Missouri State Team

Missouri: Overview of the ALL

13%65%(62,498)

Enrolled HCBS DD Services

State DD Services

Targeted Case Management

19%

Based on 1.58% prevalence of 3.815 million citizens, US Census

95,498 estimated Missourians with Developmental Disabilities

3%

ICF/DD

Current Influences in Missouri

•New Division of DD director •Valerie Huhn

• Restructure of DDD Regional Offices• Partnership for Hope• Self-Directing DD Supports•HCBS rule and transition plan•Mo. DD Council commitment to supporting

individuals and families• Flexibility of County Boards (SB40 boards)

to try new things

Missouri’s COP Priorities

Discovery and Navigation• Long Term Services and Supports (LTSS)– Front Door– Consistent messaging– Support Coordination and planning

• Transition to Adulthood– Employment– Alternatives to Guardianship

• Voice of Individuals and Families

Long Term Services & Supports

Policies and Systems

• Updated DDD Quality Outcomes in line with LifeCourse• Referring families directly to MOF2F at

the DDD front door• Sustaining 10 years of folder

dissemination

Long Term Services & Supports

Organizations

& Professionals

• Embedding LifeCourse in Support Coordinator Training and Coaching • Piloting LifeCourse tools with PCS

(County Board) & scaling up• Established and sustaining LifeCourse

Tools and Practice workgroup

Long Term Services & Supports

Individuals & Families

• Piloted Family LifeCourse Workshop with St Louis Arc• Creating Individual/Family Portfolios

Transition to Adulthood

• Linked COP and Show Me Careers grant activities• Changed DESE template for Transfer of

Rights at age 18 letter to reflect choice of guardianship alternatives

Policies and Systems

Transition to Adulthood

• School districts including LifeCourse

Transition handout with “the letter”• Disseminating LC folders and booklets at

school conferences and events•Training LOQW employment counselors on LifeCourse framework and tools•Arranged Guardianship Options and Alternatives into LifeCourse format

Organizations & Professionals

Transition to Adulthood

• Embedded LifeCourse in Columbia Community Transition Team (CTT) conference for students and families • Created and replicated Youth Leadership

Academy based on LifeCourse Framework

Individuals & Families

Voice of Individuals & Families

Policies and Systems

• DD Council conducted restructure survey and listening sessions with a comprehensive report• DD Council infused LC into Partners in

Policymaking Program• DD Council strategic planning around LC• DD Council held HCBS rule public forums

Voice of Individuals & Families

Organizations

& Professionals

• Engaging LifeCourse Affiliate Network• Arc with support from DDC hosted

conference on DDD restructure and redesign proposal• Integrating LifeCourse into F2F HIC and

Parent to Parent

Voice of Individuals & Families

Individuals & Families

• Held Partners in Policymaking Alum LifeCourse event• Actively engaged LifeCourse Network

Stakeholders

Connecting and Networking

• Re-energizing and re-focusing the

Regional Advisory Councils (RACs)• Establishing Family Network and Peer

Support COP work group• Expanding the Family LifeCourse

Workshop and training facilitators

Happening Over Next Few Months

Goods and Services

Coming Soon!

• Exploring Respite• Providing LifeCourse training for

provider agencies and direct care workers

Missouri’s Lessons Learned

• Change is hard and it takes a long time• Excitement and Innovation is contagious• People are ready and excited about and ready for the

message and concrete, practical tools• People are more apt to engage in things if it’s

easy or simplified• Scheduled team meetings or phone calls give

needed structure• Missouri is different – lines get blurred – we were

engaging in COP activities before there was a COP!

QUESTIONS??