on your libido, eye colo(u)r and broccoli preferences: problems with self-reported (medical) data
DESCRIPTION
Ignite talk on data curation. Given at StrataRx San Francisco 2012TRANSCRIPT
On your Libido, Eye Colo(u)r and Broccoli Preferences: Problems
with Self-Reported (Medical) DataSamantha Clark (@iameltonjohn)
Bastian Greshake (@gedankenstuecke)
Our Interest
• Started
• Allows users to share genetic data, along with (medical) information
• Right now: ~120 different traits/phenotypes
Regional Idiosyncrasies
Regional Idiosyncrasies
Further ProblemsThe Desire to be Unique
The Desire to be Unique
The Desire to be Unique
Even More ProblemsCognitive Biases
Cognitive Biases
Cognitive Biases
Not all questions are useful
Possible MitigationsDisclaimer: Not all of those have been tested by us
Questionnaires
Questionnaires
Automatic Tracking
http://dl.maclife.com/maclife_photos/0510/reviews/fitbit_full.jpg
Automatic Tracking
http://dl.maclife.com/maclife_photos/0510/reviews/fitbit_full.jpg
Magic
Histogram: http://www.canon.ca/support_images/KB_Images/G0034801.jpg Beard: http://i98.photobucket.com/albums/l247/g0machamp/014-7.jpg
Magic
Conclusions
People don't mind answering questions about themselves, but they aren't necessarily too good at providing unbiased
answers in a unified metric.
Some things that may help this in the future are standardized or automatic data collection.