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UNC Center for Maternal & Infant Health Summer 2016 Making Change Happen The UNC Center for Maternal and Infant Health aims to improve the health of North Carolina's women and infants by providing quality collaborative care, translating evidence-based strategies into practice, and developing new approaches to complex problems. We focus our efforts on leading, teaching and caring - here at UNC, across the state and beyond. We are excited to share a snapshot of our work with you. Thanks for your partnership! Click here to meet our full team! The North Carolina Preterm Birth Prevention TeleHealth Network While premature birth is a complex challenge, there are evidence based strategies that have been proven to reduce risk. Together with the UNC OB/GYN Dept. Division of Maternal- Fetal Medicine and Community Care of North Carolina (CCNC), the CMIH is aiming to disseminate best practices through the North Carolina Preterm Birth Prevention TeleHealth Network . This project is supported in part by the Duke Endowment. On May 23, 2016, approximately 300 individuals, including providers, pregnancy care managers, and partners from organizations and agencies across the state, participated in the North Carolina Preterm Birth Prevention Symposium at the Friday Center in Chapel Hill. Presentations covered a range of topics, including the current landscape of preterm birth in North Carolina, health equity, obesity, progesterone, postpartum care, multifetal gestation, tobacco use, opioid use, and alignment with national priorities. Exhibitors provided resources and informational materials to attendees. For additional information about this event, or to view presentation recordings and slide sets, please visit our website . New Projects We are excited to announce our newly-funded projects: You Quit, Two Quit will expand services to provide training and assistance on evidence-based tobacco screening and cessation for providers who serve women of reproductive age in NC. This project is funded by the NC Department of Public Health. The 4th Trimester project brings together new mothers, health care providers, researchers and other stakeholders to create studies to build knowledge about postpartum health issues. This study is funded by Patient- Centered Outcomes Research Institute (PCORI). Care4Moms researches the health care needs and experiences with health care services for mothers of medically- fragile infants. This study was supported by grant R40MC29455 Maternal and Child Health Research Program, Maternal and Child Health Bureau, (Title V, Social Security Act), Health Resources and Services Administration, Department of Health and Human Services. Bowes/Cefalo Research Award The UNC CMIH is pleased to announce two recipients of the 2016 Cefalo / Bowes Young Researcher Award, established by Dr. and Mrs. Watson Bowes and Dr. and Mrs. Robert Cefalo.

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Page 1: Making Change Happen · a new consumer-facing campaign, Show Your Love, beginning with showyourlovetoday.com, the first and only national consumer-focused preconception health educational

UNC Center for Maternal & Infant Health Summer 2016

Making Change HappenThe UNC Center for Maternal and Infant Health aims to improvethe health of North Carolina's women and infants by providingquality collaborative care, translating evidence-basedstrategies into practice, and developing new approaches tocomplex problems. We focus our efforts on leading, teachingand caring - here at UNC, across the state and beyond. We areexcited to share a snapshot of our work with you. Thanks foryour partnership!

Click here to meet our full team!

The North Carolina Preterm BirthPrevention TeleHealth Network

While premature birth is a complex challenge, there areevidence based strategies that have been proven to reducerisk. Together with the UNC OB/GYN Dept. Division of Maternal-Fetal Medicine and Community Care of North Carolina (CCNC),the CMIH is aiming to disseminate best practices throughthe North Carolina Preterm Birth Prevention TeleHealthNetwork. This project is supported in part by the DukeEndowment.

On May 23, 2016,approximately 300individuals, includingproviders, pregnancy caremanagers, and partnersfrom organizations andagencies across the state,participated in the NorthCarolina Preterm BirthPrevention Symposium atthe Friday Center in ChapelHill. Presentations covereda range of topics, includingthe current landscape ofpreterm birth in NorthCarolina, health equity,obesity, progesterone,postpartum care, multifetal

gestation, tobacco use, opioid use, and alignment with nationalpriorities. Exhibitors provided resources and informationalmaterials to attendees. For additional information about thisevent, or to view presentation recordings and slide sets, pleasevisit our website.

New Projects

We are excited to announce ournewly-funded projects:

You Quit, Two Quit will expandservices to provide training andassistance on evidence-basedtobacco screening and cessationfor providers who serve women ofreproductive age in NC. This project is funded by the NCDepartment of Public Health.

The 4th Trimester project bringstogether new mothers, health careproviders, researchers and otherstakeholders to create studies tobuild knowledge about postpartumhealth issues. This study is funded by Patient-Centered Outcomes Research Institute(PCORI).

Care4Moms researches thehealth care needs andexperiences with health careservices for mothers of medically-fragile infants. This study was supported by grantR40MC29455 Maternal and ChildHealth Research Program, Maternaland Child Health Bureau, (Title V,Social Security Act), Health Resourcesand Services Administration,Department of Health and HumanServices.

Bowes/Cefalo ResearchAward

The UNC CMIH is pleased toannounce two recipients of the2016 Cefalo / Bowes YoungResearcher Award, establishedby Dr. and Mrs. Watson Bowesand Dr. and Mrs. Robert Cefalo.

Page 2: Making Change Happen · a new consumer-facing campaign, Show Your Love, beginning with showyourlovetoday.com, the first and only national consumer-focused preconception health educational

In addition to theSymposium, theNorth CarolinaPreterm BirthPreventionTeleHealth Networkdeveloped a seriesof Pregnancy Medical Home Care Pathway Packages,which include patient education materials, algorithms and shortwebinars. This project has funded enrollment in the PerinatalQuality Foundation's CLEAR certification program forsonographers across the state. We have also establishedmaternal-fetal telemedicine sites and continue outreach to offerthis opportunity to rural practices in North Carolina.

Finally, technicalassistance has beenprovided to practicesthroughout the state aspart of the You Quit,Two Quit program. Thisservice includestraining on motivationalinterviewingtechniques, billing andreimbursement, as well

as the evidence-based brief counseling intervention - the 5As.Over 20 practices have received TA - this resource is stillavailable to those interested. To learn more about this projectand access resources, please visit our website.

Making a Difference One Family at a TimeQuality, Compassionate, Coordinated Care

for Complex Babies

The Center for Maternal and Infant Health provides special,personalized care for families with complicated pregnanciesand babies with serious medical problems. Care coordinatorssupport families from diagnosis through discharge and beyond.Coordinators help buffer families from the added worries anddifficulties that may come with receiving complex care in a new,unfamiliar place. They also teach families how to advocate onbehalf of their special babies. To learn more about our servicesclick here.

Currently, our perinatal carecoordinators, Lisa Welborn, MayaLindley, and Lori Carter, are serving122 complex infants and 114pregnant mothers with fetaldiagnosis of congenital anomalies. Inthe past year, they have coordinatedcare for 20 pregnant women referredto the fetal surgery program andsupported

20 families with perinatal palliative care. The team partnersclosely with the UNC Special Infant Care Clinic that served 513complex infants and families over the past year. Thesenumbers do not include the many calls they answer each weekfor assistance from families who are still experiencingchallenges in getting their special-needs toddlers and youngchildren the services they need. Quality, compassionate, bi-lingual care coordination is the cornerstone of the Center.

This award provides start-upresources to study issuesassociated with maternal and infantmorbidity and mortality. LauraCarlson, MD,will use this award to study issuesrelated to decisional aids andgenetic counseling. Nurain M.Fuseini, MD, will focus on HumanPapillomavirus and Preterm Birthin Lusaka, Zambia.Congratulations to Drs. Carlsonand Fuseini!

Thank You to Our ClinicPartners

We appreciate all of thephysicians, nurses, pregnancycare managers from clinics acrossour service area for thecollaborative spirit youdemonstrate as we work together toprovide quality care to moms andbabies. We have enjoyed visitingmany outlying clinics this year andlook forward to more visits soon. We are excited about the comingyear as we partner on multipleinitiatives, including ensuring thatmore women complete apostpartum visit and collaborativeperinatal education efforts. Learnmore!

Our Newest CMIH Member

Congratulations to SuzanneWoodward, our CommunicationsDirector, and her husband Blair onthe birth of their son on July 11th!

Taking Health Informaticsto the Next Level

In September we were fortunatethat Marshall Clark joined our teamas our new Health InformationDirector.

Over the past 10 months he hasworked to secure our data andwebsites, generate research dataand transform our systems.Thereare many great things ahead for uswith his leadership!

17P: Quality Improvement

Focused on reducing the risk ofrecurring preterm birth, the CMIHhas administered the NC 17PInitiative since 2006. CMIHrecently offered on-site technical

Page 3: Making Change Happen · a new consumer-facing campaign, Show Your Love, beginning with showyourlovetoday.com, the first and only national consumer-focused preconception health educational

Our clinical team,which consists ofspecialists in the fieldof maternal-fetalmedicine,obstetricsand gynecology,and pediatricspecialty care andsurgery, meets

weekly to develop unified plans for each patient and family. Thisteam also uses this weekly meeting to enhance their educationas they discuss best practice in perinatal health and to learnfrom other specialists in the field about new medical proceduresand treatments. We are grateful for the knowledge, skill, andcare that our clinical team provides to our patients and theirfamilies. Click here to learn more about our clinical team andpartners.

Our NEW website!Have you heard the news?

MomBaby.org has a fresh look!

Our website is designed to provide information on improvingoutcomes for moms and babies. Content includes: Evidence-based clinical practice algorithms,Perinatal tobaccocessation technicalassistance,Recurring preterm birthprevention with 17P,Postpartum careresearch,Preconception wellness,Clinical services for highrisk moms and babies. Educational materials forclinicians as well as forpatients (English andSpanish) are now easy tofind. You can also staycurrent on our many research and educational projects.

New Publications by the CMIH Team

In addition to doing great work to serveclients and providers, we are

contributing to science by sharing ourwork.

Verbiest S, Malin CK, Drummonds M, Kotelchuck M.Catalyzing a Reproductive Health and Social Justice Movement. MaternChild Health J. Aprl 2016; 20(4):741-8. This article was selected by Springer Publishing as an article that "couldchange the world."

Verbiest S, McClain E, Woodward S. Advancing preconception health inthe United States: Strategies for change. Upsala Journal of MedicalSciences 2016 (in press).

Stringer EM, Vladutiu C, Manuck T,Verbiest S, Ollendorff A, Stringer JS,Menard, MK. 17-Hydroxyprogesterone Caproate Coverage Among EligibleWomen Delivering at 2 North Carolina Hospitals in 2012 and 2013: ARetrospective Cohort Study, Am J Obstet Gynecol, Jan 2016;. Verbiest S, McClain E, Stuebe A and Menard K. Postpartum HealthServices Requested by Mothers with Newborns Receiving IntensiveCare. Matern Child Health J. July 2016.

Frayne D,Verbiest S, Chelmow D, Clarke H, Dunlop A, Hosmer, J,Menard K, Moos M, Ramos D, Stuebe A, Zephyrin L. Health CareSystem Measures to Advance Preconception Wellness: ConsensusRecommendations of the Clinical Workgroup of the National PreconceptionHealth and Health Care Initiative. Am J Obstet Gynecol, May 2016;127(5):863-72. Zerden ML, Verbiest S, Stuart GS, Brody, S, Norton, D, Tang J. Barriersto receiving long-acting reversible contraception in the postpartum period,Women's Health Issues, Nov-Dec 2015; 25(6): 616-21. Auger, S J, Verbiest, S, Spickard, J V, Simán, FM, & Colindres, M.Participatory group prenatal education using photonovels: evaluation of alay health educator model with low-income Latinas.J Participat Med, 2015: 7, e13.

assistance to clinics across thestate. They also held focus groupsacross the state with mothers whowere eligible for 17P. The womenidentified both facilitators andbarriers to care. The teamgenerated five key suggestions,including having 17P in thephysician's postpartum discussionwith a patient following a pretermbirth. Click here, to review aposter with these data.

Continued Commitment toAdvancing Equity

The CMIH continues itscommitment to advancing equityfor mothers, babies, and familiesacross NC and beyond. Thisincludes building the CMIH team'sskills in understanding andaddressing racism by supportingtheir participation in training andworkshops, such as those offeredby the NC-based Racial EquityInstitute.

Trisomy 13/18 Workgroup

The Trisomy 13/18 Workgroup isan interdisciplinary group broughttogether by Dr. Wayne Price toimprove UNC's approach to thecare of pregnant women andchildren in the context of Trisomy13 or 18 diagnosis. They areexploring a number of areas:

Increasing the consistency andaccuracy of communication Improving caregiver/providerunderstanding of managementoptions at UNC Increasing the sensitivity aroundthe terminology used Improving collaboration betweenfamily and caregivers, and amongmedical providers Understanding the values offamilies and setting appropriategoals based on those values Improving provider/caregiverunderstanding of family decision-making

We have convened meetings ofvarious specialty groups andcollected historical data onoutcomes for these families here atUNC. Next steps are to enlarge thegroup to include the voices ofnurses and others caring for thesefamilies, as well as to prepareeducational materials and trainingsessions relevant to the issuesidentified.

Support Our WorkPlease consider supporting ourwork. Monetary donations arealways welcome to support theunique needs of our families. For example, a monetary donation

Page 4: Making Change Happen · a new consumer-facing campaign, Show Your Love, beginning with showyourlovetoday.com, the first and only national consumer-focused preconception health educational

With support from public and private funders, including theCenters for Disease Control and Prevention and the W.K.Kellogg Foundation, theCMIH leads the national Preconception Health and HealthCare Initiative. In this highly visible national role, the CMIHsupports a leadership team made up of over 70 agencies, aswell as 5 work-groups that focus on policy, surveillance, clinicalcare, consumer outreach and public health. The vision of thePCHHC is that all women and men of reproductive age willachieve optimal health and wellness, fostering a healthy lifecourse for them and any children they may have. The past 10months have been a whirl of activity for the PCHHC.

Under the direction ofSuzanne Woodward, theInitiative began rolling outa new consumer-facing campaign, Show Your Love, beginningwith showyourlovetoday.com, the first and only nationalconsumer-focused preconception health educational andcommunity-building platform in the US. The Show Your Lovecampaign was launched on June 14, 2016, and over a singleweek, the Show Your Love launch press release was picked-upby 183 media outlets - reaching 85,559,749 Unique MonthlyVisitors online. The Show Your Love Facebook page postsreached 1,178 people and the SYL Twitter handle had 33.4Kimpressions, 1,730 profile visits and 118 NEW followers.

The PCHHC hosted a Men's Health Week Tweet Chat:#PCHchat, which reached 323,825 accounts, had 4,804,200impressions, with 104 people/organizations that contributed tothe #PCHChat conversation.

Partners across the US promoted news and blogs penned byDirector Sarah Verbiest, including: March of Dimes' NewsMom's Need (2 blogs), NICHQ blog, UNC OBGYNfeature/newsletter, Healthy Teen Network blog, TheNC blog,OMH's PPE Webinar (Blog/Newsletter), and CDC NCBDDnewsletter. All together: we potentially reached OVER 90MILLION people through SYL Launch Week promotions!

Before and Beyond,Health ProviderResource & Training

website was developed and is supported by the CMIH team. Inthe past 9 months, website traffic has MORE than DOUBLEDon average each month (increasing from 1.2 thousand uniquemonthly visitors in October 2015 to more than 2.4 thousandmonthly between Nov 2015 - Jun 2016). In addition to regularlyrefreshing content and site organization, the CMIH teamed upwith Albert Einstein College of Medicine to re-accredit andupdate the free Continuing Education modules available. Be sure to subscribe to the national PCHHC newsletter, orview archived editions.

Health Systems CollaborativePCHHC Clinical Workgroup, in partnership with MAHEC in NorthCarolina, is working with 4 clinics and 14 health care systemsacross the US to test measures and systems for integrating

was made to CMIH thathas been used forparking vouchers for ourfamilies.

Another donation came from Kidzu, the Chapel Hill-CarrboroChildren's Museum. Kidzu donatedamembership,which allowsour CMIHfamilies to take a break from thehospital for some creative play.

Have an idea of how you can help

our families?Contact us!

Want to make a monetarydonation to support the work we

do? Click here

Join us on Social Media

Follow us on Twitter: @PCHHC

Connect on

LinkedIn

Contact Us

Room 3018 Old Clinic BldgCampus Box 7181Chapel Hill, NC [email protected]@S_Verbiest