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Intercontinental Summit on Human Gene Editing & Human Genetic Engineering and Seventh Joint American University of Sovereign Nations (AUSN) - Chulalongkorn

University Intensive Bioethics Workshop, 30 January-2 February 2019 Draft Agenda1

Wednesday, 30 January 2019

Intercontinental Summit on Human Gene Editing & Human Genetic Engineering Room 708, Boromratchakumari Building, Faculty of Arts, Chulalongkorn University

9:00-12:00 Session 1: Science, Ethics and Law on Human Gene Editing Welcome Words

Prof. Soraj Hongladarom, Professor and Director, Center for Ethics of Science and Technology, Chulalongkorn University, Thailand; AUSN Visiting Professor of Ethics of S&T and Philosophy

Self-Introductions of all Participants International Approaches to Regulation of Human Genetic Modification

Prof. Darryl Macer, President, AUSN, USA/New Zealand; Founding Member, UNESCO International Bioethics Committee; Former UNESCO Regional Adviser; Former, Human Genome Organization Ethics Committee

The Science of Human Gene Editing; Lessons from Human Gene Therapy to treat Thalessemia Prof. Suradej Hongeng, MD, Professor of Pediatrics, Chief of Hematology Oncology, Department of Pediatrics, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Bangkok, Thailand

Addressing Ethical, Legal and Social issues (ELSI) of Advanced Science and Technology in Thailand Prof. Somsak Chunharas, Chair, Thai National Committee on Ethics of Science; Former member UNESCO World Commission on Ethics of Science and Technology (COMEST); Former, Deputy Minister of Public Health of Thailand

Playing God with human lives Prof. John Weckert, Professor Emeritus, Charles Sturt University, Sydney, Australia; AUSN Visiting Professor of Applied Ethics and Ethics of Science & Technology

Lunch together 13:00-18:00 Session 2: Global Perspectives on Human Gene Editing Reflections on Gene Editing and Transhumanism

Prof. Nilza Maria Diniz, University of Londrina, Brazil; AUSN Visiting Professor of Genetics and Bioethics

Buddhist Perspective upon Disease and Human Gene Editing Prof. Chutatip Umavijani, Thammasat University; AUSN Professor of Philosophy & Humanities;

Human Gene Editing and Genetic Disease from a Bangladesh context Dr. Md. Saiful Islam, Directorate General of Health Sciences, Bangladesh

The ART of Birthing Life in Integrity: From Bioethics to Politics with Assisted Reproductive Technologies Prof. Deborah Kala Perkins, Loyola Marymount University, Graduate Theological Union, USA

Legal concerns in gene editing: compliance with religious, cultural and social norms and values; does the law has any chance at all in a world of overflowing new technologies? 1 Agenda as of 23 January.

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Prof. Tamar Gidron, Law School College of Mnagement, Rishon LeZion, Law School, The Academic College, Zefat; Head of the Zefat Center for Bioethics, Israel; Chairperson of Zefat Unit of the UNESCO Chair of Bioethics Haifa

Ethics and Science in Dialogue on Gene Editing: The Framing of a European & International Conversation

Dr. Francis P. Crawley, Coordinator, European Fellowship in Research Ethics (EFRE), Executive Director, Good Clinical Practice Alliance - Europe (GCPA), Strategic Initiative for Developing Capacity in Ethical Review (SIDCER), Brussels/Leuven, Belgium

Bioethics and Human Gene Editing & Human Genetic Engineering Prof. Siti Pariani and Nuzulul Azizah Ramdan Wulandari, Chairperson of Indonesia Unit of the UNESCO Chair of Bioethics Haifa

Perspectives on Genetic Services and Ethics Ms. Sareh Bagherichimeh, Youth Peace Ambassador, Toronto, Canada

Ethics of Gene Editing Prof. Marlon Lofredo, AUSN Visiting Professor of Bioethics, Public Policy, and Environmental Ethics; St. Paul's University, Quezon City, the Philippines

Ethical Issues of Human Genetic Engineering Prof. Soraj Hongladarom, Professor and Director, Center for Ethics of Science and Technology, Chulalongkorn University, Thailand; AUSN Visiting Professor of Ethics of S&T and Philosophy

Discussion and Statement Chair: Darryl Macer

Seventh Joint American University of Sovereign Nations (AUSN) - Chulalongkorn University Intensive Bioethics Workshop

Thursday 31 January Room 706, Boromratchakumari Building, Faculty of Arts, Chulalongkorn University

9:00-12:00 Session 3: Bioethics across Cultures How to Apply Bioethics Across Cultures on Issues of Global Impact

Prof. Darryl Macer, President, American University of Sovereign Nations, Professor of Bioethics and Biomedicine, USA/New Zealand; Former UNESCO Regional Adviser

Medical Genetics, Gene Editing and Ethics Dr. Prasit Phowthongkum, Faculty of Medicine, Chulalongkorn University, Thailand

Tourism for Peace Mr. Dibakar Babu Bhattarai, Kathmandu, Nepal

Promotion of Tourism Year in Nepal 2020 Mr. Ganesh Kumar Mall and Mr. Bishnu Bhattarai, Kathmandu, Nepal

Ethics of Science and Technology Prof. Soraj Hongladarom, Professor and Director, Center for Ethics of Science and Technology, Chulalongkorn University, Thailand; AUSN Visiting Professor of Ethics of S&T and Philosophy

Lunch Cultural excursion and visit to Campus Museums 15:00 – 18:00 Session 4: Interdisciplinary Bioethics and Traditional Wisdom The Power of Life: Ethics and the Seven Universal Truths

Prof. Ananya Tritipthumrongchok, Vice-President of the Asian Bioethics Association, Thailand; AUSN Professor of Fortune Telling and Leadership Development

Ethics of Aeta Traditional Healers in the Philippines Prof. Angelica M Baylon, MAAP External Relations Director, the Philippines; AUSN Visiting Professor in Chemistry, Maritime Science and Community Studies

Policy and Case Reports from Health Services in Bangladesh

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Dr. Faisal, Directorate General of Health Sciences, Bangladesh

Friday 1 February Room 706, Boromratchakumari Building, Faculty of Arts, Chulalongkorn University

9:00-12:00 Session 5: Application of Human Dignity and Justice Foundations and Essence of Bioethics as Love of Life

Prof. Darryl Macer, President, American University of Sovereign Nations, Professor of Bioethics and Biomedicine, USA/New Zealand; Former UNESCO Regional Adviser

Developing an indigenous ethics: On Recognition and Social Justice Rogelio P. Bayod, Director of Student Services of Cor Jesu College, Digos City

Practical Ethics and the Principle of Merit: Implications to Disability Rights Christopher Ryan Maboloc, Ateneo de Davao University, Philippines

Health education for Rural Areas in Nepal Ms. Nima Chhikee Sherpa, Staff nurse, Kathmandu, Nepal

Importance of education in Chepang society, Dhading district, Nepal Mr. Mahesh Pandey, Kathmandu, Nepal

Forever gone but not forgotten: An ethical intervention program for beareved parents Prof. Reynilda Salandanan, PhD, Dean, College of Arts, Sciences and Education; Maselan Menor, PhD, Chair, Education and languages department; Angeline Anastacio, RN, Chair, Community Development and Advocacy Center, and Chair, Nursing department, St. Paul University Quezon City, Philippines

Signing of a Renewal Memonrandum of Understanding between AUSN and SPUQC Lunch 13:00 – 15:00 Session 6: The Rule of Experts: The Bioethical implications of Disciplinary Science

Dr. Daniel Mishori, Department of Environmental Studies, Porter School of the Environment and Earth Sciences, Faculty of Exact Sciences, Tel Aviv University, Israel

Tea Break 15:20 – 17:30 Session 7: Ethics of Information and Knowledge Ethics and Public Health in a Bangladesh context (MBGPH defense)

Dr. Md. Saiful Islam, Directorate General of Health Sciences, Bangladesh Ethical Information Foresights: A Journey Across Uncharted Conflictology

Manuel Lozano Rodríguez, Spain Information Ethics

Prof. John Weckert, Professor Emeritus, Charles Sturt University, Sydney, Australia; AUSN Visiting Professor of Applied Ethics and Ethics of Science and Technology

Saturday, 2 February 2019

Room 214, Sasa International House, Chulalongkorn University 9:00-12:00 Session 8: Ethics and the Environment and Ocean Maritime – Love For Life: Comparative study on the behavior and perspectives in life of different seafarers before and after boarding the vessel

Keith Aiken M. Pajarillo, MAAP, the Philippines Effects of working with the LGBT community on working ethics onboard a Ship

Aldrin M. Ulep, MAAP, the Philippines Ethical Challenges of Medical Assistance at Sea

CEO Angelo D. Fajardo, MAAP, the Philippines Filipino Awareness in Choosing Treatment for Depression

Christian Gilbert S. Esteban, MAAP, the Philippines

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The Impact of the Mangrove Forest Management to the Community: The Environmental Awareness and Socio – Economic Assessments

Junel Kristian M. Semaña, MAAP, the Philippines Policies to avoid lifeboat choices on the Ark in the Catastrophian Age

Prof. Dr. Alex Waller, Khao Yai International School, UK/Thailand; AUSN Visiting Professor of Science Education and Environmental Ethics

Cultural and Field Excursion of Practical Bioethics Together (including lunch) Please refer to the Campus Map of Chulalongkorn University. The closest BTS Skytrain station for the Faculty of Arts is Siam; and the closest BTS Skytrain station for the 2 February session at Sasa International House is National Stadium. For more information and registration please contact:

Professor Ananya Tritipthumrongchok, Vice-President of the Asian Bioethics Association, Center for Ethics of Science and Technology, Chulalongkorn University; General Manager, Eubios Ethics

Institute Email: ananya@eubios.info 094-1982464 or line ID: smileyim25 Send abstracts, papers and proposals to Prof. Darryl Macer, Email: darryl@eubios.info For updates please see: http://ausn.info/human_gene_summit_2019 https://www.facebook.com/events/800453773623152/

Registration Fee (includes all materials)

Summit: 30 January 2019 Event Only (includes lunch and refreshments): USD100; THB3,000 [The price is reduced to USD50 for those who are also registered for the Workshop] Workshop: 31 January 2019 - 2 February 2019 Event only (includes lunch and refreshments): USD150; THB4,500 Workshop with Accommodation and Local Tours: 31 January 2019 - 2 February 2019 Event (includes breakfast, lunch, dinner, transport during the workshop, and 3 nights hotel per person in twin room): USD350. Extra nights accommodation can be reserved at US60 per night. Participants to both events can register for Postgraduate Credit and Continuing Professional Education

Hours from American University of Sovereign Nations (AUSN).