living well through data
DESCRIPTION
Slides on privacy given at "Living Well Through Data" - Mt Sinai Medical Center, NYC, 10/2/2012TRANSCRIPT
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1. doppler shifts.
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“sound is higher in pitch when it is approaching than when it is receding”
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incremental advances will not suffice
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“sound is higher in pitch when it is approaching than when it is receding”
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“sound is higher in pitch when it is approaching than when it is receding”...is the sound of the medical
system screaming.
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2. health is not like other data.
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?:>,mnbjm;./’“}p[;loikl;’]
\]=0-98ertdfl,;’
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using this level of consent, we can...
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http://curiousfridays.files.wordpress.com/2012/02/pregnant-target1.jpg
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“savvy single”
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“we can do this for health!”
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“quantified self”
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“can i have my data?”
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“can i have my data?”
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if you don’t fix this, someone will.
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noted for accurate representations of technology in law!
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the privacy community is watching you.
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3. what you need to do.
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a. honesty
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b. participants get a usable copy.
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http://en.wikipedia.org/wiki/File:Heatmap.png
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rdf:about=WhoWhatWhenWhereWhy
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c. informed consent
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10 minute investment.
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if you scale...
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honesty, reusability, portability, and consent will change a clinical
outcome.
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whether it’s for the better or the worse is
up to you.
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thank you