introducing the brain tumour charity
DESCRIPTION
Presentation by Elissa Coster of The Brain Tumour Charity at the London Cancer Children, Teenager and Young Adults Study Day, held on 25 July 2013.TRANSCRIPT
Introducing
The Brain Tumour Charity
Elissa Coster
Children and Families Worker
The UK’ s
largest
brain
tumour
charity
Merger of three
charities:
• Brain Tumour UK
• Joseph Foote Trust
• The Brain Tumour
Charity
Support
and
Information
Service
The Support & Info Line
Support and Information Service
Support and Information
Service
Information
Informatio
n Days
around
the UK
“Quote can go
here” Research
< 2%
£2.5million every year
= largest dedicated
funder of brain
tumour research
“Quote can go
here”
Research funded across
the UK
Raising awareness
• Longer diagnosis times
in the UK
• More children dying
and suffering from severe
life-limiting disabilities
• Based on research
with professional support
• Aim: Reduce average diagnosis time
from 12-13 weeks to less than five
headsmart.org.uk
Professional
partnerships
• HeadSmart is run by a partnership between:
• Supported by many other organisations:
• Shortlisted for BMJ award, highly commended by QiC:
The campaign
• Public and professional awareness
• Promoted and funded by The Brain Tumour Charity
• Disseminated by:
• The Charity
• Community Champions & volunteers
• We need more Community Champions in Scotland!
• Clinical Champions in every paediatric
neuro-oncology centre
The impact Average Symptom Interval
Pre-guideline
12-13 weeks
Pre HeadSmart launch
9.3 weeks
JUNE 2012
7.3 weeks
TODAY
6.9 weeks
Our incredible fundraisers
and supporters
Thank you
Find out more:
www.thebraintumourcharity.o
rg
Contact us:
0808 800 0004