lost? finding your medical home!
DESCRIPTION
TRANSCRIPT
- 1. Lost? Finding Your Medical Home Colleen A. Kraft, M.D., FAAP Harry L. Gewanter, M.D., FAAP, FACR
2. Care Partnership
- What are my goals? Goals for my child?
- What should I expect from my physicians and my community?
- How can I enable our medical and community resources to provide the best care for (me) or my child?
3. Care Partnership
- Healthy People 2020 Goals
- Medical Home
- Community
4. Healthy People 2020 Goals
- Goals and Priorities for our Nation
- Particular Goals for Special Populations
5. Healthy People 2020
- All children should be served in a Medical Home
- Families should have access to the insurance necessary to care for their children
6. Healthy People 2020
- Families should be satisfied with the care they receive
- Community Resources should be available to help any family in need
- Community Resources should be easily accessible to families
7. Healthy People 2020
- Youth with special health care needs should be able to transition to adult health care, insurance, and employment
8. Medical Home
- Structure and Process of Care
- Recognizes home as
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- Headquarters for care
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- A place for children and families to feel welcomed and recognized
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- Link to community services
9. Medical HomeBackground
- 1980sClinic based care
- Recognition for need to
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- Coordinate care
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- Involve families needs and expertise
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- Develop community partnerships
10. Medical Home
- 1992 AAP Policy Statement
- Maternal and Child Health Bureau definition of CSHCN
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- Those who have or are at risk for chronic physical, developmental, behavioral, or emotional condition
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- Require more frequent and/or intensive health and related services
11. Medical Home Benefits
- Increased satisfaction
- Forum for problem solving
- Coordination of care
- Efficiency of time and resources for
- families
- 5. Increased wellness due to comprehensive care
12. Medical HomeCommon Elements
- Accessible
- Family Centered
- Comprehensive
- Continuous
- Coordinated
- Compassionate
- Culturally effective
13. Access
- Care provided in childs community
- Range of insurances accepted
- Public Transportation
- Families may speak directly with Primary Care Provider
- Physically Accessible
14. Family Centered
- Physician known to child and family
- Mutual responsibility and trust
- Family recognized for its expertise
- Information and options shared with families
- Families play a central role in care coordination
15. Continuous
- Care from infancy through young adulthood
- Assistance with transitions
- Hospital discharge planning
16. Comprehensive
- Care delivered and directed by a well trained practitioner
- Round the clock access by phone
- Primary Care
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- Immunizations
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- Growth and Development
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- Anticipatory Guidance
17. Comprehensive
- Medical, Psychosocial, Educational, Developmental needs addressed
- Information and Community Links
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- Early Intervention
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- Title V Programs
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- SCHIP
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- SSI
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- Medicaid
18. Coordinated
- Care among multiple providers, specialists, therapists
- Central records kept
- Plan of care developed with family or youth
- Plan of care coordinated and shared with schools, community resources, other agencies involved in care
19. Compassionate
- Concern and respect for individual, family
- Understand and empathize
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- Child or youth perspective
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- Family perspective
20. Culturally Effective
- Patients and familys cultural background respected
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- Beliefs
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- Rituals
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- Customs
21. Culturally Effective
- Written materials in patients language
- Interpreters available
- Family understands care plan
22. Medical Home
- Understand the concept of a Medical Home
- Understand how the Medical Home is an ideal venue for setting your (your childs) goals
- Understand how the Medical Home is an ideal venue for communication and teamwork between physicians, families, and the Medical Village
23. Medical Home
- Empower families as the expert in the overall care of their child
- Understand what physicians need to know from parents in caring for their children
24. What do Physicians need from families?
- Expert for your child
- Community Link for Resources
- Advocacy
25. Families as Experts
- Parents as care coordinators
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- Medical
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- Social
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- Educational
26. Care Coordination Role
- Documentation and Communication
- Summary Notebook
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- Physicians/Specialists
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- Therapists
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- IFSP/IEP
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- Educator Conferences/Notes
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- Pictures
27. Care Coordination
- Communication between specialists, therapists, schools
- Best option for care
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- You have a right to have options, and the Medical Home should provide the venue
28. Communication
- New Needs
- Transition and Milestones
29. Community Involvement
- The inferior physician treats the disease; the good physician treats the person; the superior physician treats the community
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- Chinese Proverb
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30. Complementary Roles
- Physicians provide medical knowledge and information to community resources
- Community resources provide avenues to help patients and families outside the office
- Families are the link!
31. Link to Community Resources
- Families as Experts in Navigating the System
- Role in Community Organizations
- Parent Consultants
32. Medical Home Plus
- Information, Support, Resources for Parents and Professionals
- Training
- Technical Assistance
33. Enrich your community
- Join local, statewide, and national networks
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- Family Voices
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- Arthritis Foundation
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- Parent to Parent
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- Down Syndrome Society
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- The Autism Society
34. Enrich your community
- Parent Training
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- Partners in Policymaking
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- Insurance and Waiver Training
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- As They Grow
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- Conferences
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- Parent Education, Advocacy, and Training Center (PEATC) courses
35. Enrich your community
- Understand your own developmental level as a parent
- Start small
- Use your experience as an advocate for your child to someday help another family
36. Advocacy
- Community Organization Events
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- ARC March
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- Call to Action
- Visiting Legislators
- Tell your story
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- We need to hear it!
37. Care Partnership
- Role in the Medical Home
- Role as Care Coordinator and Advocate for your child
- Community
38. Thank you!