Interacting with People with an Intellectual and Developmental Disability (ID/DD)

Presented by: APS HealthcareSouthwestern PA Health Care Quality Unit (APS HCQU)

April 2011 cjp

© 2009 APS Healthcare, Inc. 2

Disclaimer

Information or education provided by the HCQU is not intended to replace medical advice from the consumer’s personal care physician, existing facility policy or federal, state and local regulations/codes within the agency jurisdiction. The information provided is not all inclusive of the topic presented.

Certificates for training hours will only be awarded to those who attend a training in its entirety. Attendees are responsible for submitting paperwork to their respective agencies.

© 2009 APS Healthcare, Inc. 3

Note of Clarification

While mental retardation (MR) is still recognized as a clinical diagnosis, in an effort to support the work of self-advocates, the APS SW PA HCQU will be using the terms intellectual and/or developmental disability (ID/DD) to replace mental retardation (MR) when feasible.

© 2009 APS Healthcare, Inc. 4

Objectives

Learn tips for communicating with individuals with an Intellectual and Developmental Disability (ID/DD).

Connect with personal feelings regarding people

with ID/DD and learn how these feelings may influence interactions with this population.

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Definition of Intellectual Disability

Disability characterized by significant limitations both in intellectual functioning and adaptive behavior as expressed in adaptive skills in these areas:

» Conceptual

» Social

» Practical

Originates before age 18.

American Association on Intellectual and Developmental Disabilities

© 2009 APS Healthcare, Inc. 6

Diagnostic Criteria

Sub-average intellectual functioning (IQ <70)

Impairment in at least two areas of adaptive functioning– Skills that people possess so they can function in their

everyday lives

Onset before age 18, and before 22nd birthday in the state of PA

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Historical Treatment of People with ID/DD

Separated from the rest of society

Institutionalization

Social reform issue

Provided the opportunity to live in the community

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ID/DD: Terminology

Intellectual and Developmental Disability (ID/DD)

versus

Mental Retardation (MR)

“Words Do Matter”

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Myths About People with Intellectual Disability…

The eternal child

Cannot learn

Need to be protected

Want to be fixed

Do not require relationships

Are not capable of living meaningful lives

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Challenging Behaviors

Form of communication

Research has shown that 75% of the time, when a challenging behavior is present in a person with ID/DD, there is an untreated medical problem.

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Systems of Support: Living Arrangements

At home with family

Lifesharing with someone not related to them

Independently with supports

Community homes

Intermediate Care Facilities (ICFs)

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People First Language

Recognize the person first - before his or her disability

Realize that words have the power to inspire or hurt people

ACTIVITY:

DESCRIBE YOURSELF

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Examples of People First Language

SAY DO NOT SAY

Person with a disability Disabled, handicapped

He has Down SyndromeHe’s a Down’s boy,

or the Down’s boy

He uses a wheelchair Confined to a wheelchair

Person with a physical disability

Crippled person,

quadriplegic

© 2009 APS Healthcare, Inc. 15

Positive Approaches

Positive Approaches is a worldview, a movement, in which all individuals are treated with dignity and respect.

Positive Approaches invites us to work in collaboration and in a spirit of openness, honesty and equality.

© 2009 APS Healthcare, Inc. 16

Communication Considerations

Speak directly to the person

Explain in simple terms– Avoid complex and abstract

terms or concepts

18 second rule– Listen– Give 18 seconds for person

to answer

Repetition / Consistency

Communication partners

Adaptive communication– Sign Language /

Communication Technology

Always use People First Language

© 2009 APS Healthcare, Inc. 17

Interactions With People Who Use Wheelchairs

Speak to person directly

Talk normally

Look beyond the chair

SCENARIOS FOR DISCUSSION

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What A Person With ID/DD Wants You To Know

They are people like everyone else.

They deserve respect.

They have feelings, hopes, and dreams.

They feel pain.

They can learn new things.

They enjoy meeting others.

© 2009 APS Healthcare, Inc. 20

References

Caring for People with I-DD: An Introduction, (January, 2010), APS Healthcare SWPA HCQU Power Point.. Retrieved, May 2011.

Communication at the Bedside, (August 2010), APS Healthcare SWPA HCQU Power Point. Retrieved April, 2011.

Emergency Department: Caring for Patients with ID/DD (Clinical), (April, 2011), SWPA HCQU Power Point. Retrieved April, 2011.

ID/DD Overview. (March 2010), APS Healthcare SWPA HCQU Power Point. Retrieved May, 2011.

Understanding the Needs of People with ID/DD in Your Workplace, (October 2010), APS Healthcare SWPA HCQU Power Point. Retrieved May, 2011.

© 2009 APS Healthcare, Inc. 21

To register for future trainings,

or

for more information on this or any other physical or behavioral health topic, please visit our website at

www.hcqu.apshealthcare.com

© 2009 APS Healthcare, Inc. 22

Evaluation

Please take a few moments to complete the evaluation form found in the back of your packets.

Thank You!