melissa divietri - chapter 1 : life with a purpose
TRANSCRIPT
BY: MELISSA DI VIETRI
LIFEHAS A
PURPOSE
Uluwatu, Bali 2017 www.melissadivietri.com - social media @missydi - [email protected]
My disease makes my life feel like I’m on a roller coaster.. up, down, up, down, upside down and cruise, baby. No idea where I am going.. just going with the flow.
Sometimes I feel like I have to hold my breath because everyone is watching me. Every pair of eyes are almost immediate direct contact. My body temperature increases & I start to feel high-anxiety... and I am forced to wear a smile when I feel like hiding from everyone.
The first thing that you should understand is that I have permanent condition in which I cannot change how I look how or how my body makes me feel.
I have a permanent disability, condition / disease.. however you want to label it… I don't even notice it.
Why I do…what I do.
My disability does not define me…
ABOUT US
My disease is a rare condition called sacral agenesis, which was formed at birth. There are minimal resources to understand how this disease started and if there is a cure to healing the formation of the spine.
I was born with a curve in my spine, missing sacrum and complications with the lower body which have limited my mobility.
I endured 14 surgeries so far in my entire lifetime but I’ve met friends with the same condition, who have experienced more than 40 surgeries and counting…
…my heros.Burning Seed, Australia 2017 - blog link
My limitations include:⁃ walking, running or jogging⁃ lifting things with my body⁃ bending my knees⁃ moving my feet⁃ using the restroom differently⁃ frequent migraines⁃ use of crutches to walk⁃ special attention to health & exercise
My self-esteem took over 20 years to finally become comfortable in my own skin. I would not look directly into mirrors because I was dissatisfied with my appearance. I am constantly battling mind games in my head to accept that I am the who I am.
Do you accept your purpose?
BUT, AM I LIMITED?
Washington DC, USA 2015 - blog link
If you’d like to be committed to be involved in my eBook, there are some things to understand about what you are about to discover. I am an extremely unique individual that has more than average obstacles to face on a daily basis. I channel these obstacles into opportunities for life lessons. I have always found a positive outlet when writing about my life experiences because my mind is clear - body becomes numb and a huge relief takes over….I have purpose.
KEPT YOUR INTEREST?
Send email to [email protected] to be subscribed.