introduction to using redcap for multi-site longitudinal research in medicine

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REDCap Overview Catherine Zhu & Brian T. Edwards Center for Biomedical Research Informatics NorthShore University HealthSystem June 16, 2014

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Overview on using REDCap for multi-site, longitudinal research prepared by Catherine Zhu and Brian T. Edwards.

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Page 1: Introduction to using REDCap for multi-site longitudinal research in medicine

REDCap Overview

Catherine Zhu & Brian T. Edwards

Center for Biomedical Research InformaticsNorthShore University HealthSystem

June 16, 2014

Page 2: Introduction to using REDCap for multi-site longitudinal research in medicine

What is REDCap?Research Electronic Data Capture (REDCap)

REDCap is a web-based application designed to give Researchers and Clinicians the capacity to create and manage databases and surveys in order to support data capture for research studies.

Page 3: Introduction to using REDCap for multi-site longitudinal research in medicine
Page 4: Introduction to using REDCap for multi-site longitudinal research in medicine

REDCap Features

• Fast and flexible data entry and form creation in the web interface• Autonomous multi-level user access• Batch data load using automated data import procedures• Seamless data export to common data analysis packages• Easy and secure multi-site access• Fully functional and customized design for longitudinal research studies• Aggregate graphical data view and descriptive statistics• Ad hoc reporting and analysis• Complete audit trails for tracking data manipulation and user activity

Page 5: Introduction to using REDCap for multi-site longitudinal research in medicine

Fast and Flexible Data Entry and Form Creation in the Web Interface

✓ REDCap provides various data field types, such as text box, notes box, calculated field, multiple choice, checkboxes, descriptive text, section header, dynamic query, etc

✓ Questions using branching logic are supported

✓ Research team can easily mark identified data in the interface and create access limits on those fields

✓ Built-in data validation to maintain data quality

Page 6: Introduction to using REDCap for multi-site longitudinal research in medicine

NumerousField Types

Page 7: Introduction to using REDCap for multi-site longitudinal research in medicine

Multiple Choice Field Types

Branching Logic

Page 8: Introduction to using REDCap for multi-site longitudinal research in medicine

Autonomous Multi-Level User Access

Researchers choose what people and group have access to:✓ Data, both identified and de-identified✓ Data export & import capability✓ User rights management✓ View reports✓ View logging

Page 9: Introduction to using REDCap for multi-site longitudinal research in medicine

Batch Data LoadUsing Automated Data Import Procedures

Long PD REDCap Database

Page 10: Introduction to using REDCap for multi-site longitudinal research in medicine

Seamless Data Export to Common Data Analysis Packages

Researchers can export data to a variety of statistical analysis packages (SPSS, SAS, R, Excel, etc)✓ Researches can grant or restrict access to export data for analysis

✓ Data exports are customizable including all or some of the data forms and fields

✓ Exports can include identified or only de-identified data depending on user and group rights Embedded

De-Identification Tools

Specify load individual field

Specify load individual form

Load all the form

Exports Raw data + Stats Script Files (Labels, coding)

Page 11: Introduction to using REDCap for multi-site longitudinal research in medicine

Easy and Secure Multi-Site Access

✓ Research teams can input data simultaneously, from across the hall or across the country.

✓ Data Access Groups can be implemented to segregate users and the data. By placing users into data access groups, they will only be able to access records created by someone in their group.

Page 12: Introduction to using REDCap for multi-site longitudinal research in medicine

Fully Functional and Customized Design for Longitudinal Research Studies

Page 13: Introduction to using REDCap for multi-site longitudinal research in medicine

Aggregate Graphical Data View and Descriptive Statistics

Help You Maintain Sushi Grade Data !!

Page 14: Introduction to using REDCap for multi-site longitudinal research in medicine

Ad Hoc Reporting and Analysis

Reports can be generated:✓ On the fly✓ Saved and used over and over within the interface

Page 15: Introduction to using REDCap for multi-site longitudinal research in medicine

Complete Audit Trails For Tracking Data Manipulation and User Activity

Data logging provides information about:

✓ who has changed the instrument✓ who has changed the data✓ who has accessed data✓ when these events occurred

Page 16: Introduction to using REDCap for multi-site longitudinal research in medicine

Helpful information and links

- REDCap Consortium Webinars and REDCap Tutorials videos: http://project-redcap.org/ (under ‘Video Resources’ tab).

- Research electronic data capture (REDCap) A metadata-driven methodology and workflow process for providing translational research informatics support (Journal of Biomedical Informatics, Apr. 2009)http://www.sciencedirect.com/science/article/pii/S1532046408001226

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Q& A