nhms codebook finaldraft public summer2008--df edits · 2018-09-12 · the national health...

The National Health Measurement Study (NHMS)

University of Wisconsin-MadisonDepartment of Population Health Sciences

Madison, WI

October 2008

CODEBOOK

The National Health Measurement Study is one component of a program of research funded by the National Institute on Aging, P01 - AG020679,

“Norms and Comparisons of 5 Health Indexes”

Principal Investigator: Dennis G. Fryback. Ph. D. Department of Population Health Sciences

University of Wisconsin School of Medicine and Public Health

The National Health Measurement Study (NHMS)University of Wisconsin-Madison

Department of Population Health SciencesMadison, WI

October 2008

NHMS Documents Available:

1. Dataset Overview

2. Sample Design and Weight Calculation

3. Codebook

4. Explanation of Computed Variables

5. Computer Assisted Telephone Interview (CATI) Script

1

NATIONAL HEALTH MEASUREMENT STUDY DATA CODEBOOK

Many elements in this codebook have abbreviated descriptions. For exact wording refer to the NHMS CATI document and the original questionnaires as cited in the NHMS Data Overview document. For derived or computed variables, see the NHMS documentation for full descriptions. Missing data codes "D" and "R" are differentiated only in SAS data.

1. ADMINISTRATIVE DATA ELEMENTS

CASEID Case identification number (range: 10001 … 13844)

WEIGHTING

TRAKEDWT Final post-stratified and trimmed person weight for weighted analyses; see weights documentation for explanation.

Mean=0.9996, range 0.0327…17.3576 STRATUM Telephone exchange stratum

1 = Very High African American 2 = High African American 3 = Medium African American 4 = Low African American TOTAL NUMBER OF RESPONDENTS (N)

Count 1212

718 492

1422 3844

INSTRUMENT ORDER

OrderSf ORDER SF-36V2TM (items SF-2 … SF-36) RANDOMIZED AMONG THE

QUESTIONNAIRES

1 = SF-36V2TM (items SF-2 … SF-36) ASKED FIRST 2 = SF-36V2TM (items SF-2 … SF-36) ASKED SECOND 3 = SF-36V2TM (items SF-2 … SF-36) ASKED THIRD 4 = SF-36V2TM (items SF-2 … SF-36) ASKED FOURTH

Count 964 935 969 976

OrderQWB ORDER OF QWB-SA QUESTION BLOCK

1 = QWB SCALE ASKED FIRST 2 = QWB SCALE ASKED SECOND 3 = QWB SCALE ASKED THIRD 4 = QWB SCALE ASKED FOURTH

Count 968

1005 898 973

OrderEQ ORDER OF EQ-5D QUESTION BLOCK

1 = EQ 5D ASKED FIRST 2 = EQ 5D ASKED SECOND 3 = EQ 5D ASKED THIRD 4 = EQ 5D ASKED FOURTH

Count 927 962 979 976

OrderHUI ORDER OF HUI QUESTION BLOCK

1 = HIU ASKED FIRST 2 = HIU ASKED SECOND 3 = HIU ASKED THIRD 4 = HIU ASKED FOURTH

Count 985 942 998 919

2

INSTRUMENT DURATION AND NUMBER OF SESSIONS TO COMPLETE SF36TIME Time to complete SF36 (min)

Mean Std. Deviation Minimum Maximum 8.33 3.02 4.30 44.97

QWBTIME Time to complete QWB (min)


EQ5DTIME Time to complete EQ5D (min)


HALEXTIME Time to complete HALex (min)


HUITIME Time to complete HUI (min)


HTHRSKTIME Time to complete health/condition/smoking/weight (min)


PWBTIME Time to complete scales of psychological well being section (min.)


DISCTIME Time to complete discrimination section (min)


SESTIME Time to complete social economic status section (min)


INFOTIME Time to complete contact information (min)


3

INSTIME Time to complete insurance questions (min)


INSTTIME Time to complete 4 main instruments (QWB-SA, HUI, SF36V2 and EQ5D) (min)


TOTTIME Time to complete entire interview


SESSIONS Total number of sessions to complete interview

1 2 3 4 5 6 7 8

Count 3121

520 123 49 18 8 3 2

SURVMO MONTH THE INTERVIEW COMPLETED

1 = JUNE 2005 2 = JULY 2005 3 = AUGUST 2005 4 = SEPTEMBER 2005 5 = OCTOBER 2005 6 = NOVEMBER 2005 7 = DECEMBER 2005 8 = JANUARY 2006 9 = FEBRUARY 2006 10 = MARCH 2006 11 = APRIL 2006 12 = MAY 2006 13 = JUNE 2006 14 = JULY 2006 15 = AUGUST 2006

Count 274 383 246 128 130 115 116 115 87

207 222 356 372 919 174

2. RESPONDENT CHARACTERISTICS

AGE Age at last birthday

N Mean Std. Deviation Minimum Maximum 3844 60.23 14.04 35 89

SEX Respondent gender (reported by informant, confirmed by Respondent if

necessary) 1 = MALE 2 = FEMALE

Count 1641

2203

4

AGECAT1 Age Categories per sampling plan 1 = 35-44 2 = 45-64 3 = 65-89

Count 642

1510 1692

AGECAT2 Age categories centered on decades

1 = 35-44 2 = 45-54 3 = 55-64 4 = 65-74 5 = 75-89 (note the oldest category is 15 yrs)

Count 642 826 684 965 727

RACE Race, first listed

1 = WHITE 2 = BLACK OR AFRICAN-AMERICAN 3 = ASIAN 4 = NATIVE AMERICAN, AMERICAN INDIAN, OR ALASKAN NATIVE 5 = NATIVE HAWAIIAN OR PACIFIC ISLANDER 6 = OTHER (SPECIFY) 99 = NO OTHER RESPONSES R = REFUSED D = DON'T KNOW

Count 2562 1086

34 55 9

80 0

12 6

RACE2 Race, second listed


Count 11 12 5

42 2

14 3758

0 0

RACE3 Race, third listed


Count 1 1 0 5 0 3

3834 0 0

RACECAT White/Black/Other (derived from RACE variable)

1 = WHITE 2 = BLACK OR AFRICAN-AMERICAN 3 = OTHER “.” = MISSING

Count 2562 1086

178 18

HISPANIC Consider self Hispanic or Latino

1 = YES 2 = NO R = REFUSED D = DON'T KNOW

Count 118

3706 4

16

5

HORIGIN Hispanic origin (answered if HISPANIC=”yes”; else skipped) 1 = MEXICAN, MEXICAN AMERICAN, CHICANO 2 = PUERTO RICAN 3 = CUBAN AMERICAN 4 = CENTRAL OR SOUTH AMERICAN 5 = OTHER HISPANIC, LATINO OR SPANISH ORIGIN (SPECIFY) R = REFUSED D = DON'T KNOW “.” = QUESTION SKIPPED

Count 37 18 3

26 36 5

13 3706

MARRIED Marital status 1 = MARRIED 2 = WIDOWED 3 = DIVORCED 4 = SEPARATED 5 = NEVER MARRIED 6 = LIVING WITH A PARTNER R = REFUSED D = DON'T KNOW

Count 1824 755 603 124 384 148 6 0

COHABIT Live with spouse (asked if MARRIED=1; else skipped)

1 = YES 2 = NO R = REFUSED D = DON'T KNOW “.” = QUESTION SKIPPED

Count 1789

34 1 0

2020 EDUC Highest level of school

0 = NONE 1 = FIRST GRADE 2 = SECOND GRADE 3 = THIRD GRADE 4 = FOURTH GRADE 5 = FIFTH GRADE 6 = SIXTH GRADE 7 = SEVENTH GRADE 8 = EIGHTH GRADE 9 = NINETH GRADE 10 = TENTH GRADE 11 = ELEVENTH GRADE 12 = HIGH SCHOOL GRADUATE, OR G.E.D. 13 = 1 YEAR OF COLLEGE 14 = 2 YEARS OF COLLEGE 15 = 3 YEARS OF COLLEGE 16 = COLLEGE GRADUATE 17 = MASTER'S DEGREE 18 = DOCTORATE OR PROFESSIONAL DEGREE D = DON'T KNOW R = REFUSED

Count 3 17 6 7 5 8 22 19 69 77 100 131

1159 270 442 144 819 370 152

21 3

NUMKIDS Number of children in household

0 1 2 3 4 5 6 7 8

Count 2544

548 445 183 71 26 12 5 2

6

9 D = DON’T KNOW R = REFUSED

2 0 6

WORK Work to earn money


Count 2025 1813

3 3

WORKHRS Avg. hours worked per week

Mean Std. Deviation Minimum Maximum # Skipped # Don’t Know # Refused 38.82 14.42 1 99 1819 25 3

OTHRWORK Current situation if not working

1 = LOOKING FOR WORK 2 = ON LAYOFF FROM A JOB 3 = WAITING FOR A NEW JOB TO BEGIN 4 = RETIRED 5 = TAKING CARE OF HOME AND FAMILY (INCLUDING PREGNANCY) 6 = IN SCHOOL 7 = NOT ABLE TO WORK BECAUSE OF ILLNESS OR DISABILITY 8 = SOMETHING ELSE (SPECIFY) D = DON'T KNOW R = REFUSED “.” = QUESTION SKIPPED

Count 49 2 8

1297 113

11

261 73

3 2

2025 OWNHOME Own Home


Count 2854

975 11

4 HEIGHT_FT Height in feet (W/O SHOES)


NOTE: Respondents were asked for their height "in feet and inches" and the two parts of their answers were coded as separate variables. E.g., "6 ft 2 in" is coded: HEIGHT_FT=6, HEIGHT_IN=2. To compute a person's height in inches: height=(12 x HEIGHT_FT + HEIGHT_IN) HEIGHT_IN Height in inches


WEIGHT_LB Weight in pounds


BMI Body Mass Index

Mean Std. Deviation Minimum Maximum # Missing # Don’t Know # Refused 28.18 6.21 13 65.8 61 0 0

7

BMICAT Body Mass Index category

1 = <18.5 2 = 18.5 - <25 3 = 25 - <30 4 = >=30 “.” = MISSING

Count 45

1176 1413 1149

61 3. Primary Questionnaires and HRQoL Indexes

SF-36v2TM QUESTIONS

SF1 SF General self-rated healthl… (This question asked first of all questions) 1 = EXCELLENT 2 = VERY GOOD 3 = GOOD 4 = FAIR 5 = POOR R = REFUSED D = DON'T KNOW

Count 542

1170 1269

618 242

1 2

SF1REV SF In general (Reverse order such that bigger value = better health)

1 = POOR 2 = FAIR 3 = GOOD 4 = VERY GOOD 5 = EXCELLENT 8 = REFUSED 7 = DON'T KNOW

Count 242 618

1269 1170

542 1 2

SF2 SF Health compared to one year ago

1 = MUCH BETTER NOW THAN ONE YEAR AGO 2 = SOMEWHAT BETTER NOW THAN ONE YEAR AGO 3 = ABOUT THE SAME AS ONE YEAR AGO 4 = SOMEWHAT WORSE THAN 1 YEAR AGO 5 = MUCH WORSE THAN ONE YEAR AGO R = REFUSED D = DON'T KNOW

Count 418 442

2406 468 104

2 4

SF3 SF Vigorous activities

1 = YES, LIMITED A LOT 2 = YES, LIMITED A LITTLE 3 = NO, NOT LIMITED AT ALL D = DON'T KNOW R = REFUSED

Count 1034 1053 1711

39 7

SF4 SF Moderate activities


Count 485 461

2887 11 0

8

SF5 SF Lifting or carrying 1 = YES, LIMITED A LOT 2 = YES, LIMITED A LITTLE 3 = NO, NOT LIMITED AT ALL D = DON'T KNOW R = REFUSED

Count 412 503

2925 3 1

SF6 SF Climbing several flights


Count 671 698

2441 33 1

SF7 SF Climbing one flight


Count 361 546

2920 17 0

SF8 SF Bending, kneeling, stooping


Count 555 810

2472 6 1

SF9 SF Walking more than a mile


Count 832 587

2386 38 1

SF10 SF Walking several hundred yards


Count 467 546

2814 16 1

SF11 SF Walking 100 yards


Count 366 504

2944 29 1

SF12 SF Bathing or dressing


Count 92

283 3466

3 0

9

SF13 SF Physical health-cut down work in past 4 weeks 1 = ALL OF THE TIME 2 = MOST OF THE TIME 3 = SOME OF THE TIME 4 = A LITTLE OF THE TIME 5 = NONE OF THE TIME D = DON'T KNOW R = REFUSED

Count 157 286 526 636

2228 7 4

SF14 SF Physical health-accomplish less

1 = ALL OF THE TIME 2 = MOST OF THE TIME 3 = SOME OF THE TIME 4 = A LITTLE OF THE TIME 5 = NONE OF THE TIME D = DON'T KNOW R = REFUSED

Count 257 423 736 827

1587 10 4

SF15 SF Physical health-limit work


Count 229 281 611 679

2022 20 2

SF16 SF Physical health-difficult performing work


Count 232 314 592 560

2132 14 0

SF17 SF Emotional health-cut down work in past 4 weeks


Count 108 165 327 360

2876 6 2

SF18 SF Emotional health-accomplish less


Count 123 185 399 423

2691 19 4

10

SF19 SF Emotional health-less careful 1 = ALL OF THE TIME 2 = MOST OF THE TIME 3 = SOME OF THE TIME 4 = A LITTLE OF THE TIME 5 = NONE OF THE TIME D = DON'T KNOW R = REFUSED

Count 83

168 335 345

2883 26 4

SF20 SF Prob. interfere w/ normal social activities

1 = NOT AT ALL 2 = SLIGHTLY 3 = MODERATELY 4 = QUITE A BIT 5 = EXTREMELY R = REFUSED D = DON'T KNOW

Count 2697

564 267 210 100

1 5

SF21 SF Bodily Pain

1 = NONE 2 = VERY MILD 3 = MILD 4 = MODERATE 5 = SEVERE 6 = VERY SEVERE D = DON'T KNOW R = REFUSED

Count 1038

916 817 706 269 91 6 1

SF22 SF Pain interferes with work

1 = NOT AT ALL 2 = SLIGHTLY 3 = MODERATELY 4 = QUITE A BIT 5 = EXTREMELY R = REFUSED D = DON'T KNOW

Count 2155

794 451 298 137

2 7

SF23 SF Full of life


Count 721

1918 731 300 167

7 0

SF24 SF Very nervous


Count 49

134 480

1014 2165

2 0

11

SF25 SF Down in the dumps 1 = ALL OF THE TIME 2 = MOST OF THE TIME 3 = SOME OF THE TIME 4 = A LITTLE OF THE TIME 5 = NONE OF THE TIME D = DON'T KNOW R = REFUSED

Count 49

107 271 346

3069 1 1

SF26 SF Calm and peaceful


Count 1003 1944

532 194 163

7 1

SF27 SF A lot of energy


Count 541

1720 948 344 288

3 0

SF28 SF Downhearted and depressed


Count 59

153 493 701

2431 6 1

SF29 SF Worn out


Count 157 333

1233 914

1197 7 3

SF30 SF Happy


Count 1007 2077

513 159 82 4 2

12

SF31 SF Tired 1 = ALL OF THE TIME 2 = MOST OF THE TIME 3 = SOME OF THE TIME 4 = A LITTLE OF THE TIME 5 = NONE OF THE TIME D = DON'T KNOW R = REFUSED

Count 229 469

1564 1040

532 8 2

SF32 SF Phys or emot interfere with social


Count 126 241 486 614

2370 3 4

SF33 SF Get sick easier than others

1 = DEFINITELY TRUE 2 = MOSTLY TRUE 3 = MOSTLY FALSE 4 = DEFINITELY FALSE R = REFUSED D = DON'T KNOW

Count 130 337

1027 2321

4 25

SF34 SF As healthy as others


Count 1097 1727

538 435

7 40

SF35 SF Expect health to get worse


Count 475 923

1016 1341

12 77

SF36 SF Health is excellent


Count 867

1720 646 593

6 12

SF-36v2TM and SF-12v2TM SCORING

MCS36V2 SF-36 MENTAL COMPONENT SCORE

Mean Std. Deviation Minimum Maximum # Missing 53.04 10.13 -2.16 71.78 16

13

PCS36V2 SF-36 PHYSICAL COMPONENT SCORE

Mean Std. Deviation Minimum Maximum # Missing 46.91 11.03 3.56 74.52 16

pf36 SF-36 Physical Functioning Component

Mean Std. Deviation Minimum Maximum # Missing 78.35 27.76 0 100 2

rp36 SF-36 Role-Physical Component


bp36 SF-36 Bodily Pain Component


gh36 SF-36 General Health Component


vt36 SF-36 Vitality Component


re36 SF-36 Role-Emotional Component


mh36 SF-36 Mental Health Component


sf36a SF-36 Social Functioning Component (note: “a” suffix to distinguish from SF36, the 36th

item on the SF-36v2TM questionnaire)


MCS12 SF-12 Mental Component Score (From SF-12V2TM as embedded in SF-36v2TM)


PCS12 SF12 Physical Component Score (From SF-12V2TM as embedded in SF-36v2TM)


SF-6D SCORING

(Note following 8 variables are computed variables – see documentation for computed variables) SF6D_36V2 SF-6D Score (From SF-36V2TM)


SF6D_12v2 SF6 Score (From SF-12V2; computed here from SF-12V2TM

questions embedded in SF-36V2TM

; uses items SF4, SF15, SF22, SF27, SF28, and SF32)


SF-6D Domain Variables (SF-36 version)

sf6phy SF6d36 Physical Component (from SF3, SF4, SF15)

Value: 1 2 3 4 5 6 “.” Definition: not limited

vigorous activities

limited a little vig.

limited a little moderate

limited a lot moderate

lim. little bathing dressing

lim. lot bathing dressing

missing

Frequency: 1630 1164 372 255 283 92 48xx sf6role SF6d36 Role Component (from SF15, SF18)

Value: 1 2 3 4 “.” Definition: no role problems limited in work by

physical accomplish less due to emotional

limited in work and accomp. less missing

Frequency: 1749 932 264 858 41 sf6men SF6d36 Mental Component (from SF24, SF28)

Value: 1 2 3 4 5 “.” Definition: not tense or downhearted

and low any of the time …a little of

the time …some of the

time …most of the

time …all of the time missing

Frequency: 1789 1078 681 202 85 9 sf6soc SF6d36 Social Component (from SF32)

Value: 1 2 3 4 5 “.” Definition: health limits social

activities none of the time …a little of

the time … some of the

time … most of the

time … all of the time missing

Frequency: 2370 614 486 241 126 7 sf6pain SF6d36 Pain Component (from SF21, SF22)

Value: 1 2 3 4 5 6 “.” Definition: no pain pain but does not

interfere pain interferes with

work a little bit pain interferes

moderately interferes quite a

bit interferes extremely missing

Frequency: 987 1167 794 451 298 137 10 sf6vit SF6d36 Vitality Component (from SF27)

Value: 1 2 3 4 5 “.” Definition: lot of energy all

the time … most of the time

… some of the time

..a little of the time …none of the time missing

Frequency: 541 1720 948 344 288 3

14

15

QUALITY OF WELL-BEING SCALE, SELF-ADMINISTERED VERSION, QUESTIONS (QWB-SA)

The following QWB-SA questions are about CHRONIC SYMPTOMS, PROBLEMS QWB_BLIND_2 QWB-SA - blindness or severely impaired vision in both eyes


Count 226

3614 0 4

QWB_BLIND_1 QWB-SA - blindness or severely impaired vision in only one eye


Count 206

3407 0 1

230 QWB_SPEECH QWB-SA - speech problems such as stuttering or unable to speak clearly


Count 169

3673 0 2

QWB_LIMBS QWB-SA - missing or paralyzed hands, feet, arms or legs


Count 78

3763 0 3

QWB_FING_TOE QWB-SA - missing or paralyzed fingers or toes


Count 78

3766 0 0

QWB_DEFORM QWB-SA - any deformity of face, finders, hand, arm, foot, leg, or back


Count 175

3664 0 5

QWB_FATIGUE QWB-SA - general fatigue, tiredness, or weakness


Count 1166 2671

1 6

QWB_WGT_CHNG QWB-SA - any problems with unwanted weight gain or loss


Count 1241 2595

1 7

QWB_WGT_PROB QWB-SA - problem with being under or over weight


Count 1561 2274

2 7

16

QWB_CHEW QWB-SA - problem chewing food


Count 277

3564 0 3

QWB_HEAR QWB-SA - any hearing loss or deafness


Count 840

3001 0 3

QWB_SKIN QWB-SA - any skin problems (acne, burns, scars) on face, arms, legs


Count 472

3370 0 2

QWB_ECZEMA QWB-SA - eczema or burning, itching rash


Count 315

3528 0 1

The following QWB-SA questions are about HEALTH AIDES UTILIZED

QWB_DENTURES QWB-SA - dentures


Count 1135 2695

1 13

QWB_OXY QWB-SA - oxygen tank


Count 110

3729 0 5

QWB_PROSTH QWB-SA - prosthesis


Count 76

3764 0 4

QWB_GLASSES QWB-SA - eye glasses or contact lenses


Count 3209

635 0 0

QWB_HEAR_AIDE

QWB-SA - hearing aide 1 = YES 2 = NO R = REFUSED D = DON'T KNOW

Count 184

3660 0 0

17

QWB_MAGNIFY QWB-SA - magnifying glass 1 = YES 2 = NO R = REFUSED D = DON'T KNOW

Count 744

3099 0 1

QWB_BRACE QWB-SA - neck, back or leg brace


Count 274

3568 0 2

The following set of QWB-SA questions are about ACUTE HEALTH PROBLEMS experienced over the

previous 3 days *Note: For purposes of NHMS responses of “don’t know” or “refused” for the following questions were counted as “no”. This is based on the assumption that if the participants did not recall or want to mention the problem, then it did not cause enough discomfort to negatively affect their quality of life. This assumption was made to avoid very confusing coding and multiplying number of data elements as we would not know which day a “don’t know” or “refuse” referred to. QWB_VISPROB_1

QWB-SA - vision problems, YESTERDAY 1 = YES 0 = NO

Count 236

3608 QWB_VISPROB_2

QWB-SA - vision problems, TWO DAYS AGO 1 = YES 0 = NO

Count 267

3577 QWB_VISPROB_3

QWB-SA - vision problems, THREE DAYS AGO 1 = YES 0 = NO

Count 257

3587 QWB_EYEPAIN_1

QWB-SA - eye pain, irritation, discharge, sensitivity, YESTERDAY 1 = YES 0 = NO

Count 221

3623 QWB_EYEPAIN_2

QWB-SA - eye pain, irritation, discharge, sensitivity, TWO DAYS AGO 1 = YES 0 = NO

Count 240

3604 QWB_EYEPAIN_3

QWB-SA - eye pain, irritation, discharge, sensitivity, THREE DAYS AGO 1 = YES 0 = NO

Count 238

3606 QWB_HEADACHE_1

QWB-SA - headache, YESTERDAY 1 = YES 0 = NO

Count 423

3421 QWB_HEADACHE_2

QWB-SA - headache, TWO DAYS AGO 1 = YES 0 = NO

Count 462

3382 QWB_HEADACHE_3

QWB-SA - headache, THREE DAYS AGO 1 = YES 0 = NO

Count 366

3478

18

QWB_DIZZY_1 QWB-SA dizzy, earache, ringing in ears, YESTERDAY

1 = YES 0 = NO

Count 402

3442 QWB_DIZZY_2 QWB-SA dizzy, earache, ringing in ears, TWO DAYS AGO

1 = YES 0 = NO

Count 403

3441 QWB_DIZZY_3 QWB-SA dizzy, earache, ringing in ears, THREE DAYS AGO

1 = YES 0 = NO

Count 391

3453 QWB_EARS_1 QWB-SA - difficulty hearing, discharge, bleeding from ear, YESTERDAY

1 = YES 0 = NO

Count 180

3664 QWB_EARS_2 QWB-SA - difficulty hearing, discharge, bleeding from ear, TWO DAYS AGO

1 = YES 0 = NO

Count 180

3664 QWB_EARS_3 QWB-SA - difficulty hearing, discharge, bleeding from ear, THREE DAYS AGO

1 = YES 0 = NO

Count 179

3665 QWB_NOSE_1 QWB-SA - stuffy, runny or bleeding nose, YESTERDAY

1 = YES 0 = NO

Count 513

3331 QWB_NOSE_2 QWB-SA - stuffy, runny or bleeding nose, TWO DAYS AGO

1 = YES 0 = NO

Count 534

3310 QWB_NOSE_3 QWB-SA - stuffy, runny, or bleeding nose, THREE DAYS AGO

1 = YES 0 = NO

Count 476

3368 QWB_THROAT_1

QWB-SA - sore throat, difficulty swallowing, hoarse, YESTERDAY 1 = YES 0 = NO

Count 240

3604 QWB_THROAT_2

QWB-SA - sore throat, difficulty swallowing, hoarse, TWO DAYS AGO 1 = YES 0 = NO

Count 243

3601 QWB_THROAT_3

QWB-SA - sore throat, difficulty swallowing, hoarse, THREE DAYS AGO 1 = YES 0 = NO

Count 217

3627 QWB_THOOTH_1

QWB-SA - tooth ache or jaw pain, YESTERDAY 1 = YES 0 = NO

Count 116

3728 QWB_THOOTH_2

QWB-SA - tooth ache or jaw pain, TWO DAYS AGO 1 = YES 0 = NO

Count 132

3712

19

QWB_THOOTH_3

QWB-SA - tooth ache or jaw pain, THREE DAYS AGO 1 = YES 0 = NO

Count 110

3734 QWB_LIPS_1 QWB-SA - sore or bleeding lips, tongue or gums, YESTERDAY

1 = YES 0 = NO

Count 48

3796 QWB_LIPS_2 QWB-SA - sore or bleeding lips, tongue or gums, TWO DAYS AGO

1 = YES 0 = NO

Count 48

3796 QWB_LIPS_3 QWB-SA - sore or bleeding lips, tongue or gums, THREE DAYS AGO

1 = YES 0 = NO

Count 42

3802 QWB_COUGH_1 QWB-SA - cough or wheezing, YESTERDAY

1 = YES 0 = NO

Count 502

3342 QWB_COUGH_2 QWB-SA - cough or wheezing, TWO DAYS AGO

1 = YES 0 = NO

Count 500

3344 QWB_COUGH_3 QWB-SA - cough wheezing, THREE DAYS AGO

1 = YES 0 = NO

Count 491

3353 QWB_BREATH_1

QWB-SA - shortness of breath, difficulty breathing, YESTERDAY 1 = YES 0 = NO

Count 406

3438 QWB_BREATH_2

QWB-SA - shortness of breath, difficulty breathing, TWO DAYS AGO 1 = YES 0 = NO

Count 420

3424 QWB_BREATH_3

QWB-SA - shortness of breath, difficulty breathing, THREE DAYS AGO 1 = YES 0 = NO

Count 412

3432 QWB_CHEST_1 QWB-SA - chest pain, pressure, palpitations, other discomfort, YESTERDAY

1 = YES 0 = NO

Count 218

3626 QWB_CHEST_2 QWB-SA - chest pain, pressure, palpitations, other, TWO DAYS AGO

1 = YES 0 = NO

Count 242

3602 QWB_CHEST_3 QWB-SA - chest pain, pressure, palpitations, other, THREE DAYS AGO

1 = YES 0 = NO

Count 205

3639 QWB_STOMACH_1

QWB-SA - upset stomach, abdominal pain, nausea, other, YESTERDAY 1 = YES 0 = NO

Count 339

3505

20

QWB_STOMACH_2

QWB-SA - upset stomach, abdominal pain, nausea, other, TWO DAYS AGO 1 = YES 0 = NO

Count 392

3452 QWB_STOMACH_3

QWB-SA - upset stomach, abdominal pain, nausea, other THREE DAYS AGO 1 = YES 0 = NO

Count 293

3551 QWB_BOWEL_1 QWB-SA - bowel problems, YESTERDAY

1 = YES 0 = NO

Count 273

3571 QWB_BOWEL_2 QWB-SA - bowel problems, TWO DAYS AGO

1 = YES 0 = NO

Count 299

3545 QWB_BOWEL_3 QWB-SA – bowel problems, THREE DAYS AGO

1 = YES 0 = NO

Count 266

3578 QWB_URINE_1 QWB-SA - pain, burning, blood in urine, YESTERDAY

1 = YES 0 = NO

Count 28

3816 QWB_URINE_2 QWB-SA - pain, burning, blood in urine, TWO DAYS AGO

1 = YES 0 = NO

Count 33

3811 QWB_URINE_3 QWB-SA - pain, burning, blood urine, THREE DAYS AGO

1 = YES 0 = NO

Count 32

3812 QWB_BLADDER_1

QWB-SA - lost control, frequency, difficulty urinating YESTERDAY 1 = YES 0 = NO

Count 524

3320 QWB_BLADDER_2

QWB-SA - lost control, frequency, difficulty urinating, TWO DAYS AGO 1 = YES 0 = NO

Count 552

3292 QWB_BLADDER_3

QWB-SA - lost control, frequency, difficulty urinating, THREE DAYS AGO 1 = YES 0 = NO

Count 539

3305 QWB_GENITAL_1

QWB-SA - genital pain, problems, YESTERDAY 1 = YES 0 = NO

Count 53

3791 QWB_GENITAL_2

QWB-SA -genital pain, problems, TWO DAYS AGO 1 = YES 0 = NO

Count 54

3790

21

QWB_GENITAL_3

QWB-SA -genital pain, problems, THREE DAYS AGO 1 = YES 0 = NO

Count 52

3792 QWB_BONE_1 QWB-SA - broken bone, YESTERDAY

1 = YES 0 = NO

Count 27

3817 QWB_BONE_2 QWB-SA - broken bone, TWO DAYS AGO

1 = YES 0 = NO

Count 27

3817 QWB_BONE_3 QWB-SA - broken bone, THREE DAYS AGO

1 = YES 0 = NO

Count 27

3817 QWB_BKPAIN_1 QWB-SA - pain, stiffness, other problems, back or neck, YESTERDAY

1 = YES 0 = NO

Count 608

3236 QWB_BKPAIN_2 QWB-SA - pain, stiffness, other problems, back or neck, TWO DAYS AGO

1 = YES 0 = NO

Count 654

3190 QWB_BKPAIN_3 QWB-SA - pain, stiffness, other problems, back or neck, THREE DAYS AGO

1 = YES 0 = NO

Count 608

3236 QWB_HIPPAIN_1

QWB-SA - pain, stiffness, other problems in hips or side, YESTERDAY 1 = YES 0 = NO

Count 476

3368 QWB_HIPPAIN_2

QWB-SA - pain, stiffness, other problems in hips or side, TWO DAYS AGO 1 = YES 0 = NO

Count 486

3358 QWB_HIPPAIN_3

QWB-SA - pain, stiffness, other problems in hips or side, THREE DAYS AGO 1 = YES 0 = NO

Count 457

3387 QWB_JOINTS_1 QWB-SA - pain, stiffness, other problems in joints, muscles, YESTERDAY

1 = YES 0 = NO

Count 1093 2751

QWB_JOINTS_2 QWB-SA - pain, stiffness, other problems in joints, muscles, TWO DAYS AGO

1 = YES 0 = NO

Count 1130 2714

QWB_JOINTS_3 QWB-SA - pain, stiffness, other prob. in joints, muscles, THREE DAYS AGO

1 = YES 0 = NO

Count 1096 2748

QWB_SWELL_1 QWB-SA - swelling of ankles, hands, feet or abdomen, YESTERDAY

1 = YES 0 = NO

Count 519

3325

22

QWB_SWELL_2 QWB-SA - swelling of ankles, hands, feet or abdomen, TWO DAYS AGO 1 = YES 0 = NO

Count 514

3330 QWB_SWELL_3 QWB-SA - swelling of ankles, hands, feet or abdomen, THREE DAYS AGO

1 = YES 0 = NO

Count 502

3342 QWB_FEVER_1 QWB-SA - fever, chills or sweats, YESTERDAY

1 = YES 0 = NO

Count 192

3652 QWB_FEVER_2 QWB-SA - fever, chills or sweats, TWO DAYS AGO

1 = YES 0 = NO

Count 206

3638 QWB_FEVER_3 QWB-SA - fever, chills or sweats, THREE DAYS AGO

1 = YES 0 = NO

Count 191

3653 QWB_FAINT_1 QWB-SA - loss of consciousness, fainting, seizures, YESTERDAY

1 = YES 0 = NO

Count 7

3837 QWB_FAINT_2 QWB-SA - loss of consciousness, fainting, seizures, TWO DAYS AGO

1 = YES 0 = NO

Count 6

3838 QWB_FAINT_3 QWB-SA - loss of consciousness, fainting, seizures, THREE DAYS AGO

1 = YES 0 = NO

Count 6

3838 QWB_BALANCE_1 QWB-SA - difficulty with balance, standing, walking, YESTERDAY

1 = YES 0 = NO

Count 454

3390 QWB_BALANCE_2 QWB-SA - difficulty with balance, standing, walking, TWO DAYS AGO

1 = YES 0 = NO

Count 456

3388 QWB_BALANCE_3 QWB-SA - difficulty with balance, standing, walking, THREE DAYS AGO

1 = YES 0 = NO

Count 450

3394

The following set of QWB-SA questions are about FEELINGS, THOUGHTS, BEHAVIORS experienced over the previous 3 days

QWB_SLEEP_1 QWB-SA - trouble falling or staying asleep, YESTERDAY

1 = YES 0 = NO

Count 778

3066 QWB_SLEEP_2 QWB-SA - trouble falling or staying sleep, TWO DAYS AGO

1 = YES 0 = NO

Count 824

3020

23

QWB_SLEEP_3 QWB-SA - trouble falling or staying asleep, THREE DAYS AGO 1 = YES 0 = NO

Count 784

3060 QWB_NERVOUS_1 QWB-SA - spells of feeling nervous or shaky, YESTERDAY

1 = YES 0 = NO

Count 264

3580 QWB_NERVOUS_2 QWB-SA - spells of feeling nervous or shaky, TWO DAYS AGO

1 = YES 0 = NO

Count 291

3553 QWB_NERVOUS_3 QWB-SA - spells of feeling nervous or shaky, THREE DAYS AGO

1 = YES 0 = NO

Count 252

3592 QWB_UPSET_1 QWB-SA - spells of feeling upset, downhearted, blue, YESTERDAY

1 = YES 0 = NO

Count 482

3362 QWB_UPSET_2 QWB-SA - spells of feeling upset, downhearted, blue, TWO DAYS AGO

1 = YES 0 = NO

Count 511

3333 QWB_UPSET_3 QWB-SA - spells of feeling upset, downhearted, blue, THREE DAYS AGO

1 = YES 0 = NO

Count 466

3378 QWB_WORRY_1 QWB-SA - excessive worry or anxiety, YESTERDAY

1 = YES 0 = NO

Count 474

3370 QWB_WORRY_2 QWB-SA - excessive worry or anxiety, TWO DAYS AGO

1 = YES 0 = NO

Count 507

3337 QWB_WORRY_3 QWB-SA - excessive worry or anxiety, THREE DAYS AGO

1 = YES 0 = NO

Count 457

3387 QWB_NOCONTR_1 QWB-SA - feelings of no control over life events, YESTERDAY

1 = YES 0 = NO

Count 396

3448 QWB_NOCONTR_2 QWB-SA - feelings of no control over life events, TWO DAYS AGO

1 = YES 0 = NO

Count 410

3434 QWB_NOCONTR_3 QWB-SA - feelings of no control over life events, THREE DAYS AGO

1 = YES 0 = NO

Count 369

3475 QWB_LONELY_1 QWB-SA - feelings of being lonely or isolated, YESTERDAY

1 = YES 0 = NO

Count 363

3481

24

QWB_LONELY_2 QWB-SA - feelings of being lonely or isolated, TWO DAYS AGO 1 = YES 0 = NO

Count 386

3458 QWB_LONELY_3 QWB-SA - feelings of being lonely or isolated, THREE DAYS AGO

1 = YES 0 = NO

Count 369

3475 QWB_TEMPER_1 QWB-SA - feelings of frustration, irritation, losing temper, YESTERDAY

1 = YES 0 = NO

Count 586

3258 QWB_TEMPER_2 QWB-SA - feelings of frustration, irritation, losing temper, TWO DAYS AGO

1 = YES 0 = NO

Count 597

3247 QWB_TEMPER_3 QWB-SA – feelings of frustration, irritation, losing temper, THREE DAYS AGO

1 = YES 0 = NO

Count 526

3318 QWB_HANGOVER_1 QWB-SA - hangover, YESTERDAY

1 = YES 0 = NO

Count 31

3813 QWB_HANGOVER_2 QWB-SA - hangover, TWO DAYS AGO

1 = YES 0 = NO

Count 33

3811 QWB_HANGOVER_3 QWB-SA - hangover, THREE DAYS AGO

1 = YES 0 = NO

Count 29

3815 QWB_SEX_1 QWB-SA - decrease in sexual interest, performance, YESTERDAY

1 = YES 0 = NO

Count 274

3570 QWB_SEX_2 QWB-SA - decrease in sexual interest, performance, TWO DAYS AGO

1 = YES 0 = NO

Count 286

3558 QWB_SEX_3 QWB-SA - decrease in sexual interest, performance, THREE DAYS AGO

1 = YES 0 = NO

Count 292

3552 QWB_CONFUSE_1 QWB-SA - confusion, significant memory loss, YESTERDAY

1 = YES 0 = NO

Count 134

3710 QWB_CONFUSE_2 QWB-SA - confusion, significant memory loss, TWO DAYS AGO

1 = YES 0 = NO

Count 140

3704 QWB_CONFUSE_3 QWB-SA - confusion, significant memory loss, THREE DAYS AGO

1 = YES 0 = NO

Count 127

3717

25

QWB_IMAGES_1 QWB-SA - thoughts, images couldn’t get out of mind, YESTERDAY 1 = YES 0 = NO

Count 236

3608 QWB_IMAGES_2 QWB-SA - thoughts, images couldn’t get out of mind, TWO DAYS AGO

1 = YES 0 = NO

Count 255

3589 QWB_IMAGES_3 QWB-SA - thoughts, images couldn’t get out of mind, THREE DAYS AGO

1 = YES 0 = NO

Count 234

3610 QWB_MEDS_1 QWB-SA - any medications, including OTC, YESTERDAY

1 = YES 0 = NO

Count 2491 1353

QWB_MEDS_2 QWB-SA - any medications, including OTC, TWO DAYS AGO

1 = YES 0 = NO

Count 2521 1323

QWB_MEDS_3 QWB-SA – any medications, including, OTC, THREE DAYS AGO

1 = YES 0 = NO

Count 2439 1405

QWB_DIET_1 QWB-SA - on medically prescribed diet for health reasons, YESTERDAY

1 = YES 0 = NO

Count 3402 442

QWB_DIET_2 QWB-SA - on medically prescribed diet for health reasons, TWO DAYS AGO

1 = YES 0 = NO

Count 3403 441

QWB_DIET_3 QWB-SA - on medically prescribe diet for health reasons, THREE DAYS AGO

1 = YES 0 = NO

Count 3399 445

QWB_APPET_1 QWB-SA - loss of appetite or over-eating, YESTERDAY

1 = YES 0 = NO

Count 327

3517 QWB_APPET_2 QWB-SA - loss of appetite or over-eating, TWO DAYS AGO

1 = YES 0 = NO

Count 345

3499 QWB_APPET_3 QWB-SA - loss of appetite or over-eating, THREE DAYS AGO

1 = YES 0 = NO

Count 302

3542 QWB_OTH_SYMP QWB-SA - in last 3 days, other symptoms, complaints, pains not mentioned

1 = YES 0 = NO D = DON’T KNOW R = REFUSED

Count 322

3520 2 0

26

The following set of QWB-SA questions are about SELF-CARE issues, over the previous 3 days QWB_PATIENT_1 QWB-SA - spent time as patient (hosp., nursing home, rehab), YESTERDAY

1 = YES 0 = NO

Count 20

3842 QWB_PATIENT_2 QWB-SA - spent time as patient (hosp., nurs. home, rehab), TWO DAYS AGO

1 = YES 0 = NO

Count 19

3825 QWB_PATIENT_3 QWB-SA -spent time as patient (hosp., nurs. home, rehab), THREE DAYS AGO

1 = YES 0 = NO

Count 27

3817 QWB_CARE_1 QWB-SA - help needed with personal care, YESTERDAY

1 = YES 0 = NO

Count 87

3757 QWB_CARE_2 QWB-SA - help needed with personal care, TWO DAYS AGO

1 = YES 0 = NO

Count 97

3747 QWB_CARE_3 QWB-SA - help needed with personal care, THREE DAYS AGO

1 = YES 0 = NO

Count 96

3748

The following set of QWB-SA questions are about MOBILITY issues, over the previous 3 days QWB_DRIVE_1 QWB-SA - drove a motor vehicle, YESTERDAY

1 = YES 0 = NO

Count 2794 1050

QWB_DRIVE_2 QWB-SA - drove a motor vehicle, TWO DAYS AGO

1 = YES 0 = NO

Count 2756 1088

QWB_DRIVE_3 QWB-SA - drove a motor vehicle, THREE DAYS AGO

1 = YES 0 = NO

Count 2747 1097

QWB_PUBTRANS_1 QWB-SA - took public transportation, YESTERDAY

1 = YES 0 = NO

Count 199

3645 QWB_PUBTRANS_2 QWB-SA - took public transportation, TWO DAYS AGO

1 = YES 0 = NO

Count 223

3621 QWB_PUBTRANS_3 QWB-SA – took public transportation, THREE DAYS AGO

1 = YES 0 = NO

Count 192

3652 QWB_NODRIVE_1 QWB-SA - no driving or public trans. because of health, YESTERDAY

1 = YES 0 = NO

Count 186

3658

27

QWB_NODRIVE_2 QWB-SA - no driving or public trans. because of health, TWO DAYS AGO 1 = YES 0 = NO

Count 195

3649 QWB_NODRIVE_3 QWB-SA - no driving or public trans. because of health, THREE DAYS AGO

1 = YES 0 = NO

Count 180

3664

The following set of QWB-SA questions are about PHYSICAL ACTIVITY LIMITATION issues, over the previous 3 days

QWB_CLIMB_1 QWB-SA - trouble climbing stairs, inclines, walking off curbs, YESTERDAY

1 = YES 0 = NO

Count 510

3334 QWB_CLIMB_2 QWB-SA - trouble climbing stairs, inclines, walking off curbs, TWO DAYS AGO

1 = YES 0 = NO

Count 529

3315 QWB_CLIMB_3 QWB-SA - trouble climbing stairs, inclines, curbs, THREE DAYS AGO

1 = YES 0 = NO

Count 513

3331 QWB_WALK_1 QWB-SA - avoid walking, trouble walking, YESTERDAY

1 = YES 0 = NO

Count 727

3117 QWB_WALK_2 QWB-SA - avoid walking, trouble walking, TWO DAYS AGO

1 = YES 0 = NO

Count 722

3122 QWB_WALK_3 QWB-SA - avoid walking, trouble walking, THREE DAYS AGO

1 = YES 0 = NO

Count 710

3134 QWB_CANE_1 QWB-SA - limp or use cane, crutch, walker, YESTERDAY

1 = YES 0 = NO

Count 486

3358 QWB_CANE_2 QWB-SA - limp or use cane, crutch, walker, TWO DAYS AGO

1 = YES 0 = NO

Count 484

3360 QWB_CANE_3 QWB-SA - limp or use cane, crutch, walker, THREE DAYS AGO

1 = YES 0 = NO

Count 482

3362 QWB_BEND_1 QWB-SA - trouble bending, stooping, kneeling, YESTERDAY

1 = YES 0 = NO

Count 863

2981 QWB_BEND_2 QWB-SA - trouble bending, stooping, kneeling, TWO DAYS AGO

1 = YES 0 = NO

Count 859

2985

28

QWB_BEND_3 QWB-SA - trouble bending, stooping, kneeling, THREE DAYS AGO 1 = YES 0 = NO

Count 839

3005 QWB_LIFT_1 QWB-SA - trouble lifting, carrying, YESTERDAY

1 = YES 0 = NO

Count 377

3467 QWB_LIFT_2 QWB-SA - trouble lifting, carrying, TWO DAYS AGO

1 = YES 0 = NO

Count 386

3458 QWB_LIFT_3 QWB-SA - trouble lifting, carrying, THREE DAYS AGO

1 = YES 0 = NO

Count 372

3472 QWB_OTHLIM_1 QWB-SA - other physical limitations, YESTERDAY

1 = YES 0 = NO

Count 250

3594 QWB_OTHLIM_2 QWB-SA - other physical limitations, TWO DAYS AGO

1 = YES 0 = NO

Count 255

3589 QWB_OTHLIM_3 QWB-SA - other physical limitations, THREE DAYS AGO

1 = YES 0 = NO

Count 240

3604 QWB_BED_1 QWB-SA - spent day in bed, chair because of health, YESTERDAY

1 = YES 0 = NO

Count 330

3514 QWB_BED_2 QWB-SA - spent day in bed, chair because of health, TWO DAYS AGO

1 = YES 0 = NO

Count 340

3504 QWB_BED_3 QWB-SA - spent day in bed, chair because of health, THREE DAYS AGO

1 = YES 0 = NO

Count 318

3526 QWB_WHLCHR_1 QWB-SA - spent all, most of day in wheelchair, YESTERDAY

1 = YES 0 = NO

Count 32

3812 QWB_WHLCHR_2 QWB-SA - spent all, most of day in wheelchair, TWO DAYS AGO

1 = YES 0 = NO

Count 31

3813 QWB_WHLCHR_3 QWB-SA - spent all, most of day in wheelchair, THREE DAYS AGO

1 = YES 0 = NO

Count 30

3814 QWB_OTHCHR_1 QWB-SA - if in wheelchair, another person moved, YESTERDAY

1 = YES 0 = NO “.” = QUESTION SKIPPED (not in wheelchair)

Count 10 25

3809

29

QWB_OTHCHR_2 QWB-SA - if in wheelchair, another person moved, TWO DAYS AGO 1 = YES 0 = NO “.” = QUESTION SKIPPED (not in wheelchair)

Count 8

27 3809

QWB_OTHCHR_3 QWB-SA - if in wheelchair, another person moved, THREE DAYS AGO

1 = YES 0 = NO “.” = QUESTION SKIPPED (not in wheelchair)

Count 8

27 3809

The following set of QWB-SA questions ask about USUAL ACTIVITES over the previous 3 days

QWB_WORKLIM_1 QWB-SA - health limited work, school, housework, YESTERDAY

1 = YES 0 = NO

Count 378

3466 QWB_WORKLIM_2 QWB-SA - health limited work, school, housework, TWO DAYS AGO

1 = YES 0 = NO

Count 384

3460 QWB_WORKLIM_3 QWB-SA - health limited work, school, housework, THREE DAYS AGO

1 = YES 0 = NO

Count 367

3477 QWB_SOCLIM_1 QWB-SA - health limited visiting, hobbies, shopping, recreation, YESTERDAY

1 = YES 0 = NO

Count 425

3419 QWB_SOCLIM_2 QWB-SA - health limited visiting, hobbies, shopping, rec., TWO DAYS AGO

1 = YES 0 = NO

Count 457

3387 QWB_SOCLIM_3 QWB-SA - health limited visiting, hobbies, shopping, rec., THREE DAYS AGO

1 = YES 0 = NO

Count 405

3439 QWB_PLANS_1 QWB-SA - health caused change of plans, activities, YESTERDAY

1 = YES 0 = NO

Count 195

3639 QWB_PLANS_2 QWB-SA - health caused change of plans, activities, TWO DAYS AGO

1 = YES 0 = NO

Count 184

3660 QWB_PLANS_3 QWB-SA - health caused change of plans, activities, THREE DAYS AGO

1 = YES 0 = NO

Count 156

3688 QWB_VAS QWB-SA visual analog scale (Range: 0 – 100, in increments of 10)

Mean Std. Deviation Minimum Maximum # Missing # Don’t Know # Refused 79.38 20.26 0 100 0 16 6

30

QWB-SA SCORING QWBSCORE Total QWB-SA Score


QWB_CPX QWB-SA acute and chronic symptoms score (note: larger score = worse health)

Mean Std. Deviation Minimum Maximum # Missing 0.32 0.12 0 0.56 0

QWB_MOB QWB-SA self-care and mobility score (note: larger score = worse health)


QWB_PAC QWB-SA physical activity score (note: larger score = worse health)


QWB_SAC QWB-SA self-care and usual activity score (note: larger score = worse health)


EQ-5D QUESTIONS EQ5D1 EQ5D Mobility

1 = NO PROBLEMS IN WALKING ABOUT 2 = SOME PROBLEMS IN WALKING ABOUT 3 = CONFINED TO BED R = REFUSED D = DON'T KNOW

Count 2777 1041

19 0 7

EQ5D2 EQ5D Self-care

1 = NO PROBLEMS WITH SELF-CARE 2 = SOME PROBLEMS WASHING AND DRESSING MYSELF 3 = UNABLE TO WASH OR DRESS MYSELF R = REFUSED D = DON'T KNOW

Count 3582

250 12 0 0

EQ5D3 EQ5D Usual activities

1 = NO PROBLEMS WITH PERFORMING MY USUAL ACTIVITIES 2 = SOME PROBLEMS WITH PERFORMING MY USUAL ACTIVITIES 3 = UNABLE TO PERFORM MY USUAL ACTIVITIES R = REFUSED D = DON'T KNOW

Count 2850

880 110

0 4

31

EQ5D4 EQ5D Pain 1 = NO PAIN OR DISCOMFORT 2 = MODERATE PAIN OR DISCOMFORT 3 = EXTREME PAIN OR DISCOMFORT R = REFUSED D = DON'T KNOW

Count 1748 1891

198 1 6

EQ5D5 EQ5D Anxiety or depression

1 = NOT ANXIOUS OR DEPRESSED 2 = MODERATELY ANXIOUS OR DEPRESSED 3 = EXTREMELY ANXIOUS OR DEPRESSED R = REFUSED D = DON'T KNOW

Count 2838

904 87 6 9

EQVAS EQ5D VAS - current health rating today (0 – 100)

Mean Std. Deviation Minimum Maximum # Don’t Know # Refused 78.82 20.48 0 100 18 4

EQ-5D SCORING EQ5DSCORE EQ5D SCORE (US version)


HUI 2/3 QUESTIONS The Health Utilities Index, which is proprietary to Health Utilities Inc., Dundas, Ontario, has 40 questions in its interviewer-administered form. Not all questions are asked of all respondents since there are skip patterns. However the content of the question stems and responses, the skip patterns, and the mapping of responses into the HUI2 and HUI3 domain levels are kept confidential under terms of our license from Health Utilities Inc. Accordingly they are not included in the public NHMS data set. Users of HUI2 and HUI3 should be aware these two indexes are correlated in part because they are both scored from one set of responses to the same 40 questions. Mapping from the 40 questions to HUI3 requires all 40 questions. The HUI2 sensation domain variable is created from three HUI3 domains, vision, hearing, and speech (the three of which are created from 15 of the 40 questions) using a logical mapping algorithm.

32

HUI2

(NOTE: “Fertility” domain was not collected; for scoring it was assumed to be at level 1)

Domain Levels of Function Within Each HUI2 Attribute (“Missing” caused by “don’t know” or “refused” responses to sufficient questions used to determine the

domain level to prevent mapping from questions to domain. HUInc. Strongly suggests not allowing these responses, but the IRB overseeing the NHMS survey insisted we allow these responses.)

HUI2_SEN_LVL HUI2 Sensation Attribute Levels

1 = Ability to see, hear and speak normally 2 = Needs equipment to see, hear or speak 3 = Sees, hears or speaks with limitations and equipment 4 = Blind, deaf or mute “.” = Missing

Count 1170 2237

244 23

170 HUI2_MOB_LVL HUI2 Mobility Attribute Levels

1 = Able to walk, bend, lift, jump and run normally 2 = Walks, etc. with limitations but no help 3 = Needs mechanical support to get around independently 4 = Requires mechanical support and another person to move 5 = Unable to control or use arms and legs “.” = Missing

Count 2497

995 159 120

3 70

HUI2_COG_LVL HUI2 Cognition Attribute Levels

1 = Learns and remembers normally 2 = Learns and remembers more slowly 3 = Learns and remembers very slowly, usually requiring assistance 4 = Unable to learn or remember “.” = Missing

Count 2265 1478

67 22 12

HUI2_EMO_LVL HUI2 Emotion Attribute Levels

1 = Happy and free of worry 2 = Occasionally fretful, angry, irritable, anxious, etc. 3 = Often fretful, angry, irritable, anxious, etc. 4 = Almost always fretful, angry, irritable, anxious, etc. 5 = Extremely fretful, angry, etc “.” = Missing

Count 2651

816 132 41

145 59

HUI2_SC_LVL HUI2 Self-Care Attribute Levels

1 = Eats, bathes, dresses without problems 2 = Eats, bathes, dresses with difficulty 3 = Needs mechanical equipment to eat, bathe, dress independently 4 = Needs another person to eat, bathe, dress “.” = Missing

Count 3709

65 10 59 1

HUI2_PAIN_LVL HUI2 Pain Attribute Levels

1 = Free of pain 2 = Occasional pain; relieved by non-rx methods, no disruption of activities 3 = Frequent pain requiring rx ; occasional disruption of activities 4 = Frequent pain; frequent disruption of activities and requires rx Narcotics 5 =Severe pain; nor relieved by rx. And constant disruption of activities “.” = Missing

Count 1966

754 859 161 97 7

HUI2SCORE Overall HUI2 Score


(These scores correspond to Table 8, p. 716, in Torrance GW, et al., Medical Care, 1996; 34(7):702-722.)

33

HUI 3 SCORING

Domain Levels of Function Within Each HUI3 Attribute (“Missing” caused by “don’t know” or “refused” responses to sufficient questions used to determine the

domain level to prevent mapping from questions to domain. HUInc. Strongly suggests not allowing these responses, but the IRB overseeing the NHMS survey insisted we allow these responses.)

HUI3_VIS_LVL HUI3 Vision Attribute Levels

1 = See newsprint and friend on other side of street without correction 2 = See newsprint and friend on other side of street with correction 3 = See newsprint, cannot see friend even with correction 4 = See friend, but cannot see newsprint even with correction 5 = Cannot see newsprint nor recognize friend with correction 6 = Unable to see at all “.” = Missing

Count 1249 2397

41 78 27 9

43 HUI3_HEAR_LVL HUI3 Hearing Attribute Levels

1 = Able to understand group conversation without hearing aid 2 = Able to understand 1-on-1 conversation without aid, but need aid for group 3 = Able to understand both group and 1-on-1 conversation with aid 4 = Able to understand 1-on-1 without aid, but cannot understand group 5 = Able to understand 1-on-1 with aid, but cannot understand group 6 = Unable to hear at all “.” = Missing

Count 3554

80 31 62 4 9

104 HUI3_ SPCH _LVL HUI3 Speech Attribute Levels

1 = Able to be understood completely by strangers and friends 2 = Understood partially by strangers, completely by friends 3 = Understood partially by both strangers and friends 4 = Not understood by strangers, but partially with friends 5 = Not understood by anyone or unable to speak at all “.” = Missing

Count 3696

55 11 33 14 35

HUI3_ AMB _LVL HUI3 Ambulation Attribute Levels

1 = Walk neighborhood without difficulty or equipment 2 = Walk neighborhood with difficulty without equipment or person 3 = Walk neighborhood with equipment without person 4 = Walk short distances w/ equipment and wheelchair needed for neighborhood 5 = Unable walk alone; need person for short dist. & wheelchair for neighborhood 6 = Unable to walk at all “.” = Missing

Count 3167

227 232 23 95 52 48

HUI3_DEX_LVL HUI3 Dexterity Attribute Levels

1 = Full use of hands and fingers 2 = Limited use of hands and fingers; not requiring help or tools 3 = Limited use of hands and fingers; independent with tools 4 = Limited use of hands and fingers; help for some tasks 5 = Limited use of hands and fingers; help for most tasks 6 = Limited use of hands and fingers; help for all tasks “.” = Missing

Count 3692

77 4

40 17 12 2

34

HUI3_EMO_LVL HUI3 Emotion Attribute Levels 1 = Happy and interested in life 2 = Somewhat happy 3 = Somewhat unhappy 4 = Very unhappy 5 = So unhappy that life is not worthwhile “.” = Missing

Count 2699

677 287 80 33 68

HUI3_COG_LVL HUI3 Cognition Attribute Levels

1 = Remember most things; think clearly and solve problems 2 = Remember most things; some difficulty thinking clearly/solving problems 3 = Somewhat forgetful; think clearly and solve problems 4 = Somewhat forgetful; some difficulty thinking clearly/solving problems 5 = Very forgetful; great difficulty thinking clearly/solving problems 6 = Cannot remember anything; cannot think clearly/solve problems “.” = Missing

Count 2265

152 901 392 100 22 12

HUI3_PAIN_LVL HUI3 Pain Attribute Levels

1 = Free of pain and discomfort 2 = Mild to moderate pain that prevents no activities 3 = Moderate pain that prevents a few activities 4 = Moderate to severe pain that prevents some activities 5 = Sever pain that prevents most activities “.” = Missing

Count 1966

754 534 325 258

7 HUI3SCORE Overall HUI3 Score


(These scores correspond to Table 3, p. 124, in Feeny D, et al., Medical Care, 2002; 40(2):113-128.)

4. Other HRQoL Scales

HALex QUESTIONS AND SCORING (skip patterns found in CATI questionnaire documentation)

HALEX1 HALEX doing most of in past 12 mos.

1 = WORKING AT A JOB OR BUSINESS 2 = KEEPING HOUSE 3 = GOING TO SCHOOL 4 = SOMETHING ELSE R = REFUSED D = DON'T KNOW “.” = QUESTION SKIPPED

Count 1687

502 26

477 3 5

1144 HALEX2 HALEX health keeps from work


Count 88

1606 1 0

2149

35

HALEX3 HALEX health limits kind or amount of work 1 = YES 2 = NO R = REFUSED D = DON'T KNOW “.” = QUESTION SKIPPED

Count 162

1442 0 3

2237 HALEX4 HALEX health keeps from housework


Count 128 372

0 2

3342 HALEX5 HALEX health limits kind or amount of housework


Count 69

305 0 0

3470 HALEX6 HALEX health keeps from working at a job, business


Count 367 565

1 3

2908 HALEX7 HALEX health limits kind or amount of work


Count 99

469 0 1

3275 HALEX8 HALEX health limits activities


Count 163

1750 0 2

1929 HALEX9 HALEX health requires help of others at home


Count 151

1941 0 0

1752 HALEX10 HALEX health requires help of others out of home


Count 445

1642 1 4

1752

36

HALEX11 HALEX health limits activities, if older than 70 1 = YES 2 = NO R = REFUSED D = DON'T KNOW “.” = QUESTION SKIPPED

Count 689 937

0 2

2216 HALEXSCORE SCORE OF HALex (uses SF1 plus HALEX1..HALEX11)


HL HALlex limitation component

1= Not limited 2= Limited in other activities 3= Limited in major activity 4= Unable to perform major activity 5= Limited in IADLs (chores, etc.) 6= Limited in ADLs (personal care, etc.) . = missing

Count 2508

382 255 246 305 148

HEALTHY DAYS QUESTIONS

HDAYSP Healthy Days - physical health was bad

D = DON’T KNOW R = REFUSED 0 DAYS 1 DAY 2 DAYS 3 DAYS 4 DAYS 5 DAYS 6 DAYS 7 DAYS 8 DAYS 9 DAYS 10 DAYS 11 DAYS 12 DAYS 13 DAYS 14 DAYS 15 DAYS 16 DAYS 17 DAYS 18 DAYS 19 DAYS 20 DAYS 21 DAYS 22 DAYS 23 DAYS 24 DAYS 25 DAYS 26 DAYS 27 DAYS 28 DAYS 29 DAYS 30 DAYS

Count 41 5

2239 150 248 151 61 128 30 53 10 5 96 1 9 1 33 92

0 0 0 0

69 9 1 2 1 32 1 1 11 2

362

37

HDAYSM Healthy Days - mental health bad D = DON’T KNOW R = REFUSED 0 DAYS 1 DAY 2 DAYS 3 DAYS 4 DAYS 5 DAYS 6 DAYS 7 DAYS 8 DAYS 9 DAYS 10 DAYS 11 DAYS 12 DAYS 13 DAYS 14 DAYS 15 DAYS 16 DAYS 17 DAYS 18 DAYS 19 DAYS 20 DAYS 21 DAYS 22 DAYS 23 DAYS 24 DAYS 25 DAYS 26 DAYS 27 DAYS 28 DAYS 29 DAYS 30 DAYS

Count 31 1

2635 139 194 124 48 123 19 46 12 4

104 0

11 1 11 92 0 2

2 1 53 3 0 1 0

33 0 1 6 3

144

38

HDAYSA Healthy Days - health stops activities D = DON’T KNOW R = REFUSED 0 DAYS 1 DAY 2 DAYS 3 DAYS 4 DAYS 5 DAYS 6 DAYS 7 DAYS 8 DAYS 9 DAYS 10 DAYS 11 DAYS 12 DAYS 13 DAYS 14 DAYS 15 DAYS 16 DAYS 17 DAYS 18 DAYS 19 DAYS 20 DAYS 21 DAYS 22 DAYS 23 DAYS 24 DAYS 25 DAYS 26 DAYS 27 DAYS 28 DAYS 29 DAYS 30 DAYS

Count 23

1 3066 69 79 59 28 73 10 23 7 6 59 1 6 1 12 63 1

0 0 1

47 5 0 0 0

22 1 2 3 3

173

5. Health Conditions and Risk Factors

HEALTH CONDITIONS

CHD Coronary Heart Disease 1 = YES 2 = NO D = DON'T KNOW R = REFUSED

Count 483

3350 9 2

CHD1 Coronary bypass surgery

1 = YES 2 = NO D = DON'T KNOW R = REFUSED “.” = QUESTION SKIPPED

Count 147 334

2 0

3361 CHD2 Coronary angioplasty


Count 212 258 13 0

3361

39

CHD3 Take medicine for chest pain


Count 218 260

5 0

3361 CHDNEW Combined Condition: CHD

0 = NO 1 = YES 2 = YES, BYPASS 3 = YES, BYPASS AND ANGIO 4 = YES, BYPASS, ANGIO AND MEDS 5 = YES, ANGIO 6 = YES, ANGIO & MEDS 7 = YES, BYPASS & MEDS 8 = YES, MEDS D = DON’T KNOW R = REFUSED

Count 3350

136 42 31 51 64 63 17 79 9 2

STROKE Stroke

1 = YES 2 = NO D = DON'T KNOW R = REFUSED

Count 222

3619 3 0

STROKE1 Stroke this year


Count 48

172 2 0

3622 STROKE2 Stroke- was hospitalized


Count 138 82 2 0

3622 STROKENEW Combined Condition: STROKE

0 = NO 1 = YES 2 = YES, THIS YEAR 3 = YES, THIS YEAR & HOSPITALIZED 4 = YES, HOSPITALIZED D = DON’T KNOW R = REFUSED

Count 3619

61 23 25

113 3 0

DIABETES Diabetes


Count 726

3116 1 1

40

DIABETES1 Take insulin for diabetes 1 = YES 2 = NO D = DON'T KNOW R = REFUSED “.” = QUESTION SKIPPED

Count 197 529

0 0

3118 DIABETES2 Take other medication for diabetes


Count 345 184

0 0

3315 DIABETESNEW Combined Condition: DIABETES

0 = NO 1 = YES 2 = YES, INSULIN 3 = YES, MEDS D = DON’T KNOW R = REFUSED

Count 3116

184 197 345

1 1

ARTHRITIS Arthritis


Count 1557 2282

5 0

ARTHRITISNEW Combined Condition: ARTHRITIS


Count 1557 2282

5 0

EYEDIS Eye disease (cataracts, macular degeneration or glaucoma)


Count 1127 2713

4 0

EYEDIS1 Have cataract now


Count 499 611 17 0

2717 EYEDIS2 Have macular degeneration


Count 154 889 83 1

2717

41

EYEDIS3 Have glaucoma 1 = YES 2 = NO D = DON'T KNOW R = REFUSED “.” = QUESTION SKIPPED

Count 228 879 20 0

2717 EYEDISNEW Combined Condition: EYE DISEASE

0 = NO 1 = YES 2 = YES, CATARACT 3 = YES, CATARACT & AMD 4 = YES, CATARACT & GLAUCOMA 5 =YES, CATARACT, AMD & GLAUCOMA 6 = YES, AMD 7 = YES, AMD & GLAUCOMA 8 = YES, GLAUCOMA D = DON’T KNOW R = REFUSED

Count 2713

463 338 45 54 8

75 23

121 4

2713 SLEEPDISORDER Sleep disorder


Count 356

3483 5 0

RESPIRATORY Chronic respiratory/lung disease


Count 644

3199 1 0

RESPIRATORY1 Have asthma now


Count 297 342

5 0

3200 RESPIRATORY2 Have emphysema now


Count 150 489

5 0

3200 RESPIRATORY3 Have chronic bronchitis now


Count 148 454

6 0

3200

42

RESPIRATORYNEW Combined Condition: RESPIRATORY 0 = NO 1 = YES 2 = YES, ASTHMA 3 = YES, ASTHMA & EMPHYSEMA 4 = YES, ASTHMA & BRONCHITIS 5 =YES, ASTHMA, EMPHYSEMA & BRONCHITIS 6 = YES, EMPHYSEMA 7 = YES, EMPHYSEMA & BRONCHITIS 8 = YES, BRONCHITIS D = DON’T KNOW R = REFUSED

Count 3199

199 176 25 59 31 66 24 64 1 0

DEPRESSION Clinical depression or anxiety disorder


Count 559

3282 1 2

DEPRESSION1 Currently take medication for depression or anxiety disorder


Count 352 207

0 0

3285 DEPRESSIONNEW Combined Condition: DEPRESSION

0 = NO 1 = YES 2 = YES, DEPRESSION MEDICATION D = DON'T KNOW R = REFUSED

Count 3282

207 352

1 2

ULCER Have had GI ulcer


Count 492

3350 2 0

ULCER1 Currently use ulcer medication


Count 182 309

0 1

3352 ULCERNEW Combined Condition: ULCER

0 = NO 1 = YES 2 = YES, ULCER MEDICATION D = DON'T KNOW R = REFUSED

Count 3350

310 182

2 0

THYROID Ever had thyroid disorder


Count 473

3365 6 0

43

THYROID1 Currently take Rx thyroid medication 1 = YES 2 = NO D = DON'T KNOW R = REFUSED “.” = QUESTION SKIPPED

Count 333 140

0 0

3371 THYROIDNEW Combined Condition: THYROID

0 = NO 1 = YES 2 = YES, THYROID MEDICATION D = DON'T KNOW R = REFUSED

Count 3365

140 333

6 0

BACKPAIN Ever had severe chronic back pain


Count 723

3114 6 1

BACKPAIN1 Back pain result of herniated/bulging disk


Count 350 366

6 1

3121 BACKPAIN2 Operation for back pain


Count 129 594

0 0

3121 BACKPAIN3 Operation helped back pain


Count 61 65 3 0

3715 BACKPAIN4 Currently take back pain medication


Count 415 307

1 0

3121

44

BACKPAINNEW Combined Condition: BACKPAIN 0 = NO 1 = YES 2 = YES, HERNIATED 3 = YES, HERNIATED & OPERATION HELPED 4 = YES, HERNIATED & OPERATION DIDN’T HELP 5 =YES, HERNIATED, OPERATION HELPED & MEDICATION 6 = YES, HERNIATED, OPERATION DIDN’T HELP & MEDICATION 7 = YES, HERNIATED & MEDICATION 8 = YES, OPERATION HELPED 9 = YES, OPERATION HELPED & MEDICATION 10 = YES, OPERATION DIDN’T HELP 11 = YES, OPERATION DIDN’T HELP & MEDICATION 12 = YES, MEDICATION D = DON’T KNOW R = REFUSED

Count 3114 158 95 32 12 17 42 152 8 4 3 8

192 6 1

SMOKE1 Ever smoked


Count 2033 1805

5 1

SMOKE2 Currently smoked

1 = EVERYDAY 2 = SOME DAYS 3 = NOT AT ALL D = DON'T KNOW R = REFUSED “.” = QUESTION SKIPPED

Count 568 161

1303 0 1

1811 6. Psychological well-being scales.

SCALES OF PSYCHOLOGICAL WELL-BEING QUESTIONS AND SCORES PWBP1 PWB purpose - I live one day at a time

1 = AGREE STRONGLY 2 = AGREE SOMEWHAT 3 = NEITHER AGREE OR DISAGREE 4 = DISAGREE SOMEWHAT 5 = DISAGREE STRONGLY D = DON'T KNOW R = REFUSED

Count 767

1117 12

942 990 13 3

PWBP2 PWB purpose - sense of direction


Count 2565

909 5

213 133 15 4

45

PWBP3 PWB purpose - no sense of what trying to accomplish 1 = AGREE STRONGLY 2 = AGREE SOMEWHAT 3 = NEITHER AGREE OR DISAGREE 4 = DISAGREE SOMEWHAT 5 = DISAGREE STRONGLY D = DON'T KNOW R = REFUSED

Count 279 544 10

717 2265

25 4

PWBP4 PWB purpose - activities seem trivial and unimportant


Count 307 453

8 661

2381 29 5

PWBP5 PWB purpose - enjoy making future plans


Count 2625

848 8

230 120 10 3

PWBP6 PWB purpose - active in carrying out plans


Count 2384 1006

11 257 171

9 6

PWBP7 PWB purpose - do not wander aimlessly through life


Count 2452

674 4

289 394 21 10

PWBP8 PWB purpose - done all there is to do in life


Count 361 469

7 975

2017 8 7

46

PWBS1 PWB accept - pleased with story of life and outcome 1 = AGREE STRONGLY 2 = AGREE SOMEWHAT 3 = NEITHER AGREE OR DISAGREE 4 = DISAGREE SOMEWHAT 5 = DISAGREE STRONGLY D = DON'T KNOW R = REFUSED

Count 1950 1177

13 447 246 10 1

PWBS2 PWB accept - confident and positive


Count 2760

825 3

162 87 6 1

PWBS3 PWB accept - others have gotten more out of life


Count 353 568 19

837 2035

24 8

PWBS4 PWB accept - like my personality


Count 2508 1079

4 150 91 9 3

PWBS5 PWB accept - disappointed with achievements


Count 306 649 14

717 2143

12 3

PWBS6 PWB accept - attitude about myself is not positive


Count 484 761 16

712 1821

41 9

47

PWBS7 PWB accept - feel good when compare myself to others 1 = AGREE STRONGLY 2 = AGREE SOMEWHAT 3 = NEITHER AGREE OR DISAGREE 4 = DISAGREE SOMEWHAT 5 = DISAGREE STRONGLY D = DON'T KNOW R = REFUSED

Count 2572

884 44

170 123 30 21

PWBS PWB Self-acceptance Score


PWBP PWB Purpose in life score


7. Self-Perceived Discrimination

DISCRIMINATION QUESTIONS

DISCRM1 DISCRIM - ever unfairly fired or denied promotion 1 = YES 2 = NO R = REFUSED D = DON'T KNOW

Count 1127 2711

2 4

DISCRM2 DISCRIM - ever not hired


Count 674

3119 3

48 DISCRM3 DISCRIM - ever unfair police interaction


Count 516

3327 1 0

DISCRM4 DISCRIM - ever discouraged from education


Count 473

3368 1 2

48

DISCRM5 DISCRIM - how often treated with less respect 1 = ALMOST EVERY DAY 2 = AT LEAST ONCE A WEEK 3 = A FEW TIMES A MONTH 4 = A FEW TIMES A YEAR 5 = LESS THAN ONCE A YEAR 6 = NEVER R = REFUSED D = DON'T KNOW

Count 224 185 322 895

1013 1180

5 20

DISCRM6 DISCRIM - how often received poorer service than others

1 = ALMOST EVERY DAY 2 = AT LEAST ONCE A WEEK 3 = A FEW TIMES A MONTH 4 = A FEW TIMES A YEAR 5 = LESS THAN ONCE A YEAR 6 = NEVER R = REFUSED D = DON'T KNOW

Count 48 58

218 802 774

1919 5

20 DISCRM7 DISCRIM - how often people think you're not smart


Count 94 89

202 560 574

2296 2

27 DISCRM8 DISCRIM - how often people act afraid of you


Count 63 49

161 409 370

2779 2

11 DISCRM9 DISCRIM - how often threatened or harassed


Count 23 38 66

280 668

2756 3

10

49

DISCRMTOT TOTAL NUMBER OF DISCRIMINATION ITEMS “YES” or 1..5 0 1 2 3 4 5 6 7 8 9

Count 610 601 659 612 505 351 245 151 72 38

REASDISCRM MAIN REASON FOR DISCRIMINATION

1 = YOUR ANCESTRY OR NATIONAL ORIGIN 2 = YOUR GENDER 3 = YOUR RACE 4 = YOUR AGE 5 = YOUR HEIGHT 6 = YOUR WEIGHT 7 = SOME OTHER ASPECT OF YOUR PHYSICAL APPEARANCE 8 = YOUR SEXUAL ORIENTATION 9 = SOME OTHER REASON (SPECIFY*) R = REFUSED D = DON'T KNOW “.” = QUESTION SKIPPED *Text responses not available in this data set.

Count 118 221 421 222 38 72

116 39

1613 24

350 610

EVERYDAY_DISC Everyday Discrimination Scale (=sum of non-missing items, DISCRIM5..DISCRIM9; potential range 0-25)

Mean Std. Deviation Minimum Maximum 4.20 3.94 0 25.00

LIFETIME_DISC Lifetime Discrimination Scale (0-4) (=sum of non-missing items DISCRIM1..DISCRIM4)

Mean Std. Deviation Minimum Maximum 0.73 1.01 0 4.00

8. Socioeconomic Status

SES QUESTIONS

INCLT25 Household income total less than 25,000 in last year 1 = YES 2 = NO R = REFUSED D = DON'T KNOW

Count 1134 2507

135 68

INCLT20 Household income total less than 20,000


Count 822 281

5 26

2710

50

INCLT15 Household income total less than 15,000 1 = YES 2 = NO R = REFUSED D = DON'T KNOW “.” = QUESTION SKIPPED

Count 520 273

4 25

3022 INCLT10 Household income total less than 10,000


Count 253 255

3 9



Count 418

2059 14 16



Count 551

1495 8 5



Count 625 861

4 5

2349 INCCAT Household income category

1 = Less Than 10,000 2 = 10,000 - 14,999 3 = 15,000 - 19,999 4 = 20,000 - 24,999 5 = 25,000 - 34,999 6 = 35,000 - 49,999 7 = 50,000 - 74,999 8 = 75,000 and higher “.” = MISSING

Count 253 255 273 281 418 551 625 861 327

DIFFEXP Difficult to meet monthly payments

1 = EXTREMELY DIFFICULT 2 = VERY DIFFICULT 3 = SOMEWHAT DIFFICULT 4 = SLIGHTLY DIFFICULT 5 = NOT DIFFICULT AT ALL R = REFUSED D = DON'T KNOW

Count 216 201 633 683

2079 23 9

OWNHOME Own home


Count 2854

975 11 4

51

ASSETLT50 Household assets less than 50,000


Count 1882 1686

179 97

ASSETLT25 Household assets less than 25,000


Count 1325

526 10 21

1962 ASSETLT10 Household assets less than 10,000


Count 865 443

2 15



Count 350

1286 35 15



Count 241

1023 13 9

2558 ASSETCAT Household asset category

1 = Less Than 10,000 2 = 10,000 - 24,999 3 = 25,000 - 49,999 4 = 50,000 - 74,999 5 = 75,000 - 99,999 6 = 100,000 and higher “.” = MISSING

Count 865 443 526 350 241

1023 396

9. Health Insurance Items

HEALTH INSURANCE QUESTIONS

INSURE Currently insured

1 = YES (list all types of coverage, INSUREA...INSUREH) 2 = NO (skip to SOMEINSR) R = REFUSED D = DON'T KNOW

Count 3558

277 7 2

52

INSUREA Type of insurance first listed 1 = PRIVATE INSURANCE, THRU CURRENT/FORMER EMPLOYER 2 = PRIVATE INSURANCE, PURCHASED DIRECTLY 3 = MEDICARE 4 = MEDICAID (MEDICAL ASSISTANCE, MEDI-CAL) 5 = MILITARY HEALTH CARE/VA(VETERANS ADMIN)/TRICARE/CHAMPUS 6 = STATE-SPONSORED PLAN (CHILDRENS HEALTH INSURANCE) 7 = OTHER GOVERNMENT PROGRAM 8 = SINGLE SERVICE PLAN (E.G., DENTAL, VISION, PRESCRIPTIONS) 9 = OTHER (SPECIFY) 99 = NO OTHER RESPONSES “.” = MISSING/NO INSURANCE

Count 1565

225 1368

153 72 33 38 1

103 0

286 INSUREB Type of insurance second listed

1 = PRIVATE INSURANCE, THRU CURRENT/FORMER EMPLOYER 2 = PRIVATE INSURANCE, PURCHASED DIRECTLY 3 = MEDICARE 4 = MEDICAID (MEDICAL ASSISTANCE, MEDI-CAL) 5 = MILITARY HEALTH CARE/VA(VETERANS ADMIN)/TRICARE/CHAMPUS 6 = STATE-SPONSORED PLAN (CHILDRENS HEALTH INSURANCE) 7 = OTHER GOVERNMENT PROGRAM 8 = SINGLE SERVICE PLAN (E.G., DENTAL, VISION, PRESCRIPTIONS) 9 = OTHER (SPECIFY) 99 = NO OTHER RESPONSES “.” = MISSING/NO INSURANCE

Count 329 326 208 171 102 27 57 20

180 2138

286 INSUREC Type of insurance third listed


Count 25 31 8

15 13 3

14 14 37

3398 286

INSURED Type of insurance fourth listed


Count 0 4 1 1 2 1 2 2 2

3543 286

53

INSUREE Type of insurance fifth listed 1 = PRIVATE INSURANCE, THRU CURRENT/FORMER EMPLOYER 2 = PRIVATE INSURANCE, PURCHASED DIRECTLY 3 = MEDICARE 4 = MEDICAID (MEDICAL ASSISTANCE, MEDI-CAL) 5 = MILITARY HEALTH CARE/VA(VETERANS ADMIN)/TRICARE/CHAMPUS 6 = STATE-SPONSORED PLAN (CHILDRENS HEALTH INSURANCE) 7 = OTHER GOVERNMENT PROGRAM 8 = SINGLE SERVICE PLAN (E.G., DENTAL, VISION, PRESCRIPTIONS) 9 = OTHER (SPECIFY) 99 = NO OTHER RESPONSES “.” = MISSING/NO INSURANCE

Count 0 0 0 0 1 0 0 0 0

3557 286

INSUREF Type of insurance sixth listed


Count 0 0 0 0 0 1 0 0 0

3557 286

INSUREG Type of insurance seventh listed


Count 0 0 0 0 0 0 0 0 0

3558 286

INSUREH Type of insurance eighth listed


Count 0 0 0 0 0 0 0 0 0

3558 286

NOINSURE If INSURE=YES, was there any time past 12 mo without insurance?

1 = YES 2 = NO R = REFUSED D = DON'T KNOW “.” = MISSING

Count 154

3402 0 2

286

54

SOMEINSR If INSURE=NO, was there any time past 12 mo with insurance?1 = YES 2 = NO R = REFUSED D = DON'T KNOW “.” = QUESTION SKIPPED

Count 87

195 3 1

3558 10. Census Tract Information

CENSUS VARIABLES (Characteristics of census tract in which respondent resides) CENREG CENSUS REGION

1 = Northeast 2 = Midwest 3 = South 4 = West

Count 578

1016 1884

366 Note: for the following variables 111 cases could not be geocoded to a census tract; 21 cases were located in tracts with less than 1000 population and the census data were set to missing for deidentification. CEN_TOTPOP Total Population


CEN_URBANPOP Percent of population identified as living in an urban area


CEN_RURALPOP Percent of population identified as living in a rural area

CEN_RACE_W Proportion of population identifying their race as white


CEN_RACE_B Proportion of population identifying their race as black or African-American


CEN_RACE_AS Proportion of population identifying their race as Asian



55

CEN_RACE_NA Proportion of population identifying their race as Native American /American Indian


CEN_RACE_HAW Proportion of population identifying their race as Native Hawaiian or Pacific Islander


CEN_RACE_OTH Proportion of population identifying their race as “some other race”


CEN_RACE_MULT Proportion of population identifying their race in two or more categories (multi-racial)


CEN_HISPANIC Proportion of population identifying their ethnicity as Hispanic


CEN_AGELT18 Proportion of population age less than 18


CEN_AGE18TO64 Proportion of population age 18 to 64


CEN_AGE65 Proportion of population age 65+


CEN_AGELT18_F Proportion of population age less than 18 and female


CEN_AGE18TO64_F Proportion of population age 18 to 64 and female


CEN_AGE65_F Proportion of population age 65+ and female


CEN_AGELT18_M Proportion of population age less than 18 and male


CEN_AGE18TO64_M Proportion of population age 18 to 64 and male


CEN_AGE65_M Proportion of population age 65+ and male


CEN_INCOMELT20K Proportion of population with household income below 20K


CEN_INCOMEGE50K Proportion of population with household income at/above 50K


CEN_MEDINC Median household income in the census tract

Mean Std. Deviation Minimum Maximum # Missing $41,283 $18,527 $7,295 $153,208 132

CEN_POVERTY Proportion of population living below poverty line


CEN_EDUC_LTHS Proportion of population with less than a high school diploma


CEN_EDUC_HS Proportion of population with high school diploma


56

CEN_EDUC_SOMECOL Proportion of population with some college/associate degree


CEN_EDUC_COLL Proportion of population with college degree


CEN_EDUC_GRAD Proportion of population with graduate degree (master’s or higher)


57