JohnFriedsamGeneralManagerofDivisionsCanTeen Australia

ImprovedreachandcontinuityofcareforAdolescentsandYoungAdults(AYA)impactedbycancer

Creatingmultipletouchpointsfromin-persontodigitalandvice-versa.

Overview

1. Introduction to CanTeen1. Mission2. Focus areas3. Locations

2. The cancer impact on AYAs3. Unmet needs4. Digital reach (and the competition)5. Service effectiveness6. New initiatives

Mission

CanTeen’s mission is to be in the corner of every young person when cancer crashes into their world

About CanTeenWe’re here for 12-25 year-olds dealing with:• Having cancer themselves;• A parent, brother or sister being diagnosed

with cancer; and• The death of a parent, brother or sister.

Strong government relationships

Treatment & Support (areas of focus)

Significantly improved

outcomes for YPLWC

Online & F2F Counselling

Programs• Peer support• Coping skills• Truce

Youth Cancer Services

Training health &

education professionals

Information & resources

Early phase clinical trials

Individual Support for

YPLWC

Parent Support Workers

Side of Stage

Online Community

Parent platform/ support

Robots

Leadership

Strong government relationships

Treatment & Support (physical vs digital)

Significantly improved

outcomes for YPLWC

Online & F2F Counselling

Programs• Peer support• Coping skills• Truce

Youth Cancer Services

Training health &

education professionals

Information & resources

Early phase clinical trials

Individual Support for

YPLWC

Parent Support Workers

Side of Stage

Online Community

Parent platform/ support

Robots

Predominantlyphysical

Hybridphysical-digital

Predominantlydigital

Leadership

Counselling by location

The numbersEvery year, another 23,000 young people have to face the challenge of cancer.1,000 young people

are diagnosed with cancer

1,000 young people find out their brother or sister has cancer

21,000 young people have a parent diagnosed with cancer

Distress in young people impacted by cancer

Young people impacted by cancer experience very high levels of distress (Patterson, McDonald, White, Walczak, & Butow, 2017)

010203040506070

HighandVeryHighDistress

General Population 11-15 yrs General Population 16-24 yrs

Offspring 12-25 yrs Siblings 12-25 yrs

Patients 12-25 yrs Survivors 12-25 yrs

Help seeking vs unmet needHelp Seeking

• AYAs demonstrate lower help seeking behaviour

• AYAs have lower levels of health literacy

• AYAs have lower levels of mental health literacy

Unmet needs (Offspring)

• Information & open communication about what is going on

• Help dealing with feelings• “Time out” from the cancer

experience• Feelings of isolation (support from

friends and other young people with similar experience)

McDonald et al (2015), Patterson et al (2016)

Young patients and siblingOldersisterdiagnosed

Oldersisterwithparent(s)

Young offspring

4Kids

MumDiagnosed

Evidence-based informationInformation is vital

Website hits• Total website visits: 338,658• Visits to cancer info pages: 29,671• E-book reads: 22,699• Hard copy resources: 13,428

Interactive e-CommunityReducing isolation is vital

35,000FTE

330FTE550+FTE

3300FTE55FTE

@1500FTE

Competing against the giants

Interactive e-Community

• Total Service Users: 2707+• Forum posts: 4800 (2yr)• Blogs: (very low activity)• One-off video or written testimonials: 160• Counselling sessions: 1600 (@ 2/3’rds phone, 1/6

email, 1/6 IM)

• Total unique serviced: 2378• Counselling sessions: 1000• Program and rec: 3200• Individual Support: 1660

• Online • Offline

Theyearahead- Growthyearforecastedwithmaturityofbothonlineandofflineservices

NewService- e-ParentCommunity,withe andphoneprofessionalservices

Snapshots 2017 - Registration type

57%34%

9%

Full Access

Read Only

Phone Only

Snapshots 2017 - Locations

Snapshot 2017 – Cancer situation

e-Intervention impactChanges over time in Kessler 10 outcome measure scores by service user situation

e-Intervention impactChanges over time in proportion of unmet needs reported by service user situation

Teleport robots• Approximately 750, 12-25 year-olds each year need

in-patient treatment• High school aged: avg 9 months of school missed

– More than academics– Social connections/friendships

• Controlled by patient in hospital or home, joy stick or keyboard control

• Interactive AV in classroom• Can drive in hallways, lunchrooms, etc• Seed funding from Newman’s Own Foundation, 13

Teleport Robots rolling out this year• Developed by Aubot, Marita Cheng, CEO

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Thank you

John FriedsamGM-Divisions, CanTeen AustraliaTel: (02)9007-0205Mob: 0435 651 778Email: john.Friedsam@canteen.org.auWebsite: www.canteen.org.au