MAKING A CASE FOR EXPANDING SHARED LIVING IN PENNSYLVANIA

Introduction• Shared Living arrangements provide a safe, affordable,

flexible and generally stable home alternative for individuals who need residential supports

• In Pennsylvania, most community residential providers either do not offer it, or underutilize it

• PA Department of Public Welfare released a “Shared Living” request for information in July 2011

• Improve shared living, expand shared living opportunities • IM4Q preliminary analysis shows positive outcomes for

individuals with ID in shared living

History• The 1997 PA Office of Developmental Programs (ODP)

Multi-Year Plan included a recommendation to develop the capacity for independent monitoring in Pennsylvania

• Purpose was to help ensure quality of life, services and supports to children ages 3+, and to adults supported by the ODP services for individuals with intellectual disabilities (ID)

• Linked to national project – National Core Indicators • IM4Q grew from a statewide recognition that individual and

family satisfaction, together with other quality measures, are an essential feature of a quality management system

• Based on principles of Everyday Lives

Methodology• Counties select local IM4Q programs to conduct the interviews.

Criteria includes: independence of the projects from service delivering entities, consumer and family involvement on governing boards, and involvement of individuals receiving supports and families in data collection activities

• Institute on Disabilities trains local IM4Q programs on the interview instrument

• EDE is comprised of the following sections: Pre-survey; Pre-survey addendum; Satisfaction; Dignity, Respect and Rights; Choice and Control; Relationships; Inclusion; Monitor Impressions; Major Concerns; Family Survey.

• Data sent to Institute on Disabilities for analysis and reports. • Local IM4Q Program implements “closing the loop” (follow-up)

activity with the county

Results: Scales

• Scales comparison of people in shared living with people living in relative’s home and people in community living

• In 2012, there were 410 in Shared Living, 1752 in Relative’s Home, and 3010 in Community Homes.

• On five of the seven scales, Shared Living had the highest average score

Results: Satisfaction

0

20

40

60

80

100

89.3 87.885.1

Satisfaction Scale Score by Residence

Shared Living Relative's Home Community Home

• Data from 2012• Scale ranges from 0 to 100. A higher score is better

• Shared Living and Relative’s Home were significantly higher than Community Home

Results: Dignity and Respect

• Data from 2012• Scale ranges from 0 to 100. A higher score is better

• Shared Living and Relative’s Home were significantly higher than Community Home

0

20

40

60

80

100

86.8 87.3

80.8

Dignity Scale Score by Res-idence

Shared Living Relative's Home Community Home

Results: Never Afraid

0

20

40

60

80

100

93.3 92.8 91.3

Never Afraid Scale by Res-idence

Shared Living Relative's Home Community Home

• Data from 2012• Scale ranges from 0 to 100. A higher score is better

• Relative’s Home was significantly higher than Community Home

Results: Choice and Control

• Data from 2012• Scale ranges from 0 to 100. A higher score is better

• Shared Living and Relative’s Home were significantly higher than Community Home

0

20

40

60

80

100

57.354.5

42.4

Choice Scale Score by Res-idence

Shared Living Relative's Home Community Home

Results: Inclusion

0

20

40

60

80

100

48.944.9

41.3

Inclusion Scale Score by Residence

Shared Living Relative's Home Community Home

• Data from 2012• Scale ranges from 0 to 100. A higher score is better

• Shared Living was significantly higher than Relative’s Home, which was significantly higher than Community Home

Results: Physical Setting

• Data from 2012• Scale ranges from 0 to 100. A higher score is better

• Community Home was significantly higher than Shared Living, which was significantly higher than Relative’s Home 0

20

40

60

80

100

97.394.6

98.7

Physical Setting Scale by Residence

Shared Living Relative's Home Community Home

Results: Family Satisfaction

0

20

40

60

80

100

92.8 92.5 90.8

Family Satisfaction Scale by Residence

Shared Living Relative's Home Community Home

• Data from 2012• Scale ranges from 0 to 100. A higher score is better

• Relative’s Home was significantly higher than Community Home

Results: Longitudinal

2012

2011

2010

2009

2008

2007

0 10 20 30 40 50 60 70 80 90 100

89.3

90.6

87.9

87.3

89

88.6

85.2

85.7

84.8

84.7

85.5

84.8

Longitudinal Look At Satisfaction Scale Scores

All Others Shared Living

Results: Longitudinal• The number of people in Shared

Living varied each year• All Others included all other

residential types• From 2007 through 2012, Shared

Living had an average Satisfaction scale score that was significantly higher than the rest of the people in the Independent Monitoring database in every year

• Satisfaction research demonstrates that individuals with intellectual disabilities generally report higher levels of satisfaction as result of receiving supports and services

Year Number in Shared Living

Number in All Others

2007 327 6142

2008 412 6100

2009 441 6177

2010 367 6254

2011 413 6279

2012 410 9179