M A S C C • S u p p o r t i v e C a r e m a k e s e x c e l l e n t c a n c e r c a r e p o s s i b l e

Multinational Association of Supportive Care in Cancer • www.mascc.org

NEWSWelcome to the June edition of the MASCC Society NewsMessage from Editors Anna Ugalde and Anna Boltong

In this edition, we present an overview of the World Cancer Day, a UICC initiative which aims to raise awareness and education about cancer. We also have a story on the MASCC/ISOO Oral Study Group systematic reviews, which are being updated from the 2010 publications to ensure the guidelines are based on most current evidence. MASCC has also been represented at the ESMO Anemia, Neutropenia, Thrombosis and Cancer Annual Training Program, about which we provide some highlights. As with all newsletters, a new member is profiled and there is also an opportunity to read a variety of recent publications from MASCC members. As this is our June edition, we are sure the MASCC community will be ready for the Miami Annual Meeting. We look forward to bringing you all the stories from this event in future editions of our newsletter. If you have any news or stories to share, please email us directly on anna.ugalde@svhm.org.au or anna.boltong@cancervic.org.au .

We hope you enjoy this edition.

From your editors, Anna & Anna

June 2014

World Cancer Day 2014World Cancer Day unites the world’s population in the fight against cancer. This truly global event happens every year on February 4, and it aims to save millions of preventable deaths by raising awareness and education about the disease, pressing governments and individuals across the world to take action. World Cancer Day originated in 2000 at the first World Summit Against Cancer, which was held in Paris. The first World Cancer Day campaign was created in 2005 and will celebrate its tenth anniversary in 2015.

Building on the success of the 2013 campaign, World Cancer Day 2014 focused on reducing stigma and dispelling myths around the disease under the tagline Debunk the myths!. Greater awareness and education about cancer can lead to policy development and implementation, along with positives change at the individual, community, regional and national levels across the continuum of cancer care.

The campaign framed and challenged four key myths that are common in different cultures and countries around the globe:

• We don't need to talk about cancer

• There are no signs or symptoms of cancer

• There is nothing I can do about cancer

• I don't have the right to cancer care

World Cancer Day is an initiative of the Union for International Cancer Control (UICC), a leading international non-governmental organisation that unites the cancer community to reduce the global cancer burden, to promote greater equity, and to integrate cancer control into the world health and development agenda. UICC is committed to ensuring that year-on-year, World Cancer Day appears in the global agenda as a key milestone during which the world unites under one united message to stress the importance of the fight against cancer. World Cancer Day 2014 generated an incredible pick-up and was tremendously successful thanks to the engagement of all UICC members, partners and various stakeholders around the world.

Amongst many key highlights and figures, the following showcase the impact we had on this global awareness Day: Worldcancerday.org generated 12 million hits (a six-fold increase over last year); accumulated a total of 365,827,287 social media impressions and there were 8.4 billion opportunities to see, hear or read about World Cancer Day.

M A S C C • S u p p o r t i v e C a r e m a k e s e x c e l l e n t c a n c e r c a r e p o s s i b l e

Multinational Association of Supportive Care in Cancer • www.mascc.org

The systematic reviews undertaken by the MASCC/ISOO Oral Care Study Group in 2010 are currently being updated by Study Group members to ensure that guidelines for best management of cancer therapy-induced oral complications are based on the most current evidence. The systematic reviews are underpinned by a robust and transparent protocol published by Brennan and colleagues in Supportive Care in Cancer 2010 18(8):979-984. Reviews are being conducted by multidisciplinary groups from many countries. For example, the dysgeusia systematic review update is being undertaken by MASCC members from Canada, Australia, Singapore and the Netherlands, representing the disciplines of Dietetics, Oral Medicine and Oral Surgery. All systematic review updates (which include Viral Infections, Fungal Infections, Trismus, Osteoradionecrosis of the Jaw, Jaw Necrosis Secondary to Antiresorptive Medications, Salivary Gland Dysfunction/Xerostomia, Oral Pain and Oral GVHD) will continue across 2014 with preliminary findings shared at the Annual Meeting in Miami.

Pictured is Allan Hovan who is co-ordinating the dysgeusia update with Anna Boltong, Gini Jarvis, Judith Raber-Durlacher, Karis Cheng, Tanya Rouleau and Stacey Carter.

World Cancer Day 2014 (continued)Many activities took place around the world led by UICC members, partners, governments, corporations, notable individuals, UN agencies and other stakeholders, including:

• The American Cancer Society partnered with Chevrolet and ran a social media-led fundraising campaign which was launched at the SuperBowl,

• The French Cancer Institute (INCa) launched their third National Cancer Control Plan with the presence of the French President;

• Mathiwos Wandu Ye-Ethiopia Cancer Society and the wife of Ethiopian Prime Minister, Her Excellency Mrs Roman Tesfaye, brought together the country’s leaders and announced the creation of a National Cancer Control Committee;

• The Asociación Mexicana de Lucha contra el Cáncer along with its partners distributed informative brochures of cancer prevention and early detection in each of the 28 metro stations of Mexico City, which services over 5 million people per day;

• Link to Life, a non-profit cancer support centre in Mauritius used World Cancer Day as an opportunity to inaugurate its first ultrasound machine, which was generously donated by one of their sponsors. These are just a few of many ways individuals and organisations around the world got engaged to mark World Cancer Day 2014.

The 2015 World Cancer Day campaign is currently being put together and will be publicly shared in the third quarter of this year. Meanwhile the 2014 campaign is still available on worldcancerday.org.

For further information, please contact communication@uicc.org

MASCC Oral Care Study Group Updates 2010 Systematic Reviews

Meet a new MASCC Member, C. Suzanne DrodgeI am a Radiation Oncology Fellow at the Cross Cancer Institute, Edmonton, Alberta in Canada. I am involved in supportive care through a personal interest in palliative care, which developed throughout medical school and continued during residency training in Radiation Oncology. As a fellow, I am now involved with the palliative radiation oncology rapid access clinic at the Cross Cancer Institute in Edmonton, Alberta. This clinic is dedicated primarily to patients with brain metastases and symptomatic bone metastases, and involves a multidisciplinary consult with radiation therapy, nursing, pharmacy, and radiation oncology; radiation simulation, planning and treatment delivery. After completion of this fellowship my clinical posting will entail starting a rapid access palliative radiation oncology clinic in St. John’s, Newfoundland.

A positive experience in palliative radiation oncology, with opportunities for collaborative medicine and research, motivated my application for membership with MASCC. Optimal patient care, being the highest priority, can be achieved through continued education, policies, research and involvement with organizations, such as MASCC. Membership with this organization will, as a Radiation Oncologist, provide lifelong opportunities for collaboration and learning at a multi-national level.

M A S C C • S u p p o r t i v e C a r e m a k e s e x c e l l e n t c a n c e r c a r e p o s s i b l e

Multinational Association of Supportive Care in Cancer • www.mascc.org

Publications from MASCC members 1: Epstein JB, Güneri P, Barasch A. Appropriate and necessary oral care for people with cancer: guidance to obtain the right oral and dental care at the right time. Support Care Cancer. 2014 Mar 28.

2: Chino F, Peppercorn J, Taylor DH Jr, Lu Y, Samsa G, Abernethy AP, Zafar SY. Self-Reported Financial Burden and Satisfaction With Care Among Patients With Cancer. Oncologist. 2014 Mar 25.

3: Mitchell AP, Hirsch BR, Abernethy AP. Lack of timely accrual information in oncology clinical trials: a cross-sectional analysis. Trials. 2014 Mar 25;15(1):92.

4: Sautter-Bihl ML, Sedlmayer F, Budach W, Dunst J, Feyer P, Fietkau R, Fussl C, Haase W, Harms W, Piroth MD, Souchon R, Wenz F, Sauer R, Of The Of Degro BC. DEGRO practical guidelines: radiotherapy of breast cancer III-radiotherapy of the lymphatic pathways. Strahlenther Onkol. 2014 Apr;190(4):342-351.

5: Haffner MC, De Marzo AM, Yegnasubramanian S, Epstein JI, Carter HB. Diagnostic Challenges of Clonal Heterogeneity in Prostate Cancer. J Clin Oncol. 2014 Mar 17.

6: Coyne I, Amory A, Kiernan G, Gibson F. Children's participation in shared decision-making: Children, adolescents, parents and healthcare professionals' perspectives and experiences. Eur J Oncol Nurs. 2014 Mar 10.

7: Wanger T, Foster NR, Nguyen PL, Jatoi A. Patients' rationale for declining participation in a cancer-associated weight loss study. J Cachexia Sarcopenia Muscle. 2014 Mar 13.

8: Kavalieratos D, Kamal AH, Abernethy AP, Biddle AK, Carey TS, Dev S, Reeve BB, Weinberger M. Comparing Unmet Needs between Community-Based Palliative Care Patients with Heart Failure and Patients with Cancer. J Palliat Med. 2014 Mar 3.

9: Shim JH, Song KY, Jeon HM, Park CH, Jacks LM, Gonen M, Shah MA, Brennan MF, Coit DG, Strong VE. Is Gastric Cancer Different in Korea and the United States? Impact of Tumor Location on Prognosis. Ann Surg Oncol. 2014 Mar 6.

10: Leblanc TW, Currow DC, Abernethy AP. On Goldilocks, care coordination, and palliative care: making it 'just right'. Prim Care Respir J. 2014 Mar;23(1):8-10.

MASCC collaborated with the European Society for Medical Oncology to co-lead the annual 2-day CME credited training course for over 250 delegates in Vienna in March 2014. Presentations were made by prominent health care professionals and MASCC representatives Jean Klastersky and Matti Aapro, as well as MASCC members Dirk Schrijvers, Mario Dicato, and Heinz Ludwig. In his opening remarks, course co-ordinator and MASCC Board Member Matti Aapro encouraged participants to visit the MASCC booth on site, consider membership of MASCC, and attend the 2014 Annual Meeting in Miami. MASCC exhibited free copies of our journal, Miami flyers, MOATT guide, application forms, MASCC brochures, and various reference books in supportive care in cancer.

Pictured is MASCC Executive Director Åge Schultz hosting the MASCC booth.

MASCC support of the ESMO Anemia, Neutropenia, Thrombosis and Cancer Annual Training Program

MASCC is in search of a Web Editor for the MASCC website,www.mascc.org, the job is a 1-2 days a week position to check and up-date content, copy edit the Society page news, and to advise on updates to the platform that would enhance the presentation of the content. The ideal applicant:

• Is an HCP (Health Care Professional), preferably fluent in English

• Has past experience with organization structure in developing websites

• Work with the web manager on web presentation, website user interface and improve display of information

• Can advise/understand/supervise needs for mobile optimization, social media and responsiveness for an interactive website

If you are interested in working for MASCC or know of an ideal candidate for this position, contact MASCC Executive Director Åge Schultz, at aschultz@mascc.org .

Join the team! MASCC seeks a Web Editor

M A S C C • S u p p o r t i v e C a r e m a k e s e x c e l l e n t c a n c e r c a r e p o s s i b l e

Multinational Association of Supportive Care in Cancer • www.mascc.org

Have any news items to share?

Please send contributions for the MASCC News to MASCCnews@mascc.org or the co-editors:

Anna Ugalde anna.ugalde@svhm.org.au and Anna Boltong anna.boltong@cancervic.org.au

For more information please contact: Åge Schultz, MASCC Executive Director: aschultz@mascc.org

Publications from MASCC members (continued)

11: Bakkum-Gamez JN, Mariani A, Dowdy SC, Weaver AL, McGree ME, Martin JR, Keeney GL, Jatoi A, Gostout BS, Podratz KC. Efficacy of contemporary chemotherapy in stage IIIC endometrial cancer: A histologic dichotomy. Gynecol Oncol. 2014 Mar;132(3):578-84.

12: Wardill HR, Bowen JM, Gibson RJ. New pharmacotherapy options for chemotherapy-induced alimentary mucositis. Expert Opin Biol Ther. 2014 Mar;14(3):347-54.

13: Harrison MR, Hirsch BR, George DJ, Walker MS, Chen C, Korytowsky B, Stepanski E, Abernethy AP. Real-world outcomes in metastatic renal cell carcinoma: insights from a joint community-academic registry. J Oncol Pract. 2014 Mar 1;10(2):e63-72.

14: Fischer DJ, Epstein JB, Yao Y, Wilkie DJ. Oral health conditions affect functional and social activities of terminally ill cancer patients. Support Care Cancer. 2014 Mar;22(3):803-10.

15: Tracey E, Watt H, Currow D, Young J, Armstrong B. Investigation of poorer bladder cancer survival in women in NSW, Australia: a data linkage study. BJU Int. 2014 Mar;113(3):437-48.

16: Patel HD, Feng Z, Landis P, Trock BJ, Epstein JI, Carter HB. Prostate specific antigen velocity risk count predicts biopsy reclassification for men with very low risk prostate cancer. J Urol. 2014 Mar;191(3):629-37.

17: Johnson MJ, Bland JM, Davidson PM, Newton PJ, Oxberry SG, Abernethy AP, Currow DC. The relationship between two performance scales: new york heart association classification and karnofsky performance status scale. J Pain Symptom Manage. 2014 Mar;47(3):652-8.

Join MASCC before June 1st for up to $200 in registration savings and benefits!