OCTOBER 2016

6370 LBJ Freeway

Suite 170

Dallas, TX 75240

(972) 620-7600

www.daps.us

speaker bios 2

september speaker recap 3

member profile 4

memorials, honors, donations 5

executive director’s message 6

moving day 6

kendra scott fundraiser 6

group schedules 7

calendar of events 8

The eighth annual North Texas Giving Day raised $37 million for 2,518

nonprofits in 18 hours—a new record!

From 6 AM to midnight on September 22, 2016, donations poured in from all

50 states, raising an average of $34,500 per minute!

Thanks to our generous supporters, DAPS received $25,363 from 246 donors.

The money raised during this event will go toward funding the exercise,

speech, and support groups that DAPS provides free of charge to those

affected by Parkinson's disease.

Without your participation in North Texas Giving Day and our other fundraisers

throughout the year, we could not do what we do. Your donations make a real

difference in the lives of the people with Parkinson's whom we serve, like

Barbara:

“I support DAPS because it provides excellent services that I use every

week. The exercise and speech groups in Plano are very helpful in my battle

with Parkinson’s. The therapists are very knowledgeable and helpful. The

friendships I have made will last forever. Thanks DAPS.”

INSIDE

OCTOBER

general

membership

meeting

Monday

October 17, 2016

1:00 p.m.

speakers:

Charles L. Sterling and

Susan B. Sterling

topic:

Move.Laugh.Connect. ...extending the functional years

University Park

United Methodist Church

4024 Caruth Blvd (at Preston)

Dallas, TX 75225

See page 2 for speaker bios.

Another Successful Giving Day!

PAGE 2 · DAPS · OCTOBER 2016

Board of Directors

Chad Swank, Ph.D., President

Barbara Glass, Vice President

Ann Heidger, Secretary

Diana Winkelmann, Treasurer

Cindy Weatherall, Advisory Council Liaison

Chris Clausen

Liza Farrow-Gillespie, J.D.

Bentley Foster

Mary Ellen Malone

Chick Martin

Heather Stevens

Jim Struble

Greg Wood

Dedicated to impacting and improving

the lives of those affected by

Parkinson’s disease

Medical Advisory Board

Shilpa Chitnis, MD, Ph.D.

Richard B. Dewey, Jr., M.D.

Richard L. Fulbright, Ph.D.

thDwight C. German, Ph.D.

R. Malcolm Stewart, M.D.

Gary L. Tunell, M.D.

Newsletter

Jill Dominguez, Editor

The DAPS newsletter is published monthly as an

information guide only, and does not serve as legal or

medical advice. We welcome your feedback,

contributions or requests. Please send to or contact:

Jill Dominguez

Phone: 972-620-7600

jill@daps.us

www.daps.us · facebook.com/daps.us

Submissions must be received by the 1st of the month

preceding publication date and are subject to editing.

Advisory Council

Sarah Atwood

Dusty Berry

Jean Blomquist

Ben Casey

Carlie Dorshaw-Moe

Shirley Hand

Charlene Noe

Sandi Pautler

Joyce Susman

Barbara Taylor

Executive Director

Mike Miles

October Speaker Bios:

Charles Sterling, Ed.D. & Susan Sterling, Ed.D.

Charles L. Sterling, Ed.D., was Executive Director for 20

years of the renowned Cooper Institute, a research and

education center focused on preventive medicine

research and public health applications. He founded

Fitnessgram, a youth fitness assessment and feedback

system that is currently the nation’s national test. He

cofounded Healthy Zone Schools as well. Also, he served

as President and CEO of Cooper Aerobics Enterprises

for 7 years. He cofounded e-Stealth, Cool Zebra, and

Shakers & Movers, LLC. He was recognized with the

Lifetime Achievement Award from the President’s Council. He is retired and is

living well with Parkinson’s.

Susan B. Sterling, Ed.D., served as a statewide

Coordinator for the NC State Department of Public

Instruction before moving to Texas. For over 20 years,

she worked in Dallas at The Cooper Institute, a research

and education center dedicated to preventive

medicine. Susan served as Director of Education, a

division that offered certification programs for health and

fitness professionals as well as law enforcement, military

and public safety personnel. She has authored over 60

articles in professional journals and is the author of The

Walking Handbook. She received the prestigious Healthy

American Fitness Leaders Award in Washington, D.C.

DAPS McKinney Speaker Bio:

Aanchal Taneja, MD

Dr. Taneja did her General Neurology residency at

UT Southwestern. She is dual fellowship trained. Her

fellowship in Neurophysiology and Neuromuscular

Disorders gives her an edge in Botulinum toxin injection

as a treatment for various movement disorders. Her

passion for Parkinson's disease made her pursue a

second fellowship in Movement Disorders and Parkinson's

disease from the University of Texas Southwestern

Medical Center at Dallas, with a special focus on Deep

Brain Stimulation (DBS).

Her clinical research interests include cognitive decline in patients with

Parkinson's disease and DBS as effective management for some movement

disorders. Dr. Taneja has delivered presentations at national and international

conferences for which she has received awards.

Dr. Taneja is dedicated to providing compassionate, patient-centered care for

individuals with movement disorders and believes in building a long-term

relationship of caring and trust. She truly enjoys taking care of patients with

Parkinson's disease and managing their DBS.

Dr. Taneja is a member of the American Academy of Neurology and Movement

Disorders Society. She has also been voted among D Magazine’s Best Doctors

for 2014 and 2015.

OCTOBER 2016 · DAPS · PAGE 3

How Skilled Nursing and Rehab

Help People with Parkinson’s Keep Moving

by Margaret B. Schroeder

S killed nursing and rehabilitation are vital services in

the treatment of Parkinson’s disease (PD). Jeryn

Laengrich, MS, CCC/SLP, Senior VP & Chief Service

Officer of Cariloop, is an expert on how Medicare can help.

Medicare defines skilled care and custodial care differently.

Skilled care is health care that is given when you need

skilled nursing or rehabilitation staff to manage, observe,

and evaluate your care. “We’re talking about a very short

period of stay. It’s high cost; it’s a hospital,” she said.

Custodial care is given for a much longer period of time

in a nursing facility. It includes help with activities of daily

living (ADLs) like getting in and out of bed, eating, bathing,

dressing, administering eye drops, and taking care of

colostomy or bladder catheters. Insurance and Medicare

do not pay for custodial care.

In order for Medicare to pay for skilled nursing, you must

meet these criteria:

1. You must be admitted to a Medicare certified facility

for three midnights. Being in a hospital bed does

not necessarily mean you’ve been admitted. “You might

be in observation. It’s important that you ask whether

you’ve been admitted,” said Laengrich. “If you’re

admitted for three midnights and you’re not doing well,

you can go to the next level of care.”

2. You must be admitted to a Medicare certified skilled

nursing facility (SNF) within 30 days of an inpatient

hospital stay.

3. You must meet the “Conditions Test.” You must

need services for a condition that was treated during

hospitalization, but it doesn’t have to have been your

primary diagnosis. “For example,” said Laengrich, “if

I broke a hip, I can go and also get help with my PD.”

4. You must meet the “Practical Matters Test.”

The services required must be those that can only be

provided in an SNF. You may not choose an SNF stay

simply because it is more convenient than receiving

the same services at home.

5. Skilled care is required. The services required are

inherently complex and are most effectively performed

by professional or technical personnel such as an RN,

LVN, PT, OT, ST, etc.

6. You must need the services daily. “If you had a fall,

how hard would it be for you and/or your caretaker to

care for you with your PD on a daily basis?” Laengrich

asked. Realistically speaking, you would receive

physical therapy five days a week on average, but that

is considered a daily need.

Medicare Part A is Different from Medicare Advantage

Your visit to a Medicare certified SNF can be for as long as

skilled care is required. During days 1 through 20, Medicare

Part A pays 100%. On days 21 – 100, Medicare Part A pays

80% and you pay coinsurance. With no coinsurance, the

2016 rate for an SNF is $161 per day. Some coinsurance

and supplements have their own copays and deductibles,

so you’ll need to be aware of the benefits provided in your

specific plan.

If you’re on a Medicare Advantage plan, a 3-midnight

hospital stay may not be required. For example, if you’re

starting to decline, it might be beneficial to go to an SNF

before you get so bad that you have to go to the hospital.

Plans have different copays and out-of-pocket maximums.

During days 1 – 20, the copays may vary or they may even

be $0. Costs on days 21 – 43 vary by plan, as do the costs

on days 44 – 100. The average out-of-pocket limit for

Medicare Advantage ranges from $3,000 to $4,000. The

maximum set by the government is $6,700. “Most will cover

Days 1 – 20 at 100%” said Laengrich. “But you have to

really look at it after that. Once you meet your max out-of-

pocket, everything is covered at 100%. You should set

aside about $5,000 to meet copays, deductibles, and max

out-of-pocket,” she said.

Services available from an RN or LVN in an SNF may

include IV treatment and care, gastrostomy tube (G-tube)

care, or colostomy care. A social worker may address

psychosocial issues or discharge planning, may set up

home health care and equipment, and will follow up with

you after you’re discharged. A dietician may help with

nutritional counseling. An activities director may provide

life enrichment activities. You may also receive pet therapy.

For an extra fee, you may receive massage therapy, or you

could have your hair and nails done. Other professionals

who work in SNFs include internal medicine doctors,

rehabilitation doctors, psychologists, and wound specialists.

You may also encounter physical therapists, occupational

therapists, and speech therapists. Some professionals will

have certifications specific to PD, such as LSVT Big® and

LVST Loud®, or they may be aqua certified.

“So, why does this help you keep moving?” asked

Laengrich. “Because therapy helps with many of the

challenges of PD,” she said, including movement changes,

fatigue, dysphagia, and cardiopulmonary dysfunction.

The goal of an SNF is to help you stay out of the hospital

within 30 days of your original admission. There is no

Skilled Nursing continues on page 4

PAGE 4 · DAPS · OCTOBER 2016

Skilled Nursing Continued from Page 3

Barbara Glass became very interested in Parkinson’s

disease (PD) three years ago after having breakfast with

Cindy Weatherall, who was President of DAPS at the time.

Since then, her keenest interest has been to promote the

highest quality of life for older adults, which involves helping

those with chronic health issues, including PD. Barbara

accomplishes this at her job as Community Relations

Liaison with Presbyterian Communities and Services.

This group includes Presbyterian Village North, Grace

Presbyterian Village and Faith Hospice.

Barbara is a volunteer currently serving as vice president

of the DAPS Board of Directors. Her talent of connecting

people and ideas is of great benefit to the Board.

Barbara finds that being part of DAPS is both fun and hard

work. DAPS does so much in the community with a very

small budget. Her current focus is to improve the structure

of the organization and expand the programs it offers.

Should someone ask Barbara about volunteering for DAPS,

Barbara would tell them that DAPS always needs

committed volunteers, with all sorts of talents, who want to

enhance the lives of people with PD. Volunteers help DAPS

with all sorts of things from decorating at general meetings

or helping in the office, to assisting at local PD events or

fundraisers in which DAPS is involved. Many people who

volunteer are diagnosed with PD themselves. Anyone

interested is welcome aboard!

Barbara’s personal perspective about Parkinson’s disease

is, “Don’t let this disease or any other condition limit you.

Find a way to keep moving forward.” DAPS is a good place

to put this perspective into practice with 36 different groups

in twelve locations providing speech therapy, several types

of exercise and caregiver support. Plus, involvement in

DAPS provides the opportunity to make friends with people

who understand PD.

Barbara’s hobbies include reading all sorts of books. “I am

an English major and proud of it,” she says. Embroidery,

gardening and movies are other things she enjoys. A couple

of unknown facts about Barbara are that she was once a

professional guitarist and twice she’s climbed Maine’s

Mt. Katahdin. With an elevation of 5,267 feet, the climb is

quite an accomplishment!

Barbara has four married children and several

grandchildren who, unfortunately, do not live anywhere near

Dallas. Most of her vacation time is spent visiting various

family members who live from Cape Cod to Los Angeles

and places in between.

“I have seen the faces of Parkinson’s disease and dementia

on adults and families,” says Barbara. “I would like to

contribute to making their lives as joyous as possible.”

Barbara

Glass

by Fred Ransdell

“improvement standard” in the Medicare guidelines.

A 2011 lawsuit determined that “Coverage depends not

on the beneficiary’s restoration potential, but on whether

skilled care is required, along with the underlying

reasonableness and necessity of the services themselves.”

Sometimes you have to advocate for help with Medicare

because people with chronic diseases are still being

denied. MedicareAdvocacy.org walks you through the

appeals process. “I get all of my information from

Medicare.gov,” said Laengrich.

DAPS would like to thank Ms. Laengrich for providing

an informative look at the benefits provided by Medicare.

You can read more about the services provided by

Ms. Laengrich and the Cariloop team at

www.cariloop.com. We are grateful for the generous bounty

you provided!

Snacks at the General Membership Meeting in

September were provided by the rehab departments at

Presbyterian Village North

and

Grace Presbyterian Village.

OCTOBER 2016 · DAPS · PAGE 5

Ian Andersen

Dusty Berry

Edna Buentipo

Leo & Eddi Dagley

Jill Dominguez

Raul Dominguez

Bentley Foster

Liza Farrow-Gillespie

Barbara Glass

Ann Heidger

Leon & Marilyn Levin

Pam & Matt Michel

Mike Miles

Donna Miles

Sandi Pautler

Jackie Reis

Debora Schoene

Holly Scott

Joyce Susman

Chad Swank

Kyle Wayne Thomason

Cindy Weatherall

Diana Winkelmann

Greg Wood

GEMs are donors who

Give Every Month.

Our GEMs are very valuable!

Sign up on the DAPS website.

REMEMBER…

You must re-enroll in

Kroger Community

Rewards in August every

year! If you have not done

so, it's easy! Just go to

Kroger.com, click on

Community/Kroger

Community Rewards, and

click Re-Enroll Now. Then

choose organization

#80709 or Dallas Area

Parkinsonism Society, and

you are done!

In memory of Ken Boren

From: South Garland DAPS family

Charlene Noe

In memory of Mildred Hatcher

From: South Garland DAPS family

Charlene Noe

In memory of John Perrin

From: DAPS at Trinity (Duncanville Exercise

Group)

In memory of Marilyn Davidson

From: Rev. William Davidson

In memory of Travis Bull

From: Mildred Dooley

In memory of Sonny Huddle

From: Gill & Elketha Goodman

In memory of Kevin Miles’ August 13 birthday

From: Mike & Donna Miles

In memory of Barbara Ann Towers

From: Judy and Nelda

In memory of Randy Odom

From: Cindy & Paul Weatherall

In honor of Sarah Atwood

From: Rev. William Davidson

2016 Non-event

From: Rita Turner

Neiman Marcus Matching Gift Program

Donation to DAPS

From: DAPS at Custer Road (Plano)

DAPS at Preston Hollow (Dallas)

DAPS at South Garland (Garland)

DAPS at Trinity (Duncanville)

MEMORIALS · HONORS · DONATIONS

AUGUST 2016

“I give to DAPS because it offers

many services to Parkinson patients and

their families. Money given to DAPS all

stays in the DFW area to benefit people

with Parkinson’s disease..”

~ Anonymous DAPS supporter

PAGE 6 · DAPS · OCTOBER 2014 PAGE 6 · DAPS · OCTOBER 2016

Move.Laugh.Connect.

…Extending the Functional Years

You will be hearing more and more about

Move.Laugh.Connect. But for now, allow me to make a

brief introduction.

“Zestful Life!” Do I have your attention? Who wouldn’t

want to learn more about where to grab hold of that?

One of the primary goals of Move.Laugh.Connect. (MLC)

is to help people with movement disorders “improve their

well-being and lead a zestful life.” To say that the “Move”

component is merely about exercise would be to sell it

short. To suggest that the “Laugh” aspect is simply about

having fun would be to limit the benefits. To imply that the

“Connect” piece is only about getting on board would be

to miss the boat.

MLC is a program, but it is really so much more. It brings

into sharp focus the combined importance of movement,

laughter, and connection within a community to one’s

overall well-being. Each of these things is important in

and of themselves. But together, they produce

extraordinary results and can make for a zestful life.

DAPS is privileged and excited to have the opportunity

to team with Charles and Susan Sterling to bring MLC

to the Parkinson’s community. You don’t want to miss

this month’s DAPS General Membership Meeting.

Charles and Susan will be there to share with us the

passion and the vision behind Move.Laugh.Connect.

Join me on October 17 at the University Park United

Methodist Church at 1:00 pm as we learn more about

the growing excitement around Move.Laugh.Connect.

Kindest regards,

A message from Mike Miles

Executive Director

For more information, please contact:

DAPS Advisory Council member, Dusty Berry.

angela6545@att.net

Moving Day DFW appreciates the tremendous

support from DAPS in helping organize this event.

Radio Interview with DAPS

Nick Carissimi, News Producer/Public Affairs Director for

CBS Radio, recently interviewed DAPS Board President

Chad Swank and Board Member and Program Chair Jim

Struble for his radio show Better Living. If you missed it,

you can listen to it now at http://cbsloc.al/2cctTtf.

Join us for a

Kendra Gives Back

party

celebrating

DAPS

Gems and Jewels!

Shop a curated collection of jewels

Friday, November 11th, 5PM—8PM at

Kendra Scott on the Plaza at Preston Center.

8383 Preston Center Plaza Drive, Suite 160

20% of the proceeds benefit DAPS!

DAPS’ NO-CHARGE

exercise · speech therapy · support groups

OCTOBER 2016 · DAPS · PAGE 7

THPHD GROUPS & CLASSES

The Movement Disorders Education and Resource Center

at Texas Health Presbyterian Hospital Dallas (THPHD)

at 8200 Walnut Hill Lane, Dallas, TX 75231 offers the following for free:

PD Patient Support Group Care Partner Support Group

3rd Thursday each month at 6 pm 4th Monday each month at 1 pm

Essential Tremor Support Group Atypical Parkinson’s Support Group

2nd Wednesday of odd months at 1 pm (PSP/MSA/CBD)

3rd Saturday each month at 10 am

For more information or to RSVP, please contact Kathryn MacDonell at

214-345-4224 or DallasMovementDisorders@TexasHealth.org.

CARROLLTON:

Grace Lutheran Church

1200 E. Hebron Pkwy. (972-492-4474)

Group Exercise:

Wednesday...10:00 to 11:00 am

Speech Therapy:

Wednesday…11:30 am to 12:15 pm

DALLAS:

Finley Ewing Cardiovascular &

Fitness Center, Studio 3

5721 Phoenix Drive (214-345-7074)

Dance for Movement Disorders:

Tuesday…2:00 to 3:15 pm

Thursday...2:00 to 3:15 pm

Lakeside Baptist Church

9150 Garland Rd. (214-324-1425)

Dance for PD®:

Wednesday...9:30 to 10:30 am

Speech Therapy:

Wednesday...10:30 to 11:15 am

Partners-in-Care Group:

Wednesday...10:15 to 11:15 am

Preston Hollow United Methodist

Church

6315 Walnut Hill Lane (214-363-4393)

Speech Therapy:

Tuesday...11:30 am to 12:30 pm

Group Exercise:

Tuesday...10:30 to 11:30 am

Thursday...10:30 to 11:30 am

DUNCANVILLE:

Trinity United Methodist Church

1302 S. Clark Rd. (972-296-2155)

Speech Therapy:

Thursday...1:00 to 1:45 pm

Group Exercise:

Monday...12:00 to 1:00 pm *New Time

No class last Monday of the month

Thursday...2:00 to 3:00 pm

Support Meeting:

Last Monday...6:00 to 8:00 pm

Partners-in-Care Group:

3rd Thursday...1:00 to 2:00 pm

Dance for PD®:

Monday...10:30 to 11:30 am *New Time

No class last Monday of the month

GARLAND:

South Garland Baptist Church

1330 E. Centerville Rd. (972-271-5428)

Group Speech:

1st & 3rd Monday… 9:30 to 10:15 am

Thursday… 9:30 to 10:15 am

Group Exercise:

Monday...10:30 to 11:30 am

Thursday...10:30 to 11:30 am

Discussion Group:

Monday...9:30 to 10:30 am

Partners-in-Care Group:

Thursday...10:30 to 11:30 am

IRVING:

MacArthur Hills Sr. Living

1295 Kinwest Pkwy. (469-251-4349)

Group Exercise:

Tuesday...10:00 to 11:00 am

Friday...10:00 to 11:00 am

MESQUITE:

Mesquite Rehabilitation Institute

1023 North Belt Line Rd.

(972-216-2400)

Speech Therapy: Tuesday...9:30 to 10:00 am

Group Exercise:

Tuesday...10:00 to 11:00 am

PLANO:

Custer Road United Methodist

Church

6601 Custer Road (972-618-3450)

Speech Therapy:

Thursday...11:00 to 11:45 am

Group Exercise:

Monday...9:45 to 10:45 am

Thursday...9:45 to 10:45 am

Partners-in-Care Group:

Monday...9:45 to 10:45 am

RICHARDSON:

Arapaho United Methodist Church

1400 W. Arapaho Rd. (972-231-1005)

Group Exercise:

Tuesday...10:00 to 11:00 am

Friday...10:00 to 11:00 am

NON-CONTACT BOXING

FOR PARKINSON’S DISEASE

Title Boxing Club of Allen

300 N. Greenville Ave.

214-644-2640

allen-greenville.titleboxingclub.com

Tuesday/Thursday..10:30 to 11:30 am

Wednesday...8:15 to 9:15 pm

Saturday...10:15 to 11:15 am

DAPS has partnered with

Title Boxing of Allen to obtain

reduced rates. Learn more about the

program at FreeMotionPD.com.

Contact the class trainer, Heidi

Weimer, with any questions

regarding schedules or rates.

Non-Profit

Organization

U.S. POSTAGE

PAID

Dallas, TX

Permit No. 3255

RETURN SERVICE

REQUESTED

Dallas Area Parkinsonism Society

6370 LBJ Freeway, Suite 170

Dallas, Texas 75240

(972) 620-7600

MARK YOUR CALENDAR

october general meeting Monday, October 17 - 1:00 p.m.

Speaker: Charles L. Sterling, Ed.D. and

Susan B. Sterling, Ed.D.

Topic: Move.Laugh.Connect….extending the

functional years

open board meeting

Monday, October 24 - 1:00 p.m.

november general meeting Monday, November 7 - 1:00 p.m.

Speaker: Tom Franklin, Ph.D.

Topic: Highly Focused Ultrasound

daps mckinney

Tuesday, October 18 - 10:00 a.m.

Speaker: Dr. Aanchal Taneja, Texas Parkinson

and Movement Disorders

Topic: PD and Swallowing

november in mckinney

Tuesday, November 15 - 10:00 a.m.

Videotaped General Membership Meeting of

Charles L. Sterling Ed. D. & Susan B. Sterling, Ed.D.

Topic: Move.Laugh.Connect....extending the

functional years

All General Membership and Board Meetings are held at University

Park United Methodist Church, 4024 Caruth Blvd., Dallas, TX 75225.

For more information, call 972-620-7600.

DAPS McKinney meets on the 3rd Tuesday of every month at

St. Gabriel the Archangel Church, 110 St. Gabriel Way, McKinney,

TX 75070. Email mckinney@daps.us for more information.

disclaimer: The contents or opinions expressed in this Newsletter are those of the individual writers or presenters and do not constitute an endorsement or approval by DAPS staff. Please consult your personal physician regarding your individual medical problems.

For change of address or corrections, please indicate the changes on this page and mail it to DAPS, or email: daps@daps.us

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