jo crawford ctrs, msl barrow connection barrow neurological institute st. joseph’s hospital &...
TRANSCRIPT
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Jo Crawford CTRS, MSLBarrow Connection
Barrow Neurological Institute St. Joseph’s Hospital & Medical Center
&Dr. David Sattler
Department of PsychologyWestern Washington University
Bridging the Gap Between Hospital and Community
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• 12,426 patients went through rehabilitation in the
State of Arizona in 2013
• 171,994 disabled residents in Maricopa County
• 11,511 are wheelchair users!!
Facts
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Decreased length of stayAdjustment to injuryAdjustment to body imageEducation of family/friends
Decreased access to the community while on rehab
Decreased absorption of resources
Challenges in rehabilitation
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In drug/alcohol abuse
In secondary conditions
In obesity
In unemployment
Consequences of a Non-Active Lifestyle
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Organized activity
Cost
Equipment
Access
Trained staff
Barriers to Participation
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Navigational tools needed for an active lifestyle
Educate the hospital and community
Membership is free
Meet our Connectors
The Barrow Connection-what we do
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Increase access to living a fuller life in the areas of:
• Education & Work
• Health & Wellness
• Adapted Recreation & Sports
• Quality of life!
Barrow Connection- what we do
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Barrow Connectors-Positive mentors
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Membership card
Connector reaches out to new member
Provide resources and encouragement
Barrow Connectors- SCI
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Family involvement
Complete a mentor training program
Contract agreement with BC/hospital
Monthly report
Barrow Connectors-Brain Injured
Survivors
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• Arizona Disabled Sports• Arizona Bridge to Independent Living• Virginia G. Piper Sports & Fitness Center-
The Spo-Fit• Municipal Programs–Daring Adventures
• Other Rehab Hospitals in Arizona
• Valley-wide Community Agencies
Community Support & Partners
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Partnerships
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In medical stay
In secondary conditions
In drug/alcohol abuse
In obesity
Benefits to the BC Member
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Communication of resources across the continuum of care
Collaboration with valley-wide agencies
Barrow Connectors-provide support & resources
Benefits to the BC Member
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DPROJECT INDEPENDENCE
& EMPOWERMENT
PIE
Dignity Health Grants Community of Care Network
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The P
IE C
om
munit
y
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Target Population
• The target population- adults with disabilities of all ethnic and cultural backgrounds.
• Served on a cross-disability basis; the majority of people served have physical and/or neurological disabilities.
In Arizona 24,000 people have a spinal cord injury, and that number increases by 250 yearly; over 100,000 have some form of paralysis.
(Christopher and Dana
Reeve Foundation)
Each year, over 52,000 people in Arizona sustain a Traumatic Brain Injury.
(AZ Department of Health)
Did You Know….
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PIEGoals
1. Decrease or prevent incidence of secondary conditions
2. Reduce inpatient admissions and ER visits
3. Enhance Quality of Life through health, fitness & nutrition; education/activities; socialization opportunities; peer support; & Community Transition resources
4. Identify system changes for our service delivery model to encourage a seamless family care transition with SJHMC
5. Conduct outreach /offer care transition to extended care facilities
Enhance Quality of Life
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Barrow ConnectionThe initial focus :
neuro rehabilitation continuumAcute> rehab>outpatient>Center for Transitional Neuro rehabilitation New focus including:
Muhammad Ali Parkinson CenterBarrow Cranial Facial Centerand the Muscular Dystrophy program.
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PIEOutcom
esBenchmarks Goal is 100 participants through the grant cycle for 2014 calendar year. Currently 140 participants are enrolled in the PIE program. Participants complete a pre-enrollment survey, with a follow-up assessment
at 3-month intervals.
Fitness Transition Results• Weight loss• Reduction of BMI• Gait improvement• Community Involvement
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PIEOutcom
esTransportationBus and/or light rail passes have been provided to PIE participants who need transportation. This ensures continued and regular attendance to Spofit.
Wheelchair Skills Classescovered topics include: traveling with your chair, transferring, managing your environment and mechanics of your chair.
Empowerment Curriculum ClassesA 12 week Empowerment Series. Topics included: prevention of secondary conditions after SCI, psycho-social aspects of SCI, medical conditions after SCI, bladder and bowel management, sexuality and SCI, pain management and aging with SCI.
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PIEOutcom
esEducational Programs Healthy Living Group - Healthy Living for Your Body &
Spirit Featured Topics: Nutrition, Music Therapy, Chronic Pain Management
Healthy Living Summer Series Online Educational Sessions Conferences
Services Resource Facilitation Brain Gym, 2x/month at SpoFit
50% of the
enrolled
participants
indicated
interest
in educational
classes.
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Accident Avoidance Exercises
Skid Control
Barrow Connection Programs-Driving to Excel
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Introduction to timed driving
Drive Safer with Hand
Controls
Barrow Connection Programs-Driving to Excel
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• 157 participants
• 38 watercraft
• 150 volunteers
• Waterskiing
• Jet skiing
• Fishing
• Boat rides
• Kayaking
• Research
Barrow Connection ProgramsDayS on the Lake
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•
Barrow Connection ProgramsDay on the Lake
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Fundraising in a recession Employee givingGrantsFoundation involvement Fundraising events
Benefits includeDeveloping new partners-collaboration is
key! Exploring new programming Creativity is survival
Challenges & benefits with offering innovative programming
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Collaboration between Barrow Connection and Western Washington University
Received Approval from the Barrow and Western Washington University Institutional Review Boards (IRBs) to conduct the project.
Research Project: Effects of Participation on Physical, Psychological, and Social Outcomes
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Designing the Survey
Step 1
Conducted semi-structured interviews with a sub-set of participants.
• Participants discussed their experiences during and after event.
• We identified common themes as well as unique experiences.
Research Project: Methodology
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Step 2
Wrote survey items.
Step 3
Administered the anonymous and confidential survey to Day on the Lake participants.
Research Project: Methodology
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• Self-esteem & confidence• Positive emotions• Friends• Stress relief• Self-efficacy • Perceived abilities & attitudes after the event
• Family Relationships• Physical & health consequences
Research Project-focused areas
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The REAL impact of access!
“It got me out of my shell and away fromthe TV!” Marc Askinazi
“It is so empowering!” Madilyn Stanton