Campaign Update: Professional Conference

Liverpool April 2014

Lynne Regent CEO, Anaphylaxis

Campaign www.anaphylaxis.org.uk

Anaphylaxis Campaign:We are...

The only UK wide charity solely for those at

risk from severe allergic reactions.

A membership service for individuals,

healthcare professionals, corporates

An information and support provider

- helpline, www.anaphylaxis.org.uk and social

media

A patient advocate

An educator

A campaigner

Meet the team!

• Reaching out to young people• Broadening our work with clinicians• Adding to our AllergyWise training programmes• Influencing implementation of the new

European Food Regulations• Development of online channels &

communications• Increased campaigning• Supporting research

www.anaphylaxis.org.uk 10

Our Strategy for 2014

• 2012 Survey of 500 15 – 25 year olds

- Results published- Presentations to BSACI & EAACI

• Addressing the key issues- carrying and using auto injectors

- lack of specialist support- food issues e.g. eating out, take-

aways, labelling

• Development and implementation of projects to

address each issue

Reaching out to young people

• Clinical and Scientific Panel- New Chair and Vice Chair

• Developing Professional membership - now over 500 members

• Facilitating research projects at Manchester, Southampton, Birmingham, Brighton ,Surrey & more

• Work with iFAAM• Our own small grants project

Working with Clinicians

Working With Clinicians

• Linking with Allergy Clinics –regular contact

• Expert support group programme with Imperial College- 10 leaders across the UK

• Initiative to reach out to Ethnic Groups with Professor John Warner & team

• Work with EAACI/BSACI/BSI• Fatality & incidence recording

• Course for Healthcare Professionals updated and reaccredited

• Course for GPs and Practice nurses launched and being taken up across the country

• Course for families and individuals being updated

• Course developed for Pharmacists with Boots now proposal to spread it to all pharmacists

AllergyWise Training Programmes

• Work on the new European food regulations (FIR) before implementation in 2014

Initiatives with the Food Industry

• Work on thresholds /reference doses and patient understanding

• Survey on precautionary ‘may contain’ labelling

• Consumer/patient voice- addressing current issues

• e.g Alpro/Tesco

• Continued development of website responsive to hits and user demands

- over regularly sees 15 – 20,000 visits a month and growing

• New online initiatives and experiments- Internal: Tried & Trusted, Outlook now available as an online

‘flip book’ - External: Google Ad words, expanding social media

• Growing social network communities- Almost 2,500 Twitter followers- 3000 Facebook ‘likes’- Growing presence on Linkedin, including our company

page and company group, AllergySavvy: May Contain Facts (please feel free to join!)

• Increased online presence has lead to more features in publications, requests for interviews and expertise and more awareness

Anaphylaxis Campaign Online

• New YouTube Channel launched in May 2013: www.youtube.com/AnaphylaxisCampaign

• Content including:- Clinical explanation of anaphylaxis with Professor

John Warner- Emergency care video demonstrating ABCDE

procedure- Interviews with members – families, young people

and those diagnosed later in life- Information films on the Anaphylaxis Campaign and

how to support us• Over 4500 total views of our content and increasing

Anaphylaxis Campaign on YouTube

Campaigns in 2014• Valentine’s Day 2014 Awareness

Campaign – brilliant engagement on social media including over 200 ‘shares’• Latex Allergy Awareness – numerous pieces

of regional & online press coverage as well as features in Marie Claire magazine and the Daily Mail’s health section

• Childrens and Families Bill involvement• Prescription charges coalition • Postcard Campaign with the NASG

Campaigns

• Young People & adrenaline carrying rates

• Availability of adrenaline injectors• Generic adrenaline injectors in

Schools• Working with caterers on the new

food regulations

Our 20th Anniversary 2014

• We are celebrating the work of the Campaign over the last 20 years

• Watch out for special events and initiatives

• A big thank you to everyone who has enabled the Anaphylaxis Campaign to make achievements – both past and present

• Help us to reach the newly diagnosed & raise awareness of our existence with all your patients

• Renew your membership and encourage others to join us

• Fundraise or undertake a challenge for us• Buy your Christmas cards from us• Donate using payroll giving• Spread the word! 17

What can you do?

Thank you for your on-going support!

Any questions?

Lynne RegentAnaphylaxis Campaign CEOlynne.regent@anaphylaxis.org.uk01252 546100