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TRANSCRIPT
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Nav
igat
ion
101
Eliz
abet
h H
atch
er, R
N, B
SNSp
ecia
l Pro
ject
s Coo
rdin
ator
GW
Can
cer I
nstit
ute
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Lear
ning
Obj
ecti
ves
At t
he e
nd o
f thi
s pr
esen
tatio
n yo
u w
ill b
e ab
le to
:•
Rev
iew
of d
efin
ition
and
prin
cipl
es o
f na
viga
tion
•R
evie
w o
f mod
els
of n
avig
atio
n•
Def
ine
role
and
resp
onsi
bilit
ies
of
navi
gato
rs•
Iden
tify
appl
icat
ion
to p
ract
ice
setti
ng-t
ips
and
tool
s
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Def
init
ion
•P
atie
nt N
avig
atio
n is
an
inte
rven
tion
that
ad
dres
ses
barri
ers
to q
ualit
y st
anda
rd c
are
by p
rovi
ding
indi
vidu
aliz
ed a
ssis
tanc
e to
pa
tient
s, s
urvi
vors
, and
fam
ilies.
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Why
is P
atie
nt N
avig
atio
n N
eede
d?
•Fr
agm
ente
d an
d co
mpl
ex h
ealth
car
e sy
stem
•N
eed
to a
ddre
ss h
ealth
dis
parit
ies
and
impr
ove
qual
ity o
f life
for t
hose
affe
cted
by
canc
er, e
spec
ially
med
ical
ly u
nder
serv
ed•
Iden
tify
and
elim
inat
e ba
rrier
s to
car
e•
Cul
tura
lly c
ompe
tent
inte
rven
tion
base
d up
on s
peci
fic p
opul
atio
n ne
eds
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Prin
cipl
es o
f Pa
tien
t N
avig
atio
n
•N
avig
atio
n is
a p
atie
nt-c
entri
c he
alth
car
e se
rvic
e de
liver
y m
odel
.•
The
core
func
tion
of p
atie
nt n
avig
atio
n is
the
elim
inat
ion
of b
arrie
rs to
tim
ely
care
acr
oss
all
segm
ents
of t
he h
ealth
care
con
tinuu
m.
•P
atie
nt n
avig
atio
n sh
ould
be
defin
ed w
ith a
cle
ar
scop
e of
pra
ctic
e th
at d
istin
guis
hes
the
role
and
re
spon
sibi
litie
s of
the
navi
gato
r fro
m th
at o
f oth
er
prov
ider
s.Fr
eem
an H
P, “
Ove
rvie
w &
His
toric
al P
ersp
ectiv
e of
Pat
ient
Nav
igat
ion.
“ Nat
iona
l Pat
ient
Nav
igat
ion
Col
labo
rativ
e.
Was
hing
ton,
DC
. Dec
embe
r 9, 2
011
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Prin
cipl
es o
f Pa
tien
t N
avig
atio
n
•D
eliv
ery
of p
atie
nt n
avig
atio
n se
rvic
es s
houl
d be
cos
t-effe
ctiv
e an
d co
mm
ensu
rate
with
the
train
ing
and
skills
nec
essa
ry to
nav
igat
e an
in
divi
dual
thro
ugh
a pa
rticu
lar p
hase
of t
he
care
con
tinuu
m.
•Th
e de
term
inat
ion
of w
ho s
houl
d na
viga
te
shou
ld b
e de
term
ined
by
the
leve
l of s
kills
re
quire
d at
a g
iven
pha
se o
f nav
igat
ion.
Free
man
HP
, “O
verv
iew
& H
isto
rical
Per
spec
tive
of P
atie
nt N
avig
atio
n.“ N
atio
nal P
atie
nt N
avig
atio
n C
olla
bora
tive.
W
ashi
ngto
n, D
C. D
ecem
ber 9
, 201
1
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Type
s of
Nav
igat
ion
Mod
els
•Lo
ngitu
dina
l–
Nav
igat
ors
at e
ach
stag
e of
the
canc
er c
ontin
uum
su
ch a
s ou
treac
h an
d pr
even
tion,
scr
eeni
ng,
diag
nosi
s an
d tre
atm
ent,
and
surv
ivor
ship
–A
cros
s th
e “e
ntire
con
tinuu
m” w
ith a
nav
igat
or g
uidi
ng
them
from
sus
pici
ous
findi
ng to
pos
t-tre
atm
ent
surv
ivor
ship
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Type
s of
Nav
igat
ion
Mod
els
•Tu
mor
-site
spe
cific
–O
ften
clin
ical
role
, may
sta
rt w
ith h
igh
volu
me
popu
latio
n su
ch a
s br
east
•G
ener
alis
t–
Wor
k w
ith p
atie
nts
with
gre
ates
t nee
d
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Type
s of
Nav
igat
ors
•N
urse
Nav
igat
ors
(clin
ical
)•
Soc
ial W
orke
rs (p
sych
osoc
ial)
•La
y, tr
aine
d N
avig
ator
s (re
sour
ce lo
cato
rs,
care
coo
rdin
ator
s)•
Pee
r Nav
igat
ors
(sur
vivo
rs/c
areg
iver
s)•
Com
mun
ity H
ealth
Wor
kers
(out
reac
h)
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Role
of
Nav
igat
ors
•P
atie
nt e
duca
tion
•R
esou
rce
refe
rral
•C
are
coor
dina
tion
–S
ched
ulin
g ap
poin
tmen
ts–
Obt
aini
ng a
ppro
pria
te re
ferr
als
•S
erve
as
mai
n po
int o
f com
mun
icat
ion
for
patie
nts,
car
egiv
ers
& h
ealth
care
pro
vide
rs
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Role
of
Nav
igat
ors
•A
sses
s an
d ad
dres
s ba
rrie
rs to
car
e–
Lang
uage
–Fi
nanc
ial
–Tr
ansp
orta
tion
–C
hild
/eld
er c
are
–In
sura
nce
•C
onne
ct p
atie
nt w
ith c
linic
al tr
ials
•S
uppo
rt an
d em
pow
er p
atie
nts
thro
ugho
ut
the
canc
er jo
urne
y
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Def
inin
g th
e Ro
le o
f N
avig
ator
s
•N
atio
nal C
oalit
ion
of O
ncol
ogy
Nur
se
Nav
igat
ors
(NC
ON
N)
•A
cade
my
of O
ncol
ogy
Nur
se N
avig
ator
s (A
ON
N)
•O
ncol
ogy
Nur
sing
Soc
iety
(ON
S)
•A
ssoc
iatio
n of
Com
mun
ity C
ance
r Cen
ters
(A
CC
C)
–R
oles
and
resp
onsi
bilit
ies
for n
avig
ator
s
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
ACCC
: Ro
le o
f N
avig
ator
s
•P
oten
tial r
espo
nsib
ilitie
s in
clud
e–
Ass
ista
nce
with
pap
erw
ork
to e
nsur
e ac
cess
to c
are
–A
ct a
s si
ngle
poi
nt o
f con
tact
for p
atie
nts
and
fam
ilies
–A
sses
s cl
inic
al, e
mot
iona
l, ps
ycho
soci
al, f
inan
cial
spi
ritua
l, an
d ot
her n
eeds
–H
elp
deve
lop
a tre
atm
ent p
lan
that
is u
nder
stan
dabl
e to
the
patie
nt–
Acc
ompa
ny p
atie
nts
to a
ppoi
ntm
ents
–R
efer
pat
ient
s to
sup
porti
ve c
are
serv
ices
–D
irect
pat
ient
s to
ava
ilabl
e co
mm
unity
reso
urce
s–
Coo
rdin
ate
disc
harg
e pl
anni
ng a
nd fo
llow
up
to e
nsur
e co
mpl
ianc
e–
Enc
oura
ge p
atie
nts
to k
eep
and
upda
te m
edic
al re
cord
s
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
ACCC
: Ro
le o
f N
avig
ator
s
•P
oten
tial r
espo
nsib
ilitie
s in
clud
e–
Coo
rdin
ate
mul
ti-di
scip
linar
y co
nsul
tatio
ns o
r tum
or c
onfe
renc
es–
Dev
elop
pat
ient
edu
catio
n m
ater
ials
, clin
ical
pat
hway
s, a
nd q
ualit
y st
udie
s–
Wor
k to
ens
ure
timel
y ap
poin
tmen
ts, r
esul
ts re
port,
and
co
mm
unic
atio
n–
Wor
k w
ith c
omm
unity
org
aniz
atio
ns to
iden
tify
serv
ice
gaps
–M
onito
r and
repo
rt on
out
com
es m
easu
res
–O
utre
ach
to u
nder
serv
ed a
nd/o
r rur
al p
opul
atio
ns
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
ACCC
: Ro
le o
f N
avig
ator
s
•R
espo
nsib
ilitie
s m
ust f
it na
viga
tor’s
ex
perie
nce
and
scop
e of
pra
ctic
e•
Nav
igat
ors
and
supe
rvis
ors
mus
t be
clea
r on
the
navi
gato
rs ro
le•
Ser
vice
s pr
ovid
ed m
ay d
epen
d on
pat
ient
vo
lum
es
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
ON
S Ro
le D
elin
eati
on
•O
NS
Onc
olog
y N
urse
Nav
igat
or R
ole
Del
inea
tion
Stu
dy (2
012)
•33
0 nu
rses
sur
veye
d•
Rat
ed ta
sks,
kno
wle
dge
area
s, a
nd s
kills
of
ON
Ns
•C
alle
d fo
r add
ition
al re
sear
ch a
nd
cons
ensu
s bu
ildin
gB
row
n, C
., C
antri
l, C
., M
cMul
len,
L.,
Bar
kley
, D.,
Die
tz, M
., M
urph
y, C
. & F
abre
y, L
. (20
12).
Onc
olog
y nu
rse
navi
gato
r rol
e de
linea
tion
stud
y: A
n O
ncol
ogy
Nur
sing
Soc
iety
repo
rt. C
linic
al J
ourn
al o
f Onc
olog
y N
ursi
ng,
16(6
): 58
1-58
5
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
ON
S Ro
le D
elin
eati
on
•Ta
sks:
Em
otio
nal &
edu
catio
nal s
uppo
rt,
empo
wer
pts
to s
elf-a
dvoc
ate,
col
labo
rate
with
ph
ysic
ians
, ass
ist p
ts to
mak
e in
form
ed
deci
sion
s•
Kno
wle
dge
Are
as: G
oal o
f tre
atm
ent,
ther
apeu
tic
optio
ns, E
BP
gui
delin
es, p
rofe
ssio
nal s
cope
of
prac
tice
•S
kills
: Com
mun
icat
ion,
pro
blem
sol
ving
, tim
e m
anag
emen
t, ad
voca
cyB
row
n, C
., C
antri
l, C
., M
cMul
len,
L.,
Bar
kley
, D.,
Die
tz, M
., M
urph
y, C
. & F
abre
y, L
. (20
12).
Onc
olog
y nu
rse
navi
gato
r ro
le d
elin
eatio
n st
udy:
An
Onc
olog
y N
ursi
ng S
ocie
ty re
port.
Clin
ical
Jou
rnal
of O
ncol
ogy
Nur
sing
, 16
(6):
581-
585
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Mod
els
in P
ract
ice:
Cas
e St
udie
s
•D
CC
C’s
City
wid
e P
atie
nt N
avig
ator
N
etw
ork
•A
CC
C B
reas
t Can
cer N
avig
atio
n P
rogr
am•
LIV
EST
RO
NG
Nav
igat
ion
Ser
vice
s•
Ulm
an C
ance
r Fun
d fo
r You
ng A
dults
•G
W C
ance
r Ins
titut
e
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
DCC
C Ci
tyw
ide
Pati
ent
Nav
igat
or
Net
wor
k (C
PNN
) 20
10-2
012
•N
etw
ork
of p
atie
nt n
avig
ator
s at
16
partn
er
inst
itutio
ns in
Was
hing
ton,
DC
fund
ed b
y D
C C
ance
r Con
sorti
um•
Pro
vide
s na
viga
tion
serv
ices
in c
omm
unity
an
d cl
inic
al s
ettin
gs a
cros
s th
e co
ntin
uum
•D
iffer
ent t
ypes
of n
avig
ator
s pr
ovid
ing
varie
d se
rvic
es
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Role
of
CPN
N N
avig
ator
s
•E
duca
te a
bout
scr
eeni
ngs,
dia
gnos
is,
treat
men
t, an
d su
rviv
orsh
ip•
Bui
ld p
artn
ersh
ips
in th
e co
mm
unity
•D
iscu
ss a
cces
s to
clin
ical
tria
ls•
Coo
rdin
ate
appo
intm
ents
with
pro
vide
rs to
en
sure
tim
ely
deliv
ery
of d
iagn
ostic
and
tre
atm
ent s
ervi
ces
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Role
of
CPN
N N
avig
ator
s
•M
aint
ain
com
mun
icat
ion
with
pat
ient
s, s
urvi
vors
, fa
mili
es, a
nd th
e he
alth
car
e pr
ovid
ers
•E
nsur
e ap
prop
riate
reco
rds
and
refe
rral
s ar
e av
aila
ble
at s
ched
uled
app
oint
men
ts
•A
rran
ge fo
r lan
guag
e, fi
nanc
ial,
trans
porta
tion,
ch
ild/e
lder
car
e, in
sura
nce,
med
icat
ion,
hom
e he
alth
car
e an
d ot
her f
orm
s of
sup
port
•C
onne
ct p
atie
nts
to re
sour
ces
and
supp
ort
serv
ices
•H
elp
patie
nts
lear
n to
nav
igat
e th
emse
lves
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
LIVE
STRO
NG
Nav
igat
ion
Serv
ices
•O
ne-o
n-on
e su
ppor
t thr
ough
edu
catio
n, re
ferra
ls, a
nd
coun
selin
g se
rvic
es–
In p
erso
n in
Aus
tin, T
X–
Via
pho
ne o
r onl
ine
•P
artn
ersh
ips
help
dire
ct p
atie
nts
to a
ppro
pria
te
reso
urce
s•
Ser
vice
s of
fere
d in
Eng
lish
& S
pani
sh
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
LIVE
STRO
NG
Nav
igat
ion
Serv
ices
•A
ssis
t with
–Fe
rtilit
y pr
eser
vatio
n–
Find
ing
assi
stan
ce w
ith in
sura
nce
issu
es–
Ref
errin
g to
reso
urce
s fo
r fin
anci
al a
ssis
tanc
e–
App
lyin
g fo
r sta
te &
fede
ral p
rogr
ams
–C
opin
g w
ith c
ance
r–
Tele
phon
e &
onl
ine
supp
ort g
roup
s–
Tips
for c
omm
unic
atin
g w
ith d
octo
rs, f
amily
–Fi
ndin
g cl
inic
al tr
ial o
ptio
ns–
Acc
ess
to tr
eatm
ents
and
med
ical
dev
ices
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
GW
CI’s
Pat
ient
Nav
igat
ion
Prog
ram
•La
y na
viga
tors
acr
oss
the
cont
inuu
m to
hel
p el
imin
ate
barri
ers
to c
are
and
prov
ide
supp
ort
•D
iagn
osis
–A
von
Pat
ient
Nav
igat
or•
Pro
vide
s su
ppor
t, en
sure
s ac
cess
to c
are
(insu
ranc
e an
d re
ferr
al is
sues
), tra
nsla
tion
serv
ices
, exp
lana
tion
of te
stin
g an
d co
nnec
tion
to re
sour
ces
as n
eede
d (tr
ansp
orta
tion,
cou
nsel
ing,
etc
)
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
GW
CI’s
Pat
ient
Nav
igat
ion
Prog
ram
•Tr
eatm
ent
–B
reas
t Car
e C
ente
r Nav
igat
or•
Pro
vide
s re
sour
ces
and
supp
ort f
or a
ll br
east
ca
ncer
pat
ient
s un
derg
oing
sur
gery
–R
adia
tion
Onc
olog
y N
avig
ator
•A
mer
ican
Can
cer S
ocie
ty/G
WC
I par
tner
ship
to
prov
ide
navi
gatio
n to
pat
ient
s re
ceiv
ing
radi
atio
n tre
atm
ent
–A
ddre
ss fi
nanc
ial,
psyc
hoso
cial
, tra
nspo
rtatio
n,
depe
nden
t car
e, tr
ansl
atio
n, a
nd c
omm
unic
atio
n ba
rrier
s
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
GW
CI’s
Pat
ient
Nav
igat
ion
Prog
ram
•P
ost-t
reat
men
t–
Sus
an G
. Kom
en F
ound
atio
n/G
WC
I par
tner
ship
to
prov
ide
surv
ivor
ship
nav
igat
ion
serv
ices
to in
divi
dual
s in
the
Thriv
ing
Afte
r Can
cer A
dult
Sur
vivo
rshi
p C
linic
–N
avig
ator
add
ress
es b
arrie
rs to
car
e &
pro
vide
s ed
ucat
ion
on p
ost t
reat
men
t iss
ues
such
as
late
and
lo
ng te
rm e
ffect
s of
can
cer a
nd tr
eatm
ents
–R
efer
rals
to s
uppo
rt se
rvic
es a
nd p
rogr
ams
to
impr
ove
self-
effic
acy
and
supp
ort o
vera
ll w
elln
ess
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
WH
Y yo
u do
wha
t yo
u do
: Be
nefi
ts o
f N
avig
atio
n
•P
atie
nt B
enef
its–
Impr
oved
acc
ess
to c
ance
r scr
eeni
ng a
nd d
iagn
ostic
s–
Impr
oved
acc
ess
to ti
mel
y m
edic
al tr
eatm
ent
–Im
prov
ed p
rogn
osis
with
ear
ly id
entif
icat
ion
and
treat
men
t of
canc
er–
Impr
oved
coo
rdin
atio
n of
car
e–
Impr
oved
com
fort
leve
l with
hea
lth c
are
prov
ider
s an
d th
e he
alth
ca
re s
yste
m–
Impr
oved
acc
ess
to fi
nanc
ial r
esou
rces
–Im
prov
ed a
cces
s to
sup
port
reso
urce
s
C-C
hang
e C
ance
r Pat
ient
Nav
igat
ion
Tool
kit:
ww
w.c
ance
rpat
ient
navi
gatio
n.or
g
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Bene
fits
of
Nav
igat
ion
•O
rgan
izat
iona
l Ben
efits
–E
arlie
r ide
ntifi
catio
n of
pat
ient
s w
ith c
ance
r, an
d be
tter p
rogn
osis
–Im
prov
ed c
oord
inat
ion
of c
are
with
can
cer p
rovi
ders
in th
e he
alth
car
e sy
stem
and
in th
e co
mm
unity
–Id
entif
icat
ion
and
rem
oval
of s
yste
mic
bar
riers
in a
cces
s to
car
e–
Impr
oved
effi
cien
cy in
use
of r
esou
rces
–Im
prov
ed p
atie
nt s
atis
fact
ion
with
can
cer t
reat
men
t exp
erie
nce
–Im
prov
ed in
tegr
atio
n of
the
com
mun
ity’s
can
cer s
uppo
rt re
sour
ces
–E
nhan
ced
conn
ectio
n to
the
cultu
ral a
nd g
eogr
aphi
c co
mm
unity
C-C
hang
e C
ance
r Pat
ient
Nav
igat
ion
Tool
kit:
ww
w.c
ance
rpat
ient
navi
gatio
n.or
g
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Mea
suri
ng P
atie
nt N
avig
atio
n
•N
CI P
atie
nt N
avig
atio
n R
esea
rch
Pro
gram
(P
NR
P) f
unde
d n
ine
(9) s
ite d
emon
stra
tion
proj
ects
& te
sted
:•E
ffect
iven
ess
of p
atie
nt n
avig
atio
n fro
m
scre
enin
g to
tim
e of
dia
gnos
is a
nd
treat
men
t•I
mpa
ct o
n pa
tient
sat
isfa
ctio
n•C
ost-e
ffect
iven
ess
of p
atie
nt n
avig
atio
n pr
ogra
ms
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Mea
suri
ng P
atie
nt N
avig
atio
n
•Im
porta
nt to
trac
k im
pact
of p
rogr
am•
Set
ting
goal
s, d
eter
min
ing
the
eval
uatio
n pl
an &
trac
king
Ret
urn
on In
vest
men
t (R
OI)
are
impo
rtant
in p
lann
ing
a na
viga
tion
prog
ram
in o
rder
to m
easu
re
and
sust
ain
prog
ram
s
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Nav
igat
ion
Proc
ess
Mea
sure
s
•P
atie
nt E
ncou
nter
s–
Nav
igat
or c
asel
oad
–C
omm
unic
atio
n be
twee
n na
viga
tor a
nd
patie
nt–
Adh
eren
ce to
sc
hedu
led
clin
ical
vi
sits
–B
arrie
rs/A
ctio
ns
•P
atie
nt S
atis
fact
ion
–D
ecre
ase
in
outm
igra
tion
•P
rogr
amm
atic
–S
ervi
ces
acro
ss
cont
inuu
m–
Mar
ketin
g of
pro
gram
–P
olic
y an
d pr
oces
s–
Eva
luat
ion
–P
atie
nt E
duca
tion
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Appl
icat
ion
•W
hat m
odel
doe
s yo
ur p
rogr
am a
lign
with
?•
Wha
t rol
e do
you
pla
y?•
Wha
t ser
vice
s do
you
pro
vide
?•
How
do
you
com
mun
icat
e w
hat y
ou d
o to
ot
hers
?
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Nav
igat
ion
101:
Tip
s
•N
eeds
ass
essm
ent o
f pat
ient
pop
ulat
ion
info
rms
prog
ram
dev
elop
men
t and
de
cisi
ons
•K
now
you
r sco
pe o
f pra
ctic
e–
Res
pons
ibili
ties
shou
ld b
e ap
prop
riate
for
leve
l of e
xper
ienc
e, e
xper
tise
•C
linic
al e
duca
tion,
reso
urce
refe
rral,
psyc
hoso
cial
as
sess
men
t, et
c.
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Nav
igat
ion
101:
Tip
s
•D
ocum
ent e
ncou
nter
s–
EM
R/H
ER
–E
xcel
–N
avig
atio
n so
ftwar
e
•Tr
ack
outc
omes
–W
hat i
s im
porta
nt to
kno
w to
sho
w s
ucce
ss?
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Nav
igat
ion
101:
Tip
s
•C
onne
ct w
ith p
atie
nts
–H
ow w
ill y
ou g
et re
ferr
als?
–H
ow w
ill p
atie
nts
be a
ppro
ache
d fo
r ser
vice
s w
hile
mai
ntai
ning
con
fiden
tialit
y?–
Do
you
feel
com
forta
ble
prov
idin
g cu
ltura
lly
com
pete
nt s
ervi
ces?
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Nav
igat
ion
101:
Tip
s
•E
stab
lishi
ng ra
ppor
t with
pat
ient
s–
Cre
ate
a po
sitiv
e en
viro
nmen
t •
Res
pect
ing
priv
acy
•B
eing
aw
are
of y
our b
ody
lang
uage
–Th
ink
abou
t the
tim
ing
of th
e en
coun
ter
•B
efor
e or
afte
r mee
ting
with
the
MD
–U
se a
sses
smen
t/int
ake
tool
s to
gat
her a
ll th
e in
form
atio
n yo
u ne
ed
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Nav
igat
ion
101:
Tip
s
•K
now
wha
t nat
iona
l res
ourc
es a
re
avai
labl
e:–
Can
cerC
are
–P
atie
nt A
dvoc
ate
Foun
datio
n–
LIV
EST
RO
NG
–C
ance
r Leg
al R
esou
rce
Cen
ter
–C
ance
r and
Car
eers
–A
ssoc
. of C
omm
unity
Can
cer C
ente
rs (A
CC
C)
Pat
ient
Ass
ista
nce
& R
eim
burs
emen
t Gui
de
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Nav
igat
ion
101:
Tip
s
•K
now
wha
t loc
al re
sour
ces
are
avai
labl
e:–
Food
and
Frie
nds
–O
ffice
s on
Agi
ng–
Chu
rch
& c
omm
unity
gro
ups
–S
uppo
rt gr
oups
and
act
iviti
es a
t oth
er
inst
itutio
ns
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Nav
igat
ion
101:
Too
ls
•A
ctiv
ity–
How
will
you
com
mun
icat
e th
e se
rvic
es y
ou
are
prov
idin
g to
phy
sici
ans
and
othe
r m
embe
rs o
f the
car
e te
am?
•Im
porta
nt fo
r peo
ple
to k
now
wha
t you
do,
whe
n to
re
fer p
atie
nts,
whi
ch p
atie
nts
to re
fer,
and
how
you
he
lp im
pact
the
over
all g
oals
of t
he o
rgan
izat
ion
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Nav
igat
ion
101:
Too
ls
•Ti
ps fo
r Cra
fting
an
Ele
vato
r Pitc
h–
Sum
mar
y of
ser
vice
s yo
u pr
ovid
e an
d th
e va
lue
you
add
•S
hort,
sim
ple,
com
pellin
g, in
clud
e pl
an fo
r fol
low
or
addi
tiona
l con
tact
–Ta
ilore
d to
diff
eren
t aud
ienc
es•
Clin
icia
ns•
Pat
ient
s•
Inst
itutio
n•
Fund
ers
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Conc
lusi
on
•P
atie
nt n
avig
ator
s pr
ovid
e m
uch
need
ed
serv
ices
to a
ssis
t can
cer p
atie
nts
to
over
com
e ba
rrier
s to
car
e th
roug
h co
ordi
natio
n, re
ferra
l, ed
ucat
ion
and
supp
ort.
Can
cer I
nstit
ute
Cent
er f
or t
he A
dvan
cem
ent
of C
ance
r Su
rviv
orsh
ip,
Nav
igat
ion
and
Polic
yC
ance
r Ins
titut
e
Than
ks!
Eliz
abet
h H
atch
er, R
N, B
SN
eoha
tche
r@gw
u.ed
u20
2-99
4-22
15