nkf general assembly 2008. nkf general assembly tom mcdonough chairman october 17, 2008 minneapolis,...

NKF General Assembly 2008


NKF General Assembly

Tom McDonoughChairman

October 17, 2008Minneapolis, Minnesota


Your Leaders Will• Lead the organization to achieve more

and mean more to our patients, our constituents and our country

• Work with you, listen to you and provide what you need to successfully navigate through a time of real change, growth and economic uncertainty

• Recognize the size of the changes we’re making and the challenges we’re facing


Transition = More Programs

Transition to Divisions means:– Greater ability to meet the needs of patients– Targeted and focused programs– Program Partnerships among Divisions and

between Divisions and National Headquarters

– More funding of the best kidney research in the US

– We will retain great traditional Affiliate programs and enhance them and bring them to the whole country


Transition = More Responsibilities

Our Board, The Transition Strategies Group and the staff leadership are committed to:– Meet the inevitable challenges that this major

change means for all of us– Carefully monitor the financial implications of

the transition– Provide all of you, Divisions and Affiliates, with

the support, information, assistance and ideas it will take to make NKF more successful

– Increase the financial strength, program effectiveness and reputation of NKF


Transition = More MoneyTransition to Divisions will mean:– Creative and Productive Fund Raising

Partnerships developing among the Divisions, National Headquarters and between Divisions

– Major donors can be identified and solicited though a national / local cohesive effort

– A solid Planned Giving Program can be developed and rolled out around the country

– Consistent programs and branding


Transition = Productive Volunteers

• Active engaged volunteers are vital in Divisions• Division Chairs are pleased with their role and

are accomplishing more than ever • Division Boards and Medical Advisory Boards

are able to focus on real progress• Community visibility is increased• Volunteers still develop priorities, evaluate

programs and plan for future growth• Division volunteers will have a real voice at NKF


Transition to Divisions

• The objective is to be a stronger, more effective organization in meeting the needs of our patients and meeting the challenge of the huge public health problem that kidney disease is in the United States

• This approach is similar to our “competitors”, more responsive, more flexible and agile and more relevant to fulfilling our mission


10/17/08

Affiliates

Divisions


The Transition is Working• My personal goal and my hope is for the map

to be all one color• We respect the voluntary nature of the

decisions you all have made or will be making• We realize a few of you want to remain

Affiliates• But our Board and Staff are committed to

making sure the outcome of each decision to become a Division is so successful that making it was obviously the right thing to do


We Are Building On Success

• 2008 has been a very good year for NKF

• We are:– raising more money– doing more programs– funding more research– identifying more early kidney disease– communicating more with each other– fundamentally changing the organization

for a better future


• KEEP Logo Slide


NKF’s KEEP Program• Nearly 120,000 individuals participated in the United States

• >2,500 participants per month, and >2,500 programs conducted to date

• >20,000 doctors enrolled in the KEEP database

• Established expertise and experience

• Validates our position as the leader in CKD

• New Longitudinal Component Launched in June


Doubling National Research Spending

$2,765,000 $3,318,000 $3,981,600 $4,779,920 $5,733,504

FY09FY10

FY12FY13

FY11


Growth in 2008KDIGO & KDOQI

• NKF Signature Programs to improve outcomes through clinical practice guidelines

• KDOQI is our original brand and continues• KDIGO develops guidelines globally, as they

should be done• Our NKF Board of Directors funded the

Guideline on Care of the Transplant Recipient


Working with Our Constituents

• Patient and Family Council• People Like Us• transAction Council• National Donor Family Council• Council of Nephrology Social Workers• Council of Renal Nutrition• Council of Nephrology Nurses and Technicians• Council of Advanced Practitioners (NEW!)


2008 U.S. Transplant Games

• Record number of athletes & participants (7,000 people at Opening Ceremonies)

• Great local involvement (UPMC)


Growth in 2008• Big growth in Kidney Walks

– Number of Kidney Walks increased by 19%

– Number of Walkers increased by 45%– Net Revenue increased by 57%

• Biggest Kidney Walks– Detroit, at $550K– New York, at $500K– Philadelphia, at $360K– Boston, at $375K


Best Series of Amateur Golf Tournaments for Charity in the

US• Both NKF Golf Classics and Cadillac

Invitationals done by NKF are growing. Over 75 tournaments nationwide

• Brought NKF $3.5 million in 2008• Continuing to expand sponsorship search• Ping Sponsorship is growing• Relationship with Golf Digest continues• Continue to upgrade prizes and golfer gifts• Solid long-term relationship with Pebble

Beach


Kidney Cars • “Kidney Cars” is 25 Years Old• Revenues are trending back up

– FY 2008 was 18% higher than FY 2007– Gross revenue was $12.9 million – Net revenue was $9.67 million – That is a profit ration of 75%

• NKF public policy staff and volunteers will go back to Congress in 2009 to address tax regulations on donated cars

• Thanks to increased internet marketing and vendor negotiations, net results are strong, despite the slowing economy


• A new Kidney Cars Sweepstakes began Sept 1 to celebrate the 25th Anniversary and generate additional revenue

• This will help increase visibility, stimulate revenue and reward our generous donors

• Any car donated between Sept 1 and Dec 1 can is eligible for prizes

• Grand prize is Pebble Beach trip & chance to win $25,000!


Your Successes• Delaware Valley > $500,000 this fall in walks• Kansas City > $65,000 on their first walk• George Lopez Celebrity golf tournament in LA

was a resounding success• Our South Carolina Affiliate was featured in

Time Magazine• After “researching charities” and hearing

about NKF programs, a donor walked into our office in Dallas with a check for $200,000


Your Successes

• “Coffee House Conversations” to support patients held in 32 cities

• “Grand Rounds” professional education programs held in 5 cities in New York

• Post-KEEP education programs pilot tested in 5 cities

• CKD Task Forces in operation in 12 states


Patients

We have more to do!


NKF’s Vision

Your National Kidney Foundation has the vision to:– Adapt its structure to a changed

environment– Adapt its mission to recognize that we have

26,000,000 Americans to serve– Adapt its focus to include major programs on

kidney disease as a public health problem– Adapt its scope to reflect the fact that the

world is getting smaller


Our Commitment to YouWe will work aggressively and productively with you to:

– Build the organization we want to become and need to become

– Respond to your needs as the people who actually get this work done throughout the country

– Recognize your central role in delivering the programs our patients need

– Appreciate and support your central role in raising the money it will take to meet those needs


NKF UpdateOctober 17, 2008

John Davis, CEO


NKF’s Strategic Plan 2007-2010

THE TRANSFORMING GOALS

Early Transplantation BrandingGlobal Vision Transition to DivisionsPatient Empowerment CKD Detection & Treatment

• The Plan remains a priority• 85% of the first year items in the plan have

been completed• Remaining items are being pursued


KEEP• KEEP staff, led by SVP Gigi Politoski and KEEP Director,

Monica Gannon, is expanding to devote highly qualified and experienced people to the program

• Leslie Pratt Dyer is working with Affiliates and Divisions• High quality and compliance is absolutely essential• Fiona Kuan, KEEP’s Quality Control Director, will work

with Affiliates and Divisions and will visit KEEP events• Headquarters improvement priorities:

– shorter follow-up timelines – use of a dedicated call center – smooth integration of the longitudinal component – enhanced use of the KEEP data


The KEEP Development Fund• 31 grants were approved in 2008• 14 Affiliates and 12 Divisions received funding• New areas of the country have been served• All Affiliates and Divisions can expand KEEP in

their area with financing from this Fund• Call Gigi or Monica and talk over your ideas• Be creative, use the money to benefit your

Affiliate or Division and KEEP• A efficient way to raise money to expand KEEP• Depending on results, more funding next year


KEEP• Longitudinal Component

– Since June, 37,000 past participants have received an invitation to return

– From June 15th through early September, 1,700 people were screened; 20% were returning participants

• Follow-up on test results is critical • Goal is to increase the number returning• Increased value to participants and

research • Enhanced Web site for participants who

can or have returned and their physicians


KEEPFuture focused on:

• Strategically Planned Growth • Continuous Quality Improvement• Data Value and Use Enhancement• Longitudinal component• Value of Quest Labs• Post event education and awareness• Global expansion


Non-KEEP Detection Programs

• Program can identify early CKD without using the full formal KEEP protocol

• No blood tests, different inclusion criteria• No data in the KEEP ADR• Suitable for some locations or events where

KEEP is impossible such as NBC Health Fairs, AMA meeting, Grand Central Station…

• Doing this can be a good intake system for KEEP

• NKF provides insurance if you inform us


CDC Detection Program

• Will include 800 participants

• Will validate KEEP and stimulate further state and local government interest in CKD and early detection

• CHERISH sites are in New York, California, Florida, Minnesota

• There may be a phase two program in more states

• Rebecca Seeman (Study Director) will be working with Affiliates and Divisions who will be conducting CHERISH programs

• NKF efforts in Congress brought a CKD program to the CDC; one element of that is a program, based on KEEP called CHERISH


KLS Continues to Grow

• More than 26,500 professionals have taken KLS Continuing Education courses

• New topics in HIV, Proteinuria, Contrast Imaging, Kidney Biopsy, Hepatitis C

• 6 Issues of Hope Street published• New multi-disciplinary curriculum for non-physicians • Patient education published in 2008 in 11 languages• Online formats are the fastest growing• NKF’s CKD library is the largest and best in the world


KLS CME/CE Activities

Over 26,500 learners and growing

48% Non nephrology

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KDIGO Continues to Grow

• KDIGO Guideline on Hepatitis C and kidney disease is being noticed around the world

• KDOQI’s Commentary on the guideline is in press

• KDIGO’s Guideline on the Care of the Transplant Recipient will be available for public comment this fall and published in early 2009


• KDIGO’s next Guideline will be on Mineral and Bone Disorders and is currently under public review

• KDIGO’s Guidelines after that will be on:– Acute Kidney Disease– Glomerulonephritis– Anemia– Cardiovascular Disease and CKD

KDIGO Continues to Grow


• KDOQI is a strong brand• NKF reputation is enhanced by KDOQI• New KDOQI features four major areas

of focus:– US commentaries on KDIGO global

guidelines– National and regional conferences on

important topics– Public Policy– Research

KDOQI Continues to Evolve


NKF in Washington, DC2008 Public Policy Priorities

Pass the Kidney Care Quality and Education Act to improve dialysis services and payments (HR1193/S691) Create a new Medicare benefit for pre-dialysis education (HR1245/S. 432, also included in HR1193/S691)Extend immunosuppressive drug coverage for kidney transplant recipients (HR3282/S. 2320)Expand the CDC kidney early detection programIncrease funding for kidney research at the National Institutes of HealthExpand the Congressional Kidney Caucus

26


NKF in Washington, DCKidney patients

scored a victory on July

15 when Congress

overrode a presidential

veto and passed the Medicare

Improvements for Patients

and Providers Act of 2008, H.R. 6331

NKF People Like Us Representatives at the Capitol


NKF in Washington, DC

• Our bill, the “Kidney Quality and Education Act,” included in MIPPA, passed dramatically

• The bill provides:– Annual update of the dialysis reimbursement

composite rate– A program of quality assurance to protect

patients

• And, it provides NKF with the opportunity to establish its leadership by designing the program to educate patients at Stage 4


Keeping You Informedand Involved

• Join our growing Take Action Network, which informs our constituents of a need to immediately contact their representatives

• We now have 5,669 members in 434 of the 435 Congressional Districts in every state.

• Since the inception of the network 14,852 messages have been sent!

• Joining is easy at www.kidney.org/takeaction


“People Like Us” Washington, DC Fly-ins (2008)

• NKF visited more than 250 Congressional Offices in 2008 seeking improvements in the Medicare ESRD Program and increased funding of the CDC kidney disease program

• March 2008 “World Kidney Day” – 23 “PLU” advocates visited 80 Congressional offices

• May 2008 – 40 “PLU” advocates, along with Dialysis Patient Citizens, visited over 150 Congressional offices

• Five “Fly Ins” scheduled for 2009


“People Like Us” Activities for Affiliates/Divisions

• “PLU” can provide training for NKF Affiliates/Divisions on:– Advocacy – Federal and state public policy issues– Patient advocate recruitment – Effectively working with local

legislators, media, community groups• “PLU” will be available to help

Affiliates and Divisions with local or state public policy activities



• NKF has established an excellent working relationship with the Food and Drug Administration

• NKF and FDA co-sponsored a landmark conference on proteinuria as a surrogate end point in clinical trials

• NKF and FDA are discussing other opportunities to work together on conferences



• NKF got White House support for a US request that WHO include CKD in its list of recognized public health threats

• This will help meet the WHO goal of reducing death by 2% per year from non communicable diseases


NKF in Washington, DC2009 Areas of Focus:

• Extend Medicare immunosuppressive drug coverage for kidney transplant recipients (HR3282/S. 2320)

• Expanding the CDC kidney disease programs• Improving access to early transplantation• Removing financial disincentives for living organ

donation• Develop strategies to increase transplantation, organ

donation and matched pair transplants• Expand membership of the Congressional Kidney

Caucus


NKF is leading the way …

• We have provided assistance to flood victims in Iowa, Florida and Hurricanes Gustav, Ike

• NKF is a key member of the Kidney Community Emergency Response (KCER) program, which hosts conference calls with ESRD Networks, CMS, dialysis organizations, and Response Team Leaders to discuss emergencies

• NKF hosts the listserv for the entire program ([email protected] )

mailto:[email protected]

KIDNEY.ORG – The public face of the NKF, a rich resource and visitor hub.

Marketing & Communications Tools

www.kidney.org


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Web Hit Trends 2007/2008


NEW! www.kidneywalk.org


Marketing & Communications• Marketing department established by VP Larry Geiger • Brings together Public Relations, Internal & External

Communications, Creative Services, Web Editorial under one “Marketing & Communications umbrella” to ensure cohesive messaging

• Major focus on improving and updating existing materials with a uniform “look” while introducing a lot that’s new

• Playing a bigger role in supporting Affiliates & Divisions (web, advertising, writing, marketing strategy)

• More involved in Exhibits, Web, special events, meetings, programs, membership and NKF signature programs.


Marketing & Communications• Greater focus on internal communications led

by Director Kelly Robertson• Our goal is to communicate with you:

– More! – More effectively– And, to introduce new channels for communication

• Includes Update Webinars for Staff at Affiliates & Divisions• 5 held this year and they will continue on a regular basis• We want to keep everyone informed, and to help them

understand the role they play in the “big picture.”

– We’ve established a feedback mechanism to measure satisfaction and effectiveness of our communications


E-KIDNEY – Monthly e-newsletter with highlights of NKF activities and the latest CKD and organ transplant information. Links to web (30,000+ circ.).


E-KIDNEY – Monthly e-newsletter with highlights of NKF activities and the latest CKD and organ transplant information. Links to web (30,000+ circ.).



LOCAL NEWSLETTERS – E-mail and print – cost effective way to provide positive, comprehensive picture of NKF in your communities.


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KIDNEY NEWS DAILY – Daily report with online access to news reports from across the U.S. on kidney disease, patients, treatment or events. NKF IN THE NEWS – Weekly recap and access to articles in which NKF or a local office is mentioned.

Kidney News DailyA daily digest spotlighting the latest news coverage on kidney disease, treatment and organ donation from the National Kidney Foundation

Pittsburgh gears up to host the 2008 U.S. Transplant Games.Maryland and New York residents join 40 other PLU advocates to lobby Congress on behalf of the NKFText of articles below


NKF in the NewsA selection of recent print, broadcast and online articles and listings featuring the National Kidney Foundation, its Affiliates and Divisions.

Samuel L. Jackson given the “Gift of Life” Award by the NKF of Southern California.

NKF of Michigan to hold Kidney Walk on June 1.

Text of articles belowVolunteers and Staff: SUBSCRIBE! E-mail [email protected]

FOUNDATION FOCUS

A quarterly print newsletter designed for NKF staff and “family” but suitable for broader distribution, with program highlights, local office activities, strategic plan updates, and human interest features.


Over 430,000,000 Media Impressions in 2008, so far

Led by Director Ellie Schlam


10/17/08

Affiliates

Divisions



We have arrived at “Critical Mass” in the transition where we will see:

• Real return on investment• Economies of scale• Savings• Group purchasing • Greater efficiencies & shared services• Synergies among Divisions• Leverage of resources



• 101 - Affiliate Staff are now National Staff • 43 - Additional Affiliate Staff will join by January 1• 19 - Affiliate offices have become branches of the

National Organization • 23 - staff members have been added at the

National Headquarters • No Affiliate staff member has seen their salary or

benefits decrease, most have seen increases• Transition is led by Joan Shepard-Lustig, Senior

VP, joined by VPs Michael Shippam and Jay Van Winkle


NKF Headquarters Staff• 174 in New York, Washington & Kansas

City• Cumulative 963 years of NKF experience

– 1 MD, Board Certified Nephrologist– 2 PhDs, Molecular Biology & Health

Education– 1 JD, Lawyer – 4 MBAs 13 MAs– 5 RNs 10 MSs– 2 MSWs 2 CPAs



Major challenges are being met:• Computers, e-mail and data bases are

being integrated successfully• Training is being upgraded and has

shown real improvement• Financial reports are being delivered• Legal, compliance, financial, insurance

and HR issues are being resolved


Transition to DivisionsChanges are being made at Headquarters:• We have outsourced the KEEP call center

and will add other phone services• We have secured fund raising software and

improved field training• We have hired an experienced iMIS expert

and will provide certified iMIS field trainers

• We have added staff in finance, IT and HR to meet the needs of Divisions



Former Affiliate functions now the responsibility of National Headquarters:

• Compliance• Accounting and financial reporting• Audit• Insurance• Hiring, payroll and benefits• Financial Security



Transition means security in troubled economic times

• Puts the strength of the entire country behind every Division

• Lessens the impact of regional economic difficulties

• Shared resources• Spreads the burden of coping with economic

problems among all Divisions and the National Organization


Training• John Brown is NKF’s Training Director• Workshops here in Minneapolis• “On-Boarding”• Frequent “Webinars” and on-line training• Orientation for new Division Presidents• Frequent meetings with Division leaders• Executive Leadership Conference 2/4/09 in

New York City• Next General Assembly 10/08/09 in

Philadelphia


• Scheduled for November 10-14• Focus on standardizing events and

increasing revenue • Staff from Divisions and Affiliates are invited• Led by peer facilitators• “Best Practice” focused• Goal is better events, enhanced reputation,

more involvement and more money

NKF Golf Classic and Kidney Walk Academy


Compliance• Compliance is critically important for all:

– Headquarters– Divisions– Affiliates

• Suzanne Wyckoff has become NKF’s full-time Compliance Officer…issues: – Regulatory– Legal– Contracts and business relationships– Liability– Transparency and reporting


Organizational Recognition• Once again met and are in compliance with the

National Health Council's (NHC) 41 Standards of Excellence. – Given only to organizations that "maintain the highest levels of

efficiency, accountability and public stewardship.”

• Better Business Bureau Accredited Charity– Awarded a Charity Seal from the (BBB) Wise Giving Alliance. This provides the

giving public with an easily recognizable symbol certifying that the we

meet the comprehensive standards of America's most experienced

charity evaluator.


Organizational Recognition

• NKF recently earned its fourth consecutive 4-star rating from Charity Navigator, another premier charity evaluator. – Only 10% of the charities rated

receive the 4-star rating

• The American Institute of Philanthropy (AIP), a national charity watchdog and information service, certified that NKF "has met the stringent standards for financial efficiency and accountability."


Summary• These are exciting and productive times• NKF is growing and changing• NKF is accomplishing more and

pursuing its mission• NKF has a global focus and a

comprehensive plan for the future• NKF is meeting its challenges• Success comes from working together

Remembering a Visionary Leader …

Chuck Fruit

Beginning in 2009, NKF will present The Chuck Fruit Leadership Awardto the Affiliate/Division that demonstratesexcellence in communications

NKF General Assembly – 10/17/08

New NKF

Advertising Campaign


Why We’re Doing This



1) Create a unified NKF advertising program that




• Is distinctive, memorable and relevant





• Has clear, consistent messages and





• Has clear, consistent messages

• Can encompass all NKF programs



1) Create a unified NKF advertising program

2) Build awareness and understanding of NKF



1) Create a unified NKF advertising program

2) Build awareness and understanding of the NKF

3) Educate the general public about kidney disease and the importance of early detection


Why We’re Doing This1) Create a unified NKF advertising program

2) Build awareness and understanding of the NKF.

3) Educate the general public

4) Increase participation in and support of NKF






• Education, detection and patient services







• Membership and meetings







• Membership and meetings • Fundraising programs and events

The Theme


Early Detection and Screening


Early Detection and Screening

RADIO


Early Detection and Screening Radio Ad Copy- “Meet Your Kidney: 60”KIDNEY: Well, uh, just want to tell you a few things about myself. I’m on the

small side. But, uh, everyone says I’m a powerhouse. (CHUCKLES) I work really, really hard. I’m a filtration expert actually. I find the work very interesting. I’m happiest when things are, you know, in balance…I have a twin. We’re very very tight. I find that, in life, I rarely get the recognition that I deserve. But I’m workin’ on that. I am workin’ on that.

ANNOUNCER: So, how well do you know your kidneys? Did you know that if you have high blood pressure or diabetes, or a family history of kidney disease you’re at risk for kidney failure? Please, talk to your doctor. And get screened. Develop a healthy relationship with your kidneys, and it’ll benefit you for the rest of your life.

KIDNEY: Just get to know me, that’s all I’m saying.

ANNOUNCER: A message from the National Kidney Foundation. Who reminds you to love your kidneys. Visit kidney.org to learn lots more.


Early Detection and Screening Radio Ad Copy- “Vital Organ: 60 ”KIDNEY: Hey, it’s me. You know, your kidney? Yeah, just thought you ought to know,

my twin and I are down here working pretty hard. And doing some really important stuff----like filtering out toxins from your body Regulating blood pressure. Supporting healthy bones and tissues. So, you really should check in on us now and then. ‘Cause we’re like the hardest working organs in the body, which may be hard for, say, the esophagus to swallow. Get it? Swallow? (Pause) Nothing.

ANNOUNCER: Your kidneys are vital to life. So show ‘em some love. Especially if you have diabetes, high blood pressure or a family history of kidney disease. Because that means you’re at risk for kidney failure. Please, talk to your doctor about getting screened. Or visit kidney.org to find one of the National Kidney Foundation’s free screenings in your area. Develop a healthy relationship with your kidneys, and it’ll benefit you for the rest of your life.

KIDNEY: You know, just the other day, the appendix actually asked me what my function was. (PAUSE) Ironic.

ANNOUNCER: A message from The National Kidney Foundation, who reminds you to love your kidneys. To learn lots more, visit kidney.org


Early Detection and Screening -

Local KEEP Promotion


DevelopmentPrograms -

Kidney Cars


Development Programs -

Kidney Walk



NKF Golf Classic



Organ Donation



Planned Giving


Development Programs -

Kidney Cars25th Anniversary Sweepstakes


What’s Next

• Print and Radio on Affiliate Central

The campaign is ready for use throughout the organization


What’s Next

• Print and Radio on Affiliate Central• Online ads coming soon



What’s Next

• Print and Radio on Affiliate Central• Online ads coming soon• All can be customized



What’s Next

• Print and Radio on Affiliate Central• Online ads coming soon• All can be customized• Use in all PSA and paid media

opportunities



What’s Next

• Print and Radio on Affiliate Central• Online ads coming soon• All can be customized• Use in all PSA and paid media

opportunities• Use as basis of or element in:

– Banners – Flyers – Postcards – Buttons - Etc



Brochures

Banners


We’re On Our Way!

nkf general assembly 2008. nkf general assembly tom mcdonough chairman october 17, 2008 minneapolis,...

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