january 22, 2017 second presbyterian church 22, 2017 second presbyterian church presenters charles...
TRANSCRIPT
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Caregivers and Care Receivers:Understanding the Impact on Families
Part 1: Caregivers’IssuesJanuary 22, 2017
Second Presbyterian Church
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Presenters
Charles Harlan - Certified Structured Settlement Consultant
Cindy Levering - Associate of the Society of Actuaries
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We’re all in this together!
Have you had personal experience caring for a family member?
What challenges did you face?
What resources did you access?
What resources were missing?
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Today’s Agenda
Understanding the data
Defining “caregiving”
Dealing with stress factors
Summary
Identifying resources
Preview of Part 2
Questions
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Key Data on Caregiving
• By 2030 there will be 72.1 million older
Americans age 65+
• 22.6% of the current U.S. population
• Of that group, over 50 million will
experience a long-term assisted care event
• 30% of Americans currently providing
long-term assisted care for a family
member
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Key Data on Caregiving
• Largest segment of caregivers between 45
and 64 years of age.
• 47% of working caregivers reduce or deplete
savings to cover caregiver expenses.
• 80% of primary and 50% of secondary
caregivers have reduced their retirement
savings to cover care assistance expenses.
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Key Data on Caregiving
• 43.5 million adults have provided unpaid
care to an adult or a child in past 12 months.
• Estimated number of adult caregivers is 39.8
million (12.5% of U.S. population).
• Estimated number of child caregivers (under
age 18) is 6.5 million.
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Key Data on Caregiving
• Caregivers by gender: 60% female; 40%
male
• 82% of current caregivers are taking care of
one person.
• The average age of a caregiver is 49.
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Key Data on Caregiving
• 85% of caregivers are caring for a relative
and 49% for a parent or in-law.
• One in 10 caregivers are caring for a spouse.
• “High-hour” caregivers are almost four
times as likely to be caring for a spouse or
partner.
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Key Data on Caregiving
• Three in five care recipients have long-term physical
conditions.
• More than a third have short term physical conditions.
• 25% have memory problems and 37% have multiple
conditions.
• 18 million caregivers are routinely marginalized and
ignored within the health care system
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Define CaregivingCaregiving starts with assistance for
Instrumental Activities of Daily Living
(Lawton IADL Scale):Ability to Use the Telephone
Shopping
Food Preparation
Housekeeping
Laundry
Mode of Transportation
Responsibility for Own Medications
Ability to Handle Financeshttp://micmrc.org/system/files/IADL.pdf
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Define Caregiving
Caregiving progresses to assistance with
Activities of Daily Living (Katz ADLs):
Transferring (43%)
Dressing (32%)
Toileting (27%)
Bathing (26%)
Feeding (23%)
Incontinence (16%)
https://consultgeri.org/try-this/general-assessment/issue-2.pdf
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Define Caregiving
• Family caregivers are increasingly
performing tasks nurses typically perform,
such as injections and tube feedings.
• Over 50% of caregivers self-reported that
they had no choice in taking on their
caregiving responsibilities.
https://www.caregiver.org/caregiver-statistics-demographics
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Stress Factors
• One in five caregivers reports a high level of
physical strain resulting from caregiving
• Two in five consider caregiving to be
emotionally stressful.
• One in five caregivers reports a high level of
financial strain
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Stress Factors
• Six in ten caregivers report being employed at
some point in the last year.
• Among them 56% reported working full-time.
• Average amount of work: 34.7 hours a week.
• Caregivers working 30 hours a week are more
likely to report having workday interruptions as
a result of caregiving.
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Stress Factors
Six in ten caregivers reported making
accommodations such as:
* Cutting work hours.
* Taking a leave of absence.
* Receiving a warning about attendance.
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SOA 2015 Risk Survey
• Online Survey
• Sample size: 2,233 total (1,035 pre-retirees, 1,005
retirees, 193 oversample of retired widows)
• Ages 45 to 80
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Paid long-term care can be a financial
disaster for most families
• Those who step in to manage finances are often
involved in other aspects of care
• The need for long-term care arose primarily because of
cognitive issues caused by dementia, a stroke, or other
neurological event
• Very few have long-term care insurance
• Many care for someone who lived at home until the
burden of care became too high
• Care costs can run in the hundreds of thousands of
dollars
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More than half of retired widows have
provided care for others during their
retirement
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Pre-retirees are somewhat more likely to anticipate
providing care by arranging outside services and
helping with personal needs
Arranging outside services
Helping with personal needs such
as getting in and out of bed,
getting dressed, toileting, bathing,
or feeding
Administering medications
Something else
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Most common types of care provided
Checking in regularly to see how
they are doing
Helping with household chores,
such as preparing meals,
housework, or shopping
Providing transportation
Communicating with healthcare
professionals on their behalf
Managing finances
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Easing the Financial Burden
Hire professional advice
Talk to utility companies
Check out thrift stores
Utilize social media
Take time making financial decisions
http://money.usnews.com/money/personal-finance/family-
finance/articles/2016-12-09/how-family-caregivers-can-ease-the-financial-
burden
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Easing the Personal Burden
Take a quick break
Invite others in
Carve out “down time”
Turn to friends
Consider adult day care
Squeeze in exercise
Revel in nature
http://money.usnews.com/money/personal-finance/family-
finance/articles/2016-12-09/how-family-caregivers-can-ease-the-financial-
burden
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Easing the Personal Burden
Listen to music
Calm your mind
Resist isolation
Join a “festival”
Find support
Share your story
Give yourself credit
http://money.usnews.com/money/personal-finance/family-
finance/articles/2016-12-09/how-family-caregivers-can-ease-the-financial-
burden
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Summary
• Our population is rapidly aging.
• The number of available family members in
younger generations is diminishing.
• Nearly 40 million Americans who provide
unpaid care to an adult are an extension of, and
a partner with, our formal healthcare and long-
term services supports (LTSS) systems.
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Summary
It is essential to support caregivers by –
• Identifying and helping those who are most at risk for
deteriorating health, financial security and quality of
life.
• Identifying and advocating for programs that could
make a real difference in their well-being as well as
their ability to continue to provide care.
• Helping them balance employment and unpaid care.
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Summary
It is essential to support caregivers by –
• Encouraging families to proactively plan and discuss
aging and health/disability.
• This includes plans for future care and scenarios where
the current unpaid caregiver may no longer be able to
provide care.
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Summary
It is essential to support caregivers by –
• Extending training to caregivers who perform ADLs,
medical/nursing tasks, and other activities
• This includes communicating and interacting with the
formal care system.
• One third of caregivers say health care providers, such
as a doctor or a nurse, or a social worker has asked
about what the caregiver needs to take care of
him/herself.
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Summary
It is essential to support caregivers by –
• Advising them to document their identity in the care
receiver’s medical record and check those records at
every visit for emergency contact information.
• Encouraging them to acknowledge and discuss their
abilities and limitations as a caregiver.
• Helping them understand their HIPAA privacy rights.
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ResourcesWays Family Caregivers Can Ease The Financial Burden
http://money.usnews.com/money/personal-finance/family-
finance/articles/2016-12-09/how-family-caregivers-can-ease-the-financial-
burden
Registered Nurse In-Home Assessment (Independent)http://caregivingexchange.com/agis/caregiver-exchange/rn-in-home-
assessments
Caregivers Mallhttp://www.firststreetonline.com
Caregivers Kithttp://www.agis.com/caregiverkit/default.aspx
Monthly Online Caregivers Articles and Resources
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Resources
Maryland Department of Aging (and its resources)http://aging.maryland.gov/Pages/default3.aspx
American Psychological Association (and its resources)http://www.apa.org/pi/about/publications/caregivers/faq/index.aspx
Overview of Maryland’s CARE Act (effective 10/1/16)http://www.mhaonline.org/docs/default-source/publications/update-
links/care-act---what-hospitals-need-to-know.pdf
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Resources
Ombudsman Program
http://aging.maryland.gov/Pages/Ombudsman.aspx
Society of Actuaries’ Decision Brief –
https://www.soa.org/Files/Research/research-pen-long-term-care.pdf
AARP Care Connectionhttps://careconnection.aarp.org/en/home.html
AARP Care Card & other resourceshttp://states.aarp.org/help-family-caregivers-2/?CMP=RDRCT-STATES-
MD-CAREGIVING-100316
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CARE Card
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Preview of Part 2
• Available strategies to finance long-term
assisted care risk
• How to conserve assets and “planned for” later
life income
• Transfer of assets at death for designated
purposes, including charitable organizations
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Questions?