myth and stigma about sickle cell kano

The Myth, Stigma & TruthAbout

Sickle CellBy

Murtala Lawal KazaureConvener

Sickle Cell Survivors Forum08030584263, [email protected]

© Sickle Cell Survivors Forum 2015

Presentation Outline• Personal Introduction• Presentation Goal• About SCSForum• The Myth• The Stigma • The Truth• My Story• Q and A


Personal Introduction

• Name: Murtala Lawal Kazaure• Age: 36 years• Marital Status: Married (Father of 2 Muhammads)• Hobby: Reading, Writing and Struggle• Professions: I.T and Farming• Education:

B.Sc Computer Science (U.D.U Sokoto)M.M e-Learning Tech and Knowledge Mgt (Multimedia University Malaysia)Cisco Certified Network Associate (Cisco Systems USA)C-Tech Certified Instructor (C-Tech Inc USA)


Presentation Goal

To Clear the General Misconceptions about

Sickle Cell


About SCSForum• What? SCSForum stands for: Sickle Cell Survivors Forum• Where? The Headquarters of SCSForum is located @ Kazaure• When? SCSForum was initiated in the year 2015• Why? The aims of the Forum are:• To have an avenue where Sickle Cell Patients and their Family and Friends

meet to share experiences and exchange ideas• To help and encourage affected individuals through Advises, Mentoring and

Inspirations• To reduce the harmful misconceptions about the disease• To promote unity and fellowship among Sickle Cell Patients • To educate general public about the significance of testing their Genotype

before marriage © Sickle Cell Survivors Forum 2015

The Myth• I cannot have children with Sickle Cell because I do not

have Sickle Cell and no one in my family does either• We are both carriers, so if we have 4 children only 1 of

them will be Sick• SCD is a Communicable Disease• SCD Patients are drug addicts• SCD Patients do not grow to adulthood• SCD Patients are mentally challenged• THERE IS NO CURE FOR SCD !!!


Myth is an idea or storythat is believed by many peopleBUT THAT IS NOT TRUE

The StigmaThe general misperceptions of patients with SCD are;• They are victims and cannot do the things that most

people do• They are going to die younger, so no need to struggle

for life• Nobody is going to marry them (both males and

females)


Stigma is a mark of disgrace associatedwith a particular circumstance,quality or person

The Truth• Sickle Cell Patients are WARRIORS when they decides to be• They can ACHIEVE whatever they want if they develop the

mindset• Sickle Cell is not a COMMUNICABLE Disease• People with Sickle Cell can LIVE UP TO 60 and beyond• Mostly Sickle Cell Patients are very intelligent and have virtuous

mental capabilities• THERE ARE SEVERAL CURES FOR SICKLE CELL(Bone-Marrow Transplant, Stem-Cell Transplant, Genetic Cloning…………)


My Story 1

Kazaure 1979 Rano 1983

Magwan SPS Kano 1985-1991

Science Collage Lautai Gumel 1994-1997GSS Kazaure 1991-1994

U.D.U Sokoto 1999-2005

Delta State 2007

Info

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CCNA 2010

Working with both IIITKzr and HAFEDPOLY 2006-2010

Malaysia 2013-2014 Cyberjaya Malaysia

My Story 2

My Family, My Backbone, My Pillars, My Strength

As a WARRIOR I do unusual things that are not common among SICKLERS

COMING SOON………. Ga ta nan a cikin jini na,

ta nakasta Varaguzai na,

ta kasarta bagauniya na,

ta dusashe kazarniya na,

da ruwan Vargon jiki na

Raxaxi a cikin qashi na,

Xingishi tafiya a guna,

Bani bacci don na kwana,

Da'iman zogi da quna,

Wa ya sanya wuta jiki naaaaa!

Q and A

myth and stigma about sickle cell kano

Healthcare