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International Conference on Humanizing Health Care Pre-Conference: October 18, 2017 Aging Gracefully Wellness Fair 1-1:45 p.m. – Keynote presentations New Nordic Liveability Ole Kassow, founder, Cycling Without Age; Purpose Makers, Denmark Metamorphosis: From 66 Years of Steel and Concrete to Retirement Caring for my Fellow Human Beings William F. Dawson, volunteer, Bruyère Continuing Care Upon graduation as a mechanical engineer, my future was permanently deflected to the construction industry. After a lifetime for inventions, working in countries around the world, creating numerous companies, receiving innovation awards and side careers as a teacher, adjunct professor and lecturer in various Canadian universities, I finally retired at age 89. This is when I started volunteering at Bruyère. It was an experience that changed my life. 1:45-2 p.m. – Healthy break 2-3:30 p.m. – Workshops and presentations Room 1 Body, Heart and Soul… I Live my Life! Gaétane Lemaire and Lise Careau Presentation will be delivered in French Wellness brings to mind a balanced life, personal satisfaction and vitality. This conference workshop invites you to identify the components related to well-being, recognize certain barriers and explore the courses of action to overcome them. Come and appreciate your strengths and recognize your power!

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Page 1: International Conference on Humanizing Health Care Pre … Program_EN.pdf · 2017. 5. 1. · International Conference on Humanizing Health Care Pre-Conference: October 18, 2017 Aging

International Conference on Humanizing Health Care

Pre-Conference: October 18, 2017

Aging Gracefully Wellness Fair

1-1:45 p.m. – Keynote presentations

New Nordic Liveability

Ole Kassow, founder, Cycling Without Age; Purpose Makers, Denmark

Metamorphosis: From 66 Years of Steel and Concrete to Retirement Caring for my

Fellow Human Beings

William F. Dawson, volunteer, Bruyère Continuing Care

Upon graduation as a mechanical engineer, my future was permanently deflected to the

construction industry. After a lifetime for inventions, working in countries around the

world, creating numerous companies, receiving innovation awards and side careers as a

teacher, adjunct professor and lecturer in various Canadian universities, I finally retired

at age 89. This is when I started volunteering at Bruyère. It was an experience that

changed my life.

1:45-2 p.m. – Healthy break

2-3:30 p.m. – Workshops and presentations

Room 1

Body, Heart and Soul… I Live my Life!

Gaétane Lemaire and Lise Careau

Presentation will be delivered in French

Wellness brings to mind a balanced life, personal satisfaction and vitality. This

conference workshop invites you to identify the components related to well-being,

recognize certain barriers and explore the courses of action to overcome them. Come

and appreciate your strengths and recognize your power!

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Room 2

Spiritual Awakening to Self-Care

Cindy Palajac, president, Cindy Palajac Consulting

Through a guided meditation, introduction to the colours of the chakras (energy system)

and self-chakra connection, participants will open to their spiritual connection. During

this hands-on experience, participants will feel the energy run through their body. A

discussion on the pros and cons of self-care, and how it leads to your spiritual path will

follow.

Tibetan Bowl Demonstration

Nérée Utsahi St-Amand, professor, School of Social Work, University of Ottawa; owner,

The Garden of Light

In this presentation, I will demonstrate how the sacred sounds of the bowls’ bells can

realign our energy centres (chakras) and thus harmonize our hearts and souls.

Room 3

The Head Start Program for Women Newly Diagnosed with Breast Cancer

Sarah Young, Ottawa Integrative Cancer Centre

“You have breast cancer”. Each woman who hears these words feels as though the rug

has been pulled out from beneath her—and that’s just the beginning. Explore the

unique mind and body techniques used in the Head Start Program, including

visualization, decision-making tools, embodied yoga and breath work; all of which

develop genuinely positive health habits and help women become empowered

physically, emotionally and mentally.

Virtual Pilgrimage as a Transformative Pathway

Ann MacDonald, clinical chaplain, Bruyère Continuing Care

Virtual pilgrimage (VP) is an innovative practice that provides an accessible, holistic

pathway to human wellness and spiritual health. The pilgrimage motif is a paradigm for

both sacred and secular life. VP is transferable to any setting and adaptable to situations

where mobility is limited, either as a result of external strictures or physical impairment.

For this presentation, VP refers to the Camino, a pilgrimage route in Northern Spain.

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3:30-3:45 p.m. – Healthy break

3:45-5 p.m. – Workshops and presentations

Room 1

Advance Care Planning: Starting Conversations

Dr. Nicole Dunlop, physician, Complex Continuing Care, Bruyère Continuing Care

Roshene Lawson, clinical chaplain, Bruyère Continuing Care

The presenters will discuss the importance of continuing education and support in

advance care planning discussions with patients and substitute decision makers.

Through their work with restorative care patients and educating community groups,

they help break the stigma of talking about end of life issues and encourage people to

have clear discussions with their decision makers about meaning, values, beliefs and the

decisions they want made.

Getting the Most from Your Health Care Appointment

Sally Boyle (presenter), South West Self-Management Program

Andrea Martin, South West Self-Management Program

Darren Robbins, South West Self-Management Program

Research shows that patients forget 50 per cent of the information shared during a

health care appointment. Factors that leads to this include stress, too much information

provided too quickly, unfamiliar medical jargon and the patient’s self-confidence level.

The evidence is clear, patients who take a more active role in their health care are more

satisfied, pursue timely and appropriate treatment and have a better quality of life.

Room 2

Master Your Personal Everest—How to Empower Yourself to Choose, Heal and

Grow

Lucie Légaré, coach, Symviosis

Lucie will inspire, motivate and teach individuals to use their inner power to get what

they want in their life so they can choose the best path for them and their family, heal

and keep healthy, grow as a person and carry out their life purpose.

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Prayer: Practical Forms and Frameworks for Clinical Settings

Dr. Elspeth MacEwan, consultant psychiatrist, Mental Health Service, Garrison Petawawa

Join me to discuss the spiritual dimension of people facing life-threatening illnesses, to

explore how to engage with clients in ways that invite meaningful reflection and

strengthen spiritual practices and experiences, and to learn the specific tools designed

for people of all faiths. Relevant research will also be highlighted, including the

neurophysiology of meditation and the health benefits of religious practice, with a

particular focus on prayer practices.

Room 3

Around the World I Go!

Margaret Lerhe, retired nurse and health care educator; volunteer, Doctors Without

Borders

In 2015, newly retired from the health care sector, I joined Doctors Without Borders

(DWB), to fulfill a deep desire work abroad. Ever since then, I have been travelling the

globe. The best part of my job is meeting the amazing people working for DWB, who

put their lives at risk to provide care to others. Join me as I share some of my stories of

courage and gratitude.

Relaxation and Mindfulness Meditation

Ayya Medhanandi, Buddhist nun

5-7 p.m. – Welcome reception

Master of ceremony

Margaret Lerhe, retired nurse and health care educator; volunteer, Doctors Without

Borders

The Search for Kindness: My Personal Journey

Dr. Brian Goldman, host of CBC's top-rated White Coat, Black Art

Kindness and empathy are lacking in some parts of the health care system. Dr. Goldman

talks personally about stress, the need for speed and personal shame about human

fallibility as factors that diminish empathy in health care. Using his experiences as the

son of ailing parents as a starting point, he searches for kindness inside and outside of

health care, and tells inspiring stories from around the world.

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International Conference on Humanizing Health Care

October 19, 2017

6-7 a.m. – Rise and Shine!

Morning run by the Rideau Canal with Pierre Beauchesne, recreation therapist, Bruyère

Continuing Care

Morning yoga with Tanya Robertson, fitness health coordinator, Bruyère Continuing

Care

7-8:30 a.m. – Registration and breakfast

Master of ceremony

Amy Porteous, vice-president, Public Affairs, Planning and Family Medicine, Bruyère

Continuing Care

8:30 a.m. – Welcome remarks

Amy Porteous, vice-president, Public Affairs, Planning and Family Medicine,

Bruyère Continuing Care

Ottawa Mayor Jim Watson

President and CEO, Bruyère Continuing Care

8:45-9:15 a.m.

Compassion: Human to Human Health Care

Shane Sinclair, PhD, Faculty of Nursing, University of Calgary

9:15-10 a.m.

Building Compassionate Communities through Meaningful Engagement

Rebekah Hackbusch, coordinator, Spiritual and Religious Care, Bruyère Continuing Care

Karen Lemaire, director, Therapeutic Support Services, Bruyère Continuing Care

10-10:30 a.m. – Healthy break

10:30 a.m.-noon – Panel discussions, workshops and presentations

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Room 1

Cycling Without Age

Ole Kassow, founder, Cycling Without Age; Purpose Makers

Gary Bradshaw, community partner, Bruyère Continuing Care

Kim Durst Mackenzie, coordinator, Long-Term Care Volunteers and Therapeutic

Recreation, Bruyère Continuing Care

Chantal Vachon, program manager, Community Support, Eastern Ottawa

Resource Centre

Room 2

Managed Alcohol and Targeted Engagement and Diversion - An Innovative

Approach to Health Care at Shepherds of Good Hope

Caroline Cox, MSW, senior manager, Transitional Shelter Services, Shepherds of Good

Hope

Stephen Bartolo, EMBA, director of operations, Shepherds of Good Hope

Shepherds of Good Hope is an innovative provider of specialized shelter, transitional

housing and support services, serving adults who typically have complex, intersecting

mental health concerns, addictions, trauma and face multiple barriers to accessing

mainstream services in Ottawa. The Managed Alcohol Program started in 2001, with 10

beds for chronic alcohol users engaged in extremely risky drinking behaviours. Today

the shelter-based program has 24 beds and a 55-bed supportive housing program.

Room 3

Getting Ready to Scale Up: Deprescribing Guidelines for Ontario’s Long-Term Care

Sector

Barbara Farrell, PhD, pharmacy clinical research coordinator, Bruyère Research Institute

Additional panelists will be added as they are confirmed.

Room 4

Getting the Most from Your Health Care Appointment

Sally Boyle (presenter), South West Self-Management Program

Andrea Martin, South West Self-Management Program

Darren Robbins, South West Self-Management Program

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Research shows that patients forget 50 per cent of the information shared during a

health care appointment. Factors that leads to this include stress, too much information

provided too quickly, unfamiliar medical jargon and the patient’s self-confidence level.

The evidence is clear, patients who take a more active role in their health care are more

satisfied, pursue timely and appropriate treatment and have a better quality of life.

Room 5

Be Kind. Make a Difference.

Rabbi Dr. Reuven P. Bulka, C.M., founder and CEO, Kind Canada

“Science has established that there are at least five measurable side effects of kindness,”

according to Dr. David Hamilton. Kind Canada believes that kindness resides in all of us

and our goal is to inspire and encourage Canadians to be kind. This session will focus on

the science of kindness and the benefits of being kind for workplaces, schools and

communities, and the difference it makes.

Room 6

Toward a Global Health at Work: How Does Occupational Therapy Intervene in

Occupational Rehabilitation?

Héléna Leroy, occupational therapist, Physio du Plateau de la Capitale

Presentation will be delivered in French

This presentation will aim to highlight, through the concept of occupational balance,

how work can positively or negatively influence an individual’s physical and psycho-

affective condition. Based on aspects related to working conditions, it will propose

models and approaches used in occupational therapy for the promotion, prevention and

intervention of occupational rehabilitation.

Room 7

Decolonizing Health Care: Walking the Healing Journey Together

Scott Harrison, director, Strategy and Transformation, Urban Health, Mental Health and

Substance Use, HIV/AIDS and Addictions, St. Paul's Hospital, Providence Health Care

The team will demonstrate from policy to practice, how a major teaching hospital is

providing safe spaces, staff education and policy changes for reconciliation. Indigenous

patients now describe their experiences in much more positive terms, appreciating the

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welcoming atmosphere, indigenous programming and the ability to include their culture

and traditions in their clinical care plans.

Megamorphosis: Organized Chaos Using Human-Centred Design Thinking

Jo-Ann Tait (presenter), MScN, BHSc (PN), RPN, program director, Elder Care and

Palliative Services, Providence Health Care; adjunct professor, School of Nursing,

University of British Columbia

Kimberley Smith, RPN, BHSc, site leader and care manager, You ville Residence and

Parkview Older Adult Tertiary Mental Health Intensive Support Program

Join us as we describe the use of human-centred design to understand the experience

of residents, families and staff in residential care and to co-create a new vision for

residential care. We will also describe the experience of our high intensity culture

transformation to implement the new vision focused on emotional connection, resident

direction and creating a feeling of home.

A Quantitative Perspective on Complex Project Leadership in Health Care: Vector

Theory

Omer Livvarcin, operations program manager, Complex Project Leadership, University of

Ottawa

Vector Theory is a new generic quantitative model developed to increase efficiency and

performance in all levels of management from operational to strategic. It has been

applied in defense and education sectors and proved to contribute significant and

immediate improvements. Although the proposed model is based on a considerable

experience and comprehensive academic research, it is intentionally kept simple to

make it usable in real business life.

Five Key Opportunities for Health Care Leaders to Support Person and Family-

Centred Care

Danielle Bender (presenter), Saint Elizabeth

Kai Yan (Grace) Lui, Saint Elizabeth

Paul Holyoke, Saint Elizabeth

The benefits of person and family-centred care (PFCC) are well documented and finding

ways to implement it is front of mind for many health care organizations. To address the

need for implementation guidance, Saint Elizabeth offered PFCC education workshops

to over 2,000 health care leaders, providers, and support staff across Canada.

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Room 8

Path to Home Passport: Do you have your passport?

Debbie Gravelle, senior vice-president, Clinical Programs, chief nursing executive and

chief of Allied Health Professions, Bruyère Continuing Care

Sandra Schmidt, complex continuing care transformation project lead, Bruyère

Continuing Care

Harvinder Singh, pharmacist, Bruyère Continuing Care

Judith Minorgan, social worker, Bruyère Continuing Care

Barry Hollywood, clinical manager, Bruyère Continuing Care

Learn about the journey as our multifunctional team co-designed and partnered with

patients and families to ensure a smooth and safe transition from our hospital to home.

Primary Care Patients’ Perceptions of Access to Care in Ontario: An Analysis of the

QUALICO PC Patient Experiences Survey

Kamila Premji (presenter), Department of Family Medicine, University of Ottawa

Bridget Ryan, Western University

William Hogg, Bruyère Research Institute

Walter Wodchis, Institute of Health Policy, Management and Evaluation, University of

Toronto

Canada has been criticized for poor access to primary care compared to other

developed countries. Ontario, particularly, has received recent criticism following reports

from the Commonwealth Fund Study and Health Quality Ontario. We sought to gain a

more comprehensive understanding of Ontario patients’ experiences accessing their

primary care practice.

A Nurse-Run Program in Primary Care for Chronic Pain Patients: Results of a Pilot

Program

Isabelle LeClerc (presenter), Bruyère Academic Family Health Team

Elizabeth Muggah, University of Ottawa; Bruyère Continuing Care

Dr. Hillel Finestone, physician, Physical Medicine and Rehabilitation, Bruyère Continuing

Care

Raywat Deonandan, University of Ottawa

Metasebia Assefa, Interdisciplinary School of Health Sciences, University of Ottawa

An innovative nurse-run chronic pain program is possible in primary care if the right

tools and setup are provided. The authors believe this example of a collaborative model

is where primary care management of chronic pain needs to move in the next decade.

Page 10: International Conference on Humanizing Health Care Pre … Program_EN.pdf · 2017. 5. 1. · International Conference on Humanizing Health Care Pre-Conference: October 18, 2017 Aging

Improving End of Life Care in the Community Using RESPECT

Amy Hsu (presenter), Ottawa Hospital Research Institute

Carol Bennett, Ottawa Hospital Research Institute

Sarah Beach, Ottawa Hospital Research Institute

Doug Manuel, Ottawa Hospital Research Institute

Peter Tanuseputro, Ottawa Hospital Research Institute

Older adults in the community who are frail may receive fragmented and inappropriate

care due to poor prognostication, especially when they are nearing the end of life. This

study presents a mortality risk tool, and explores its acceptability and usefulness to

community-dwelling older adults and their caregivers.

Room 9

Why Speech-Language Pathology Services are Integral in Palliative End of Life

Care

Krista Curtis, speech-language pathologist, Bruyère Continuing Care

This presentation explores the important role that speech pathologists play in palliative

end of life care.

One Bite at a Time: Implementing the International Dysphagia Diet

Standardization Initiative (IDDSI) at Bruyère Continuing Care

Ellen Andrews, speech-language pathologist, Bruyère Continuing Care

Many health care providers and the food service industry have agreed to implement

new standards for dysphagia (swallowing disorder) diets in 2017/18. IDDSI standards will

promote increased patient safety by making diet textures consistent and measurable.

We will show how this approach can benefit patients in a complex continuing care

setting.

Have Your Cake and Eat It Too. The Ethics and Pragmatics of Complex Dysphagia

Management

Ellen Andrews, speech-language pathologist, Bruyère Continuing Care

This presentation will discuss common conflicts between patients, families and health

care providers, when managing severe, complex and deteriorating dysphagia

(swallowing disorder). It will show how using a relationship-centred model of care can

help to develop care plans in situations where patients want interventions that seem

contradictory and competing.

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Provision of Collaborative Care that Supports Self-Management: Current Status

and Future Directions

Dorothy Kessler, post-doctoral fellow, Rotman Research Institute, Baycrest

A collaborative approach to health care that supports self-management is needed to

enhance functioning and quality of life for persons living with Parkinson's disease. We

sought to identify: strategies being used to provide collaborative care and support self-

management and approaches that may lead to improvements in these aspects of care.

Noon-1 p.m. – Lunch

1-2 p.m. – Reconciliation panel discussion

Dr. Mike Kirlew, physician, Sioux Lookout

More information will be posted as it becomes available.

2-2:30 p.m. – Healthy break

2:30-4 p.m. – Panel discussions, workshops and presentations

Room 1

Towards the Implementation of Supervised Injection Services in Ottawa, Canada

Rob Boyd, director, Oasis Program, Sandy Hill Community Health Centre

Luc Cormier, MScN, supervised injection site nursing team lead, Sandy Hill Community

Health Centre

Room 2

Volunteering in Health Care: Providing for Unmet Needs

Deborah Sarre-McGregor, executive director, Bruyère Academic Family Health Team

Dr. David Ponka, MD, CM, CCFP(EM), FCFP, MSc, associate professor, University of

Ottawa

Margaret Lerhe, retired nurse and health care educator; volunteer, Doctors Without

Borders

Samira Bélaid, volunteer, Bruyère Continuing Care

Julie Ménard, volunteer, Living Healthy Champlain

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Volunteers provide unique roles in health care, from addressing gaps in care to

enhancing the care provided by health care professionals, to providing care that is

unencumbered by funding limitations. Learn to optimize the power of volunteers to

humanize health care for people around the globe by examining the unique role of

volunteers in facilitating and enhancing population health and by hearing about the

work of four people providing health care as volunteers.

Room 3 – Panel

Using Technology to Connect People with Disabilities

Bocar Ndiaye, assistive technologist, Bruyère Continuing Care

Yih Lerh Huang, volunteer, Bruyère Continuing Care

Ellen Andrews, speech-language pathologist, Bruyère Continuing Care

Tom Fotheringham, volunteer, Bruyère Continuing Care

Andrew Hodgson, volunteer, Bruyère Continuing Care

Heidi Duhaime, volunteer coordinator, Bruyère Continuing Care

When someone loses their ability to communicate with health care providers, family and

friends, and then regains that ability, it’s like being born again according to patients at

Bruyère Continuing Care’s Saint-Vincent Hospital. Join us as our accredited

augmentative and alternative communication clinic interdisciplinary team members

demonstrate how we have had great success in developing creative solutions with the

help of various health professionals and highly skilled volunteers.

Room 4

Improv Your Communications

Mary Harvey, creative director, Imrov Yourself

Both professional and personal caregivers have a lot on their minds. Staying connected

in conversations (particularly challenging ones) can be difficult. Improv skills help

individuals react faster, trust their instincts and look for what is possible, rather than

getting bogged down in what isn't. This energetic, interactive workshop will give

participants some extra tools to use in communicating with those they care for, as well

as colleagues, friends and family.

Room 5

The Doctor-Advocate Fighting for Better Indigenous Health Care

Dr. Mike Kirlew, physician, Sioux Lookout

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The 36-year-old has worked in the remote Wapekeka First Nation for 10 years, and

believes he has a duty to push for better health care from Ottawa.

Room 6

Building Capacity: An Innovative Service Delivery Model Designed to Enhance the

Patient and Resident Experience

Rebekah Hackbusch, coordinator, Spiritual and Religious Care, Bruyère Continuing Care

Karen Lemaire, director, Therapeutic Support Services, Bruyère Continuing Care

Heidi Duhaime, volunteer coordinator, Bruyère Continuing Care

Room 7

Humanizing Health Care in the Workplace: How Your Culture Can Make or Break

an Integrated Service Delivery Model

Carol Ring, founder and CEO, The Culture Connection

Changing demographics, evolving technologies, more demanding patients and limited

financial resources are causing health care providers to rethink their delivery models.

Creating an efficient patient-centric model requires coordination, collaboration and

integration. In this interactive workshop, participants will experience, reflect, discuss and

apply the various concepts introduced. It’s time to humanize health care, not only for

our patients but for our providers as well.

Room 8

Living the Mission through Volunteering: Gathering and Sharing the Life Histories

of Sisters of Charity

Tracy Luciani, arts and wellness therapist, Bruyère Continuing Care

Mission Impossible: Keeping 4,000 Staff Interested and Aware of our Mission

Carol Dixon, director, Mission Services and Volunteer Resources

As a Catholic health care provider, it’s a challenge to keep our vision, mission and values

top of mind. Explore why a one-size approach does not fit all, why our busy staff should

care about our legacy, how to engage multicultural staff with our history, the magic of

including residents in our celebrations, why we’ve chosen to stay separate from spiritual

health—and why that all works for us.

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Room 9

The humanist perspective of nursing executives’ quality of life at work: A

Phenomenological Research

Dr. Sylvain Brousseau, associate professor, Université du Québec en Outaouais

Presentation will be delivered in French

Based on the nursing sciences’ humanist philosophy, the objective of this qualitative

study was to describe and understand the experiential significance of a quality of work

life and the lack thereof, for nursing executives working in a Quebec academic hospital

setting.

The Benefits of an Educational Intervention to Reinforce Nursing Humanistic

Practices within Two Distinct Care Contexts: Rehabilitation and Hemodialysis

Louise O’Reilly, researcher, Centre for Interdisciplinary Research in Rehabilitation of

Greater Montreal

Presentation will be delivered in French

The phenomenological method titled Relational Caring Inquiry (Cara, 1997; Cara,

O’Reilly, & Brousseau, 2017) was retained for data analysis of the qualitative component.

A secondary qualitative data analysis (Heaton, 2008) of each of the two pilot studies was

conducted by a team of researchers to further highlight the centrality of the caring

concept and of the humanist practices in the nursing profession and practice.

REVIVRE! Achieving Person-Centred Long-Term Care through Volunteering

Annie Robitaille, University of Ottawa

Christine Lacelle, research project manager, University of Ottawa

Presentation will be delivered in French

Person-centred care is fundamental to promoting the quality of life of people living in

long-term care and their caregivers. The objective of this pilot project was to develop

and implement a volunteer program where residents received personalized visits from

student volunteers in their language of choice.

E-Learning in Long-Term Care: The Passport to Change

Marie-Pierre Dionne, learning and development specialist, Bruyère Continuing Care

Presentation will be delivered in French

This education series is comprised of 10 e-learning modules that long-term care

learners must complete annually. The goal is to increase care quality and to ensure

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continuity of care for residents and their families. The two newest e-learning modules,

which will be presented during the facilitated networking, were put in place to assist

staff with residents diagnosed with dementia and as a refresher on the good

documentation principles.

4-4:15 p.m. – Healthy break

4:15-5 p.m. – Keynote presentation

Finding Meaning in the Experience of Dementia: A Spiritual Perspective

Challenging Myths and Social Expectations

Rev. Elizabeth MacKinlay, Anglican Church of Australia; School of Theology, Charles Sturt

University

5-7 p.m. – Wine and cheese

International Conference on Humanizing Health Care

October 20, 2017

6-7 a.m. – Rise and Shine!

Morning run by the Rideau Canal with Pierre Beauchesne, recreation therapist, Bruyère

Continuing Care

Morning yoga with Tanya Robertson, fitness health coordinator, Bruyère Continuing

Care

7-8 a.m. – Registration and breakfast

Master of ceremony

Amy Porteous, vice-president, Public Affairs, Planning and Family Medicine, Bruyère

Continuing Care

7 a.m. – Welcome remarks

Amy Porteous, vice-president, Public Affairs, Planning and Family Medicine, Bruyère

Continuing Care

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8:05-8:50 a.m. – Keynote presentation

Medically-Assisted Dying and Humane End of Life Care: Key Ethical Issues and

Considerations

Didier Caenepeel, O.P., Ph. D. (Phys.), Ph. D. (Th.), Faculty of Theology, Dominican

University College

Recent legislative changes have reshaped the way in which end of life care is organized

and carried out. Above and beyond the debates on the moral acceptability of medically-

assisted dying, the inclusion of this practice within end of life care raises a number of

ethical issues and questions. This panel of experts will explore the deeper meaning of

care and kindness as it relates to palliative and end of life care.

8:50-10:30 a.m. – Panel discussion

8:50-9 a.m. Michel Bilodeau (facilitator)

9-9:15 a.m. John Fraser, MP, Ottawa South

9:15-9:30 a.m. Peter Tanuseputro, investigator, Bruyère Research Institute;

associate scientist, Ottawa Hospital Research Institute

9:30-9:45 a.m. Roshene Lawson, clinical chaplain, Bruyère Continuing Care

9:45-10 a.m. Dr. David Henderson, MD, CCFP, medical director, Palliative Care

Program, Colchester East Hants Health Authority; assistant

professor, Department of Family Medicine, Dalhousie University;

president, Canadian Society of Palliative Care Physicians

10-10:30 a.m. Questions and answers

10:30-11 a.m. – Healthy break

11 a.m.-12:30 p.m. – Panel discussions, workshops and presentations

Room 1

Rethinking Dementia: The Role of Music and Art in Enhancing the Lives of Patients

and Residents in Care

Tracy Luciani, arts and wellness therapist, Bruyère Continuing Care

Renate Ysseldyk, Department of Health Sciences, Carleton University

Angela Paric, Carleton University

Nigel Harris, Musical Wellness

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The presenters will share and show, through photographs, her journey of creating art

with older adults living with dementia, in long-term care and complex continuing care

settings. She will also discuss the role of the arts in enhancing quality of life, as a form of

communication when words often fail and as an important way of nurturing creative

expression among older adults.

Room 2

Technology and Design for Improved Health Care, Rehabilitation and Aging

Mojtaba Ahmadi (presenter), professor, Engineering; director, Advanced

Biomechatronics and Locomotion Laboratory, Carleton University

Chantal Trudel, professor, Industrial Design, Carleton University

Adrian Chan, professor, Engineering; advisory board chair, Research Education

Accessibility and Design Initiative, professor, Industrial Design, Carleton University

A key objective in designing safe and supportive health care environments for older

adults involves addressing a variety of considerations such as reducing the risk of falls

and improving mobility, infection prevention and control, cognitive decline and support

for cognitive stimulation or cuing, to name just a few. To do this work well requires

analyzing human factor considerations in the design of products, environments and

systems.

Room 3

Presentation to be confirmed.

Room 4

A Sudden Surge in Refugee Health Care Needs: A Case-Based Workshop on Trauma

Informed Care of Syrian Newcomers in Ottawa (2016)

Dr. Douglas Gruner, family physician, Bruyère Family Medicine Centre

There are many barriers to accessing timely, patient-centred comprehensive primary

care for newcomers. Learning about the barriers and approaches to bridge those

barriers is essential to better serving future patients arriving as refugees. This workshop

will use a case based approach to highlight the organizational challenges, collaborative

efforts and innovations that emerged, including best practices in serving a vulnerable

population.

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Room 5

Exploring Family Dynamics When Living With Dementia

Mike Nolan, BEd, MA, MSc, PhD RGN, RMN, Gerontological Nursing, University of

Sheffield

Room 6

Supporting a person at end of life and hearing their suffering: Reflecting on

accompanying them to the School of Oscar and the Lady in Pink

Didier Caenepeel, O.P., Ph. D. (Phys.), Ph. D. (Th.), Faculty of Theology, Dominican

University College

Presentation will be delivered in French

This workshop will explore the challenges that arise at end of life and propose a scheme

to better understand suffering. Using Éric-Emmanuel Schmitt’s play, Oscar and the Lady

in Pink as a source in inspiration, participants will explore how to approach and support

suffering individuals by creating paths based on the dynamics of hospitality and alliance.

Room 7

Supporting Patients, Residents, Health Care Professionals and Families in

Meaningful, Relationship-Centred and Facilitated Conversations about Their Care

Lorna Lemay, Canadian Institute for Conflict Resolution and Community Mediation

Ottawa

Iman Ibrahim, executive director, Canadian Institute for Conflict Resolution

Recognizing that choosing treatment options is often an area of conflict and contention,

this workshop will introduce patients, residents, health care partners, families and

caregivers to a simple approach for working through these challenges. We will outline

the basics for acting as a neutral third party, using an effective neutral process, exploring

the needs of the parties and supporting parties as they determine the best way forward.

Room 8

Good Night Ambassador: Volunteer-Driven Delirium Prevention Quality

Improvement Initiative on an In-Patient Palliative Care Unit

Elise Skinner (presenter), nursing practice leader, Palliative Care, Bruyère Continuing

Care

Dr. Shirley Bush, physician, Palliative Care, Bruyère Continuing Care

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Pamela Grassau, research associate, Bruyère Research Institute

Monisha Kabir, research administrative assistant, Bruyère Continuing Care

Rebekah Hackbusch, coordinator, Spiritual and Religious Care, Bruyère Continuing Care

Distressing to patients, families and health care providers, delirium is common in

palliative care settings, occurring in up to 88 per cent of end of life patients. A volunteer

program was developed to address easily implemented nonpharmacological strategies

to prevent and manage delirium: sleep-wake cycle preservation, orientation and

hydration. It is a simple yet accessible initiative that can easily be transposed to other

care settings.

Examining Lived Experiences of Singing in a Bereavement-Support Music Therapy

Group

Laurel Young, associative professor, Creative Arts Therapies Department, Concordia

University

Adrienne Pringle, Carpenter Hospice

Learn about the use of singing and voice work in bereavement contexts and understand

the practical and theoretical rationale underlying this research. The purpose of the study

is to better understand how singing and voice work is experienced by adults who

participate in a bereavement support group. Learn about the research project and its

potential implications.

Approaching End of Life Together: Families, Legacy and Loss

Pam Grassau, research associate, Bruyère Research Institute

Dr. Tara Tucker, community palliative care physician

Shauna Daly, Hospice Care Ottawa

Guided by feminist epistemology, relational cultural theory and narrative methods, this

study explores how families, specifically mothers and daughters, individually, relationally

and inter-subjectively experience end of life.

Talking About Advanced Care Planning

Krista Curtis (presenter), speech-language pathologist, Bruyère Continuing Care

Roshene Lawson, clinical chaplain, Bruyère Continuing Care

A successful approach to providing quality care at end of life is patient involvement.

Learn about the creation of an app that enables care providers to communicate with

patients with aphasia on advance care planning (ACP) issues, ensuring patients receive

care consistent with their wishes. This can also help guide and reduce anxiety for

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families and medical staff—knowing they are implementing a care plan chosen by the

patient.

Room 9

Bundling Nursing Always Practices

Debbie Gravelle (presenter), Bruyère Continuing Care

Sandra Schmidt, project lead, transforming the patient experience, Bruyère Continuing

Care

Hear about how we co-designed Nursing Always Practices to enhance the patient/family

experience, including obtaining patient/family feedback on their need for improved

communication and desire to become members of the health care team, exploring

evidence-based practices that responded to the feedback received, involving

patients/families in the development of practices and implementing them together for

maximum impact—with overwhelmingly positive results!

Always Practices: Are We Sustaining our Stride?

Catherine McCumber, nursing practice leader, Bruyère Continuing Care

Elise Skinner, nursing practice leader, Bruyère Continuing Care

Lila Zitouni, clinical manager, Rehabilitation, Bruyère Continuing Care

Chantal Séguin, clinical manager, Rehabilitation, Bruyère Continuing Care

Mario Daponte, clinical manager, Palliative Care, Bruyère Continuing Care

We will be presenting the findings and next steps following a one-year post

implementation audit of nursing bedside shift reporting and Always Practices at Bruyère

Continuing Care. We will discuss barriers and areas for improvement, patient perception

of bedside shift reporting involvement and plans for sustainability.

Defining, Integrating and Measuring Quality Spiritual Care

George Handzo, director, Health Services Research and Quality, HealthCare Chaplaincy

Network

We will be defining and discussing the best practice quality indicators for spiritual care

in health care, identifying possible metrics and measures to assess for each quality

indicator, and engaging a process for moving quality spiritual care integration and

measurement forward in your own institution.

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Spirituality in Nursing Education: A Necessary Ingredient in Providing Holistic

Care

Ann Marie Urban, RN, RPN, PhD, associate professor, University of Regina

Through this presentation, I will be sharing my experience in facilitating a second-year

elective course during which students explored spirituality, spiritual care and their

spiritual selves, and to advocate for nursing education programs to incorporate a

mandatory course on spiritual care.

12:30-1:30 p.m. – Lunch

1:30-3 p.m. – Panel discussions, workshops and presentations

Room 1

Both Sides of the Bed: Using Data to Improve Patient and Carer Experiences

Aviva Hofmann Shaw, program lead, Canadian Institute for Health Information

The Canadian Institute for Health Information recognizes that every piece of health data

is connected to a person—a care consumer and/or a care provider. This data may be

used for input, but also for output, to support care planning, help assess

patients/residents and examine experiences. This panel will demonstrate the difference

data can make to people on both sides of the care equation.

Room 2

Spreading and Scaling an Approach to Person-Centred Dementia Care across

Canada

Jennifer Major (presenter), senior improvement lead, Canadian Foundation for

Healthcare Improvement

Julie Weir, New Brunswick Association of Nursing Homes

We will present the results of the New Brunswick Appropriate Use of Antipsychotics

collaborative, including results voiced by families of residents involved in the initiative,

common and unique ways the quality improvement teams are devising and

implementing person-centred strategies of dementia care, and share and encourage

dialogue about the leadership, engagement and data strategies that have supported

successful spread across Canada and successful scale across New Brunswick.

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Room 3

Health Innovation in the Ottawa Region

Dugald Seely, executive director, Ottawa Integrative Cancer Centre

Awarded the two largest-ever integrative cancer care research grants in North America,

the Ottawa Integrative Cancer Centre (OICC) is a game changer for cancer. Pioneering a

contemporary cancer treatment model based on scientifically grounded and evidence-

informed complementary medicine, the OICC’s innovative model addresses side effects,

mental/emotional well-being, nutrition, lifestyle and prevention of recurrence in a caring

and compassionate environment—ultimately changing how people are living with

cancer.

Room 4

Organization-Level Principles and Practices to Support Spiritual Care at the End of

Life

Paul Holyoke (presenter), director, Research Centre, Saint Elizabeth

Barry Stephenson, Memorial University of Newfoundland

It is widely recognized that best-practice palliative care includes addressing the spiritual

needs of people nearing end of life. The responsibility to provide it often falls to

frontline staff, sometimes supported by spiritual care professionals, sometimes not. As

health care organizations become increasingly secular, they are less prepared or able to

support end of life spiritual care. We want to identify organizational-level promising

practices that more fully support spiritual care professionals and bedside health care

providers.

Room 5

Integrity vs Autonomy: Palliative Care in a World with MAiD

Dr. David Henderson, MD, CCFP, medical director, Palliative Care Program, Colchester

East Hants Health Authority; assistant professor, Department of Family Medicine,

Dalhousie University; president, Canadian Society of Palliative Care Physicians

Room 6

Using Volunteers to Create a Real Welcome to Your Facility

Carol Dixon, director, Mission Services and Volunteer Resources, Providence Health Care

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Providence Health Care evaluated and redesigned their volunteer program to always put

the needs of the patients and residents first. The changes started with how we recruit,

onboard and successfully retain volunteers. Participants will better understand the

important role of volunteers in health care, learn three easy additions to the volunteer

program that will improve the patient experience, and learn training techniques that will

make volunteers more comfortable and able to comfort.

Room 7

Finding Meaning in the Experience of Dementia: The Place of Spiritual

Reminiscence

Rev. Elizabeth MacKinlay, Anglican Church of Australia; School of Theology, Charles Sturt

University

The Integral Role of Music and the Music Therapist in Dementia Care

Laurel Young, associate professor, Music Therapy Creative Arts, Therapies Department,

Concordia University

I will clarify why music is important for persons living with dementia, identify

assumptions/misperceptions about the use of music in dementia care and discuss

rationale underlying the need for a sustainable best practices model and professional

leadership in the area of music care for persons living with dementia.

Room 8

Humanity, Heroin and Hostility: Providing Innovative Addictions Care in a Hostile

Culture

Scott Harrison, director, Strategy and Transformation, Urban Health, Mental Health and

Substance Use, HIV/AIDS and Addictions, St. Paul's Hospital, Providence Health Care

At ground zero of a public health crisis, Crosstown Clinic humanizes our most vulnerable

citizens and provides an island of safety, respect and evidence-based care in an often

hostile political environment. Trauma-informed relational care that promotes the

humanity and dignity of clients is an essential component of evidence-based addiction

treatment. The success of treatment is highly dependent of the model of care delivery.

Priorities for Person-Centred Care among Marginalized People Who Use Drugs in

Ottawa, Canada

Lisa Boucher (presenter), research assistant, Bruyère Research Institute

Alana Martin, Ottawa Hospital Research Institute

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Zack Marshall, Renison University College, University of Waterloo

Sean LeBlanc, Drug Users Advocacy League

Mark Tyndall, B.C. Centre for Disease Control

Claire Kendall, University of Ottawa; Bruyère Research Institute

Marginalized people who use drugs face many barriers to appropriate care.

Interventions are urgently needed to address the access and equity issues affecting this

disadvantaged population. Conducting community-based participatory research among

this population since 2012, we have conducted several studies to identify priorities and

barriers in care. Our studies emphasize the importance of incorporating person-centred

care models that integrate services specific to the needs of people who use drugs.

Seniors Community Collaborative Outreach Team

Loretta Dobbelsteyn, senior director of operations, The Alex

As a proactive outreach team, we provide non-judgmental, safe, confidential and low

barrier services. Our team provides medical and psychosocial support to seniors who

face many barriers to receiving traditional health care including isolation, addiction and

mental health issues. With the large Canadian cohort moving into an aging population,

the concept of collaborative community outreach for seniors allows individuals to have

support while aging well with dignity.

Room 9

Strengthening the Capacity of Volunteers to Address Anticipatory Grief, Loss and

Bereavement

Pam Grassau, research associate, Bruyère Research Institute

Cohen Tara, Champlain Hospice Palliative Care Program

Nadine Valk, Champlain Hospice Palliative Care Program

We created a comprehensive grief and bereavement training program to strengthen

volunteers' skills and capacity to work with patients and their families' anticipatory grief,

loss and bereavement. Designing and building a program which utilizes a ‘train-the-

trainer’ model offers a way to build capacity, while utilizing a cost-effective strategy that,

with the right supports, offers patients, families and volunteers a way to ensure that

appropriate supports are available across the continuum of care.

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Sprouting Compassionate Communities in B.C. through a Seed Grant Program: A

Needed Shift in Palliative Care

Dr. Eman Hassan, strategic lead, Compassionate Communities and Seed Grants Program,

B.C. Centre for Palliative Care

Improve the abilities of B.C. communities to be compassionate and resilient by engaging

and empowering community groups to take responsibility and ownership of the

provision of practical, emotional and spiritual support for patients and families affected

by a serious or terminal illness in their communities.

Community Engagement 2.0: Eight Enablers of Meaningful Engagement

Danielle Bender, Senior Research Associate, Saint Elizabeth Health Care

If community members are willing to offer their valuable time to participate in

engagement activities, it is important to approach it in a thoughtful and well-planned

manner. We developed a resource that identifies eight enablers of meaningful

community engagement, along with strategies and resources that can assist in achieving

each one.

3-3:15 p.m. – Healthy break

3:15-4 p.m. – Closing remarks

We're All in This Together: Enriching Care for Everybody

Mike Nolan, BEd, MA, MSc, PhD RGN, RMN, Gerontological Nursing, University of

Sheffield