaWorld Drive, San Diego, CA (800) 257-4268 seaworld.com/san-diego

See website for admission and operating hours.

SAFARI PARK15500 San Pasqual Valley Road, Escondido, CA (760) 747-8702 www.sdzsafaripark.org

See website for admission and operating hours.

SHOPPING IN ORANGE COUNTY

FASHION ISLAND (short walk)401 Newport Center Drive, Newport Beach, CA (949) 721-2000 or (855) 658-8527 www.shopfashionisland.com

Fashion Island is Orange County’s premier coastal shopping destination, offering a unique blend of luxury, designer and fashion specialty boutiques — including Neiman Marcus, Nordstrom, Bloomingdale’s, Bloomingdale’s Home Store, Macy’s — and a vast array of fine and al fresco dining. With the Pacific Ocean as a shimmering backdrop, Fashion Island offers a sophisticated yet relaxed, open-air shopping and dining experience — the very essence of Southern California.

SOUTH COAST PLAZA (6 miles) 3333 Bristol Street, Costa Mesa, CA (800) 782-8888 www.southcoastplaza.com

South Coast Plaza defines the luxury shopping experience with extraordinary boutiques, personal shopping services and upscale amenities all within a short distance of the world’s most magnificent beaches and vacation resorts. South Coast Plaza is recognized internationally for its unparalleled retail collection and award-winning restaurants.

WHOLE FOODS MARKET (.5 miles) 415 Newport Center Drive, Newport Beach, CA (949) 999-8572

BRISTOL FARMS (1.3 miles) 810 Avocado Avenue, Newport Beach, CA (949) 760-6514

GELSON’S (1.5 miles) 1660 San Miguel Drive, Newport Beach, CA (949) 644-8660

RALPH’S GROCERY STORE (2 miles)2555 Eastbluff Drive, Newport Beach, CA (949) 644-2060

TARGET (4.4 miles) 4255 Campus Drive, Irvine, CA (949) 988-6230