mental health outcome measures for children and young ... · pdf fileeditors dr jessica...

MentalHealthOutcome
MeasuresforChildren
andYoungPeople

EditorsDrJessicaDeightonDrMirandaWolpertCAMHSEBPU,UniversityCollegeLondon(UCL)andtheAnnaFreudCentreSystematicreviewteamCAMHSEBPU,UniversityCollegeLondonandtheAnnaFreudCentreHayleySyradMariaMunroeCathySaddingtonEmmaTrustamJennaBradleyPaulaLavisAliceJonesCollaboratingAcademicsDrTimCroudace,UniversityofCambridgeDrJebBrown,CenterforClinicalInformatics,UtahProfessorPeterFonagy,UCLandtheAnnaFreudCentreProfessorNorahFrederickson,UCLDrNeilHumphrey,UniversityofManchesterDrPamMeadows,NationalInstituteofEconomicandSocialResearchProfessorPeterTymms,CentreforEducationandMonitoring,DurhamUniversityProfessorPanosVostanis,UniversityofLeicesterDrCrispinDay,InstituteofPsychiatry,KingsCollegeLondonDrSevastiMelissaNolas,CAMHSEBPU,UCLandtheAnnaFreudCentreProfessorSirMichaelRutter,InstituteofPsychiatry,KingsCollegeLondonContactdetails:Dr.JessicaDeighton,ResearchFellowCAMHSEBPU,TheAnnaFreudCentre,21MaresfieldGardens,LondonNW35SDEmail:[email protected]

PDFcopiesofthisresourcearefreelyavailablefrom:www.annafreud.org/[email protected]

Contents
Section PagenumberIntroduction
1
Howtousethisbooklet
2
MentalHealthandPsychologicalAdjustmentMeasures
3
Qualityoflifemeasures
48
Indexofmeasures
60

1
Introduction
Themeasuressummarisedinthisbookletwereidentifiedthroughasystematicreviewprocesswhichaimedtoidentifybroadmeasuresofmentalhealthoutcomesuitableforusewithchildrenandyoungpeoplewithawiderangeofdifficulties(Wolpertetal.,20081).ThisreviewwasconductedtoinordertoadvisetheDepartmentsofChildrenSchoolsandFamiliesandHealthonwhicharethebestmeasuresthatcouldbeimplementedtoinfluencethesystemtopromotebetterpsychologicalwellbeingandeffectiveinterventionforthosechildrenwithmentalhealthproblems.Withinthespecificremitofthereview,childmentalhealthoutcomemeasuresweredefinedasAnyquestionnaire,measureorapproachtomeasurementthatseekstoprovidemeasurementofmentalhealthinchildrenandyoungpeople(upto18years).Thereviewspecificallyemphasizedmeasuresthat:1. Reflectedabroadgaugeofmentalhealth2. Couldbeusedwitharelativelywideagerange3. couldbeadministeredonawidescalerelativelycheaply
Allthemeasuresincludedinthisbookletwereidentifiedthroughoneofthefollowingprocesses:1. Systematicsearchesof4maindatabases2. Consultationwithkeystakeholdersimplementingchildmentalhealthoutcome
measures3. Measuresalreadyknowntotheauthors
Forfurtherdetailsontheseprocesses,seeWolpertetal.(2008).Theaimofthisbookletistoshareourlearningandtheinformationwecollectedthroughtheprocessofconductingthisreview.Wehopethisbookletactsasausefulstartingpointforthoselookingtousemeasuresofchildmentalhealthandpsychologicalwellbeingeitherforresearchpurposesorforroutineevaluationandmonitoring.Wewouldemphasisethatanyoneseekingtouseanyofthesemeasuresshouldsupplementtheinformationincludedherewithfurtherinvestigationofthepsychometricpropertiesofthemeasureanditssuitabilityfortheirpopulationofinterestandcheckonuptodatecosts(theinformationpresentedbelowwascorrectasofOctober,2008).Whilstthisisnotanexhaustivelistduetotheparameterssetbytheoriginalreviewwehopeitmaybehelpfultopeoplelookingformeasuresrelevanttotheirspecificprojects.Weaimtoupdateandrevisethisresourceinfutureyears.Wewelcomecommentsfrompeopleastohowtheyfindit.
JessicaDeightonandMirandaWolpert
1Wolpert,M.,Aitken,J.,Syrad,H.,Munroe,M.,Saddington,C.,Trustam,E.,Bradley,J.,Nolas,S.M.,Lavis,P.,Jones,A.,Day,C.,Fonagy,P.,Frederickson,N.,Humphrey,N.,Meadows,P.,Rutter,M.,Tymms,P.Vostanis,P.&Croudace,T.(2009).ReviewandrecommendationsfornationalpolicyforEnglandfortheuseofmentalhealthoutcomemeasureswithchildrenandyoungpeople.DCSFResearchReport2008/56.Nottingham:DCSFPublications.

2
Howtousethisbooklet
Measureshavebeenorganisedintotwokeydomains:1) mentalhealth/psychologicaladjustmentmeasuresand2) qualityoflifemeasures
Descriptionsofeachmeasurewithinthesetwodomainsarespiltintothefollowingsections2:
Section DescriptionBriefDescription Givesabriefoverviewofthecontentandstructureof
themeasureVersions Describesthedifferentversionsofthemeasure
availableforexample,ifthereareparentandchildreporterversions,whetherthereareshortformsavailable
Length Thenumberofitemsand/orthetimeittakestocompletethemeasure
Scalesandsubscales Whetherthemeasureisoneunidimensionalscaleorseveralshortersubscalesmakingupthefullmeasure(andwhatthesesubscalesare)
Responsescales Theresponseformat/responseoptionsusedwithinthemeasure.
ExampleItems Anumberofexamplequestions/statementscontainedinthemeasure
Cost Pricesformanuals,papercopiesetc.ReferencesandContacts Detailsofexistingliteratureorcontactdetailswhereyou
mightobtainfurtherinformation
2NBitwasnotpossibleforallsectionstobecompletedforallmeasureswiththeinformationavailable.Whereinformationwasunavailable,sectionshavebeenomitted.

3
MentalHealthandPsychologicalAdjustmentMeasures

4
AchenbachSystemofEmpiricallyBasedAssessment(ASEBA)
BriefDescriptionTheASEBAmeasurescontainbrief,closedendedquestionsrelatingtopsychologicaladjustment.Themainmeasures(TeacherReportForm,ChildBehaviorChecklist,andYouthSelfReport)contain8subscales:anxious/depressed,withdrawn/depressed,somaticcomplaints,socialproblems,thoughtproblems,attentionproblems,rulebreakingbehaviourandaggressivebehaviour.Itcanalsobesummedintointernalisingandexternalisingsubscales.ItemscanalsobecodedtoreflectDSMorientedscales.Versions
o TeacherReportForm(TRF)andParentform(ChildBehaviorChecklist,CBCL):1.55yrsand618years
o YouthSelfReport(YSR):1118yearsLength
o YSR=105items,15minso TRF=120items,15minuteso Parent=120items,15minutes
Scalesandsubscales
o Anxious/depressedo Withdrawn/depressedo Somaticcomplaintso Socialproblemso Thoughtproblemso Attentionproblemso Rulebreakingbehaviouro Aggressivebehaviour
Responsescales
o 0,1,2(always,sometimes,never)ExampleItems
o Iacttooyoungformyageo Ifeelconfusedorinafogo Idontgetalongwithotherkids
Cost
o Handscoringforms=$7eachorx50=$25o Parentformsx50=$25o Computerupgrade=$195o Computerscoringkit=$395

5
ReferencesandContactsAchenbach,T.M.(1991).ManualfortheChildBehaviorChecklist418and1991profile.
Burlington:UniversityofVermont,DepartmentofPsychiatry.Achenbach,T.M.&Rescorla,L.A.(2001).ManualforASEBAschoolageformsand
profiles.Burlington,VT:UniversityofVermont,ResearchCentreforChildren,YouthandFamilies.

6
BeckYouthInventories(BYI)BriefDescriptionTheBeckYouthInventories(BYI)containof5individualinventoriesthatcanbeusedindividuallyortogether.Thesearedepressioninventory,anxietyinventory,angerinventory,disruptivebehaviorinventoryandselfconceptinventory.Eachinventoryhas20statements.Versions
o 5childselfreportinventories:o depressioninventoryo anxietyinventoryo angerinventoryo disruptivebehaviorinventoryo selfconceptinventory
Length
o 5inventories,eachwith20questions,5minutesperinventory.Scalesandsubscales
o Angerinventoryo Anxietyinventoryo Depressioninventoryo Disruptivebehaviorinventoryo Selfconceptinventory.
Responsescales
o 0,1,2,3(never,sometimes,often,always).ExampleItems
o Ifightwithotherso IwishIweredeado Idothingswell
Cost
o Angerinventory,padof25:45.83o Anxietyinventory,padof25:45.83o Depressioninventory,padof25:45.83o Disruptivebehaviorinventory,padof25:45.83o Selfconceptinventory,padof25:45.83o Manual:55.50

7
ReferencesandContactsBeck,J.,S.,Beck,A.,T.,Jolly,J.,B.,&Steer,R.,A.(2005).BeckYouthInventories
SecondEditionforChildrenandAdolescents(BYIII).HarcourtAssessment,Texas
Beck,J.S.,BeckA.T.,andJolly,J.(2001)ManualfortheBeckYouthInventoriesofEmotionalandSocialAdjustment.SanAntonio,TX:ThePsychologicalCorporation.

8
BehaviorAssessmentSystemforChildren(BASC)BriefDescriptionParentRatingScales(PRS)andTeacherRatingScales(TRS)containitemsregardingemotionalproblems,behaviouralproblemsandadaptivebehaviour.TheSelfReportofPersonality(SRP)containsitemsregardingemotionsandselfperceptions.ThePRS,TRSandSRPcanbescoredonprimaryscales,compositescalesandcontentscales.Versions
o PRSo TRSo SRP
Length
o PRS=134160items(1020minutestocomplete)o TRS=100139items(1015minutes)o SRP=139185(2030minutes)
Scalesandsubscales
o TheprimaryscalesofthePRSandtheTRSare:o adaptabilityo aggressiono anxietyo attentionproblemso atypicalityo conductproblemso depressiono functionalcommunicationo hyperactivityo leadershipo socialskillso somatizationo withdrawal
o PRSalsoincludesactivitiesofdailyliving.TRSalsoincludeslearningproblemsandstudyskills.
o TheprimaryscalesoftheSRPare:o anxietyo attentionproblemso attitudetoschoolo attitudetoteacherso atypicalityo depressiono hyperactivityo interpersonalrelationso locusofcontrol

9
o relationswithparentso selfesteemo selfrelianceo sensationseekingsenseofinadequacyo socialstresso somatization
Responsescales
o PRS=4pointscale(never,sometimes,oftenandalmostalways)o TRS=4pointscale(never,sometimes,oftenandalmostalways)o SRP=4pointscale(never,sometimes,oftenandalmostalways)andsome
true/falseCost
o Manual=$89.o Handscoredformsx25=$33.50.o Computerentryforms=$28
ReferencesandContactsKamphaus,R.,W.(2004).BehaviorAssessmentSystemforChildrenSecondEdition:
Manual.CirclePines,MN:AGSPublishing.Reynolds,C.S.&Kamphaus,R.W.(2002).TheClinician'sGuidetotheBehavior
AssessmentSystemforChildren(BASC).NewYork:TheGuilfordPress.

10
BehavioralandEmotionalRatingScale(BERS)BriefDescriptionTheBERSisastrengthbasedapproachtoassessmentandgivesanoverall

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