Newsletter

June2017

MessagefromSARDAACEO

Maywasamazing!TheHearingVoicesofSupportPerceptionChangingInteractiveArtInstallationinNYCwasbyallmeasuresasuccess.WearegratefulforourpartnershipwithTheBloc,CAVORT,DanGiellaandGlowingBulbstocreateandinstallaveryuniqueandpowerfulexperienceforhundredsofpeople.ThankyoutoCapitalHQfortheirpublicrelations

expertisethatbroughtmediaattentiontotheeventandmanymulti-mediainterviewstoeducatethepublicaboutpsychosis.

Thousandsofvolunteerhoursandcontractualhoursmadetheexperiencepossible.ThankyoutoRussStaltersandAngelWhiteofSARDAAforyoureverconstantsupportandsacrifices.SharonHoward-Butlernamessomeoftheothers:“Theconesoflightindifferentcolorsmadeitbeautifulandextremelyintimate,aone-on-oneexperienceeveninaroomfullofpeople.LovethisshotbyMattButler.Thanksforbeingthereeverydaytogetstillsandvideofootageofpeopleinteractingwiththeinstallation.ThankyoualsotoElizabethElfenbein,StephanieBermanandJenniferWilsonMatthewsforsupportingourHVoSinitiativeandourinteractiveartinstallationidea.AlsothankstoKellyProvanforaccountserviceandproduction

support;FarkasFulopandhisteamforworkingwithdirector/producerIanFowlerontheamazinglightandvideoprojectiondesign/buildthatbroughttheideatolife;KirillKiRealandJCfortheeventpostersandsocialpostdesigns;AgnieszkaWielgoszforhandlingsocialmedia;allofthebravepeoplewhotoldtheirstories-Dan,John,Rob,Doris,Emmett,Leslie,Susan,Lance,Jessica,Katie,David,Ismael,Morgan,David,Mike,Sachin,Brandon,GarinandShari;John,Calen,Megan,Emmett,Leslie,Lisa,Marianne,Michelle,RobandSusanforbeingtheretotalktopeopleaboutwhatit'slikebeingaffectedbyschizophrenia;authors#RonPowersand#DJJafffe;allthevolunteerswhohelpedoutintheirowntime”.

TheteamofSharonHoward-Butler,BritTill,CraigKabrhel,IanFowlerandLindaStalterstraveledfromNYCtoHouston,TXtoNorthernCAtointerviewandfilmincredibleindividuals.TheinterviewsprovidethebasisforHVoSwithinspirationandexpresstherealitiesoflivingwithpsychosisandoffertheopportunitytochangeperceptions.Braveindividualsinformthewidercommunitythatpeoplewhoareaffectedbypsychosisdeserverespectandtheopportunityfortreatment.

May20thwestoodinsolidaritywiththeFamiliesforTreatmentofSeriousMentalIllnessMarch

SARDAAvolunteersmakealloftheworkwedopossible:SACoordinator:KatieLamoreauxSALeadersaroundthecountry,globallyandconferencecallgroupsOnTheCallTeam:MarieFFSCoordinator:MaryRossAdministrativeAssistants:KrystleKingandJanetMahaffeySocialMediaTeam:JordanHelwig,KaitlynNiederstadt,JoshuaLunnWebmaster:MattSaulCIO:RussStaltersBoardofDirectors:JohnCruise,ChairJDGarnier,ViceChairMaryPalafox,Secretary/TreasurerSusanSheenaIsmaelCalaJudBarbourPatriciaCaesarMatcheriKeshavan

Thankyouforyourvaluabletime,compassion,passion,andtreasure!

Warmestregards,LindaStalters,MSNCEOSchizophreniaAndRelatedDisordersAllianceofAmerica

MessagefromFFS,FamilyandFriends,Coordinator

LeavingMentalHealthMonthofMayandallthathelpsusmoveforward,thissharesaprayerwhichwasofferedbyafamilymember.ItwasmeaningfulformeasIhopeitwillbeforyou.

“ABlessing”“Mayyoubecomfortedbyyourabilitytocareandtogivecomfort.Mayyouderivestrengthfromyourowndeeplyheldfaithtobeemotionallypresenttosufferingandgrief.Mayyourprayersgivevoicetotheawesomestateofourmortalityinthefaceoftheinfinite.Andmayyoufindgracetohelpothersseethatrageagainstlosscarrieswithinitthefeistysparkofitsowndivineenergy.Thatouroutcryisasimportantasourtears”ByDr.KenGorfinkleAdaptedfrom'WhenaChildDies:HelpingtheRabbiHelp

WithHeart,MaryRoss

ASUMIRisSARDAA’sSAGroupinUruguayandweareproudtoannouncethattheWorldFederationforMentalHealthSecretariathasbeeninformedthatourfriendandcolleague,CarlosCaldeyro,andhisorganizationASUMIRwereinvitedtotheConferenceinPeru.

DeborahMaguire,DirectorofAdministrationWFMHwrites,“IwantedtofirstwishyouaverysuccessfulmeetingandapplaudyoureffortstoincludeServiceUserorganizationsinyourprogram.TheWFMHworkshardtopromotementalwellnessaroundtheworldandalwaysstrivestohaveconsumers/serviceusersincludedinalllevelsofconferences.WewereverypleasedtohearthatsomeonefromASUMIRwillparticipateandhavetheopportunitytoaddresstheConferenceparticipants.

WehaveworkedwithASUMIRinthepastandastheyaretheonlyknownorganizedSelf-HelpandPeer-RungroupinUruguay,itisimportantthattheybeencouragedandassistedintheirworkthroughoutUruguayandLatinAmerica.

WehopeallgoeswellandthatASUMIRhastheopportunitytoeducatetheparticipantsonserviceusersneedsandrights!

FromtheDeskofJohnP.

“HappinessSeries”

HappinessandRelationships.OneofthefivefactorsthatABCNewsidentifiedascontributingmosttodevelopingpersonalhappinessistheroleofrelationships.Infact,accordingtotheABC-TVspecialon happiness, close and supportive relationships between peoplemaybethebiggestpredictorofhappiness.Atthesametime,happinessexpertProf.DavidMyersstatessimply:"Close,supportive,andconnectedrelationshipsmakeforhappiness..."

"Relationships,"ascherishedinterpersonalexperiences,don'tneedtobelimitedtomarriage,oreventohavinga"boyfriend"or"girlfriend"oftheoppositegender.Manypeoplefindmeaningfulrelationshipsamongfriendsoramongmembersoftheirfamily.Ofcourse,asMyerssuggests,verycloserelationships--asinthepeopleweloveorlivewith--oftenprovideourgreatestjoysandourgreatestheartaches.Still,surveysshowthatfouroutoffiveadultsrateloveasimportanttohappiness.1-[ForourpurposesinS.A.,perhapswe should emphasize that friendships can be loving relationships,andwecanlearntodothingstopromotethissortofemotionalclosenesswithothers.]

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Wewelcomeyourmessage/artfromSAMembersforinclusioninthenewsletter.Pleasesubmityourmessageto:info@sardaa.orgormail

toSARDAAPOBox941222,Houston,TX77094-8222forconsiderationfornextmonth'snewsletter.

YourstorymightbeincludedinaSARDAAnewsletterandmightbepublishedinafutureeditionoftheSABlueBook.

PhoneSupportGroups

SAConferenceCallGroupsOnlyforindividualsdiagnosedSundays-7pmEasternTimeMondays-4pmEasternTimeThursdays-7pmEasternTimeFridays-7pmEasternTime

SpiritofSAConferenceCallForSALeadersandPotentialLeaders

FirstWednesdayofEachMonth-7pmEasternTime

FamilyandFriendsSupportGroupNotforindividualsdiagnosedEveryTuesday-7pmEasternTime

Toll-freeCallsCall-ininformation(855)640-8271

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FacebookSupportGroupOnlyforindividualsdiagnosedJOINTheFacebookGroupHere

ThisisaClosedgroup,asktobeadded.

***HOWTOSTARTANDGROWASAGROUP***

ByMargeryWakefieldWelcometoSA(SchizophrenicsAlliance)!IunderstandthatyouwanttostartanSAgroup,andthatisgreat!READMORE

HelpforpeoplewithSchizophreniaandRelated

Disorders.

Nowitiseasytorecorddetailsandspecificsaboutsymptoms,medication,moods,andmore.Choosewhatyouwanttotrack,andseealltheinformationyouneedtohelpyouoryourlovedonewhoislivingwithschizophreniaandrelateddisorders.

GettheSchizophreniaHealthStorylines™MobileAppToday!ThemobileappisFREEforallusersoniOSandAndroiddevices.Thereisalsoawebversionavailable,accessiblethroughthebrowserofanydesktopcomputerormobiledevice.

SARDAAandSelfCareCatalystshadtheopportunitytoworkwithKristySpeaks,anindividual,likeyou,livingwithschizophrenia.Kristyisamotherof3,whoaftergraduatingfromnursingschool,wasdiagnosedwithschizophrenia.

Shesaidthatoutofalltheappsinthemarket,SchizophreniaHealthStorylinesself-careappwasthemostsupportiveasitallowshertotrackhersymptoms,moodsandjournalherthoughts.Inaddition,KristydesignedaPositiveAffirmationtoolthatlaunchedattheendofMarch!

ToshowyoursupportforKristy,wearereachingouttoyoutodownloadtheapptoday!Wehopethatyoubenefitthesamewayshedoes!

DownloadSchizophreniaHealthStorylinestoday!

TheJewishWeekMay19,2017InconjunctionwithSchizophreniaAwarenessWeek,May15-21,2017,SchizophreniaandRelatedDisordersAllianceofAmerica(SARDAA)

SARDAA.orgmarkedtheweekbybringingoneoftheirpremierprograms,HearingVoicesofSupport(HVoS)Hearingvoicesofsupport.org,tolifebycreatingaperceptionchanginginteractiveIightandsoundexperientialartisticexhibitinTribecaatOneArtSpace,23WarrenStreet.READMORE

DukeresearcherslinkspecificdifferencesinbrainstructuretomultipleformsofmentaldisorderApril11,2017ADukeUniversitystudyisthefirsttolinkspecificdifferencesinbrainstructuretowhatiscommonacrossmanytypesofmentalillness.Havingasinglementalillnesslikeanxiety,depressionorschizophreniaishardenoughonitsown.Butstudiesconsistentlyshowthatuptohalfofpeoplewithonementalillnessalsoexperienceoneormoreadditionalformsofmentalillnessatthesametime.READMORE

WhyReclassifyingSchizophreniaIsNecessaryWhilemostmentalillnessescarrysomemeasureofstigma,manypeople—includinghigh-profilecelebritiesandotherpublicfigures—speakopenlyaboutdepression,bipolar,anxiety,substanceuseandotherdisorders.READMORE

May22,2017"IntheArena",hostMonsignorKieranHarrington,CEOofSchizophrenia&RelatedDisordersAlliance,LindaStalters,talkaboutMentalHealthAwarenessMonth.WATCHVIDEOHERE

PennsylvaniasuedovertreatmentofmentallyillinmatesMay11,2017Despitepromisestodobetter,Pennsylvaniacontinuestoallowmentallyillinmatestolanguishinprisonastheywaitforcourt-orderedtreatment,theAmericanCivilLibertiesUnionchargedThursdayinarenewedlawsuit.READMORE

RegisternowfortheinauguralNCATSAdvocacyDay—PartneringwithPatientsforSmarterScienceJune30,2017ThepurposeoftheeventistoinformpatientsandtheiradvocatesaboutNCATSanditsprograms,identifypatientneeds,andcollectivelydiscusswaysforimprovedpatientinclusioninNCATS’translationalscienceactivities.Designedforpatients,families,caregiversandpatientadvocacygroups,theeventwillfosteranopendialogueamongpatientsandtheiradvocatestodiscusscommontranslationalscienceroadblocks,brainstormideasforimprovement,andapplythatknowledgetostrengthenpatientandcommunityengagementatNCATS.Admissioniscomplimentary,butspaceislimitedsobesuretoregisterearly.Youcanlearnmoreabouttheeventhereandregisterhere.

WhyReclassifyingSchizophreniaIsNecessaryUSATodayArticleMay18,2017AdvocacySchizophrenianeedstobeofficiallyclassifiedasaneurologicaldiseaseforsocietytobeabletogivepeoplewithschizophreniasupport.

LindaStalters,MSN,CEO,SchizophreniaandRelatedDisordersAllianceofAmericaREADMORE

NIMHtoHostMultimodalBrainStimulationSpeakerSeriesMay24,2017OnMay31,2017,theNIMHlaunchedaspeakerseriesintendedtobringtogetherleadersinthefieldconductingresearchusingnon-invasivebrainstimulationandfunctionalimaging,includingelectroencephalogram(EEG),functionalmagneticresonanceimaging(fMRI),andtranscranialmagneticstimulation(TMS).AlleventswillbebroadcastviaWebExandarchivedforlaterviewing.SpeakersarescheduledthroughNovember2017.READMORE

NIHRESEARCHMATTERS:NEWROLEDISCOVEREDFORTHETHALAMUSThethalamus,abrainregionlongassumedtobemerelyaninformationrelay,alsosustainstheabilitytodistinguishtypesofinformationandholdthoughtsinmind.Theresultssuggestthattheregionmayplayapivotalroleinthebrain’sthinkingcircuityandmightbeatherapeutictargetforcertainpsychiatricdisorders.READMORE

LivesintheBalance:Addressing“DeathsofDespair”amongPeoplewithSeriousMentalIllnessTheU.S.hadseendecadesofcontinuallydecliningmortalityrates,asadvancesinhealthcareandsafetyhaveallowedustolivelonger.Thiscentury,however,mortalityratesamongcertaindemographicandsocioeconomicgroupshaveincreased.SAMHSACenterforMentalHealthServicesDirectorPaolodelVecchiodescribesthefindingsofarecentstudyattributingthisupticktowhattheauthorscall“deathsofdespair,”whicharedrugandalcoholoverdoses,liverdiseaseassociatedwithchronicalcoholuse,andsuicide.READMORE

Self-CareforProvidersDuringChangeandStressHealthcareworkersmayneglecttheirownwellnesswhilehelpingothers.Thisarticlelistsfivetipstohelpmood,physicalhealth,andpatientcarequalitythroughself-care.READMORE

WELCOMETOTHECOMMUNITYPROVIDERTOOLKITThistoolkitsupportsthebehavioralhealthandwellnessofVeteransreceivingservicesoutsidetheU.S.DepartmentofVeteransAffairs(VA)healthcaresystem.Resourcesavailableinthistoolkitincludeinformationonscreeningformilitaryservice,handouts,trainingstoincreaseknowledgeaboutmilitaryculture,andmini-clinicsfocused

onrelevantaspectsofbehavioralhealthandwellness.READMORE

ThreeWaystoStarttheConversationAboutMentalHealthTreatmentBringingupmentalhealthwithaVeteranlovedonecanbechallenging.There’snoone-size-fits-allanswer.Everysituationisunique,whetheraVeteranreturnedhomeyearsagooristransitioningfromservicenow.TheVAMaketheConnectionwebsiteoffersresourcesthatcanhelpstarttheconversationaboutmentalhealthtreatment.READMORE

10MentalHealthBlogsYouDon’tWanttoMissTheDefenseCentersofExcellenceforPsychologicalHealthandTraumaticBrainInjury(DCoE)strivestoprovidethemostup-to-dateinformationandresourcesonresearch,tools,andservicesavailableforthemilitarycommunity.DCoE,includingitscentersandcampaigns,producesblogpoststohelpmaketheinformationavailabletoeveryone,andeasiertounderstand.Takealookat10recentpostsrelatedtomentalhealth.READMORE

IsClinicalResearchRightforMe?SharethisNIAinfographicandhelpspreadthewordaboutthebenefitsofparticipatinginclinicaltrialsandstudies.READMORE

NIHMultimodalBrainStimulation,AngelPeterchevbyThomasRadmanThislectureintheNIMHMultimodalTMSSpeakerSeries,whichbringstogethertheleadersinthefieldconductingresearchusingnon-invasivebrainstimulationandfunctionalimaging,willdescribenovelTMSdevicedevelopment,MRI-informedmodeling,andconcurrentTMSandintracerebralrecordingsintendedtobuild,fromthegroundup,bettertoolsforselectiveneuralengagement.TheeventwillbebroadcastviaWebExandarchivedforlaterviewing.READMORE

NIMHLECTURE:MULTIMODALSPEAKERSERIESJune9,2017,1:30-3:30PMETThislectureintheNIMHMultimodalTMSSpeakerSeries,whichbringstogethertheleadersinthefieldconductingresearchusingnon-invasivebrainstimulationandfunctionalimaging,featuresChristianWindischberger,AssociateProfessorofMedicalPhysicsandDeputyHeadofMRPhysicsattheCenterforMedicalPhysicsandBiomedicalEngineeringattheMedicalUniversityofVienna,andFaranakFarzan,anindependentscientistintheTemertyCentrefor

TherapeuticBrainStimulationattheCentreforAddictionandMentalHealth.TheeventwillbebroadcastviaWebExandarchivedforlaterviewing.READMORE

DonatetoSARDAA

BrainCampaign:TakethePledge

IwillchangemylanguagefromBehavioralorMentaldisordertoBraindisorder.Iwilleducateotherstochangetheirlanguagefrommentalillnessestobrainillness.Iwillnotusestigmatizing,discriminatoryorderogatorylanguagerelatedtobraindisorders.Iwillencouragemypeers,familymembers,andcolleaguestoadvocatewhentheyseediscriminatorylanguageorpracticesinthemediaorinpublic.Iwilladvocatethatpeoplewithbraindisordershaveequalandcomprehensivehealthcare.Iwilltreatallpeoplewithbraindisorderswithrespectandcompassion.

PleasetakeamomenttofindouthowyoucanhelpsupportSARDAA,

notonlytodaybuteveryday-atnoextracosttoyou!!

WhenyoudoyourshoppingatAmazonSmile,Amazondonates0.5%ofthepurchasepricetoSchizophreniaAndRelatedDisordersAllianceOfAmerica.

IT'SSOSIMPLE:justbookmarkthislinkhttp://smile.amazon.com/ch/33-1213657,startshoppingandsupportuseverytimeyoushop.

TexasandLouisianaFriends:

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YoucansupportSARDAAwithoutspendingapenny!Register

SchizophreniaandRelatedDisordersonyourKrogerPlusCardandtheywilldonateapercentagetoSARDAAeachtimeyouuseyour

card.

Pleaseregisteronlineatwww.krogercommunityrewards.com

Linkto:SchizophreniaandRelatedDisorders–KrogerPlusCard90425

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Thankyoutothosewhoalreadymadeadonation-Everycontributionmakesadifference.

Sincerely,AngelWhite,EditorJordanHelwig,CreativeDesigner