LYME DISEASE UNITED COALITION A global organization Judith Weeg, President

Office: (800) 311-7518 Fax Line: (888) 746-3810 Email: LymeInfo@lduc.org Website: www.lduc.org PO Box 86

Story City, IA 50248

AUGUST 2013 LYME & TICK BORNE DISEASE NEWS & VIEWS Welcome to an innovative quarterly newsletter where your voice counts. We encourage your input; your personal stories about Lyme disease;

political activities in the LDUC states, provinces, and countries regarding Lyme disease. Email to: Lymeinfo@lduc.org

Judith Weeg President LDUC

The July 2013 newsletter is focusing on the many contributions, and photos, from Lyme awareness campaigns from an active patient population. Never before, in

the history of Lyme disease, have patients become more vocal: in marches,

proclamations on Lyme disease in many states, state Bills passed to protect patient care, and physician protection. “We, the people,” have found our voice,

and are not going to tolerate inadequate care, LLMD prosecutions, and the blind eyes to the truth of our illness… Lyme disease, termed an “epidemic” by CDC’s

Dr. Paul Meade, at the 2010 Institute of Medicine meeting in Washington, DC.

ABBREVIATIONS IN NEWSLETTER: LLMD = Lyme Literate Medical Doctor

CFS = Chronic Fatigue Syndrome ND = Naturopathic Doctor ILADS = The International Lyme & Associated Disease Society

Ld = Lyme disease

MD = Medical Doctor

DISCLAIMER BY THE LYME DISEASE UNITED COALITION

The Lyme Disease United Coalition wants it to be known that our officers and volunteers are not medical doctors. We advise you to check with your physician to answer any medical questions. We pass on the names to people with Lyme disease, of physicians

educated to treat this disease, but hold no liability for these physicians’ treatment plans and/or care of patients with Lyme disease. We encourage the inquirer to do an interview

of &/or check out any physician referred to them.

WHAT IS NEW IN THE NEIGHBORHOOD?

HISTORY IN THE MAKING…PAL…

Our vision is global. We form lasting partnerships. Our experiences are diverse. We work towards consensus. Our resources are used wisely. We

create change together. By joining PAL, partners can pool and expand upon their collective resources so they can work smarter together instead

of harder alone. PAL amplifies each partner’s capacity to achieve its particular purpose, while reaching beyond its present capabilities to share

in the empowerment that comes from unified action.

PAL-Partners Against Lyme was formed by Monte Skall (NatCapLyme);

Linda Lobes (Michigan LDA) and Judith Weeg (LDUC). The goal of PAL

is to be inclusive of all Lyme disease organizations, globally. We invite, as

an example, LDA, ILADS, TBDA, and all other Lyme disease groups to an

Inaugural Partnership Forum, October 5, 2013. See event info

above. Check the PAL website regarding hotel reservations and

reserving your entry to the PAL Forum by going to: http://paltad.org/event-

registration/?ee=1. Be present, as

history is made. Never before have all Lyme groups come together to

have one voice. What does this mean? PAL does not have the intention of

usurping the autonomy of any single Lyme group. PAL is the equal of the

United Nations, where all countries rule themselves, yet work toward a

unified purpose.

Please attend the October 5, 2013 Forum. Register quickly, or hotel

space or seats, at the forum may be filled. Again, this is open to all

groups in the Lyme disease world, and to all leaders of these groups,

as well as all patients. Questions

or concerns: 888-784-5963.

Press release:

Major Lyme Disease Summit Aims for Change Inaugural Partnership Forum on October 5, 2013 in Arlington, VA Washington, DC, August 6, 2013 – Partners Against Lyme and Tick Associated Diseases (PAL) was founded to bring together the collective

capabilities of Lyme advocates from across the globe. Pal believes the lives of tick-borne disease victims and the status quo can be best addressed through a

cooperative collective effort. Lyme disease is recognized as the number one vector-borne disease in America,

and it is widely believed there are now 300,000 new cases every year. Too many

Americans remain unaware of the dangers, how to avoid the disease and how to obtain effective treatment for suspected infections. Lyme remains a difficult illness

to treat wrapped in medical controversy. We must have change to effectively meet this challenge.

The PAL collaborative for change begins with a day-long inaugural Partnership Forum on Saturday, October 5, 2013, at George Mason University-Arlington

Campus, 3301 Fairfax Drive, Arlington, VA 22201. Leaders and individuals from across the country and around the world will assemble to collaborate on various

Lyme topics, emphasizing new strategies for meaningful change. Session topics include:

What can we do with PAL? Introductions and presentations from individual Lyme groups.

What’s on the horizon for diagnostic tests? The role of and strategies for state legislation.

Federal legislative oversight and investigative hearings.

Brainstorming on collaboration. All sessions will allow for Q&A.

In the spirit of collaboration, the Partnership Forum will share lessons learned in passing the Virginia Lyme Disease Testing Information Disclosure Act of

2013 which made Virginia the first state to require health care provider notices that current laboratory Lyme testing can produce false negatives. A team of

George Mason University researchers collaborating with Ceres Nanosciences will share their research about their Nanotrap® based Lyme antigen diagnostic test

and the launch of a clinical study. A discussion of Federal legislative process will be led by Mark Harkins, Senior

Fellow, the Government Affairs Institute at Georgetown University, including how Congress can investigate the work and policies of government agencies involved

with Lyme and tick-borne diseases. PAL is a collaborative effort that encourages member groups to retain their own

identity and independence while sharing their specialized skills, expertise,

experiences and resources. Most importantly, they can inspire and support one another while presenting a united front until we have a true understanding and

cure for all tick-borne diseases. All Lyme organizations, as well as individuals throughout the world are invited

to participate. For more information about the PAL Inaugural Partnership

Forum on October 5, 2013, please visit http://paltad.org/ . To join PAL, please

follow this link http://paltad.org/how-to-join/ .

ILADS HONORS DR. NICK HARRIS, PRESIDENT of IGENEX LABS – by Judith Weeg

The LDUC honors Dr. Nick Harris, President

of Igenex Labs. We

have a long history with our “Dr. Nick”. He

has aided patients and organizations

throughout the years. To me, he is the father of the Lyme disease

movement, in his quiet way. He has saved our lives with proper diagnoses.

He has funded Lyme disease organizations which care for patient

welfare. He has followed the LDUC motto: "Whoever destroys a soul,

it is considered as if

he destroyed an entire world. And, whoever saves a life, it is

considered as if he saved an entire world." [Talmud] Dr. Nick

has turned no patient away from his doors. I can attest to his devotion to

guide and aid the sickest among us. Let us honor him in the tribute below: http://www.ilads.org/campaign/ilads-board-lyme-fundraising-campaign.php

THE SUMMER’S ARTICLES AND BROADCASTS CONCERNING LYME DISEASE – THE GOOD, THE BAD, AND THE UGLY! [Editor’s Note: Many articles, below, are not in our favor, as Lyme disease patients]

THE LYME WARS---The Lyme-disease infection rate is growing. So is the battle over how to treat it.

BY MICHAEL SPECTER http://www.newyorker.com/reporting/2013/0

7/01/130701fa_fact_specter

Lyme Disease: Prevention Tips and Symptoms List Learn these Lyme disease prevention

strategies to keep you and your loved ones

safe from infected ticks, flies, mosquitoes and

more. (Published in the Mother Earth News) http://www.motherearthnews.com/natural-

health/lyme-disease-prevention-

zwfz1306zkin.aspx#ixzz2aAWKApMO

Relative's illness spurred

examination of Lyme ... -

The Boston Globe http://www.boston.com/2013/06/02/andrea/

kcCd2oOYPlbKGW3cvdqDPM/story.html

Lyme disease information, facts, and statistics -Boston.com www.boston.com/lifestyle/health/specials/ly

me_disease/

Drawing the lines in the Lyme disease battle…

http://www.bostonglobe.com/metro/2013/06

/01/lyme-disease-rise-and-controversy-over-

how-sick-makes-

patients/OT4rCTy9qRYh25GsTocBhL/story.ht

ml

LYME DISEASE SPECIAL SERIES: BITTEN BY UNCERTAINTY http://www.boston.com/lifestyle/health/speci

als/lyme_disease/ COMMENT: Drawing the Lines in the Lyme Disease Battle http://www.mvlymecenter.org/2013/06/05/dr

awing-the-lines-in-the-lyme-disease-battle/

Chat Tuesday: Dr. Jonathan Edlow on Lyme disease http://www.boston.com/lifestyle/health/2013

/06/03/chat-tuesday-jonathan-edlow-lyme-

disease/8KjROh4RtiwAIU7hmcNJoM/story.ht

ml

Is Burnsville at Risk for Lyme Disease? http://burnsville.patch.com/groups/summer/p

/is-burnsville-at-risk-for-lyme-disease

Delaware sees high rate of

Lyme disease…Read more at: http://www.philly.com/philly/living/pets/Delaware_sees_high_rate_of_Lyme_disease.html

Delaware's rate of Lyme Disease extremely high

By Amy Cherry

http://www.wdel.com/story.php?id=51616

Lyme disease remains a

worry, says St. Lawrence County Public Health Dept. http://northcountrynow.com/news/lyme-

disease-remains-worry-says-st-lawrence-county-public-health-dept-088230

Tick Populations to Explode in 2013 http://www.veterinarypracticenews.com/vet-

cover-stories/tick-populations-to-

explode.aspx

Tragedy as girl, 6, dies after contracting mystery disease following tick bite http://www.nydailynews.com/news/national/

girl-6-dies-contracting-mystery-disease-

article-1.1374225#ixzz2aAmGAhmm

COLUMBUS OHIO BROADCAST: If you would like to see and hear the

local Columbus NPR radio interview on

WOSU about Lyme disease, you can

send them

here: http://wosu.org/2012/allsides/wellnes

s-wednesday-anorexia-lyme-disease-

menopause/ and just scroll down to

“Wellness Wednesday” for July 3.

Yours was the 2nd segment of the

show." LYME DISEASE IN QUEBEC – A TICKING TIMEBOMB http://www.robertgalbraith.com/320/

Lyme emails request took five years; officials blame

scope and fee waiver: http://www.poughkeepsiejournal.com/article/

20130519/NEWS01/305190058/Lyme-emails-

request-took-five-years-officials-blame-

scope-fee-waiver

ILADS ANNUAL MEETING Reserve, now, to attend the ILADS annual meeting October

17-20, 2013 at Paradise Point, San Diego, California.

Encourage your local doctors to become enlightened about

the correct treatment of Lyme disease. More details:

www.ILADS.org, or call 301-263-1080.

Paradise Point Resort, San Diego, California Lyme Basics Course: Oct. 17, 2013 Annual Conference: Oct. 18-20, 2013 Gala Awards Dinner: Oct. 19, 2013

REGISTER HERE: http://www.ilads.org/ilads_member/conference-registration-login/

DEANNA’S STRUGGLE WITH LYME DISEASE Deanna is bedridden much of the time

with a Pic line connected to her heart

24/7. Her debilitating journey began

in 2010 and took her through 83

doctors and 12 hospitals. She

experienced all the incompetent

handling and disrespect that one can

expect for a Lyme patient in today's

medical practices, until she met her

current LLMD. "Cancer 12 years ago

was a walk in the park," she jokes

when she can breathe enough to talk.

Her primary diagnosis includes

Borrelia, Babesia, Bartonella and

Mycoplasma. Due to an unfortunate

genetic predisposition, her metal and

toxin build-ups are severe, and none

of the detoxification protocols

attempted seems to keep up. Most

importantly, her white blood cell count

crashes so rapidly with each and

every antibiotic treatment that the

doctor has to stop the procedure

before getting the desired benefits.

Sadly, this causes her treatment to

linger on and on, to the point where

she fears she'll be running out of

funding before reaching the only

hopeful light at the end of the

tunnel… remission. Her mission, if she

lives long enough, is to educate

others on prevention of Chronic Lyme

Disease and save them from this

ordeal. She recently created a new

website, www.lymeeducation.com, as

a first step towards that goal.

DOCTOR’S CORNERLyme Disease, Psychiatric Symptoms and Aggressiveness By

Robert C Bransfield, MD, DLFAPA (revised 9-28-12)… [Reprinted with permission of Dr. Bransfield]

There has been recent media attention

focused upon the issue

of Lyme disease and psychiatric symptoms and aggressiveness.

Questions arise whether microbes and the immune reactions to them can

contribute to cognitive decline,

degenerative neurological disease, developmental disabilities, mental

illness, personality changes and

violent and criminal behavior? There are several thousand peer-

reviewed references demonstrating the association between infections and

mental symptoms and at least 65

different microbes have been

recognized as causing mental symptoms.1 Over two hundred peer-

reviewed articles describe the causal association between Lyme/tick-borne

diseases and mental symptoms, pathophysiology, morbidity and

mortality some of which are included in the attached addendum. Lyme

disease: a neuropsychiatric illness is a major and classic article summarizing

this association.2 A Controlled Study of

Cognitive Deficits in Children With

Chronic Lyme Disease is a particularly useful resource for describing some of

the cognitive symptoms associated with Lyme/tick-borne diseases.

Attempted suicide and completed suicide associated with

neuropsychiatric manifestations of

Lyme disease and other tick-borne disease has been observed and

reported by the author and many other clinicians.3 An article in the

American Journal of Psychiatry, Higher

Prevalence of Antibodies to Borrelia

Burgdorferi in Psychiatric Patients Than in

Healthy Subjects compared 499

psychiatric inpatients to matched pair healthy controls and found

significantly more psychiatric patients were seropositive for Borrelia

burgdorferi (33% vs. 19%), thereby demonstrating an association between

Borrelia burgdorferi infections and psychiatric morbidity.

The recent attention on Lyme disease began after a chimpanzee

with Lyme/tick-borne disease became violent and assaulted their owner in

February 2009. Then a few weeks later a patient with late stage

Lyme/tick-borne disease shot and

killed a minister in Illinois. Since these two incidents occurred in close time

proximity and both drew considerable media attention there has been an

increased attention upon the question

of whether tick-borne diseases can cause violent behavior. Lyme disease

has been associated with causing aggression in dogs and other

animals.4 Although most patients with

Lyme/tick-borne disease do not become violent, a small percent of

patients who become infected develop a type of neurological dysfunction that

can increase their risk of aggressiveness. In working with a

number of patients with Lyme/tick-borne diseases it is apparent to many

clinicians these conditions can cause

reduced frustration tolerance, irritability, depression, cognitive

impairments and mood swings in many patients, but more significant

suicidal and aggressive tendencies are seen in a few patients. An article

about Lyme/tick-borne diseases and suicide in 1998 is at http://www.mentalhealthandillness.com/lyme

frames.html Articles on Lyme/tick-borne

disease and aggressiveness are Aggression and Lyme Disease

(1998). http://www.mentalhealthandillness.

com/lymeframes.html , A Tale of Two

Spirochetes (1999) http://www.mentalhealthandillness.com/lyme

frames.html and Lyme Neuroborreliosis & Aggression. (2001) http://actionlyme.50megs.com/neuroborrelios

is%20aggression.htm

There have been a number of

suicide attempts, suicides, aggressive episodes, assaults, homicide

attempts, homicides and combined homicide/suicide associated with

Lyme/tick/borne diseases. A few such cases are currently in the legal

system. In the majority of the cases that enter the legal system it is clear

the perpetrator is significantly

impaired and treatment occurs in the

aftermath. Some, but not all, of the

individuals involved in these cases have responded to treatment and now

leading productive lives. Most patients who acquire

Lyme/tick/borne diseases do not become aggressive and should not be

stigmatized. Many of the patients who do become aggressive can respond to

effective treatment. However if the seriousness of Lyme/tick-borne

diseases are overlooked there will be further tragedies that could be

prevented with greater awareness and earlier and more effective treatment

now. We need to change the focus of

our system away from a primary focus upon guilt and punishment towards a

greater emphasis upon insight and prevention. The unfortunate reality is

there will be other tragic incidents in the future. It won’t be a chimpanzee

in Connecticut or the shooting of a minister in Illinois, but some who are

alive and healthy today will become the victims of future tragedies

involving the mental symptoms associated with tick-borne diseases.

NEW Telephone Class: Lyme Disease - From Antibiotics to Beyond Balance Instructor: Steven Bock MD Dates: Thursday evening, September 19, 2013

Time: Class begins at 5:00 pm Pacific Time Register: Call 800/203-3775 to Register for Class No Charge

Dial in Phone #: 1.800.704.9804 and then enter Access Code 29826835# (you must press the # key!).

To receive course notes, please call BioResource at 800/203-3775, or email us at

bioresource@bioresourceinc.com. In this introductory class for practitioners, medical doctor Steven Bock will present an overview of the Beyond Balance Herbal

Formulas, and discuss acute and chronic case scenarios commonly seen in his

clinical practice.

TWO BRAVE GOVERNMENT ACTIVISTS TAKE ON THE CANADIAN GOVERNMENT

AT OTTAWA by Elizabeth wood and Wendy Aitken

I am Elizabeth Wood, a Lyme sufferer since 1985 in Emerson

Manitoba Canada, and my name is Wendy Yaxley Aitken, I have been

sick for as long as I can remember, at least 25 years.

In early June 2013, Elizabeth became aware of an article in the

Poughkeepsie Journal, which contained several emails from

scientists and doctors involved with the CDC, IDSA, and

NIH. Elizabeth saw that Canadian scientists had been cc’d by a number

of specialists in the IDSA and NIH, in these emails. I was shocked, so I

put this on Facebook. Wendy Aitken, who read my post, also realized what

this information meant. This meant that The IDSA, CDC and the NIH

emails were asking for outside

reinforcements from the field. They also were asking for

reinforcements from Canada and the United Kingdom as they were

outnumbered, and there is no science to what they have claimed, and that

their guidelines were made with science behind them. This was very

unsettling, as in Canada we have no Lyme Literate Doctors practicing.

Durland Fish (IDSA) is quoted in one of the emails he sent out to folks at

the NIH, IDSA, and CDC. He said “The battle cannot be won on the

scientific front. We need to mount a

socio-political offensive, but we are outnumbered and out-gunned. We

need outside reinforcements from outside the field.” That got me

thinking that I needed to go to Ottawa, our capital of Canada. When

Wendy saw the emails she really wanted to go to Ottawa, also.

With the help of Wendy Aitken, Wendy and I headed for Ottawa. It

was a crazy thing to do, me with a 2 hour flight, and Wendy a 1 1/2 hour

drive. We are both recovering from long term Chronic Lyme Disease and

Coinfections. Wendy, new to driving

the RV, parked the vehicle at night, and backed into a water line. She

was able to pick me up at the airport, and get us back to the campground.

We felt we had to try to get this information to our Canadian

politicians. So here we are, two women who

have Lyme, both staying in a campground close to Ottawa. We both

brought a considerable (piles) amount of Lyme information. We were staying

in a trailer for the most of almost 2 weeks. Wendy’s husband kept

checking up on us, in case we needed

something. The first few days we were

there, we had rain and lots of mosquitoes. My friend came prepared

with mosquito repellent, and was all set up with flowers on the table

outside, and signs all over her car and trailer warning of Lyme disease. Every

time we went to a restaurant we would educate the restaurant patrons

about Lyme disease as we sat to eat. At one point driving through Ottawa,

while parking, we had some one come to our vehicle and asked where his

wife could go to get help, as she had a tick on her over the weekend. So,

since it was raining, we asked him to

step into the vehicle, where we educated him on the politics, and the

difficulty of getting treatment for Lyme in Canada. (He looked well-

dressed, not someone who would approach a vehicle to ask for

information). The first morning I, Elizabeth, woke

up, and had no voice, from a cold which proved to be a problem, as we

came to talk to politicians. We agreed that my friend was to be the

spokesperson, from here on, our nicknames were Moses and Aaron, as

Moses needed a spokesman. And

educate she did! We spent many nights just too tired to even think

straight, we became very giddy and found it difficult to go to sleep. So at

one point Wendy started to have us listen to a book she had on her IPOD.

That guaranteed I was asleep before I would hear the end of the story.

In the morning we managed to get to Health Canada where I had

requested information through Freedom of Information about the

Emails from the US. We also tried to see my MP, I was promptly told: no,

that we could not do so, as it would

be a breach of security. We wanted to

share some of the new information we had been collecting about Lyme

disease. We were told we could fax the information across the street to

Vic Towes’ office. We joked about this, and someone announced on Facebook

that we got thrown out of our MP’s office, and that we were destroying

any chance of getting help for Lyme sufferers. Not sure how this

information had gotten so twisted, we were quite sure that our trailer was

bugged. We did get to see my friends’ MP (no breach of Security there} and

they were very kind to let us in, even

though we were an hour late as we got lost in Ottawa with a GPS, no less.

Later we stopped to have some corn on the cob and an ice-cream cone,

which did not help our stomachs. Wendy and I have Lyme so the

thought of even finding our vehicle was always on our minds, but we had

made the commitment to get Lyme awareness completed, and check out

what was going on in our government, and Health Canada,

regarding Lyme disease. Another day we also went to

Question Period to see how Parliament

is run, and before we did, we stopped at the Statues of Ladies who got

women the vote, for inspiration. These statues are five women, one of

five, being Nellie McClung, from Manitoba, who fought for the rights of

women to vote. In January 29, 1916, Manitoba became the first Canadian

province to give women the vote. This gave us the urgency and importance

of the job that was to be done for the Lyme cause.

Back to our trailer, poring over our papers, we found many issues with

the way our provinces are treating

Lyme disease. Usually by the evening

we were tired and giddy. Our day of reading Lyme documents was very

taxing. Because we were in a trailer park our WiFi did not work well, and

sometimes we had to go to the middle of the field to get it to work. Our

printing off of documents was very tricky and not going well either.

At one point we did find out that our Head of our Pandemic Working

Group had not been in to work in over a year, due to a stroke, and we were

trying to tell the temporary director we are having a crisis in Canada due

to many getting Lyme disease and not

getting treatment. The people who Wendy talked to were apologetic and

said they would do better that they were filling in for the President. We

said that it was not good enough. A week after we came home, the

President of the Panendemic Working Group stepped down from his job. I

would like to think we had a hand in protecting our country.

On the way home I mused on what we had undertaken, such a

feat of trying to educate the government about Lyme disease,

when the IDSA, CDC and the NIH

have done us such disservice all over the world.

So, all of you Lyme sufferers, we can make a difference, every little bit

helps. Educating your friends, writing to your MPP, MP and talking to folks

(about Lyme disease) who you see walking in endemic areas. Do not

criticize your fellow Lyme sufferers, as we can use all the help we can get. If

anyone, even a child wants to advocate to the Government, more

power to them. Do not put down or belittle someone who has cared

enough to speak up. In the end we

will win. For me, this meant I felt

empowered, and that is healing too. From Wendy: To my wonderful

friend and husband of 31 years, who supports me in my quest for truth,

and cares for me in my recovery from Lyme Disease, Bartonella, and

Babesia, and to all my friends, Lymies’ and otherwise, I don’t think I

can give up this fight, as it is unjust. From Elisabeth: To my wonderful

friend and husband who made this

trip, possible thank you. To my ever

loving husband of 46 years and family, thank you for understanding. I

needed to do this. Sorry I missed the Father’s Day celebration. To all Lyme

sufferers, we are with you, and we will continue to push forward for you

till our dying day! Elizabeth Wood and Wendy Yaxley

Aitjen---Two Brave Women from an RV on the outskirts of Ottawa,

Canada.

Midwest Ticks Show Signs of 'Heartland Virus' Recently discovered disease struck two Missouri farmers URL of this page: http://www.nlm.nih.gov/medlineplus/news/fullstory_138940.html

(*this news item will not be available after 10/20/2013)

MONDAY, July 22 (Health Day News) -- While a type of tick-

borne disease known as

Heartland virus appears to be extremely rare --

only two cases in humans have been

reported so far -- a new study finds it is lurking

in ticks in northwestern Missouri. The researchers haven't issued

anything other than the usual warnings about avoiding contact with

ticks that may harbor disease. Still, "there's another tick-borne pathogen

out there to be careful of," said study author Harry Savage, a medical

entomologist with the U.S. Centers for

Disease Control and Prevention. Heartland virus is indeed rare, he

said, but reports on it may be spotty because a test for it is not readily

available. Lyme disease is the most well-known

infection spread by ticks, but there are several others. The infection

known as Heartland virus -- so named because it was discovered in the

middle of the country -- is unusual because it's spread by a virus, not a

bacteria.

Two farmers from northwestern Missouri were diagnosed with the

illness in 2009 after coming in contact with ticks. The virus causes "fever,

headaches, mild diarrhea and low white blood [cell] counts," Savage

said. Both of the men were hospitalized

with severe illness but recovered. Last year, researchers fanned out

across northwestern Missouri -- to the north and northwest of Kansas City --

and gathered a whopping 56,428 ticks at 12 locations, including at the farms

of the infected men. The ticks were

caught in the wild and taken off horses and dogs.

The researchers report that they found the virus in a species known as

the lone star tick. The infection rate was about one in 500 ticks, Savage

said. It appears that the ticks became

infected at the larval stage when they bit an animal that harbored the virus.

Then the ticks reached the nymph

stage and looked for blood meals from, say, humans, Savage added.

Investigators identified the first cases with the help of the CDC. Now,

Savage said, researchers are working on a test to identify the virus in

infected people. However, it's not clear how helpful a

test will be. Because the disease comes from a virus, antibiotics can't

be used to treat it. Is the virus -- which Savage said may

have lurked around for thousands of years -- concerning? That's also not

clear, said another expert who studies

infectious disease. "If these two cases represent the

severe end, then there may be many other milder cases that are going

undiagnosed," said Dr. Lucas Blanton, an instructor at University of Texas

Medical Branch at Galveston. "Until more patients are studied, I do not

think we know the full implications of this virus."

Blanton said physicians should

consider possible infection with Heartland virus if the tick-borne

disease it mimics -- ehrlichiosis -- fails to improve when antibiotics are given.

The public, meanwhile, should continue to recognize the risk of ticks

and rely on protective clothing, insect repellents and checking their skin for

signs of ticks, he said. In addition, the CDC recommends

showering soon after going outdoors, removing attached ticks from the

body with tweezers, and calling a doctor if illness develops after a tick

bite.

The new study was published online July 22 in the American Journal of

Tropical Medicine and Hygiene. SOURCES: Harry Savage, Ph.D., medical

entomologist, U.S. Centers for Disease

Control and Prevention, Fort Collins, Colo.;

Lucas Blanton, M.D., instructor, University of

Texas Medical Branch at Galveston; July 22,

2013, American Journal of Tropical Medicine

and Hygiene, online

HealthDay…Health NewsCopyright (c)

2013 HealthDay. All rights reserved.

PANDAS---SOMETIMES AN ADJUNCT TO LYME DISEASE Anonymous author…is the parent of the child. PANDAS – a frightening condition, thought to be caused by the

common 'strep throat' bacteria, whose symptoms can include tics,

obsessions, compulsions and anorexia. http://www.foodsmatter.com/asd_autism/miscellaneous/articles/pandas.html

Latitudes is the on-line newsletter of the excellent Association for

Comprehensive NeuroTherapy, a non-profit American organization

which explores non-drug based, often nutritional, approaches to treating

anxiety, autism, attention deficit/ hyperactivity disorder, depression,

obsessive compulsive disorder, tics and Tourette syndrome, and learning

disabilities. The following article by the parent of

a child with PANDAS appeared in their most recent newsletter. Readers

might also want to check the very active and

helpful forum which Latitudes hosts on PANDAS.

I need to die. Please kill me. Someone please kill me!”

My 7-year-old is shouting this at the

top of her lungs, standing in her pediatrician’s examination room. Her

eyes are fully dilated; she’s terribly

scared, frozen in place. Symptoms

that started a few weeks ago had now exploded out of control. The nurses

are wondering what to do. The doctor finally arrives and says,

“We really can’t do much for her. She’s disturbing other patients.”

This is your patient, you idiot! (I think, holding my tongue). This is a

child with death ideation, who’s frozen and screaming. She is not having a

tantrum, she’s psychotic. This is not normal behavior. She needs help!

Where has my daughter gone? It’s hard to explain what

overwhelming contamination fears are

like in a child, or outrageous rages, or adamant defiant behavior if you

haven’t seen someone go through them. It’s hard to explain to someone

that the scene at home is much like a weird version of “The Exorcist” movie,

and you’d swear your wonderful child has been suddenly possessed. It isn’t

just being argumentative, or cranky, or tired. We know those things.

It isn’t just unusual hand tremors and odd movement disorders which

doctors may refer to as “choreiform movements” while not knowing their

cause. It is about your child being so

completely stuck in compulsions and obsessions that he or she is literally

unable to function. This is PANDAS. Such a cute name,

yet the disease is anything but cuddly Getting the right diagnosis. If

you’re lucky. Children with PANDAS must initially

be diagnosed with obsessive compulsive disorder (OCD) or a tic

disorder. The children may have some of the following symptoms that

accompany the OCD or tic disorder [Swedo1998][Moretti2008]:

• Obsessions (e.g., preoccupation

with a fixed idea or an unwanted

feeling, often accompanied by symptoms of anxiety);

• Compulsions (e.g., an irresistible impulse to act, regardless of the

rationality of the motivation); • Choreiform movements (e.g.,

milk-maid grip, fine finger playing movements in stressed stance);

• Emotional liability (e.g., irritability, sudden unexplainable

rages, fight or flight behaviors); • Age inappropriate

behaviors particularly regressive bedtime fears/rituals;

• Significant separation anxiety;

• Oppositional defiant disorder; • Tactile/sensory defensiveness;

• Marked deterioration in handwriting and math skills;

• Anorexia (particularly a fear of chocking, being poisoned,

contamination fears). The controversy in PANDAS (and,

oh yes, there is a lot) is not about whether the children have the

symptoms listed above. The controversy is whether the symptoms

are caused by a common bacteria known as Group A Beta-Hemolytic

Streptococcus (the bacteria in strep

throat). For those who aren’t aware, strep

throat is almost universally treated with antibiotics because for about 4%

of the population who have the “right” genetics, untreated strep throat can

turn into acute rheumatic fever. About 30% of those who get acute

rheumatic fever develop Sydenham chorea, and about 70% of those get

compulsions and obsessions so severe as to be clinically diagnosed with

OCD. Luckily, once treated, the symptoms tend to resolve.

Unfortunately, the symptoms often

return with greater severity when the

person is re-exposed to strep. Acute rheumatic fever and

Sydenham chorea and even the OCD that follows are caused by the body

trying to fight off the strep infection. In some people, instead of the

immune system just attacking the foreign bacteria, it gets confused and

can affect heart muscle (carditis), create joint pain (rheumatoid

arthritis) and even interfere with how the brain works (Sydenham chorea).

Getting the needed antibiotics PANDAS is thought to be similar to

Sydenham chorea but with less of the

writhing chorea movements and more of the OCD.

The good news in PANDAS is that the condition does not seem to result

in damage to the heart. The bad news is that without significant signs of

chorea or heart involvement, most doctors will say, “Oh, your child has

OCD.” Or, “Oh, your child has tics.” They don’t pursue the possibility of a

bacterial cause. They don’t think about strep so they don’t think about

antibiotics, the first treatment that should be considered for PANDAS.

Back to my daughter. After this

psychotic break at the pediatrician’s office, my daughter went downhill

fast. She stopped eating, had full-fledged anorexia nervosa, and was

clutching a school newspaper that talked about sugar in food. She was

obsessed. This in a 7-year-old. We got her into the Eating Disorder wing at

the local Children’s Hospital. They had never seen anything like it. “What’s

causing these movements and obsessions?” I asked. “We don’t

know, but we have strong anti-psychotic and anti-tic medication that

helps the majority of patients. While it

is unusual in a child as young as

yours, most can be helped with these medications.”

I pressed, “Can we try a course of antibiotics?” “Antibiotics are not

indicated unless there is an active infection.” “Can you take a throat

culture?” “Well, she doesn’t seem to present

with the typical symptoms of a streptococcal infection. But okay.”

The doctor returns a bit later. “Huh, it’s positive. That’s odd.”

Naturally I say, “Can we get antibiotics for her now?”

“Well, between 5 to 10% of

children are known to be asymptomatic carriers, so the positive

strep test might not mean anything.” You might not know this but the

current standard of care is to not treat asymptomatic children with antibiotics

despite a positive strep culture. This seems nuts considering that 4% of

children who are untreated are at risk for acute rheumatic fever, but that’s

how the math works (less than 1% of children would be affected).

Unfortunately that 1% included my child.

I sit there trying to get antibiotics

for my daughter while the doctor is telling me about Risperdal for tics,

antidepressants for OCD, and Ativan in an attempt to stabilize mood. I

can’t believe they wanted to put her on drugs that are off-label for

children. Worse, they weren’t planning to treat the strep infection that was

right there when Sydenham chorea, OCD, and acute rheumatic fever are

all tied to untreated streptococcal infections.

The doctor relented on antibiotics and my daughter improved dramatically

within 24 hours—not 100% better,

not normal, but she could eat, she

could touch things, she smiled for the first time in a month.

Then she got worse, way worse. I took both kids in and my other

daughter tested positive for strep. Arggh! We treated both kids and

again symptoms declined significantly. It took another 6 weeks for the

motion abnormalities to go away. Despite all of this I was still worried.

What might happen if she gets strep again? Will it all come back? Will it be

worse the next time? I asked my doctor about prophylactic

(preventative) antibiotics. He said no.

Conventional medicine says: Current research indicates that

prophylactic antibiotics are not necessary because critical organs like

the heart are not affected in PANDAS [Shulman2009]. Ah, did they forget

the brain, that other critical organ? “We want to treat only active

infections so we don’t accidentally create bacteria that are resistant to

antibiotics.” Can you tell by this point that I don’t care? I just want to cure

my daughter. I ended up searching and finding a doctor who would treat

my child’s PANDAS—finally.

What most doctors don’t know It’s not really the doctors’ fault.

They are trying to follow a standard of care. The problem is they don’t know

all the evidence, and for good reason. Some of the best evidence of linking

PANDAS with streptococcal infection came out in only the last four years

[Kivan2006] [Yaddanapudi2009]. This is just yesterday in the medical

community. Other researchers are still trying to replicate these experiments.

There remain huge debates about

how to diagnose PANDAS, confusion

about the meaning of certain antibody tests, disagreement about whether

PANDAS is just weak Sydenham chorea, concern that improvement is

just a placebo effect. We can certainly join the scientific debate, but frankly

it isn’t that fruitful. Despite PANDAS being the first major clue in ten years

into what might cause OCD and tic disorders, it’ll be at least another five

years before the research stabilizes. My message for parents

Beyond antibiotics, there are helpful treatments for PANDAS that work on

the immune system. New studies and

advances are underway, and there are many great success stories. There’s

definitely hope for a return to normal life, and the sooner a child is

diagnosed the better. The family is the first line of defense

for the PANDAS child. You know your child better than anyone. You’ll

recognize the symptoms long before the doctor. But, be prepared to hang

in for the long haul, as you may have

to fight to get the proper treatment for your child. It still amazes me that

it’s sometimes harder to get a strep

culture than to be prescribed dangerous antipsychotics.

If your young son or daughter has some of the symptoms described

above, like daytime urinary frequency, massive separation anxiety,

contamination fears, anorexia – and these are dramatically interfering with

daily life, get a strep test (and test the siblings too).

Learn about PANDAS. And find a specialist who knows how to treat

it.

THE POLITICS BEHIND DR. BURTON WAISBREN, SR.’s BOOK: TREATMENT OF CHRONIC LYME DISEASE by Judith a. Weeg

Dr. Burton Waisbren,

Sr., an independent thinker wrote,

Treatment of Chronic

Lyme Disease as a treatise on the proper

treatment for Lyme disease patients.

Recently, in several patient cases, I have been involved in life-

endangering situations, by their mainstream doctors. Traditional

Infectious Disease doctors, were literally putting the patients life on-

the-line by performing outrageous remedies, rather than following

through with antibiotic/herbal care for the Lyme disease patient. I cannot

encourage, you, the patient, –

enough, to purchase a copy of Treatment of Chronic Lyme Disease to

hand it to the mainstream (non-LLMD)

doctor, who will not listen to you, as you say you need antibiotic care.

Dr. Waisbren was one of the

original founders of the Infectious Diseases Society of America (IDSA).

Prior to his death, he left us a gift of Treatment of Chronic Lyme Disease as

a lesson to our current opponents (IDSA), whom often claim that Lyme

disease does not exist. To order Treatment of Chronic Lyme Disease,

by Dr. Burton Waisbren, Sr. go to http://www.lymebook.com/ [The

LDUC does not profit from the sale of this book,nor from any suggested

book.]

Holly Rae Holiski of Texas, Dies from Complications of Lyme disease:

(February 23,

1975 - June 16, 2013) Holly Rae

Holiski, 38, passed away on

Sunday, June 16, 2013 in

Dalhart, Texas. A memorial service was held on Friday

June 21 at 3 pm at the First Baptist

Church in Dalhart, with Mr. Mike Phipps officiating and Mr. Brian

Walton assisting. Holly was born on February 23,

1975 in Dalhart, TX to Lane Crist and Judy Little. Holly grew up in Clayton,

NM where she attended school, graduating high school 1993. Holly

knew from a very young age that she wanted to be a mother and

compassionate woman. After high

school she began a twenty year bond with Ben Holiski. Holly and Ben

married on June 29, 1996 in Clayton. She graduated college with her RN

license and began her dream of dedicating her life to helping others.

The true light of her life was her children, Connor age 16 and Halle age

13. Holly focused her being on her

family, seeing to meet their needs as best she could. She was a member of

the First Baptist Church in Dalhart. She truly was a living angel who lived

her life for The Lord. She was preceded in death by her

grandparents and many dear friends and relatives.

She is survived by her husband of 17 years, Ben Holiski of Dalhart;

wonderful son, Connor Keith Holiski of

Dalhart; beautiful daughter, Halle Elaine Holiski of Dalhart; Parents Lane

and Jean Crist of Clayton and Lonnie and Judy Little of Dalhart; Sister, Dee

Phillips-Goodnight and husband Gary

of Owasso, OK and Brother, Kelby Crist and wife Leslie of Clayton; and

numerous nephews and nieces.

Please use the information below – it should, also, be directed, to all of

your physicians: DR. ALAN MCDONALD, PATHOLOGIST – SPEAKS ABOUT BIOFILMS

Published on July 20, 2013 This is a 30 minute video with Dr.

Alan MacDonald, a retired M.D. and board certified in Anatomic Pathology

and Clinical Pathology. This revealing interview from May 2013 (1 of 3)

covers many of the controversies

associated with Lyme disease: http://www.youtube.com/watch?v=r8

tESJVvM88&feature=youtu.be SUBJECT MATTER –

- Chronic Lyme disease - Alzheimer's and Lyme disease:

microscopy and culturing brain tissue

- How Borrelia changes and survives

within the human host - The many strains and variations in

Borrelia, how this relates to flawed testing

The complete interview is available

from The Arthroplasty Patient Foundation.

http://www.whyamistillsick.com/ And a specific library of current

intelligence on biofilms: http://www.biofilmcommunity.org/

“BORRELIAL DERMATITIS”---THE NEW TERM FOR MORGELLONS

More Evidence that Morgellans Disease is an Infection, not a Delusion

See Press Release:

http://www.prweb.com/releases/2013/5/prweb10694837.htm

To learn more about Borrelial Dermatitis (BD) go to: http://www.thecehf.org

Attend a monthly support BD/Morgellans meeting by teleconference: The meeting is held once a month, on the last Wednesday of each month.

The next teleconference meeting is August 28, 2013. Conference Dial-in Number: (218) 844-0850 Access Code: 392674#.

Time: 8 PM ET; 7 PM CT; 6 PM MT; 5 PM PT

LDUC TWITTER: Tweet: Fluoroquinolones may cause tendonopathy. Curcumin

may help to some degree, vitamin C-50 g IAB may be of a better aid.

Tweet: www.LymeSavers.org is a non-profit organization dedicated to

providing financial support to Canadians who have Lyme disease…

From G.A.

Tweet: MTHFR Newsletter – your

expert resource on MTHFR Gene Mutation… From G.M.

For more information, click link below: http://us2.campaignarchive2.com/?u

=0dd9644f7c3164307a15acb3d&id=c700d055e5&e=81570ab92e

Tweet: “How Vitamin D

Metabolism Autoimmune and Inflammatory Disease”

To read more -click here…

How Vitamin D Metabolism Affects

Autoimmune and Inflammatory Diseases

Tweet: Sign up for “Chronic Lyme Tracker”

to keep track of your Lyme disease symptoms. Sent to us by Gail Meads –

Director of the State of Georgia; LDUC Advocate; member of the LDUC Board

of Directors: keep track of your Lyme disease symptoms and medical

history with the following site: http://lyme.chronic-tracker.com/

Tweet: Here are some traveling

tips from Gail Meads to avoid illness…

rest well before trip--plenty of

sleep take vitamin C/B vitamins week

before trip take along antibacterial wipes,

oscillococcinum, antibacterial hand gel, vitamin E caps or oil,

Emergen-C powder packs, Q tips travel days --coat nose with

vitamin E with q tips-- wash hands often with hot water, then coat

with hand gel--use wipes on all travel headrests, tray tables,

handles--take Emergen-C powder every 6 hours

most airports have coffee shops

where you can get green tea for antibacterial protection

take oscillococcinum at first sign of sore throat/cold

Tweet: Cilantro (Chinese Parsley

…Note- use Biopure cilantro) is an herb “capable of mobilizing mercury,

cadmium, lead and aluminum in both bones and the central nervous

system…” DR. KLINGHARDT’S PAPER – THE KLINGHARDT NEUROTOXIN

ELIMINATION PROTOCAL. “Garlic contains alliin which is

enzymatically transformed into allicin,

nature’s most antimicrobial agent.” See his website:

http://www.klinghardtacademy.com/images/stories/neurotoxin/Neurotoxin

Protocol_Jan06.pdf

Tweet: Dr. M – Please get well after breaking your wrist. The

LDUC honors you, so highly. Tweet: Diane, you are an uplifting

character at the LDUC Wednesday night support group. The LDUC

sponsors an Adult Telephone Conference Call Meeting for ages 35+

is held every Wednesday night.

Please feel free to attend. Time: 5:30PM PT; 6:30PM MT;

7:30PM CT; or 8:30PM ET. Conference Dial-in Number: (605)

562-3000 Access Code: 821370#

Tweet: Dr. R. and Chris – thank you for taking on the onslaught/avalanche

of new patients. You are troopers!

Tweet: Amazing Grace: Pam and Gail – the greatest LDUC Advocates

on earth! Dawn, Michael, and Brienna – great support group leaders! Kem, a

great researcher.

Tweet: Get well Diane V. – We

hope you recover soon, after your hospital journey.

Tweet: MW – you are never alone –

the Lyme family is behind you. We all love you.

Tweet: Amy V. in Iowa – we all love

you – get well – you brave woman!

BOOK CORNER "Hidden in the

Leaves", a 3 part documentary film is

available to view at: http://www.mvlymecen

ter.org/2012/08/10/hid

den-in-the-leaves-part-1/

PJ Langhoff’s new book: “No Picnic: an Insider’s Guide to Tick-

borne Illnesses” PJ Langhoff has written a new book

and is making literally nothing from the sales of her new book. It is more

important for her with this particular book to make it available to everyone

anywhere, because she believes it has critical information as far as tick

pathogens and new information that should help counteract the negative

attitudes in the public health arena,

not only about patients, but also toward physicians.

As anyone can see from reading it, there is a host of pathogens found

inside the bodies of ticks. Because of that, there is no practical way to

address these pathogens under any

regimented guidelines which ignore most of these infections.

Downloadable book: www.allegorypress.com/No%20Picnic_20

13.pdf Amazon print book: http://www.amazon.com/No-Picnic-Insiders-Tickborne-

Illnesses/dp/0983376565/ref=sr_1_6?ie=UTF8&qid=1373231255&sr=8-6&keywords=pj+langhoff

Every physician and Lyme disease patient should read:

Nutrient Power: Heal Your Biochemistry

and Heal Your Brain by

William J. Walsh, Ph.D. This book was suggested by one of our top Lyme

psychiatrists–a brilliant doctor. It is available at your local

library, or order at Amazon: http://www.amazon.com/Nutrient-Power-

Heal-Biochemistry-Brain/dp/1620872587

FOR SALE – used Hyperbaric Chamber owned by Ld patient: $20,000 new --- now available for only $11,000 OBO

Email: jfishervb@aol.com

LYME DISEASE PATIENT VOICES HEARD---MAY 2013 ACTIVISM:

IOWA ACTIVISM: IOWA'S GOVERNOR BRANSTAD SIGNS PROCLAMATION RECOGNIZING MAY AS LYME DISEASE AWARENESS MONTH

Governor Terry Branstad, beloved and many-termed Iowa governor, signed a

proclamation before a packed room of Lyme disease patients from Iowa, on May 22, 2013, in his Des Moines, Iowa capitol building executive office.

Dale Lamb, an attorney from Grinnell, Iowa, delivered a speech before the group. He was flanked by his wife, Mary, and their son, Jake, a teenager who has bravely battled Lyme disease and

cancer, which many Lyme patients develop due to a weakened immune system. Among the witnesses to the signing were Des Moines resident Amy Flattery and Joni Comstock of Ellsworth, both of the Lyme

Disease Organization of Iowa/Lyme Disease United Coalition. The proclamation was written by the central Iowa president of the Lyme Disease

United Coalition, which began as an Iowa group, and has now become a global organization aiding Lyme disease patients.

IOWA AWARENESS AT STATE CAPITOL

Iowa Awa

The proclamation is attached for review below.

For more information about the epidemic of Lyme disease (Ld)--go to www.lduc.org, or call 1-800-311-7518.

TENNESSEE ACTIVISM:

Mayor declares 'Lyme Disease Awareness Month'

By Mary E. Hinds

maryhinds@lebanondemocrat.com Thanks to the unrelenting efforts of a

local mother, Lebanon Mayor Philip Craighead declared May as Lyme

Awareness Month in the city.

Debbie Qualls and her 13-year-old daughter, Mallory, joined the mayor

at City Hall on Thursday morning to accept the official proclamation.

"I'm excited; it's a start," Debbie

Qualls said. "I would love to see it

county-wide and statewide. We know hundreds of people in Tennessee with

Lyme Disease."

Debbie Qualls has fought the good fight since Mallory was 4, when a tick

bite turned her young life upside down. Qualls describes how Mallory

began to show varied and mysterious symptoms.

"I remember the tick bite and the

bulls eye rash," Debbie said.

The problem was that so few people

in the state, including doctors, were familiar with the signs and symptoms

of Lyme Disease, leading to lost years when prompt treatment could have

saved Mallory a lot of pain and anguish.

Mallory had several emergency room

visits for everything from severe hip joint pain, to terrible headaches and

vision problems.

"We were always being told it was things she would outgrow," Debbie

said. "In 2009, after a stressful event,

her body went haywire."

Therein began more than six months of visits to doctors and specialists,

with new symptoms being discovered and new drugs being prescribed

almost daily.

"Mallory's eardrums were bleeding; she was having locked bowels, carpel

tunnel, ear tube surgery and test after test, just to be told, 'we can’t find

anything, maybe she should see a

psychiatrist,'" Debbie said. "In December 2009, we took her to see

an iridologist, who told me, 'your child is sick as a dog,' started her on herbs

and told me to feed her only green vegetables and baked chicken."

Finally in spring 2010, the family saw

a doctor who ran tests, which came back positive for Rocky Mountain

Spotted Fever. Mallory was then diagnosed with Lyme disease.

"Our journey began, as we have

fought long and hard, researching,

educating ourselves, reaching out to others for support," Debbie said. "She

is being treated for Lyme, RMSF, Barts Disease and Babs Disease.

After receiving such a diagnosis, it was hard for the family to stay upbeat

and optimistic.

"Feeling discouraged, we continued to fight daily, taking supplements and

going the homeopathic route that we began in March of 2012," Debbie said.

"We have met so many wonderful, supportive people in the Lyme

community and could not imagine this

journey without them, because we

have come to realize, that unless you have in some way been stricken with

this horrible disease, you really do not know the daily struggle of life in a

Lyme infected body."

Thursday morning, Mallory was a trooper. She was obviously not feeling

well as she awaited the proclamation ceremony, telling her mother, "I want

to go home." She managed to make it through the ceremony wearing a t-

shirt that proudly proclaimed "That tick bit the wrong chick."

Despite her bravery and bravado, Mallory's Lyme Disease is so prevalent

she hasn't been able to attend school. "I have a tutor," Mallory said. "But it's

hard, because I can't remember anything."

Craighead read the proclamation

which stated the need to address Lyme Disease early "instead of

someone having to go through what Mallory has gone through for the past

eight years." The proclamation also states that Lyme Disease is the

fastest growing immune system

disease in the nation and causes "dire consequences for sufferers" and "long

term disabilities." The mayor also recognized the prevalence of

misdiagnosis with Lyme Disease. "I wish you all the best in the world,"

Craighead told Mallory. "You're going to beat this."

Debbie said her family is also thankful

to the Lyme Light Foundation, for helping Mallory with funds to continue

treatment. "It could not have come at a better

time. I cried when I heard that

Mallory would be receiving grant

money to help with continued medical treatment," Debbie said. "I cried more

when Mallory found out and said, 'but mom, there are so many other sick

kids with Lyme.'”

She added that the family's goal is for Mallory to be in remission this year,

and they plan to remain active in the Lyme community, educating and

supporting others.

"Although this journey has been long and hard, affecting us financially,

spiritually, emotionally and Mallory

physically, it has taught us much and made us strong," Debbie said. "We

ask that those of you, who have prayed for Mallory during this journey,

to consider donating to the LymeLight Foundation, so that some of the other

kids Mallory mentioned might have the same opportunity as she has been

blessed with – help for her journey to remission."

Photo: Mary E. Hinds • The Lebanon

Democrat Mallory Qualls, 13, has lost a lot to Lyme Disease, but as one can

tell by her shirt, she has not lost her fighting spirit. Mallory and her

mother, Debbie Qualls, visited

Lebanon City Hall Thursday to join Mayor Philip Craighead in declaring

May "Lyme Disease Awareness Month" in the city.

WORLDWIDE PROTEST IN WASHINGTON D.C.Mayday 2013 March Around the

Whitehouse https://www.youtube.com/watch?feature=player_embedded&v=WMs10UM6Bp

o May Day 2013 Flash Mob 'Die-In' - Lyme

Disease Protest https://www.youtube.com/watch?feature=p

layer_embedded&v=WFTqUNeZKDQ

Mayday 2013 Random Clips, Flash Mob" Die In" and "March Around the White Hour

https://www.youtube.com/watch?feature=player_embedded&v=1wCckznjSFo

1 May Day Opening statement and memorial

https://www.youtube.com/watch?v=HFR

OECOjdo8&list=PLB8gD4U_SxDoxM6f2PN6Kj2nZEo647nvW May Day 2013 Part Two

https://www.youtube.com/watch?v=V2VCoH7pOlQ

Katina Makris speaks at May Day Lyme Disease Rally in Washington DC 2013 https://www.youtube.com/watch?feature

=player_embedded&v=_AeVSyfWMJQ The Many Sides of Lyme Disease ~

Channel by Cheryl (she broke down rest of speeches in increments, and saved other Lyme videos

on YouTube) http://www.youtube.com/channel/UCZ4E

2_M7v7Spf7UGFac1JpA

Washington DC Worldwide Protest:

New York City Worldwide Protest March, 2013:

Eva Haughie, President

Empire State LDA/LDUC

LDUC MEMBERSHIP

Includes our quarterly newsletter: LYME & TICK BORNE DISEASE NEWS & VIEWS

Plus Lyme Resources and Support Enroll in your Annual Membership Subscription

Membership is only $30.00 per Family

Name: _______________________________________ Address: _____________________________________ State: ______ Zip Code: _________ Phone #: _____________ E-mail: __________________________________________

Amount enclosed for your annual membership: $__________ For your convenience, you can submit your membership fee securely online, through Pay Pal on our web site: www.lduc.org. Or Mail to:

Lyme Disease United Coalition P.O. Box 465 Boone, IA 50036

Please make checks payable to: Lyme Disease United Coalition. Be sure to include this page so we will know it is for your annual LDUC membership.

Your membership is tax deductible as the Lyme Disease United Coalition is a tax exempt and non-profit 501(c)(3) organization. Physicians, State Leaders, Chapter Leaders, and PAL Founders are exempt from paying membership for the LDUC newsletter.

ADS OF INTEREST FOR LYME

DISEASE PATIENTS Gluten and allergen free foods

Cristy Turnipseed Namaste Foods LLC

1-866-258-9493 f: 208-772-4318

cristy@namastefoods.com www.namastefoods.com

“ARE THERE ANY NON-DEET BUG REPELLENTS THAT WORK?

Products with DEET are best at fending off mosquitoes and ticks. If

you want to go with something plant-based, oil of lemon eucalyptus (also

called PMD) is as effective as repellents with 10-15% DEET. But

check with your pediatrician first: Oil of lemon eucalyptus can’t be used on

kids under 3, and just because something is “natural” doesn’t mean

it’s safer. Skip sprays made with citronella,

geranium, basil, garlic and

peppermint; they generally don’t work that well. Also avoid the

repellent/sunscreen combos: Sunscreen needs to be reapplied more

often than bug spray.” Rosmaire Kelly, PhD, MPH, entomologist with

the Georgia Division of Public Health ***reprinted from Woman’s Day

Magazine June 16, 2009 Now is the time to have a “bug

safety kit” prepared. A safe product for the family is BEAT-IT

Bug Spray, an all-natural spray. To order, call: 1-800-219-9765

Rife Machine: (about $500) Call our office for info: 800-311-7518

Best tick non-aerosol for clothing (tick prevention) ---“Clothing and

Gear Spray” with Permethrin – check with your local “Outdoor” shop - $15

for 32 oz. bottle.

TRIAZICIDE

Lawn spray to prevent ticks in your yard: 1-800-917-5438

“Frontline”

Best tick-prevention for pets– (at Veterinarian’s office)

NATURAL PRODUCTS – Oreganax (natural antibiotic) North

American Herb & Spice Co. 800-243-5242

Epicor – vitamin to enhance immune system -Chemical Free 866-994-9155

or 1-888-401-1105

Carnivora – (herb) & Lymph Drainage: www.carnivora.com

Vita Cost: www.VitaCost.com

Longevity Plus- Immuni T3 (based on transfer factor) -- (for HHV-6)

Immune booster 1-800-580-7587 www.longevityplus.com

Bragg’s Products: www.bragg.com

Alternate sources for Teasel Root tincture made from FRESH Dipsacus

sylvestris root include: Pharmacopia Herbals –Oregon

www.pharmacopiaherbals.com Jean's Greens - New York State

www.jeansgreens.com

Woodland Essence -Cold Brook, NY www.woodlandessence.com

Walker Farms –Wisconsin www.walkerherbs.com

Judy’s Organic Herbs (Canada only)

www.earthmedicine.ca

HERBALIST AIDS LYME PATIENTS LadyB is an herbalist, who is completely

recovered from eight separate bouts of Lyme over a 15 year period and has been

well for over 8 years now. What she offers is education and empowerment, but not diagnosis or prescribing.

Her web site: www.ladybarbara.net Self-Testing…possibly the most

empowering skill you may ever learn: www.ladybarbara.net/html/selftesting.html .

YouTube presentation on Lyme: www.youtube.com/watch?v=IZjWZ3vK1bc. Her blog at Wordpress www.ladybarbarasgarden.wordpress.com The herbal products she makes herself & sales including Teasel Root

tincture: www.ladybarbara.net/html/products.html Her series of online herbal ally

classes--full 1 Hr. Intro class can be

viewed for free: www.ladybarbara.net/html/herb_classehtml Her teleseminar audio at: http://www.lymehope.com/audio.html Her section where you can ask specific

questions on allying with Teasel (& yourself) in your effort to prevail over

Lyme Disease and get your life back. www.winthelymewar.com/viewforum.php?f=3

6

Probiotics: Pearls Immune

www.organicpharmacy.org ---very cost effective and low cost

You can find this at: www.riteaid.com

www.vitaminworld.com www.longsdrugs.com

www.mdproducts.com

Life Extension – Herbs and Vitamins:

http://www.lef.org/Vitamins-

Supplements/Item01430/Optimized-Resveratrol-with-Synergistic-Grape-

Berry-Actives.html

Herbs For Health: Nature’s Herb Company since 1915

Green Energy Colon Cleansing

Diet Tea “Naturally”

www.herbspicetea.com Or call: 800-227-2830

San Francisco Herb & Natural Food Co. 7444 Kato Rd.

Fremont, CA 94538

Ld patients tout effective stress relief pills: Shaklee Products

Order “Stress Relief Complex All natural – herbal ingredients

1-800-233-5422

A LEAP TOWARD HEALTH by Linda Fish – Certified Biofeedback

Technician

1 Parkcliff Drive, Suite G Holiday Island, AR 72631

(479)363-6404 or (417)671-2700 Biofeedback is a safe & effective way

to teach your body to relax. Biofeedback equipment is tested for

safety by the FDA.

Mold Detox: http://www.toxic-black-

mold-syndrome.com/support-packs.html

Morgellans Patients information –

Borrelia Dermatitus www.gingersavely.com

www.thecehf.org

Alternative

Medicine Magazine's Definitive Guide to

Sleep Disorders: 7 Smart Ways to Help

You Get a Good Night's Rest By Herbert Ross,

Keri Brenner - $15.26. The second edition of his

comprehensive Alternative Medicine guide outlines seven reasons people

can't sleep: toxic overload, poor diet,

stress, disrupted body clock, electromagnetic fields, and hormonal

or structural imbalances. It then provides an alternative program to

reverse sleep problems, which includes treatments such as

detoxification, dietary change, and more. Purchase at Amazon: http://www.amazon.com/Alternative-

Medicine-Magazines-Definitive-

Disorders/dp/1587612631

Founded in 1994 and entering the web in 1997, Natural Solutions

Environmental, Inc. is one of the Internet’s LARGEST, longest running

and well established Healthy Living Environmental Appliance Retailers on

the web.

Herbs

Articles on Natural Health Air Cleaners / Purifiers

UV Air and Water Sterilizers HEPA Air Cleaners, Purifiers &

Filters Water Filters /Shower Filters

Vent Duct UV Air Purifiers Portable Air Filtration

Humidifiers / Dehumidifiers Food Dehydrators/Juicers/Water

Distillers Health Products and more

1-800-577-7646 http://www.nsaw.com

PO Box 1056

Escondido, CA 92033

Philips Lifeline – Safety in your home Call now: 800-594-0829 or visit

their website at http://philips.lifelinesystems.com

Depend on the original and trusted medical alert service

Get help even if you fall and are

unable to push your button Every year, more

than 13 million people age 65 and older

suffer from falling accidents. You can

become disoriented, or become

immobilized or knocked unconscious, and unable to call for help. We

responded to this need with the new Philips Lifeline with AutoAlert*

option. Just like with our Standard Lifeline Medical Alert Service, you can

push the pendant-style button for

help at any time. For an added layer of protection, the Lifeline with

AutoAlert is the first pendant-style help button that can automatically

place a call for help if it detects a fall

and you're unable to push the button

yourself.

Consider the AutoAlert benefits: Access to help if you can't push

your button

Increased peace of mind and

confidence Wear it in the shower, where

falls often occur, as it's waterproof.

Use it to call for help from anywhere in or around your

home.

Tesla Energy Lights Aeron Goldheart Global Developer/Distributor

214.693.9522 www.YouTube.com/TeslaEnergyLights

www.TeslaEnergyLights.com

DISCLAIMER BY THE LYME DISEASE UNITED COALITION The Lyme Disease United Coalition wants it to be known that our officers and

volunteers are not medical doctors. We advise you to check with your physician to answer any medical questions. We pass on the names to people with Lyme

disease, of physicians educated to treat this disease, but hold no liability for these physicians’ treatment plans and/or care of patients with Lyme disease. We

encourage the inquirer to do an interview of &/or check out any physician referred

to them.