my healthy life and getting it right update helen mycock and scott watkin
TRANSCRIPT
My healthy life and Getting It Right update
Helen Mycock and Scott Watkin
What we’ve already achieved
Building on successful campaigning to change practice and outcomes
3 BIG ISSUES
Primary care General hospital care Specialist healthcare
Healthy lives outcomes
People with learning disabilities know what their health needs are and they are being met with the right support from the right services
People who shape policy and practice know about and act to improve the quality of healthcare received by people with learning disabilities across health settings
People in society have any expectation that the health needs of all people with learning disabilities, however complex, are supported to the highest standard.
My experiences of health care
My eye operation – what they got right good communication using an easy to understand eye chart option to use symbols rather than letters for eye test Easy to understand leaflet about having an ECGPersonal plan for 2 year follow up care What could have been better x a longer time slot with the Doctor before my operation x an option to use a hospital with on site accommodation so my family could support me
Christian’s experience
Christian is a young man with Profound and Multiple Learning Disabilities He has complex health needs. Christian lives in Cambridge with support tailored to his every day living needs.Reasonable adjustments are important to Christian to help him get the right health supportBeing allocated a double appointment time is a reasonable adjustment That helps make important GP and hospital appointments easier for Christian to attend.
Some other Reasonable adjustments that have helped
people with learning disabilities
Aids to communication – hospital passports , Health Action Plans and easy read health leaflets
Personal hospital discharge plan for individual needs
Training for all health staff including ambulance staff
Easy to understand appointment letters including photos and clocks
Getting It Right – update
200 organisations signed up to charter
193 in England , 6 in Wales and 1 in Northern Ireland
In England this broke down into:• 78 out of the 175 NHS General Hospital Trusts ( 44.5%)• 62 out of the 146 Primary Care NHS Trusts ( 42.5%)• 21 out of 56 Mental Health / Learning Disabilities NHS Trusts (37.5%) •7 out 10 SHA’s ( 70%)•6 out of the 12 Ambulance Trusts (50%)•5 Medical colleges•10 non-NHS organisations
Primary healthcare priorities
Continue to improve access to and the quality of primary health care by:
Implementing DH Health and Social Care Volunteer Fund ‘Getting It Right……from the start’ 3 year project in 4 regions within England.
Review of GIR charter for GPs / Clinical commissioning groups - primary care focussed with local accountability
Partnership working to support / contribute to research
Develop Health pages on the website to share good practice/ outcomes
Secondary Healthcare prioritiesContinue to improve care and safety in general
hospitals by:
Implementing simply health programme of hospital road shows
Agree and promote a standard hospital passport
Further promotion and sign up to GIR charter , providing guidance for local accountability
Support / contribute to research
Sharing with partners as members of the health and human rights project
Share good practice on health web pages and potentially hosting A2A national network website
Improve access to and the care and safety within specialist healthcare services by:
Supporting implementation of recommendations of the Winterbourne inquiry
Influencing specialist and local commissioning Decrease in out of area placements Increase in personalised local commissioning and
specialist community support Support / contribute to research Improve access to mental health services ( in
primary and secondary care)
Specialist Healthcare priorities
