never alone perinatal palliative care program
DESCRIPTION
Never Alone Perinatal Palliative Care Program. Eileen Ludden, BSN, RNC –OB C-EFM Director Labor and Delivery Nancy Wood, BSN, RNC-OB, C-EFM , CDE Director High Risk Perinatal Center Holy Cross Hospital Silver Spring, Maryland, 20910. Mission. - PowerPoint PPT PresentationTRANSCRIPT
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Never AlonePerinatal Palliative Care Program
Eileen Ludden, BSN, RNC –OB C-EFMDirector Labor and Delivery
Nancy Wood, BSN, RNC-OB, C-EFM , CDEDirector High Risk Perinatal Center
Holy Cross HospitalSilver Spring, Maryland, 20910
Mission
To be the most trusted healthcare provider in the area
To serve patients and their families who elect to carry a pregnancy to delivery in which a poor outcome is expected
Prenatal Diagnosis
Exists when a pregnant woman is determined to have a life-threatening or serious illness or when her unborn fetus is anticipated to be born with a life-limiting birth defect that will likely result in a neonatal death.
Birth Defects
In the U.S. up to 20,000 infants are born annually with conditions that are considered incompatible with life beyond the first year
In the State of Maryland 1 in 6 births result in a birth defect
What is Palliative Care?
Model of care that is holistic and extensive specifically for a patient who is not expected to “get better”
Planned intervention by trained interdisciplinary staff members who support the family and deliver care in an empathetic and sensitive manner
Goal is to prevent and relieve physical pain and suffering of the patient and to improve the conditions of living and dying
Focus is on the family as a unit, on preserving the dignity of life and helping to memorialize whatever brief time they may have together
A team approach to alleviate physical, psychological, social, emotional, and spiritual suffering
Potential vs. Actual Referrals
Of the forty patients in FY10 who were potential referrals to this program, zero referrals were received
Problem Statement
Patients with a prenatal diagnosis, medical staff, nursing staff and the community were not aware of the Perinatal Palliative Care Program
Goal
To educate the medical and nursing staff and community about the existence of the Never Alone Perinatal Palliative Care Program
Why does this matter?
With advanced planning, patient’s wishes for their delivery and the care of their baby are addressed
Decreases stress on the patient, family, and staff
Staff is better able to support the family when there is a plan of care
Process Metrics & Baseline Measures
Number of referrals Pre & post implementation knowledge
surveys Zero referrals in Fiscal Year 2010 A pre-implementation survey of the medical
and nursing staff indicated only 33% had any knowledge of the existing Perinatal Palliative Care Program
Pre-Implementation KnowledgeSurvey – December 2010
Are you aware of the Perinatal Palliative Care Program?
33%
67% Yes
No
Identified Problems
Knowledge deficit No single phone number to call to
enter patient into program No intake sheet to get information
regarding patient’s diagnosis No marketing of the program
Action Plan
After survey results were reviewed, education opportunities were provided
OB/GYN Dept. Meeting Staff Meetings Fact sheet for physician offices Brochure for patients and physician offices Community Outreach-Isaiah’s Promise and
Archdiocese of Washington, DC
Summary of Improvement
Identity of the program occurred through name recognition
Education-staff meetings & department meetings Development & Implementation
Patient brochure Fact sheet for the physicians Intake Information Sheet A sample birth plan
Re-educate on the Perinatal Alerts Binder Community Outreach-Isaiah’s Promise, Archdiocese of
Washington, DC
Post Implementation Survey
Are you aware of the Never Alone Perinatal Palliative Care Program?
82%18% Yes
No
The Never Alone Program is not about Finances
Revenue to HCH for a routine Mother Baby stay of 2-3 days averages $5,000 for the mother and $1,000 for the baby Revenue for a NICU 5 day stay averages $8,800 “Revenue” or potential benefit to the patient who has the support of the Never Alone program is PRICELESS!!!
Families will partner with us for their future health care needs and may refer others to us because of the care and support that they received
Challenges
Large number of physician groups and multidisciplinary staff to educate about program
Communication of patient’s plan of care to their physician, neonatology and nursing departments
Program Identity
Change Management
Marketing-competing agendas with other areas of the hospital and the new hospital
Develop relationships with other departments and the community
It is not easy!!! Make sure you communicate effectively
Lessons Learned
Communication is vital to the success of any program
Increased knowledge base in regards to the development of a brochure
Importance of “branding” and name recognition
Be prepared for the plan of care to change
Miles EmmanuelApril 23, 2011- April 24, 2011
But Jesus called them to him, saying,“Let the children come to me, and do not
hinder them, for to such belongs the kingdom of
God.” –Luke 18:16