information therapy:a must, not just a nice to have 2 june 2015 @markduman
TRANSCRIPT
Information Therapy:a must, not just a nice to have
2 June 2015
@MarkDuman
Topics
• Understanding what is meant by information for patients
• Personalising the experience of information provision
• Integrating information provision into healthcare delivery
• The need for culture change to make "information therapy“ a reality.
InformationTypes
Types of information
1. Wellbeing & Lifestyle – diet, activity, etc
2. General Clinical – diagnosis, prognosis, treatment, etc
3. Information to facilitate evidence-based Patient Choice
4. Access/ Service – directions, waiting times, support, benefits, quality
Government Portals
Enlarged Prostate For the following questions, please mark your views on the scalebelow each question. There are no correct (or incorrect) answers.
Q. How important is it to you to retain your ability to have erections?A. 1 2 3 4 5not important very importantat all
Q. How important is it to you to avoid wearing pads to deal with leaking urine?A. 1 2 3 4 5not important very importantat all
Q. How important is it to you to avoid problems with the bowel?A. 1 2 3 4 5not important very importantat all
Shared Decision Making
Self Management /Structured Patient Education
Technology
Board Game
• Action Zone! is a board game about epilepsy and the brain created for children aged 5 years and above.
• It enables them to learn more about epilepsy and to understand that children with epilepsy can do many of the things that other children can do
• Players win tokens by answering the questions correctly as they move closer to the Brain. The winner is the person with the most tokens.
“People”
Key Points: Information as a Therapy
• Quality product(s)
• One size does not fit all – Tailor information
• Elicit behaviour change/ action
• Train staff it’s “Education”
• Consider Design
• Evaluate Impact
Making itPersonal
“We see things as we are, not as they are” *
*Talmud Berachot 55b
Person Patient Condition Treatment ‘X’
‘Soft/ Social’ ‘Hard/ Medical’
Person/ Society
‘Professional/ System’
Medicine/Drug
Poison
Pharmako (φάρμακο)
[Image removed]
‘A Personalised Health Service’
Past Medical History
Current Medication
Ethnicity/ Communication
Preferences
Health Literacy
Medicines Beliefs
Health Beliefs
“A poison”“A miracle cure”
Motivation
Beyond Health
Patient Activation
KPMG
‘Activated' Patients Lower Costs
Users
Individuals
www.kingsfund.org.uk/publications/supporting-people-manage-their-health, May 2014
Integrating patient information into
healthcare delivery
“Map of Medicine”
Information Prescriptions
Care Planning
CultureChange
1. Clinicians
Despite concerted efforts to tackle the “effectiveness of consultations between patients and clinicians,” the biggest problem is the “reluctance of clinical staff to provide active support for patient engagement.”
RCGP, Sep 11
26
“Patients will need better information if they are going to improve
their lifestyle, manage their disease, and participate in complex
decisions about treatment.
Better health-literacy education in schools will help, as will better-
written health materials and well-trained educators for patients.
But a great deal could be accomplished if doctors and other health
professionals took time, at the end of each consultation, to make
sure the patient had understood the key points discussed, and
that they felt free to ask questions.”
Taking health literacy seriously. The Lancet 2005; 366:95
2. Payors/ Purchasers
Information: first line Rx
3. Public - Increase Expectations
Manager Patients/ Public
HealthSystem
Care Plan: Getting from A to…?
1 million patients in the UK 2013 Doctor-Patient Survey
64% of them said they were as “involved in healthcare as they wanted to be”
But only 3% had a care plan
In summary…
Problem Solution
Think EXPERIENCE, not process
Thank you