ms connection m s connection ms connection new sletter ...€¦ · 4 ms connection: spring 2016...

SPRING 2016LONG ISLAND CHAPTER

02VOLUNTEER SPOTLIGHT

03CALENDER OF EVENTS

08CAN DOMS

TOGETHER WE ARE STRONGER. WALK MS

WALK MS: JONES BEACH, FIELD 5SATURDAY, MAY 21, 2016

REGISTER TODAY AND JOIN THOUSANDS TO END MS FOREVER.Ending multiple sclerosis for good will take all of us. It is why Walk MS matters so much.

And it is why you matter so much. Walk MS helps us team up with friends, loved ones, and co-workers to change the world for everyone affected by MS. Together, we are a powerful

force. And with every step we take, every dollar we raise... we are that much closer. Together we will end MS forever.

Register online at WalkMS.org or call 631-864-8337, option 2.

09SELF HELP GROUPS

TogeTher We are sTrongerIt will take all of our passion and determination to end MS forever. Your fundraising drives

groundbreaking research, provides life-changing programs and guarantees a supportive community for those who need it most. Your participation in Walk MS will help ensure no

one ever has to be diagnosed again. Register and start raising much-needed funds today!

Register at www.nMSsli.org or call 631-864-8337, option 2

WinTer 2015/2016 Long isLanD ChaPTer

02VoLunTeer sPoTLighT

03CaLenDer of eVenTs

04MeeT The aTTorney

one Day. ThousanDs of PeoPLe. WaLk To enD Ms.

Join us aT WaLk Ms Jones beaCh, fieLD 5saTurDay, May 21, 2016

FALL 2014 LONG ISLAND CHAPTER

MS CONNECTION NEWSLETTER

INSIDE THIS ISSUE

04MS SERVICE DAY

13A DUAL PERSPECTIVE

18PROMISING MS TREATMENTS

For more information, page 3

08WALK MS THANK YOU

NEW FOR 2014:TAKE A TOUR OF THE WORLD WITHOUT LEAVING THE SOUTHFORK!

2012 Bike MS: East End Ride Participants

BIKE MS: EAST END RIDE » SEPTEMBER 7, 2014 » 1 DAY » 25-100 MILES

09seLf heLP grouPs

Ms ConneCTion neWsLeTTer

insiDeThisissue








04MeeT The aTTorney





INSIDE THIS ISSUE

04MS SERVICE DAY




08WALK MS THANK YOU




09seLf heLP grouPs


insiDeThisissue








04MeeT The aTTorney





INSIDE THIS ISSUE

04MS SERVICE DAY




08WALK MS THANK YOU




09seLf heLP grouPs


insiDeThisissue

2 MS CONNECTION: SPRING 2016

NATIONAL MULTIPLE SCLEROSIS SOCIETY Long Island Chapter 40 Marcus Drive, Suite 100 Melville, NY 11747 1-800-344-4867

© 2016 National Multiple Sclerosis Society, Long Island Chapter

Information provided by the Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician.

The Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The Society assumes no liability for the use or contents of any product or service mentioned.*

CONNECT WITH US ONLINE: Long Island Chapter www.nMSsli.org

Like us: NMSSLI

Follow us: longislandms

VOLUNTEER SPOTLIGHT Larry Silverstein

Larry Silverstein is the Director of New Business Develop-ment for Madison Performance Group, a corporation based out of NYC. His company focuses on Global Rewards and Recognition programs for Fortune 500 companies. Larry is responsible for aligning partners and clients who would most benefit from Madison’s services. He builds relation-ships with clients where they work hand in hand to develop, manage, and smoothly execute the programs that Madison

develops for them. Although Larry was born in NJ, his family moved when he was young and he grew up in Coral Springs, Florida. He attended college at the University of Florida and to this day he is an avid and loyal Gator fan. Upon graduation, Larry moved to New York working in Marketing and Ad-vertising before joining Madison, Performance Group.Larry is married to Stefanie, a Long Island native, and they have two beauti-ful girls together: Sydney (almost 10), and Sloane (8). After being misdiagnosed for many years prior, twelve years ago, Stefanie’s mother was given a definitive diagnosis of Multiple Sclerosis. Since his moth-er-in-law’s diagnosis Larry and his family have been involved with the Na-tional Multiple Sclerosis Society, Long Island Chapter to help raise awareness and funds to support research and the mission, ... to live their best lives… In 2009, Larry and his brother-in-law, David participated in Bike MS for the first time. This was just the beginning, Larry joined the Climb to the Top, at Rockefeller Center, and continues to spread his wings with other fundraising events to include Walk MS and MuckFest MS. There is evidence the family has a certain bit of a bias to get actively dirty at MuckFest MS. Despite this, for seven years, Larry is proud and gratified to be the team captain for Team Family Ties. Each year he continues to build on that team, full of people who are zealous and passionate supporters for all of the events as well as the Spring Fashion Show, “Runway for MS”. Larry joined the Board of Trustees, for the Long Island Chapter in 2014. He assumed an extremely active and visible role on the board, and accepted the Chairman position in 2016. He is committed to the strategic response and mission as he and his family continue to spend much of their time focused on those goals. Stefanie, Sydney, and Sloane can be seen by Larry’s side, or as cheerleaders on the sidelines, as he continues his personal mission to be active and volunteer to help spread awareness and fundraise. Sloane recently coined the phrase #Let’sFightMSBro, and uses it as her new slogan. It has been catching on like wildfire.

3NATIONALMSSOCIETY.ORG | 1-800-344-4867

CALENDER OF EVENTS

WALK MS: JONES BEACH,

FIELD 5MAY 21

BIKE MS: TRAFFIC FREE RIDE

JUNE 5

MS GOLF CLASSICJUNE 13

MUCKFEST MS: NEW JERSEYJUNE 25 & 26

BIKE MS: EAST END RIDE

SEPETMEBER 10

For more information and to register, please visit www.nMSsli.org or call 631-864-8337,

option 2

PROGRAMS

RECREATION AND SOCIALIZATIONPROGRAMS 2016

BAYSHORESouthside Hospital, Main Building301 W. Main StreetBayshore, NY 11716Carol Macbride, CTRSThursdays, 12 - 3 p.m.In progress - March 31 April 14, 28 May 5, 26 June 9, 23

FREEPORTFreeport Recreation Center130 East Merrick RoadTeresa Sawicki, CTRSSaturdays, 12 -3 p.m.In progress - April 2, 16 May 14, 21 June 11, 25

For more informations, please call Nick Bove at (631) 864-8337 or email [email protected]


PROGRAMS

COUNSELING SERIESADULT FAMILY MEMBERSPhone Support GroupTuesdays, 7 - 8 p.m.April 26 - May 17Contact Karen Tuminello, MSW for details631-589-3901

ADULT FAMILY MEMBERSCarle Place1 Old Country Road, Suite 295Vicki Kulberg, ACSWSaturdays, 12 - 1:30 p.m.April 16 - July 9

ADULT FAMILY MEMBERSMelville, St. Charles Rehabilitation1895 Walt Whitman RoadMichael Greenberg, ACSWThursdays, 6:15 - 7:45 p.m.April 7 - May 26

BUT YOU LOOK SO GOODSyosset Hospital, Doctors LoungeMichael Greenberg, ACSWSaturdays, 10 - 11:30 a.m.April 9 - June 4

EAST END SUPPORT CONFERENCE CALLKaren Tuminello, MSWMondays, 7 - 8 p.m.April 18 - June 13

HOMEBOUND CONFERENCE CALLKaren Tuminello, MSWThursdays, 1 - 2 p.m.April 21 - May 26

LIVING WITH MSMather Memorial HospitalConference Rm. #3- front of hospitalKaren Tuminello, MSWThursdays, 7 - 8:30 p.m.April 21 - June 9

Lake Ronkonkoma Senior CenterKaren Tuminello, MSWWednesdays, 7 - 8:30 p.m.April 20 - June 8

MEDITATE YOUR WAY TO BETTER HEALTHRoman Catholic Church of St. MatthewContact Ruth Geller at 631-439-291335 N. Service Road, Dix Hills, NYThursdays, 7 - 8:15 p.m. Ongoing

Southside Hospital, Main Building301 W. Main StreetThursdays, 11 - 12 p.m.In Progress - March 31 April 14, 28 May 5, 26 June 9, 23

MOMS WITH MSConference Call, Karen Tuminello, MSWTuesdays, 1 - 2 p.m.April 19 - May 24

To register for these programs, please contact Nick Bove at 631-864-8337, option 2


PROGRAMS

WELLNESSAQUATICS – OCEANSIDE Barry and Florence Friedberg JCC15 Neil Court516-766-4341Instructors, Helene Hines and Barbara VitaleMondays, 7 - 8 p.m. - ongoingThursdays, 10 - 11 a.m. - ongoing

AQUATICS- MID-ISLAND YPlainview45 Manetto Hill Road516-822-3535Mondays, 10:35 - 11:35 a.m. OngoingWednesdays, 10:05 – 11:05 a.m. Ongoing

YOGA

East Meadow Jewish Center1400 Prospect Avenue, East Meadow516-483-4205 Instructor, Shelley Sidelman 516-802-3876Wednesdays, 12 – 1 p.m.In Progress - June 15

Millennium Diner156 East Main Street, Smithtown631-724-5556Instructor, Shelley Sidelman 516-802-3876Fridays, 10 - 11 a.m.In Progress - June 17

Connectquot Public Library760 Ocean Avenue, Bohemiatentative time is 12 - 1 p.m.Tuesdays, In Progress - May 24*Please check the website for session information. www.connetquotlibrary.org or contact the instructor at [email protected]

PHYSICAL THERAPY

Progressive Therapy266 East Pulaski Road, Suite 3Greenlawn, Mike Rosati, PT- 631-673-4600Tuesdays, 1 - 2 p.m.In Progress - May 3

St. Charles Rehab Network240 Middle Country Road, Suite 208Smithtown, NYBrian Quinn, PTA- 631-382-4550Wednesdays, 12 - 1 p.m.May 4 - June 8

TENNIS- OCEANSIDEPointset Tennis3065 New Street516-536-2323Instructor, Tonny Van de PietermanTuesdays, ongoing, please call for session time

GO GREEN!If you prefer to receive the MS Connection via

e-mail, please contact Nick Bove at (631) 864-8337, option 2 or

[email protected].

6WELLNESS

YOGA PROGRAMSNo prior experience necessary. Participants must be ambulatory. Please arrive 10-15 minutes prior for the class to begin on time.

WOODBURYAbsolute Yoga Studio1 Guilles Lane516-682-YOGA

Tuesdays, 12:30 - 1:45 p.m.April 19 - June 7Owner/Instructor, Leslie Luft

Thursdays, 11 - 12:15 p.m.April 21 - June 9Instructor, Lisa Bachrach-Zeankowski*

There will be a small fee during the summer months. Please contact Absolute Yoga Studio for more information.

*Lisa is a 200 hour certified yoga instructor and Reiki practitioner, who is also living with multiple sclerosis. Please contact Lisa with any questions at 516-287-9747 or [email protected].

MS CONNECTION: SPRING 2016

KINGS PARK

Simplicity Yoga Studio84 Main Street631-546-8894Thursdays, 12:30 - 1:30 p.m.April 21 - June 9Owner/Instructor, Roseanne Sihler

HOPEFITNESSHOPEFitness combines exercising with fun and socialization to create a truly unique program. HOPEFitness believes that every in-dividual has the right to a healthy lifestyle. Our facilities are designed to maximize participation and encourage members for ultimate success.

NASSAU LOCATION2750 N. Jersusalem Road, North BellmoreFridays, 11 - 12 p.m.In Progress- May 13

SUFFOLK LOCATION3140 Veterans Highway, BohemiaMondays, 10:45 - 12 p.m.In Progress- May 23

Advanced registration is required. To register, please contact Nick Bove at 631-864-8337, Option 2


MS ON THE JOB WEB AND TELE-DISCUSSION SERIES

Trying to manage MS on the job can be challenging for many. Join us for an open discussion where other members can ask questions and share what has worked for them. Prior to each group you will be asked to view a brief 5-6 minute video on the topic to be discussed for that week. This program is only for individuals working with MS. Participation is limited so register early.

BEING PROACTIVE DISCLOSUREWednesday, April 6 Wednesday, April 207 - 8 p.m. 7 - 8 p.m.

LEGAL PROTECTIONS COGNITION AND FATIGUEAND ASSISTIVE TECHNOLOGYWednesday, April 13 Wednesday, April 277 - 8 p.m. 7 - 8 p.m.

7naTionaLMssoCieTy.org | 1-800-344-4867

Once in a while, a challenge calls that you simply must answer. Challenge Walk MS is the perfect way to embrace a personal challenge of spirit and strength, while making an

important difference in the lives of people living with MS.RegisteR today & get a head staRt on fundRaising

As soon as you register, you’ll have access to our online fundraising tools that make fundraising easier and more convenient than ever! A minimum fundraising goal of $1,500 is required, but we’ll be with you every step of

the way.

3 days. 50 miles.ConneCt to end multiple sCleRosisRegisteR now: challengewalkmscapecod.org or 800.344.4867

40 Marcus DriveSuite 100Melville, NY 11747

NON-PROFITORGANIZATION

U.S. POSTAGEPAID

New York, NYPermit No. 7131National

Multiple SclerosisSocietyLong IslandChapter

Once in a while, a challenge calls that you simply must answer. Challenge Walk MS is the perfect way to embrace a personal challenge of spirit and strength, while making an important difference in the lives of people living with MS.REGISTER TODAY & BEGIN FUNDRAISINGAs soon as you register, you’ll have access to our online fundraising tools, making fundraising easier and more convenient than ever! A minimum fundraising goal of $1,500 is required, but we’ll be with you every step of the way.

Cape Cod, Mass. Sept. 5-7, 2014

CAPE COD, MASS.: SEPTEMBER 5-7, 2014

3 DAYS. 50 MILES.CONNECT TO END MULTIPLE SCLEROSISREGISTER NOW: MSchallengewalkcapecod.org or 1.800.344.4867

CAPE COD, MASS.: SEPTEMBER 5-7, 2014

saVe The DaTesyou are inViTeD

eVeryDay MaTTersEveryone has their own idea of their best life. For people living with multiple sclerosis, the idea of that “best life”

can change due to the challenges of having a chronic, unpredictable and lifelong disease. The National MS Society’s Everyday Matters, (everydayMSmatters.org) is an interactive national program which will uncover stories of real people facing the everyday challenges that MS can bring on the path to one’s best life, and puts positive psychology to work in your life. Participants will gain understanding how these principles can be used as a strategy for living with MS, as well

as identify community resources for support. Join us for an exCiTing 6 Week TeLe-ConferenCe PrograM

WeDnesDays, 6:30 - 8:00 P.M.february 24 MarCh 2, 9, 16, 23, 30

LuAnn Pierce, our teleconference facilitator is a licensed clinical social worker who has worked with the national office in different capacities since 2007. She is an instructor for several monthly classes for volunteers and individuals, couples

and family members living with MS. LuAnn also offers counseling, care management, training and groups for the CO-WY chapter. She has worked in the field of human services and mental health for three decades.

Advanced registration is required, as space is limited. (Waitlist will be accepted)To register please contact Nick Bove @ 631-864-8337, option 2 or at [email protected]

Challenge

walk

Cape Cod, mass.

septembeR 9-11, 2016


AVAILABLE RESOURCES

TELEPHONE SUPPORT MS FRIENDS 1-866-MS FRIENDS (673-7436) The MS Friends program connects you with volunteers living with MS. HAVE MS FOR MORE THAN10 YEARS? Sal, 516-752-1116 If you have been diagnosed with MS for more than 10 years and are having difficulty coping, please call. NEWLY DIAGNOSED? Karleen, RN 516-873-9220 Call any time- leave your name, number, and a message, and Karleen will return your call. LIVING COPING ANDUNDERSTANDING MSRosemarie, 516-937-9069 or 917-294-2182 Call anytime.

CAN DO MSWELLNESS WEBINAR & TELELEARNING SERIES

Webinars/ Telelearnings will be held on the second Tuesday of each month from 8 - 9:15 p.m.

3/29 - Home Based Employment: What Employers Want

4/12 - Research Updates

5/10 - Traveling with MS

6/14 - Stress Management and Relaxation

7/12 - Managing Symptoms: Spasticity

8/9 - Mood in MS

9/13 - Health Insurance

10/11 - Support Partners and Families

12/13 - Importance of Sleep

Please register at nationalMSsociety.org/telelearning or at 1-800-344-4867.

6WeLLness

yoga PrograMsNo prior experience necessary. Participants must be ambulatory. Please arrive 10-15 minutes prior for the class to begin on time.

WooDburyAbsolute Yoga Studio1 Guilles Lane516-682-YOGA

Tuesdays, 12:30- 1:45 p.m.Owner/Instructor, Leslie Luft

Thursdays, 11 a.m.- 12:15 p.mInstructor, Lisa Bachrach-Zeankowski*

There will be a small fee during the winter months. Please contact Absolute Yoga Studio for more information.

*Lisa is a 200 hour certified yoga instructor and Reiki practitioner, who is also living with multiple sclerosis. Please contact Lisa with any questions at 516-287-9747 or [email protected].

CLiMb To The ToP200 CLarenDon- bosTon

MarCh 5, 2016. regisTer aT CLiMbMsgne.org

New England’s tallest building- 61 stories Race for time, climb for pride, celebrate your

victory. Open to elite climbers and casual striders.Chip-timed. Fundraising prizes.

Ms ConneCTion: WinTer 2015/2016

aVaiLabLe resourCes

TeLePhone suPPorT Ms frienDs 1-866-MS FRIENDS (673-7436) The MS Friends program connects you with volunteers living with MS. haVe Ms for More Than10 years? Sal, 516-752-1116 If you have been diagnosed with MS for more than 10 years and are having difficulty coping, please call. neWLy DiagnoseD? Karleen, RN 516-873-9220 Call any time- leave your name, number, and a message, and Karleen will return your call. LiVing CoPing anDunDersTanDing MsRosemarie, 516-937-9069 or 917-294-2182 Call anytime.


GREENLAWN/REACHING FOR THAT SILVER LINING Dennis, 631-495-0512 1 - 3 p.m., 1st Wednesday of the month Harborfields Public Library 31 Broadway (small meeting room)

ISLIP/ A NEW GENERATION OF MS

Wendy, 631-236-2955 7 - 9 p.m., 3rd Thursday of the month Islip Public Library 71 Monell Ave This group is focused on facing the everyday concerns and challenges of maturing young adults (ranging from ages 18 to early 30’s) liv-ing with MS.

MASTIC BEACH/BALANCING YOUR CHANGES Melissa, 516-991-3653 12 - 2 p.m., 2nd Thursday of the month Grace Lutheran Church- 240 Mastic Road Please call Melissa prior to meeting for more info.

SELF-HELP GROUP

MEETINGS Please contact the peer facilitator before attending.*NEW GROUP*OCEANSIDE/ SUPPORT GROUPMel, 516-582-6270 1:00 p.m. last Thursday of each month Oceanside JCC, 15 Neil Court

This is a new informal conversation group. Group members are either living with MS or caregivers of people living with MS. The focus of the group will be to discuss coping with MS and how involvement in a common community can be both positive and supportive.

DINNER MEETUPTracy, 516-668-7585 6:30 p.m. 2nd Wednesday of the month Contact facilitator for location

GARDEN CITY/ MS SUPPORT GROUP Lucia DiSpirito, LMSW, 516-663-4593 Neuroscience Social Worker 3rd Wednesday of the month 3:30 - 4:30 p.m. In Progress- Dec. 16 Winthrop Wellness Pavillion, 1300 Franklin Ave. Suite ML-5


MELVILLE/ BUT YOU LOOK SO GOODVic, 631-501-2178 6:30 p.m. 3rd Tuesday of the month Janney Montgomery Scott Office 324 South Service Road, Suite 100

PLAINVIEW/PHOENIX GROUPJustin, 516-857-7427 7-8:30 p.m. 1st Tuesday of each month Island Neurological, 824 Old Country Road

This group is focused on all people living with MS seeking a positive, supportive, and energetic environment.

SEAFORD/THE CHALLENGERS Nancy, 516-489-9163 11:30 a.m. - 2 p.m., 1st Wednesday of each month St. William the Abbot, R.C. Church- meet in the lower church abbey. Please call for details.

SMITHTOWN/FREE SPIRITS Tom, 516-220-4869 Don, 516-448-2005 1st Tuesday or Thursday each month Different restaurant each month Call ahead for date, time and location.

WANTAGH/ MS SUPPORT GROUP Donna, 516-279-8864 Teresa, 516-312-6171 11 - 1 p.m., 3rd Tuesday of the month St. Frances de Chantal School. Go to the back parking lot and enter school

Looking to attend a new social group on the North Shore, in Western

Nassau County? Interested? Please Contact Anthony at 516-609-9708, or Nick at

631-864-8337, option 2

THANK YOU... Self-help group leaders are people living with MS or caregivers of a person with MS. Our volunteer leaders participate at Walk MS as team captains and are active members of our wellness programs and support counseling services.

If you are interested in becoming a self-help group leader, please contact Jane Reilly at 631-864-8337, option 2 or [email protected].


CLASSIFIEDS

MARKETPLACEMOTOMED (EXERCISE) Good Condition8 Years Old Contact Maria at 718-496-5069

FREE- GOOD CONDITION- 3 rollator walkers with seat (wheels)- 4 rollator walkers (wheels)- 3 standard walkers (no wheels)- 1 standard wheelchair/ with leg rests- 1 quad cane (4 little feet)- 1 straight caneContact Nick at 631-864-8337 option 2 1999 MODIFIED VANChrysler Town & Country- Wheelchair ramp, Van lowers- kneeling- 63,000 miles, good condition, dark blue- AS IS, Contact Dennis at 631-422-2036

HOYER LIFT- JOERNSVery Good Condition1 Year OldContact Navanib at 516-305-4921

ELECTRIC COMMODEVery Good Condition2 Years OldNeeds BatteryContact Navanib at 516-305-4921

SLING FOR HOYER LIFTBest Care Deluxe Padded Toileting Sani-SlingSize: Medium, Never UsedFor Sale: $75.00 Contact Lauren at 631-681-3666

HOSPITAL BEDGood ConditionRises up and downContact Dennis at 646-245-2790

NATIONAL MULTIPLE SCLEROSIS SOCIETY MISSION

STATEMENTPeople affected by MS can live their best lives as

we stop MS in its tracks, restore what has been lost and end MS forever

40 Marcus DriveSuite 100Melville, NY 11747

NON-PROFITORGANIZATION

U.S. POSTAGEPAID

New York, NYPermit No. 7131National

Multiple SclerosisSocietyLong IslandChapter

ms connection m s connection ms connection new sletter ...€¦ · 4 ms connection: spring 2016...

Documents