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Oral Health-Related Quality of Life in an Aging Canadian Population by Robert Kotzer A thesis submitted in conformity with the requirements for the degree of Masters of Science Graduate Department of Dentistry University of Toronto © Copyright by Robert Kotzer, 2011

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Page 1: Oral Health-Related Quality of Life in an Aging Canadian Population · 2013-10-24 · impact on one‘s oral health-related quality of life, it is not a causal relationship. Many

Oral Health-Related Quality of Life in an Aging Canadian Population

by

Robert Kotzer

A thesis submitted in conformity with the requirements for the degree of Masters of Science

Graduate Department of Dentistry University of Toronto

© Copyright by Robert Kotzer, 2011

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Oral health-related quality of life in an aging Canadian population

Robert Kotzer

Masters of Science

Graduate Department of Dentistry

University of Toronto

2011

Abstract

The purpose of the study is to describe the impact of oral health-related quality of life

(OHRQoL) on the lives of pre-seniors and seniors living in Nova Scotia, Canada. This cross-

sectional study involved 1461 participants, grouped by age (pre-seniors [45-64] and seniors

[65+]) and residential status (long-term care facility [LTC] or community). OHRQoL was

measured using the 14-item Oral Health Impact Profile questionnaire. Approximately one in four

pre-seniors and seniors reported at least one OHRQoL impact ‗fairly/very often‘. Of those

residing in the community, pre-seniors (28.8%) reported significantly more impacts than seniors

(22.0%). Logistic regression revealed that for the community dwelling sample, those who were

dissatisfied with their teeth or dentures were 5.16 times more likely to report an impact

‗fairly/very often‘, which was the strongest indicator. Among the LTC sample, those who have

poor perceived mouth health were 9.87 times more likely to report an impact.

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Acknowledgments

First and foremost I would like to thank my thesis supervisor and mentor Dr. Herenia

Lawrence for providing me with the opportunity to obtain my Master of Science degree. Without

her none of this would have been possible. I was extremely lucky to have such a wonderful

supervisor who provided me with guidance, knowledge and support over the past two years.

Throughout the construction of my dissertation, Dr. Lawrence was always available and spent

hours helping me analyze data and assemble my thesis. Dr. Lawrence was always by my side

offering encouragement whether it was during my thesis defense or while I was presenting at the

CAPHD conference here in Toronto, or at the IADR conference in Barcelona, Spain. Her

guidance has truly been invaluable to me.

I would also like to thank my committee members Dr. Jokstad and Dr. Lai for taking the

time to offer their wisdom and expertise during committee meetings. My examination committee

members Dr. Glogauer and Dr. Wyatt also provided me with helpful advice. I am also thankful to

Dr. Fenton for chairing my thesis examination.

Furthermore, I would like to express my appreciation to the members of the TOHAP

team and founders of this research: Dr. Matthews, Dr. Clovis and Dr. Brillant. Their enthusiasm,

kindness and endless help over the past two years have made it feel as though they were working

with me here in Toronto, not in Nova Scotia.

Finally, I would like to thank my family, who I dedicate my thesis to. My parents, Judy

and Brian, my grandfather Andrew Raab, and Michael, Jennifer, Jonas, Alivia and Gracie have

always been there for me offering love, support and encouragement throughout my life. I would

also like to thank Lexi for everything she has done for me and for accompanying me to

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Barcelona to present my research. Everyone knows I could not have accomplished this without

her.

I extend my gratitude to other faculty members such as Dr. Quinonez and Dr. Locker, as

well as my friends and colleagues who I had the opportunity to spend time with in the Lab.

Funding for this research was provided by the Canadian Institutes of Health Research -

Institute of Musculoskeletal Health and Arthritis, Health Canada (Office of the Chief Dental

Officer) and the Nova Scotia Health Research Foundation (ROP-86224).

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Table of Contents

Abstract ….. .................................................................................................................................... ii

Acknowledgements ....................................................................................................................... iii

Table of Contents ........................................................................................................................... v

List of Tables ............................................................................................................................... vii

List of Appendices ...................................................................................................................... viii

Chapter 1: Introduction and Study Overview .......................................................................... 1

Section 1: Background and Literature Review .............................................................. 2

Section 1.1 History on the Subject of Oral Health-Realted Quality of Life .............. 2

Section 1.2 Seniors and the Aging Population ........................................................... 4

Section 1.3 Oral Health Impact Profile (OHIP) ......................................................... 7

Section 1.4 Oral Health-Related Quality of Life and the Elderly ............................ 10

Chapter 2: Aim of the Study ...................................................................................................... 13

Section 2: Objectives and Hypotheses ........................................................................ 13

Section 2.1 Objectives .............................................................................................. 13

Section 2.2 Hypotheses ............................................................................................ 13

Chapter 3: Research Methodology ............................................................................................ 14

Section 3: Study Design ............................................................................................... 14

Section 3.1 Sample Size Determination ................................................................... 14

Section 3.2 Sampling Frame and Sample Selection ................................................. 15

Section 3.3 Measurements ........................................................................................ 17

Section 3.4 Clinical Examination ............................................................................. 17

Section 3.5 Procedure ............................................................................................... 18

Section 3.6 Data Analysis ........................................................................................ 20

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Chapter 4: Study Results ............................................................................................................ 23

Chapter 5: Discussion ................................................................................................................. 27

Chapter 6: Study Limitations .................................................................................................... 42

Chapter 7: Conclusions .............................................................................................................. 43

References ..................................................................................................................................... 44

Tables ….. ..................................................................................................................................... 52

Appendices ................................................................................................................................... 68

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List of Tables

Table 1 – Characteristics of study participants aged 45 years and older living in the

community or long-term care in Nova Scotia, Canada ............................................... 52

Table 2 – Self-percieved oral health of adults aged 45 years and older living in Nova Scotia,

Canada ......................................................................................................................... 54

Table 3 – Clinically-determined oral health status characteristics of adults aged 45 and older

in Nova Scotia, Canada ............................................................................................... 55

Table 4 – Percent of elderly Nova Scotia residents making 1 or more visits to the dentist ......... 57

Table 5 – Distribution of responses to individual OHIP-14 items and mean item scores ........... 58

Table 6 – Prevalence, extent and severity by OHIP-14 subscale and total score ........................ 59

Table 7 – Prevalence, extent and severity of impacts by OHIP-14 subscale grouped by pre-

seniors and seniors ........................................................................................................ 60

Table 8 – Prevalence, extent and severity of impacts by OHIP-14 subscale grouped by

community and LTC .................................................................................................... 61

Table 9 – Bivariate analysis for prevalence of impacts (‗fairly often‘ or ‗very often‘) for

community residents ..................................................................................................... 62

Table 10 – Bivariate analysis for prevalence of impacts (‗fairly often‘ or ‗very often‘) for

LTC residents ............................................................................................................... 64

Table 11 – Logisitc regression model for prevalence of impacts (‗fairly often‘ or ‗very often‘)

for community residents ............................................................................................. 66

Table 12 – Logisitc regression model for prevalence of impacts (‗fairly often‘ or ‗very often‘)

for LTC residents ....................................................................................................... 67

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List of Appendices

Appendix A – OHIP-14 items grouped according to dimension .................................................. 68

Appendix B – Location of community sites sampled in Nova Soctia, Canada ............................ 69

Appendix C – Location of LTC sites sampled in Nova Soctia, Canada ....................................... 70

Appendix D – Study questionnaire .............................................................................................. 71

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Chapter 1

Introduction and Study Overview

Compared to previous decades, the elderly population today is much more predominant in

Canada and continues to rapidly increase due to longer life expectancy and the effects of the

baby boom generation [1-3]. As these individuals (born between 1947 and 1966) begin to turn 65

years of age (in 2012), the number of seniors in Canada is estimated to jump from 4.2 million to

9.8 million from 2005 to 2036 [4]. In Nova Scotia, the seniors‘ population in 2033 is estimated to

be 257,874, an increase of 86.3% from 2007 [2]. Currently, Nova Scotia represents the oldest

provincial population in Canada, as 15.4% of the population is older than 65 years of age [2].

Due to the aging of the population and increased purchasing power of today‘s elderly,

more people are taking advantage of the advancements in dental healthcare, leading to a decrease

in rates of edentulism [5-8]. As a result of living longer and retaining more of their natural teeth,

more oral problems arise and the treatment decisions of these patients becomes much more

complex [5,9]. It is therefore imperative that information regarding the current oral health status,

treatment needs, as well as the oral health-related quality of life (OHRQoL) of aging Canadians

is collected in order to guide oral health policy. This study examines the differences in oral

health-related quality of life between people aged 45 years and older living in the community

and in long-term care (LTC) facilities in Nova Scotia. It also addresses the differences in oral

health-related quality of life between pre-seniors and seniors within the community and LTC

residences. Discussions regarding the disparities among these populations along with possible

solutions to these problems are also explored.

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1 Background and Literature Review

1.1 History on the Subject of Oral Health-Related Quality of Life

The concept of oral health-related quality of life is one that is very abstract and

multidimensional, which in turn makes it very difficult to describe [10]. Oral health and quality

of life are dimensions that are continuously evolving, and due to their subjectivity, may vary

according to different cultural, social, political or practical settings [10]. The development of

patient based measures of health outcomes sparked a change in the belief of what constitutes

health, and the strategies to generate health. This sparked a shift from accepting the medical

model of health to what is known as the socioenvironmental model of health [11]. The medical

model is a reductionist theory, which views health and illness as biological, which can be

improved through technology and medicine. This view isolates the oral cavity from both the

body and the person as if it is an autonomous anatomical structure [10]. The socioenvironmental

model is an approach that focuses on health promotion, disease prevention and social and

psychological well being rather than merely curing disease [12]. One‘s physical and social

environment is therefore a major determinant of oral health [10]. With regards to oral health, it is

important to focus on how conditions or disorders threaten health, well-being and quality of life

[10]. This shift in philosophy sparked the discovery of the concept of oral health-related quality

of life and its importance in relation to oral health.

The Canadian Dental Association defines oral health as ―a state of the oral and related

tissues and structures that contributes positively to physical, mental and social well being and

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enjoyment of life‘s possibilities, by allowing the individual to speak, eat and socialize

unhindered by pain, discomfort and embarrassment‖ [13]. Therefore, it is important to note that

oral health has both physiological and psychosocial significance. In the field of dentistry, the

term ‗oral health-related quality of life‘ is commonly used to describe the impact that one‘s oral

health can have on their everyday life experiences [14, 15]. Quality of life is a dynamic and

subjective concept that has biological and psychosocial implications which is also influenced by

one‘s personal and socio-cultural environment [14, 16, 17]. Quality of life is influenced by the

ability of an individual to feel as though they are able to partake in activities that meet their

needs and expectations [14]. These activities are affected by factors such as one‘s environment,

economic status, responsibilities [14], biological constitution [18, 19] and time [16, 20] to

complete these activities. Therefore, generally when an individual has good oral health, they feel

as though they can meet their needs and expectations and in return enhance their oral health-

related quality of life. In contrast, when an individual is deprived of high quality oral health, they

unfortunately may feel as though they cannot meet their needs and expectations and suffer from

poor oral health-related quality of life. But, it is important to note that the concept of oral health

only has meaning at a personal level [10]. While health problems and conditions can have an

impact on one‘s oral health-related quality of life, it is not a causal relationship. Many people

assume that having poor oral health will result in poor oral health-related quality of life. This

assumption is false, as many people with chronic disorders (poor health) rate their quality of life

higher than those who are healthy. It has also been found that studies regarding elderly people

show that when talking about quality of life, they will mention health as a factor but do not

consider it to be the most important determinant of quality of life [10].

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The shift towards the importance of measuring one‘s oral health-related quality of life

reflects the reality that modern dentistry is not just aiming to prolong life and eliminate oral

disease, but ultimately is attempting to make life better [21, 22]. Measures of oral health-related

quality of life have made it much easier to gain insight on subjectively perceived aspects of oral

health such as functional, psychological and social impacts of oral diseases [10].

1.2 Seniors and the Aging Population

At the turn of this century approximately one in twenty-five Americans reached the age

of 65, whereas in 1990, one in eight Americans were at least 65 years of age. By 2030, the

population of older adults in America will double and make up approximately 20% of the

American population. Although the population of all older adults is rapidly increasing, the fastest

growing age group are those aged 85 and older, who are expected to triple in size by the year

2030 [23, 24, 25]. As mentioned earlier, the Canadian elderly population is growing in a similar

fashion as the number of seniors in Canada is estimated to jump from 4.2 million to 9.8 million

from the year 2005 to 2036 [4]. Longer life expectancy has resulted in an increase in chronic

conditions, which in turn often translates into functional disability and the need for assistance

[23]. The majority of older people report two or more chronic conditions, and older women are

more likely to experience multiple chronic conditions than men. Men who reach 65 years of age

can expect to live for at least fifteen more years, with 13 of those years being in good health and

independence. Women on the other hand can expect to live for 20 more years with 16 of those

years in good health and independence [23].

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This issue of longevity and disability raises a number of important research questions.

Firstly, does an increase in longevity of life result in a greater burden of disability, or will

lifestyle changes in accordance with advances in medical care and technology cause a decrease

in disability? Recent research has shown that aging does not necessarily lead to an increase in

disability [23, 26]. Between the years 1982 and 1989, there was a 14.7% increase in older adults,

but fewer people were institutionalized in 1989. After adjusting for the growth in people aged 85

and older, the decline in disability rate was approximately 7%. The number of people who had

disabilities, which included those who had difficulty eating and bathing, were studied. Disability

was defined as ―an inability to perform an activity without help or use of equipment, due to

health or age‖ [23, 26]. In a follow up study, it was found that once people became disabled there

were drastic changes in services used by these people [23, 26]. National long-term care surveys

were examined, and showed increases in the use of certain equipment such as raised toilets

(148% increase) and shower seats (65.9% increase), but personal assistance was down 9% [23,

26].

Not only is the North American elderly population growing, it is also becoming much

more racially and ethnically diverse than in the past. Due to the heterogeneous nature of the

elderly population, the lifelong patterns of oral health, general health, and healthcare are very

different. Economic, psychological and social factors will have an effect on an individual‘s

quality of life. Although the weight of these factors in assessing one‘s quality of life will change

throughout the course of an individual‘s life, certain conditions and events that a young

population may take for granted, may be more impacting on the quality of life of an elderly

population [14-17]. For example, a young person may take for granted the ease in driving or

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taking public transportation to visit the dentist, while an elderly person may have difficulty

traveling to the dentist without a driver‘s license or having limited mobility.

The increase in life expectancy over the past decade has resulted in a gain of 25 years of

total life expectancy in the industrialized world, equaling the gain obtained from the last 5,000

years [27]. The increase in life expectancy over the last century has been termed the ―Longevity

Revolution‖, and is a result mainly of progression in public health along with economic well-

being. In addition, there has been a decrease in maternal, infant and child mortality rates [27].

The recent study of how the restoration and maintenance of biological systems increases life

expectancy has been termed the ―Longevity Revolution II‖. This theory suggests that

maintaining one‘s endocrine, immune and central nervous system has positive effects on diseases

caused by old age, and thus extending life. Furthermore, some suggest that a ―Longevity

Revolution III‖ may be apparent in the near future. This theory proposes that if the ability to

manipulate genes related to the length of life is achieved, life expectancy can be greatly

enhanced [27].

Increases in life expectancy raise the debate to whether aging is a normal or a disease

process. The first theory suggests that aging is a process that is a programmed part of life that is

both inherent and developmental in nature. The second theory suggests that aging occurs due to

random environmental or wear and tear factors [27]. Regardless of which theory is more

accurate, research shows that living a productive life is good for the individual and society. Ever

since the Social Security law was passed, research has shown that working later into life will

increase life expectancy. Since then, the life expectancy of men has risen from under 60 years of

age to over 70. For women, life expectancy has risen from 63 to almost 80 years of age over the

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last 50 years. Therefore, the new benchmark for determining retirement should be functional

status rather than chronological age [27].

1.3 Oral Health Impact Profile (OHIP)

The Oral Health Impact Profile (OHIP) is a measure of oral health-related quality of life,

which according to Slade, ―measures people‘s perception of the social impact of oral disorders

on their well-being‖ [28]. The impact of the OHIP was initially intended to compliment

traditional indicators of clinical disease by offering information about the burden of illness

within a population [29]. In addition, rather than measuring impacts related to specific oral

conditions, the OHIP measures impacts that are related to oral conditions in general [29].

The questions contained in the OHIP were formulated in order to represent Locker‘s

theoretical model of oral health [30]. Locker‘s model is based on the concept that impacts of

disease are sorted into a hierarchy, and was used to define the seven dimensions contained in the

OHIP. The seven dimensions are: functional limitation, physical pain, psychological discomfort,

physical disability, psychological disability, social disability and handicap [29].

The 49 self-report questions contained in the OHIP were developed through the process

of interviews on a convenience sample of 64 dental patients in Adelaide, Australia. Each patient

was asked open-ended questions in order to ascertain statements concerning impacts of oral

conditions [31]. A total of 535 statements were derived from the interview process, which were

arranged into 46 unique statements that incorporated the seven conceptual dimensions. Three

statements were then added for use in the handicap dimension to complete the 49 total statements

that were then rephrased as questions [31]. Each question is answered in terms of a five-point

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Likert scale of how frequently the respondent experiences each problem within a given reference

period [29].

Reliability of the OHIP was assessed in an Australian study of 122 randomly selected

people aged 60 years and older. For the first study, Chronbach‘s alpha coefficients for internal

reliability ranged from 0.70 to 0.83 for six of the subscales, but only 0.37 for the social disability

subscale. Intra-class correlation coefficients of test-retest reliability ranged from 0.42 to 0.77 for

six of the subscales and 0.08 for social disability [31].

In addition to reliability, construct validity was evaluated through a number of cross-

sectional comparisons of OHIP responses and similar self-reported measures. For example, in the

Australian study of 122 elderly patients, those who perceived a need for dental treatment scored

higher on each OHIP subscale than those who did not perceive a need for dental treatment [31].

In general, findings from the OHIP have indicated that those who have poor clinical oral

health status including missing teeth, retained root fragments, untreated dental decay, periodontal

pockets and periodontal recession have higher OHIP scores. In addition, those who are socially

or economically disadvantaged, infrequent visitors to the dentist or HIV patients also score

higher on the OHIP [32].

In order to generate more findings, the OHIP-14 was constructed; a shorter and simpler

version of the OHIP [28]. The OHIP-14 contains 14 questions and eliminated items that applied

only to those who wear dentures, as well as items which had a non-response rate (left blank or

marked ―I don‘t know‖) of 5% or more. After the 14 questions were identified using a controlled

regression procedure, the OHIP-14 was investigated and found to be both reliable and valid,

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having an internal reliability coefficient (α) of 0.88 [28]. The short version contains two

questions for each of the seven dimensions [28].

There have been several other measures and scales developed in order to assess oral

health-related quality of life. This includes but is not limited to: the Social Impacts of Dental

Disease, Dental Impact Profile, Oral Impacts on Daily Performance, Oral Health-Related Quality

of Life Measure, Oral Health Quality of Life Inventory, Child Oral Health Quality of Life

Questionnaire and the General (Geriatric) Oral Health Assessment Index (GOHAI) [15, 30]. The

measures that have been developed include many differences and similarities. Generally, they are

all self-report measures but differ in terms of their length, content, response formats, sub-scale

structure, and method of obtaining OHRQoL scores [33]. The GOHAI is another measure that is

used to assess the OHRQoL of an elderly population, most of whom live in a long-term care

setting [33, 34]. The GOHAI is a 12-item measure developed for use with the elderly, but has

also been used with younger populations. The GOHAI and the OHIP-14 both consist of a single

index score using Likert-type frequency responses, and incorporate different dimensions of oral

health. The measures differ in terms of item content and time reference, where the GOHAI uses a

3-month reference and the OHIP-14 uses a 1-year reference. The GOHAI is generally more

accurate in terms of detecting impacts in the form of pain and dysfunction, while the OHIP-14 is

better at detecting psychosocial impacts [33]. Despite differences in content, the internal

consistency reliability and validity assessments suggest that one measure is not distinctly better

than the other [33].

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1.4 Oral Health-Related Quality of Life and the Elderly

In recent studies, Locker and Gibson (2005) examined subjectively perceived and

professionally measured health status and satisfaction, and found that they may not be correlated

[21]. In the first of two studies, Locker and Gibson (2005) collected data through personal

interviews on people aged 50 years and older. The majority of these individuals lived within a

geriatric care setting. Furthermore, many of them had multiple chronic medical conditions and

other various disabilities. The second study was performed on those over the age of 50, who

were independent community living individuals with significantly better health than those in the

first study. The questions asked during these studies were concerned with the participant‘s self-

perceived oral health, in addition to their overall health and well-being. As well, satisfaction and

dissatisfaction with their oral health was assessed on the level of ability to chew, speak clearly

and appearance [21]. Results indicated that in both studies there was a significant association

between self-rated oral health and satisfaction or dissatisfaction with oral health status. In the

first study, 83.3% of people who rated their oral health as poor were dissatisfied. In comparison,

those who rated their oral health as excellent were only 4.5% dissatisfied. In the second study,

the statistics were 61.3% and 6.9% respectively [21]. Interestingly, in both studies cross

tabulations using dichotomized variables proved otherwise. In the first study, 8.2% of those who

rated their oral health as either excellent, very good, or good had reported to be dissatisfied with

their oral health. Moreover, 55.1% of participants who rated their oral health as fair or poor

reported being satisfied. In the second study, the corresponding percentages were 16.5% and

50.8% respectively [21].

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When examining the oral health-related quality of life of the elderly population, it is

important to note that they are not a homogenous group. The elderly population can be separated

into pre-seniors aged 45-64, and seniors aged 65 and older. In addition, they differ in terms of

living conditions whether they reside in a long-term care facility, or are community dwelling.

Whether an individual lives in the community or long-term care facility usually depends on their

level of independence. It has been documented in many Canadian studies that the overall oral

health status of long-term care residents is poor [1]. Most long-term care residents are in need of

some form of dental care, but it is difficult for them to access care because most dental care

professionals do not feel comfortable providing treatment that is unconventional or outside the

context of traditional dental surgery [35].

Factors that can affect access to care in a community dwelling population include:

financial access, mobility, transportation and advocacy [1]. These factors are causing Canadian

seniors to visit the dentist less frequently. Canadian studies have indicated that 89% of

community dwelling seniors aged 65 and older visit a physician, but only 38% of seniors visit

the dentist [1]. While elderly Canadians are less likely to visit a dentist, when they decide to

receive oral treatment, they are more likely to undergo treatment that they consider to enhance

their self image and social interactions, rather than treatments that improve physical function

[14]. This may be due to the fact that elderly people tend to maintain patterns and tendencies of

oral healthcare that they established during their earlier stages of life [14].

The treatment decisions of older adults may also be affected by cost and the magnitude of

the procedure. For example, one of the more common oral problems for older adults is tooth

wear. Tooth wear is a problem that can occur in people of all ages, but since it is part of the

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normal human aging process, it was found that people aged 65 years and older have three times

more tooth wear that those aged 26 to 35 years old [36]. The different types of tooth wear

include attrition (tooth against tooth wear), abrasion (tooth wears against other surfaces) and

erosion caused by acids [36]. Bartlett (2007) mentions how a recent study has shown that within

two years, 50 percent of direct or indirect composites that are used to treat wear have failed [36].

Elderly patients are then faced with the difficult decision of whether or not they should undergo

the costly restoration procedure if it may not last throughout the remainder of their life. If

untreated, this oral disease could take a toll on the patient and affect their oral health-related

quality of life.

It is evident that there is previous research on oral health-related quality of life, but little

regarding the elderly population in Canada. A major problem with the Canadian health care

system is that oral healthcare is generally absent from discussions regarding health care reform.

Prior to collecting data for the present study, Canada was one of the few developed countries

without a national oral health strategy, and lacked provincial and national databases concerning

Canadians oral health status and treatment needs. This study will attempt to provide data

regarding the oral health-related quality of life as well as the oral-health status of the elderly

population in Nova Scotia, Canada, and hopefully will be a step towards implementing a

complete nationwide database.

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Chapter 2

Aim of the Study

2 Objectives and Hypotheses

2.1 Objectives

I. To describe the oral health-related quality of life of a representative sample of adults aged

45 years and older living in Nova Scotia, Canada, and how their oral health impacts their

daily lives.

II. To identify correlates of oral health-related quality of life among community dwelling and

long-term care residents aged 45 and older living in Nova Scotia, Canada.

2.2 Hypotheses

I. LTC residents will report more oral health-related quality of life (OHRQoL) impacts ‗fairly

often‘ or ‗very often‘ than community dwellers and therefore score higher on prevalence,

extent and severity.

II. LTC residing seniors will report more OHRQoL impacts than LTC residing pre-seniors.

III. Community dwelling seniors will report more OHRQoL impacts than community dwelling

pre-seniors.

IV. Individuals with poor oral health status, socio-demographic characteristics and self

perceived oral health status will report more OHRQoL impacts ‗fairly often‘ or ‗very often‘

on the OHIP-14.

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Chapter 3

Research Methodology

3 Study Design

This cross-sectional study involved 1476 participants, but the analysis below contains

1461 participants because fifteen people failed to complete the interview. This study is part of a

larger study called The Oral Health of our Aging Population (TOHAP) study conducted in the

province of Nova Scotia, Canada. The primary objective of this cross-sectional provincial study

(TOHAP) was to understand how the oral health and expectations of the baby boomer (45yr-

64yr) generation differ from those preceding them (65yr+) for the purpose of planning and

creating policy. The participants were grouped by age (pre-seniors [aged 45yr-64yr] and seniors

[65yr+]) [2, 4], geographic location (urban or rural) and residential status (long-term care facility

[LTC] or community dwelling). A pilot study was conducted prior to this study to test the survey

instruments. The pilot study included 146 participants in dependent and independent living

situations, as well as in rural and urban areas [37]. Funding for this research was provided by the

Canadian Institutes of Health Research – Institute of Musculoskeletal Health and Arthritis,

Health Canada (Office of the Chief Dental Officer) and the Nova Scotia Health Research

Foundation (ROP-86224).

3.1 Sample Size Determination

According to the 2006 census for Nova Scotia, there were 231,941 people aged 45-64

years of age and 133,571 people aged 65 years or older [38]. Of the adults aged 60 years or

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older, approximately 90% lived in accommodations that were either owned or rented within the

community, 5% lived in LTC facilities, and the remaining 5% of the population lived in public

senior rental housing programs [2, 4]. The Nova Scotia census reported 5827 beds in licensed

LTC facilities. A sample size calculation based on known population prevalence rates

determined the minimal sample size required was 382 pre-seniors, 382 seniors and 359 LTC

residents [38]. This was adjusted to allow for a 10% cancellation rate of appointments.

3.2 Sampling Frame and Sample Selection

A multi-stage cluster sampling technique was used in order to gain a sample of residents

living in long-term care facilities. All private and government owned LTC facilities with at least

20 beds per facility were included in the sampling frame. A total of 102 LTC facilities were used

to determine the sampling frame. The LTC samples were proportionate to size (small, medium or

large) as well as location (rural or urban). A small facility had 20-34 beds, a medium sized

facility had 35-101 beds and a large facility had greater than 102 beds. Statistics Canada‘s rural

and small town (RST) definition was used to assign facilities to urban or rural stratums [39]. A

contact person (usually the director of care/nursing, recreation coordinator or administrator) at

each facility recruited residents to partake in the study. The study was completed in 31 LTC

facilities across 21 communities in Nova Scotia, Canada (refer to Appendix B). Fifteen of the

LTC facilities were located in rural areas (14 medium sized and 1 large sized); whereas sixteen

of the facilities were located in urban areas (3 small sized, 9 medium sized and 4 large sized).

Four private facilities and 28 public facilities were sampled.

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There are three kinds of publicly funded LTC facilities that are all licensed and approved

by the Department of Health [40]. Nursing Homes (homes for the aged) meet the needs of people

who require a high level of personal care and professional nursing care. These facilities are

licensed and inspected by the Department of Health. Residential Care Facilities are homes for

people in need of supervision and limited help with personal care. These facilities are also

licensed and inspected by the Department of Health. Community Based Options provide a

similar level of care that residential care facilities offer but only accommodate a maximum of

three people in each home. These facilities are unlicensed, but are inspected and approved by the

Department of Health [40]. No Community Based Options were included in this study because

they did not meet the requirement of accommodating at least 20 beds. This study also did not

distinguish between Residential Care Facilities and Nursing Homes.

A care coordinator from the Department of Health provides assessments for individuals

in order to determine what level of care they need. They also collect information that begins the

financial assessment process in order to provide individuals with financial assistance. The

provincial government and LTC residents jointly pay for long-term care. The provincial

government pays for health-care costs for residents care, transportation for dialysis and for inter-

facility transfers and for specialized equipment loans. LTC residents pay for accommodation

charges (including salaries, benefits and operational costs of LTC employees) and personal

expenses (including dental services and transportation) [40].

Community sites were selected based on proximity to previously selected LTC facilities

(refer to Appendix C). In total, 22 Nova Scotian communities were chosen.

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3.3 Measurements

Oral health-related quality of life was measured using the 14-item Oral Health Impact

Profile questionnaire (OHIP-14) [28]. This questionnaire was administered through a random

digit dialing telephone survey, completed by a Toronto-based telephone marketing company (for

those living independently in the community), or a face-to-face interview (for those in LTC). For

each of the 14 items contained in the OHIP-14, study members were asked how often they had

experienced the problem in the past year. Responses were coded as ‗very often‘ (scoring 4),

‗fairly often‘ (scoring 3), ‗occasionally‘ (scoring 2), ‗hardly ever‘ (scoring 1) or ‗never‘ (scoring

0). This self-report questionnaire contains seven domains including: functional limitation,

physical pain, psychological discomfort, physical disability, psychological disability, social

disability and handicap. Please refer to Appendix A for the complete list of OHIP-14 items.

Included with the OHIP-14, additional questions were derived from the 2007-09

Canadian Health Measures Survey [41]. These questions included: demographic information

(age, sex, education, etc.), oral health questions (personal oral care habits and oral health care

services utilization), general health questions, medication use, labour force activity (income and

employment status) and questions regarding smoking and alcohol exposure. The entire

questionnaire was translated into French. The average duration of the interview was 26.3±6.5

minutes (range 11.3 – 50.9.).

3.4 Clinical Examination

Comprehensive intra-oral examinations were performed after the interview by one of six

dentists, whose methods were calibrated according to the standards of the World Health

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Organization [42]. A second calibration session was completed after 300 subjects had partaken in

the study. No radiographs were taken during the clinical examination. When available, standard

dental operatories were used. When they were not available, clinical examinations were

conducted in various rooms within LTC facilities. The equipment used for these clinical

examinations included: a portable Adec chair, an Aspetico light and a Mountain Equipment

Co-op headlamp. Ethics approval was received from the Health Sciences Research Ethics

Board at Dalhousie University and from the District Health Authorities. The clinical exam

included oral health questions, which touched on subjects such as untreated dental conditions.

The average duration of the clinical exam was 14.6±5.7 minutes (range 2.9 – 40.6). Per day, 20-

24 community dwelling participants and 14-18 LTC participants were booked for clinical

examinations. The clinical examination also looked at dentate status, prosthetic status and

quality, jaw function, mucosal status, orthodontic status, gingival status, periodontal assessment,

tooth status, history of traumatic injury and urgent clinical treatment needs.

3.5 Procedure

A call list was assembled for each community, targeting pre-seniors and seniors living

within a 20km radius of the community. From each call list, numbers were chosen randomly and

called until contact with the individual was made, or three calls were made without contact. Only

those who were able to provide informed consent to complete the telephone survey and the

clinical exam were included in the study. Informed consent by the participant was accepted in

writing or verbally.

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Once informed consent was obtained for community dwellers, an interview was done

over the phone in either French or English. Interview data received over the telephone was

immediately entered into an electronic database. The same telephone interviewers were used

throughout the entire data collection period. Appointments for the clinical exams were then

scheduled using an online appointment system and were conducted at hospitals, local private

dental offices, long-term care facilities and public health offices. Approximately one-third of

daily appointments were double booked to compensate for those who did not show up to their

appointment.

In LTC facilities, a trained research assistant conducted interviews in person and

recorded the data on paper after the participant provided informed consent. The interview data

were later transferred into the password-protected database. In the LTC facilities, an onsite

clinical exam was performed immediately following the interview. As an incentive to complete

the study, all participants were placed in contention to win one of two $250 prizes by means of a

lottery (upon completion of the study). The presence of a free dental examination was also a

good incentive for participants to partake in the study. Data were collected in two different

collection periods. The first collection period took place from October to November of 2008, and

the second from April to October of 2009. Further details related to the methodology of this

study can be found in a separate publication by Matthews, Brillant, Clovis, McNally, Filiaggi,

Kotzer and Lawrence, titled: ―Assessing the oral health of an aging population: methods,

challenges and predictors of survey participation‖ [43].

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3.6 Data Analysis

Socio-demographic characteristics and selected clinical oral health outcomes of

community dwelling and LTC residents were summarized using descriptive statistics. Similarly,

responses to individual OHIP-14 items were summarized according to place of residence. OHIP-

14 overall scores were computed in three ways: (i) a total OHIP-14 score was calculated by

summing responses over all 14 items, with possible scores ranging from 0 to 56 which indicates

the severity of OHRQoL impacts; (ii) the prevalence of people reporting one or more items

‗fairly often‘ or ‗very often‘; (iii) the extent, which is the number of items reported ‗fairly often‘

or ‗very often‘ ranging from 0 to 14 [44]. Descriptive and inferential statistics were computed

using SPSS 17. The non-parametric Mann-Whiney U test was used to compare the mean extent

and severity of oral health impacts between pre-seniors and seniors living in the community or in

LTC residences. A chi-square analysis for categorical variables and logistic regression (using a

stepwise and forward technique based on the Wald statistic) were used to identify factors related

to prevalence of oral impacts for community dwelling and LTC residents. Statistical tests were

two-tailed and interpreted at the 5% significance level. The variables that were inserted into the

multivariate analysis and are thus being controlled for include: age, community type (rural vs.

urban), sex, having a high school education, perceived general health, perceived quality of life,

perceived mouth health, satisfaction with one‘s teeth or dentures, frequency of dental visits,

having dental insurance, smoking, household income, oral pain, dentate status and country of

birth. These were also the variables included in the bivariate analysis. The variables listed above

were chosen in order to adjust for co-variates, and were done so with logical reasoning. First,

socio-demographic variables were chosen so that certain at risk populations could be recognized.

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Age, community type, sex, education, income, dental insurance and country of birth fell into this

category. Next, lifestyle factors were included into the analysis such as smoking frequency and

frequency of dental visits. Finally, self-perceived and satisfaction variables that are known to

directly or indirectly impact oral health and oral health-related quality of life, such as: oral pain,

perceived general health, perceived mouth health, satisfaction with teeth or dentures and

perceived quality of life, were included in the analysis.

Clinically-determined oral health status characteristics were not included in the logistic

regression analysis because the focus was on determining possible socio-demographic predictors

of OHRQoL. The measures of severity and extent of OHRQoL impacts were not used as

outcomes in multivariate analyses due to their skewed distribution with excess zeros.

The variables used in the data analysis were dichotomized based on logical cut off points in

terms of data distribution (skewed distributions), recommendations from dentists and hygienists

and standards used in other studies. Annual household income was dichotomized into greater

than or equal to $30,000 per year and less than $30,000 per year based on Statistics Canada‘s

Low Income Cutt-offs (LICO) and Low Income Measures (LIM). LICOs are income thresholds

determined by analyzing family expenditure data, whereas LIMs are relative measures of low

incomes set at 50% of adjusted median family income [45]. According to Statistics Canada, the

before tax LICO for a family of two people in 2008, ranges from $19,000 (living in a rural area)

to $23,769 (living in an urban area). Comparable numbers for a family of five people are

$32,278 to $40,239. The before tax LIM (which is not dependent on location) for two people in

2007, ranges from $25,449 (with no children) to $41,809 (with three children) [45]. The

LICO/LIM for pre-seniors will be higher than seniors as they are more likely to have children

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living at home and living spouses. Based on this information, a conservative measure of $30,000

was used to dichotomize the annual household income variable. Other dichotomizations such as,

brushing and flossing were suggested by dentists and dental hygienists involved in this study due

to the recommended number of times per day an individual should brush (twice per day) and

floss (once per day). Frequency of dental visits (less than once per year vs. greater than once per

year) was also a recommended frequency. Perceived general health, mouth health and quality of

life were dichotomized into excellent, very good and good vs. fair or poor. This dichotomization

seemed like a logical distinction based on the skewed distribution, as most people rate their

health and quality of life in a favorable matter. Smoking frequency was dichotomized into daily

smoking (generally having a severe effect on an individual‘s health) and occasionally or never

(generally having a minimal detrimental effect on an individual‘s health).

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Chapter 4

Study Results

LTC residents were over-sampled and represented 22.6% of the study population (Table

1). Since there is such a small portion of Nova Scotia residents who live in LTC facilities

(approximately 5%) [2], LTC residents were over-sampled in this study in order to gain enough

power to identify an effect during statistical analyses. Among the LTC sample, 399 participants

were recruited. Of the 399 participants, 64 people (16%) did not qualify or cancelled, 330 people

completed both the interview and clinical examination and 5 people completed the clinical exam

but were not interviewed due to hearing problems. Among the community sample 11,603 phone

numbers were called. Sixty-one percent of the phone numbers called made contact, and of those

contacted 16% completed the interview. Forty-nine percent of these people were ineligible due to

age, 20% declined to participate in the study, 10% said they were physically unable to participate

and 5% asked to be called back [43]. The cooperation rate (number of people who completed

divided by the number of eligible people who were contacted) for the interview was 35% for

community dwellers and the response rate (number of people who completed divided by the

estimated number of eligible cases in the sample) was 21% [43]. The cooperation and response

rates were calculated using the definitions from the American Association for Public Opinion

Research (AAPOR 2009) [46]. Sixty-six percent (738) of those interviewed completed the

clinical exam. Nine percent cancelled and 25% failed to show up. The cooperation rate for the

clinical exam was 23% for community dwellers and the response rate was 13.5%. In addition, 19

people volunteered to have a clinical exam, and 18 of those people completed he phone interview

[43].

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LTC residents were significantly more likely to be aged 65 and older, be female, have a

high school education or less, a household income of less than $30,000/yr, visit a dental

professional less than once per year, be edentulous, brush their teeth less than twice per day

(dentate only), floss their teeth less than once per day (dentate only) and were less likely to have

dental insurance or be daily smokers. In addition, LTC residents were significantly more likely to

perceive their general health, quality of life and mouth health as fair or poor but have less oral

pain than their community-dwelling counterparts (Table 2). In terms of clinically-determined

oral health status, LTC residents were significantly more likely to have one or more decayed

teeth, have higher coronal and root caries scores on average, have 1+ sites with periodontal

attachment loss of 4mm or more, higher mean scores for periodontal attachment loss, pocket

depth and gingival index, more sites with gingival index score greater than or equal to 2, as well

as higher scores for debris and calculus (Table 3). Only 24.7% of LTC seniors visit the dentist

one or more times per year, compared to 64.6% of community dwelling seniors. Moreover, only

24.2% of LTC pre-seniors visit the dentist one or more times per year, compared to 74.4% of

community dwelling pre-seniors (Table 4).

The most commonly reported oral health quality of life impacts were within the

dimensions ‗physical pain‘ and ‗psychological discomfort‘ (Table 5). It was found that 12.2% of

LTC residents found it uncomfortable to eat any foods ‗fairly often‘ or ‗very often‘ compared to

7.7% in the community. Nearly 12% of LTC residents reported being self-conscious ‗fairly/very

often‘ compared to 8.2% in the community, while 9.7% of LTC residents reported being

embarrassed by their teeth, mouth or dentures ‗fairly/very often‘ compared to 4% in the

community. In addition, 6.1% of LTC residents compared to 2% of community dwellers reported

impacts ‗fairly/very often‘ with regards to difficulty pronouncing words.

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The mean OHIP-14 score was 5.57 (SD = 7.57) for community dwellers and 5.57 (SD =

9.58) for LTC residents. In addition, a statistically significant difference was reported in terms

of the mean number of items reported ‗fairly/very often‘ between community and LTC residents.

Community residents mean OHIP-14 score was 0.63 (SD = 1.59) and LTC residents mean

score was 0.89 (SD = 2.24). Furthermore, 25.8% of the community dwellers and 24.8% of LTC

residents reported one or more OHIP problems ‗fairly/very often‘ (Table 6). A larger percentage

of LTC residents reported one or more impacts ‗fairly/very often‘ in the functional limitation,

physical pain, psychological disability and handicap dimensions.

Further analysis of prevalence, extent and severity were carried out by comparing pre-

seniors and seniors in both LTC and community settings. In Table 7, pre-seniors were compared

with seniors both in the community and LTC. It was found that in the community, pre-seniors

scored significantly higher than seniors on prevalence (p-value = 0.009), extent (p-value = 0.007)

and severity (p-value = <0.001). In the LTC residences, seniors scored higher than pre-seniors

for prevalence, extent and severity but there was not a statistically significant difference in the

OHIP-14 scores. In Table 8, pre-seniors from the community were compared with pre-seniors in

LTC, and seniors from the community were compared with seniors from LTC. Pre-seniors in the

community scored higher on prevalence, extent and severity than pre-seniors in LTC residences,

but severity was the only significant difference (p-value = 0.033). Furthermore, seniors in LTC

residences scored higher than seniors in the community for prevalence, extent and severity, but

the differences were not statistically significant.

A bivariate analysis was conducted for prevalence of impacts for both community and

LTC residents. Community residents who reported one or more impacts ‗fairly often‘ or ‗very

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often‘ were more likely to be pre-seniors, live in a rural area, be female, have a high school

education or less, make less than $30,000 per year, visit the dentist less than once per year,

smoke daily, have oral pain, perceive their general health, mouth health and quality of life to be

fair or poor and be dissatisfied with their teeth or dentures (Table 9). LTC residents who reported

one or more impacts ‗fairly often‘ or ‗very often‘ were more likely to have a high school

education or less, have oral pain, perceive their general health, mouth health and quality of life to

be fair or poor and be dissatisfied with their teeth or dentures (Table 10).

Logistic regression models controlling for all the factors (significant and non-significant)

at the bivariate level of analysis were used to predict the prevalence of impacts ‗fairly often‘ or

‗very often‘ for community and LTC residents, separately. For the community dwelling sample,

individuals living in rural areas and those born outside of Canada were approximately 2.0 times

more likely to report an impact ‗fairly/very often‘ (Table 11). Having oral pain, poor perceived

mouth health and dissatisfaction with teeth or dentures also caused community residents to report

impacts. Among the LTC sample, those having a high school education or less were 2.6 times

more likely to report an impact ‗fairly often‘ or ‗very often‘ (Table 12). Those with poor

perceived mouth health were nearly 10 times more likely to report impacts ‗fairly often‘ or ‗very

often‘.

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Chapter 5

Discussion

The 2007-2009 Canadian Health Measures Survey [47], in accordance with Statistics

Canada, released data regarding the oral health status and treatment needs of Canadians, but did

not do so at the provincial level, nor did it include residents living in LTC facilities [47]. The

TOHAP study is the first to focus on the oral health of older adults living in the province of

Nova Scotia. The findings of this study are not only important in assembling a complete picture

of the oral health of Canadians; it also provides important insight into the oral health-related

quality of life of these individuals.

Hypothesis I stated that LTC residents would report more impacts ‗fairly often‘ or ‗very

often‘ than community dwellers, and therefore score higher on prevalence, extent and severity.

Upon analyzing prevalence, extent and severity scores, LTC residents scored significantly higher

than community dwellers in terms of the mean number of items reported ‗fairly often‘ of ‗very

often‘ on the OHIP-14. Although LTC residents total extent score was significantly higher than

community dwellers, there were no significant differences regarding prevalence and severity

scores. Upon analyzing the distribution of responses on the OHIP-14, a larger percentage of LTC

residents compared to community dwellers scored ‗fairly often‘ or ‗very often‘ on 13 out of the

14 questions.

Long-term care residents are more likely to have poorer indicators of socioeconomic

status, clinicaly-determined oral health outcomes and self-perceived oral health status compared

to community dwellers. Having more oral health problems (higher DMFT and Root Caries Index

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scores) and being unable to afford or access treatment (lower annual household income and less

likely to have dental insurance) can have an effect on one‘s OHRQoL and in turn explain why

LTC residents may report impacts ‗fairly/very often‘ on the OHIP-14. Only 56.2% of LTC

residents brush their teeth two or more times per day and only 16.8% floss one or more times per

day.

Results show that 18% of community dwellers never visited a dental professional or

visited one only in case of emergency, in contrast to 73% of LTC residents. Table 4 indicates

that for community dwelling pre-seniors, 74.4% visit a dentist one or more times per year,

compared to 64.6% of seniors. A major concern is apparent for those who reside in LTC

facilities, as only 24.2% of pre-seniors and 24.7% of seniors visit a dentist one or more times per

year. In order to increase the oral health-related quality of life of LTC residents, the availability

and accessibility of oral healthcare services in LTC facilities must be greatly improved.

It is evident that as Nova Scotians age, they visit the dentist less regularly. Results of a

national study also show that as Canadians age, they visit the dentist less regularly, as 48.8% of

pre-seniors and 34.3% of seniors visit the dentist one or more times per year [48]. As Canadians

age, they utilize dental services less often but utilize a physician more often, as 78.6% of pre-

seniors and 87.5% of seniors visit a physician one or more times per year. The comparison of the

factors influencing utilization of dental and medical services indicate that high income and

education are positively associated with visiting the dentist, but are not associated with visiting a

physician. In contrast, those with poor general health utilized a physician the most, although this

group utilized a dentist the least. What is particularly telling is that for dental care, socio-

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economic factors are what predict utilization of services to the extent that visiting a dentist is

opposite to the expected needs of the individual [47, 48].

According to Table 5, elderly adults and specifically LTC residents, find it uncomfortable

to eat foods but have less pain in their mouth than community dwellers. A large percentage of

LTC residents wear a removable prosthesis (dentures), which may lend evidence to why this

group has less oral pain than community dwellers and why they find it uncomfortable eating. In

LTC facilities, 41% of residents are edentulous compared to 8.1% in the community. The

adjustment period to eating with new dentures can be very difficult for elderly people, especially

if the dentures are loose fitting or uncomfortable. This also supports the notion that better

availability and accessibility of oral healthcare services in LTC facilities must be improved in

order to maintain residents‘ dentures.

A lesser issue that can cause difficulty eating is changes related to the natural aging

process. The ageing process even in healthy dentate adults induces changes in oral physiology

and can have an effect on masticatory ability [49, 50]. The effects of aging on the masticatory

apparatus are most prominent in teeth and muscle activity [50]. Aging stimulates changes in

dental arch anatomy, and the constant chewing of hard or tough food can cause occlusal

abrasion, which flattens the crown of the tooth [50]. In addition, with increased age, one‘s

voluntary masticatory muscles change, leading to a reduced bite force [50]. These age related

changes can cause difficulty eating and may lend evidence to the fact that elderly people find it

difficult to eat many foods and that 12.2% of LTC residents find it uncomfortable to eat any

foods ‗fairly/very often‘ compared to 7.7% in the community. This information is important and

can be used to help LTC facilities make better choices when selecting food for their residents.

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Chewing behavior also changes with age and foods that are difficult to chew such as meat and

dry bread become much more difficult for seniors to eat [50]. Determining an appropriate,

acceptable and easy to eat nutritional diet is the first step in improving the health and the quality

of life of LTC residents.

An important finding of this study indicates that approximately one in four pre-seniors

and seniors report at least one or more impacts of their oral health on their quality of life ‗fairly

often‘ or ‗very often‘. This is slightly higher than a national study of adults aged 55 years and

older where the prevalence rate was one in five (19.5%) [51]. The Yukon, Nunavut and

Northwest Territories which make up 0.3% of the Canadian population were not included in the

aforementioned study [51]. When the extent scores were compared, the findings from this study

were higher than those from the national study in which the mean number of impacts reported

was 0.63 for the community residents and 0.89 for the LTC residents, compared to a extent score

of 0.49 for the population aged 55 years and older in the national study [51]. These scores are

quite low, as on average pre-seniors and seniors in Nova Scotia report less than one impact

‗fairly‘ or ‗very often‘ on the OHIP-14. Finally, when the severity scores were compared, the

mean OHIP-14 score was 5.57 for both the community and LTC residents in this study,

compared to 4.9 in the national study [51]. This is also quite low, as pre-seniors and seniors in

Nova Scotia are on average scoring 5.57 out of 56 on the OHIP-14, keeping in mind that zero is

the lowest and four is the highest score for any given question.

LTC residents scored higher than community dwellers in terms of prevalence, extent and

severity of impacts in almost all dimensions, and the scores are comparable to other similar

studies in Canada and other countries. A Canadian study of 3019 adults aged 18 and older,

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reported that 18.6% of dentate individuals aged 18 years and older and 30.7% (approximately

one in three) of edentulous individuals had impacts ‗fairly often‘ or ‗very often‘ [51].

Furthermore, it was found that the prevalence of impacts for Atlantic Canada was 16.1% (the

lowest in Canada) and 23.3% in the Prairies (highest in Canada) [51]. In two national studies, the

1998 Adult Dental Health Survey in the United Kingdom reported 15.9% of people having

impacts and the 1999 National Dental Telephone Interview Survey in Australia reported 18.2%

of people in Australia having impacts. The Australian study included edentulous individuals, and

approximately one in four people reported impacts ‗fairly often‘ or ‗very often‘ [51]. In another

study located in New Zealand, approximately one in four (23.4%) individuals aged 32 years old

have impacts ‗fairly often‘ or ‗very often‘ [44]. It was also found that ‗physical disability‘,

‗physical pain‘ and ‗psychological discomfort‘ were the dimensions with the most commonly

reported impacts [44].

There are several conclusions we can draw from these studies in comparison with the data

obtained from the elderly Nova Scotian community. It is evident that reporting oral health

impacts on quality of life is common in many parts of the world. But, it is important to note that

generally older samples and edentulous samples will report having more impacts ‗fairly often‘ or

‗very often‘. Most notably, data reported that approximately one in six adults aged 18 and older

in Atlantic Canada had impacts, compared to one in four adults aged 45 years and older in Nova

Scotian elderly [51].

Hypothesis II was satisfied as seniors in LTC facilities reported more oral health impacts

than pre-seniors living in LTC facilities. Contrary to expectation, as reported in Hypothesis III,

the reverse was true for those living in the community.

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In the study completed by Locker and Quinonez (2009), telephone numbers for

households (therefore those living in the community) were randomly sampled in a Canadian

population. They found that those between the ages of 35-54 reported an 18.3% prevalence rate

of oral impacts, and those aged greater than or equal to 55 years reported a 19.5% prevalence

rate [51]. In this national study, an older population of community dwellers reported more

impacts than a younger population of community dwellers.

As mentioned earlier in the Locker and Gibson (2005) study of community living

individuals over the age of 50, it was reported that 16.5% of those who rated their oral health as

either excellent, very good, or good had reported to be dissatisfied with their oral health.

Moreover, 50.8% of participants who rated their oral health as fair or poor reported being

satisfied [21]. Individual expectations and experiences can greatly impact one‘s satisfaction or

dissatisfaction with their oral health [21]. For example, one who experiences poor health but has

low expectations may not perceive their health to have a significant impact on their life. Seniors

living within the community may not feel as though oral health has a huge impact on their life

and may be more satisfied with the quality of their oral health compared to their general health,

causing them to report less impacts ‗fairly often‘ or ‗very often‘. In contrast, one who has

excellent oral health but extremely high expectations might report being dissatisfied due to a

minor oral health related problem [21]. Community dwelling pre-seniors who are generally in

good health may become irritated by small oral health problems, and frustrated that dental visits

can be expensive and cut into work hours. In addition, frames of reference in which subjects base

their oral health can range. While some compare themselves to others who are close in age,

others can use physical or emotional state to assess their oral health. Some people who have or

perceive themselves as having poor oral health are actually satisfied with their state of oral health

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[21, 52]. Sprangers and Schwartz (1999) explain this phenomenon through the process of

response shift. This is when changes in one‘s internal standards, values and meanings attribute to

assisting an individual in accepting their illnesses or disabilities [52]. As they age, they begin to

attribute small or large oral health diseases as being insignificant to them at this point in their life

[21]. The theory of response shift may explain why community dwelling seniors, and the elderly

population in general, may report fewer impacts in certain dimensions [52]. As these individuals

age, they come to accept that their health is deteriorating and may consider oral health problems

to be less significant at this point in their lives [21]. Oral health problems also tend to take a

backseat to general health problems that may be more serious or life threatening to an older

individual. A study completed in Ontario involving 61 residents in three long-term care facilities

suggests that general health issues often overshadowed and minimized oral health issues in long-

term care facilities. Chronic illnesses such as Alzheimer‘s and Parkinson‘s disease, which

interfere with one‘s communication skills, cause barriers in identifying treatments needs for

these residents [53].

After extensive research into this matter it is not surprising to learn that a younger

population of community dwellers reported more impacts than an older population of community

dwellers. In addition, pre-seniors with poor oral health who are living in the community are

younger and less likely to retire. Therefore, community dwelling pre-seniors with poor oral

health and oral health-related quality of life are less likely to move to LTC facilities than seniors.

This study provides very useful information pertaining to the difference between pre-

seniors and seniors living in Nova Scota, Canada. It is apparent that the baby boomer generation

is considerably different than those preceding them. Although this study looked at the difference

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between pre-seniors and seniors, the comparison goes beyond that and includes a generational

gap. People born in different generations have different outlooks on life and the circumstances of

each generation are quite different. It is important to note that even though a comparison between

today‘s pre-seniors and seniors is important and useful, seniors today are vastly different from

seniors 20 years ago, and are likely to be different from seniors in the future. Therefore we must

continue to study different elderly populations in the past and future and take into account the

history, environment, circumstances and conditions of these populations.

Hypothesis IV stated that individuals with poor oral health status, socio-demographic

characteristics and poor perceived oral health status will report more impacts on the OHIP-14.

The bivariate analysis indicates that community residents that live in rural areas, have a high

school education or less, make less than $30,000 per year, visit the dentist less than once per

year, have oral pain, smoke daily, perceive their general health, mouth health and quality of life

to be fair or poor and be dissatisfied with their teeth or dentures are significantly more likely to

have one or more impacts ‗fairly often‘ or ‗very often‘. LTC residents who have oral pain,

perceive their general health, mouth health and quality of life to be fair or poor and be

dissatisfied with their teeth or dentures reported one or more impacts ‗fairly often‘ or ‗very

often‘.

The binary logistic regression model indicated that for those living in the community, the

strongest predictor of prevalence of impacts ‗fairly often‘ or ‗very often‘ was for those having

dissatisfaction with the appearance of their teeth and/or dentures. These people were 5.16 times

more likely to report impacts ‗fairly often‘ or ‗very often‘. This was the most significant value in

the model and readdresses the theme of how a complication with one‘s teeth and/or dentures can

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have a significant impact on one‘s oral health-related quality of life. Dissatisfaction with the

appearance of one‘s teeth and/or dentures is directly related to variables on the OHIP-14 such as

being self conscious and embarrassed. Being self conscious because of troubles with one‘s teeth,

mouth or dentures was one of the highest scoring items on the OHIP-14. Having oral pain (1.87

times more likely to report impacts), and those with poor perceived mouth health (2.19 times

more likely to report impacts) were also strong predictors of prevalence of impacts. These

variables are closely related to the outcome of oral health-related quality of life and it is therefore

not surprising to find them in this model.

Logistic regression models also indicate that both socio-demographic factors and self-

perceived oral health can have an effect on the prevalence of impacts. Findings indicate that pre-

seniors and seniors in rural areas have the poorest OHRQoL, suggesting that a decreased access

to dental care may be affecting their oral health and OHRQoL. This variable was also the second

most significant variable in the model. Further findings show that elderly residents living in the

community visit the dentist significantly less often if they live in a rural area as opposed to an

urban area. Results indicate that 75.4% of Nova Scotia residents aged 45 and older who live

independently in an urban area visit the dentist one or more times per year, whereas only 62.4%

of rural residents visit the dentist one or more times per year. According to the literature, ―in

dentistry, a functional definition of an elderly adult is based on his or her ability to travel to seek

services‖ [5]. Many elderly patients who live in rural areas may have access to fewer dental

clinics, or there may be barriers limiting their access to care. Barriers include lack of public

transportation, cost of transportation and treatment, or mobility issues [54]. The reliance of many

seniors on others for help may also limit their ability to receive dental care [54].

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Although many health economists believe that government funds may be insufficient to

meet the increasing dental needs of the baby boom population, education is a relatively

inexpensive, yet effective dental health care initiative. Education can improve access to care for

Canadian elderly by focusing on quality of life issues. Education that focuses and raises

awareness on how oral health enhances self-image and social interactions can positively affect

attitudes towards care. Furthermore, funding for retired employees must be developed by union

negotiators, working Canadians must plan for retirement by saving money for dental care, and

family members and caregivers must be educated in the importance of dental care for the elderly

[55].

In addition, it was found that those who were born outside of Canada living within the

community have greater oral health impacts, implying that oral health literacy, understanding the

Canadian health-care system and acculturation may be limiting their access to dental care. It is

important to note that those who are born outside of Canada will have come from different

countries around the world, all of which have different oral health profiles. Some countries will

have better oral healthcare than others, resulting in their citizens having better oral health.

Although many people may be coming to Canada with excellent oral health, it can still be

difficult for them to navigate through an entirely different healthcare system, resulting in

difficulties accessing dental care. Support from friends, family, community members and dental

professionals are important in order to help this population access dental care [54]. It is important

that people who are familiar with the dental and healthcare system in Canada and speak the

native language of these seniors, provide help in order that they are able to receive adequate care.

In addition, an increase in educational resources and training by dental hygienists can be

essential in developing proper oral health-care skills and routines for seniors, their nursing staff,

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and family members [54]. Education is also necessary so that they can provide care in a

productive, cost effective and timely manner [55]. Television programs, magazine articles,

newsletters and other social media outlets can be useful mediums in raising awareness for the

importance of oral healthcare if provided in multiple languages [54].

Moreover, LTC residents with a low education level may be a group at risk in terms of

greater impacts on their OHRQoL, as LTC residents are 2.6 times more likely to report impacts

‗fairly often‘ or ‗very often‘. LTC residents have poorer indicators of socioeconomic status

including household income and dental insurance. Due to the majority of dental coverage not

being covered by Medicare, out of pocket costs may deter people from seeking dental care, in

addition to accepting recommended dental care when visiting the dentist [47]. It is no

coincidence that 79% of LTC residents have less than or equal to a high school education, 82.7%

do not have dental insurance and 90.3% have an annual household income of less than $30,000.

The Canadian Health Measures Survey reported that as individuals age they are less likely to

have dental insurance. In addition, country of birth, annual income and level of education are

also directly related to having dental insurance [47]. A 2006 study using Canadian health survey

data from 2003, found that the probability of receiving any dental care throughout the course of a

year increases dramatically with dental insurance, household income and level of education [56].

Reported in the 2006 census, only 24% of adults aged 25-64 had a high school diploma

as their highest level of educational attainment, while 32% of adults aged 55 to 64 years did not

have a high school diploma [57]. Educational attainment is recognized as one of the key

components of socioeconomic status, and while income and education are highly correlated,

education is an independent predictor of health status and visiting the dentist [48, 58]. Regardless

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of age, people with low education levels have more disabilities and chronic illnesses [58]. People

with a higher educational background tend to embrace positive health practices and have access

to healthier physical environments [58].

It is clear that public health initiatives need to focus on Canadians with low levels of

education. Even though access to education and literacy levels are for the most part managed

outside of the health sector, they have a direct effect on health status. Therefore, multi-sectoral

strategies must be implemented in order to improve the oral health of Canadians [58].

The strongest predictor of prevalence of impacts ‗fairly often‘ or ‗very often‘ for LTC

residents was having poor perceived mouth health. Those with poor perceived mouth health were

9.87 times more likely to report impacts. It is no coincidence that residents of long-term care

facilities perceive their oral health as being poor. LTC residents have poor oral hygiene and

limited access to routine dental care, in most cases limited to emergency treatment [35, 59]. A

study examining 39 LTC hospitals in British Columbia concludes that residents of LTC facilities

have inadequate daily oral hygiene and high sugar intake [60]. This leads to high levels of caries

bacteria and a tendency for xerostomia. The elderly living in long-term care residents are at a

high risk of dental diseases, although they unfortunately experience greater barriers to receiving

dental care compared to those living within the community [61]. Barriers to care include cost,

transportation, fear and a lack of perceived need for dental treatment. It is proven that once a

comprehensive dental program is implemented into LTC facilities, residents who receive dental

care show improvements in caries rates, periodontal health, and other clinical oral disorders [35].

Living in an LTC facility is a barrier to treatment in of itself. Therefore it is imperative that

dental programs be set up in order to help LTC seniors access dental care. This includes

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implementing oral healthcare policies, improving geriatric dental training for caregivers and

nursing staff, attaining adequate space to set up dental equipment and transportation of residents

to outside dental care [54].

A study completed in Ontario involving 61 residents in three long-term care facilities also

suggests that access to a dentist is a major issue in LTC facilities, as there is usually no dentist

accessible on-site [53]. Due to the reality that salaried dentists and hygienists are not reasonable

for most LTC facilities, a solution may be for multiple LTC facilities to pool financial resources

together to share dental services [53].

In addition, it is extremely important to screen residents for dental diseases and monitor

their oral health status upon arrival to a facility. The presence of oral diseases is an accumulation

from many years prior to one‘s entry into a long-term care facility, and these problems will

generally become worse over time [62]. Interviewing and discussing the oral health status of

each individual in an LTC facility can be extremely beneficial. Upon completing a study

involving quantitative analyses, it is important to discuss the difference between quantitative and

qualitative analysis. Qualitative analysis involves collecting, organizing and interpreting textual

materials from data analysis, interviews, direct observations or document analysis [63]. Many

researchers, including MacEntee, used a qualitative case research approach to analyze how oral

health programs affect LTC residents [64]. MacEntee collected data from open-ended interviews

and found a clearer understanding of human behavior that could not be found by quantitative

analysis alone [64]. Finkleman and collaborators used qualitative and quantitative analyses to

study the oral health of LTC residents [53]. Diversity in data analysis can help provide a wider

understanding of oral health in LTC facilities [65]. Finkleman et al. found there to be just as

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much variation in terms of oral health provision between residents within LTC facilities as there

are between the actual facilities themselves [53]. Although using a combination of quantitative

and qualitative analyses could have benefitted the present study, due to the large sample size it

was not a plausible option. Nevertheless, it should be noted that the OHIP-14 was constructed

through an interview process by asking open-ended questions in order to ascertain statements

concerning impacts of oral conditions (31).

It was difficult enough to persuade participants to complete the interview over the phone.

Of the 11,603 phone numbers who were called, 16% completed the interview. This number

would have most likely been lower had the interview involved a longer more thorough

discussion process. In total, 1141 community dwelling participants took part in the study. Of the

1141 participants, 747 completed the interview and clinical examination, 384 completed only the

interview and 10 people completed only the clinical examination (43). It was found that

participants who worked full or part time were less likely to complete both the interview and

clinical exam compared to those who did not work. Those who visited the dentist less than once

per year and those with less than a high school education were also less likely to complete both

the interview and clinical examination (43).

Moreover, the implications of poor oral health goes beyond the mouth, as oral health-

related quality of life is an important issue for the elderly population living in LTC facilities [60].

An individual‘s health and illnesses can have a profound effect on their quality of life through

their perceptions of physical health, psychological state, level of independence, social

relationships and environmental relationships [53]. It is therefore important to integrate dental

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services into long-term care programs with an idea of how these perceptions can affect oral

health and oral health-related quality of life.

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Chapter 6

Study Limitations

This study has several limitations that should be pointed out. In many cases studies do not

include participants with diseases such as alzheimer‘s and dementia, but due to the large

proportion of seniors and pre-seniors who have these diseases, this population should have been

included in the analysis. These diseases cause memory loss and can have an effect on one‘s

OHRQoL, in addition to the way in which an individual perceives his/her oral and general

health. Another limitation might be the difference between completing the questionnaire over the

phone via a telephone marketing company, rather than in person via a trained researcher. The

people who complete the survey over the phone may be a different type of person. Generally,

people who are extremely busy will not take the time to complete the survey over the phone, let

alone travel to a clinic to be examined. These people who complete the survey may have more

time on their hands, or they may have poor oral health and are willing to complete the survey in

order to get a free clinical examination. In addition, people who are answering questions in

person may answer them differently due to embarrassment, or may be unwilling to tell the truth

on certain matters due to the sensitive nature of many of the questions. This is known as

measurement bias, because all subjects in LTC facilities were given face-to-face interviews,

whereas community residents were given interviews over the phone.

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Chapter 7

Conclusions

This study has provided valuable information regarding the oral health-related quality of

life of pre-seniors and seniors living in Nova Scotia, Canada. It was found that LTC residents are

more likely to have poorer indicators of socio-demographic characteristics, clinical oral health

outcomes and self-perceived oral health status compared to community dwellers. Having more

oral health problems can have an effect on one‘s OHRQoL and in turn, explain why LTC

residents may report impacts ‗fairly/very often‘ on the OHIP-14. One in four pre-seniors and

seniors living in the community and LTC facilities reported one or more impacts ‗fairly/very

often‘, however, pre-seniors in the community experienced greater prevalence, extent and

severity of oral impacts than seniors. These findings suggest that as people age, oral health

problems may take a backseat in relation to general health problems. The study findings also

indicate that the strongest predictors for prevalence of impacts ‗fairly often‘ or ‗very often‘ for

community dwelling pre-seniors and seniors are having dissatisfaction with one‘s teeth or

dentures, poor perceived mouth health, having oral pain and living in rural areas. In addition,

those who were born outside of Canada but now living within the community have greater oral

health impacts. The strongest predictor for prevalence of impacts ‗fairly often‘ or ‗very often‘ for

LTC residents was having poor perceived mouth health, while LTC residents with a low

education level may be a group at risk in terms of greater impacts on their OHRQoL.

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Tables

Table 1. Characteristics of study participants aged 45 years and older living in the

community or long-term care in Nova Scotia, Canada

Characteristic

% (N)

Total

100 (1461)

Community

77.4 (1131)

LTC

22.6 (330)

Age (yrs)

45 – 64

65 and over

45.3 (662)

54.7 (799)

55.6 (629)

44.4 (502)

10 (33)

90 (297)

Sex

Male

Female

34.5 (504)

65.5 (957)

37.1 (420)

62.9 (711)

25.5 (84)

74.5 (246)

Education Level

More than high school

High school or less

49.3 (718)

50.7 (738)

57.6 (649)

42.4 (478)

21.0 (69)

79.0 (260)

Community Type

Urban

Rural

59.1 (864)

40.9 (597)

59.2 (669)

40.8 (462)

59.1 (195)

40.9 (135)

Annual Household Income

More than $30,000

Less than $30,000

57.6 (643)

42.4 (474)

72.0 (618)

28.0 (240)

9.7 (25)

90.3 (234)

Dental Insurance

Yes

No

43.5 (621)

56.5 (806)

50.7 (568)

49.3 (553)

17.3 (53)

82.7 (253)

Country of Birth

Canada

Other

90.3 (1316)

9.7 (141)

90.3 (1018)

9.7 (109)

90.3 (298)

9.7 (32)

Frequency of Dental Visits

1+ times per year

< 1 times per year

59.9 (862)

40.1 (578)

70.1 (782)

29.9 (334)

24.7 (80)

75.3 (244)

Dentate status

Dentate

Edentulous

81.8 (878)

18.2 (195)

91.9 (684)

8.1 (60)

59.0 (194)

41.0 (135)

Brushing Frequency (dentate only)

2+ times per day

< 2 times per day

74.2 (650)

25.8 (226)

79.3 (541)

20.7 (141)

56.2 (109)

43.8 (85)

Flossing Frequency (dentate only)

1+ times per day

< 1 times per day

35.2 (299)

64.8 (551)

40.3 (268)

59.7 (397)

16.8 (31)

83.2 (154)

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Smoking Frequency

Occasionally or not at all

Daily

88.4 (1288)

11.6 (169)

87.3 (985)

12.7 (143)

92.1 (303)

7.9 (26)

N.B. Bolded percentages are significant when p ≤0.05 using the Chi-square test.

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Table 2. Self-perceived oral health status of adults aged 45 and older in Nova Scotia,

Canada

Characteristic

% (N)

Total

100 (1461)

Community

77.4 (1131)

LTC

22.6 (330)

Perceived General Health

Excellent/ very good/ good

Fair or poor

80.0 (1167)

20.0 (292)

84.1 (950)

15.9 (180)

66.0 (217)

34.0 (112)

Perceived Quality of Life

Excellent/ very good/ good

Fair or poor

89.8 (1305)

10.2 (149)

92.8 (1049)

7.2 (81)

79.0 (256)

21.0 (68)

Perceived Mouth Health

Excellent/ very good/ good

Fair or poor

79.9 (1161)

20.1 (292)

81.1 (916)

18.9 (213)

75.6 (245)

24.4 (79)

Oral Pain

No oral pain

Mouth, dental, jaw or other pain

69.0 (743)

31.0 (334)

66.0 (493)

34.0 (254)

75.8 (250)

24.2 (80)

Satisfaction with Teeth/Dentures

Very satisfied/ satisfied/ neither

satisfied or dissatisfied

Dissatisfied or very dissatisfied

85.4 (1235)

14.6 (211)

85.4 (1235)

14.6 (211)

84.9 (269)

15.1 (48)

N.B. Bolded percentages are significant when p ≤0.05 using the Chi-square test.

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Table 3. Clinically-determined oral health status characteristics of adults aged 45 and older in Nova Scotia, Canada

Characteristic

% (N) Mean (SD)

Range (N)

Total

100 (1461)

Community

77.4 (1131)

LTC

22.6 (330)

Community

77.4 (1131)

LTC

22.6 (330)

% with DT = 0

% with 1+ DT

79.9 (860)

20.1 (217)

84.1 (628)

15.9 (119)

70.3 (232)

29.7 (98)

DMFT 22.11 (6.40)

0 – 28 (1461)

21.68 (6.64)

0 – 28 (1131)

23.58 (5.28)

6 – 28 (330)

Root Caries Index = (DFR / Number

of tooth roots) * 100 (dentate only)

13.54 (20.86)

0 – 100 (881)

10.80 (17.02)

0 – 100 (687)

23.24 (28.84)

0 – 100 (194)

% with RCI = 0

% with 1+ RCI

43.1 (378)

56.9 (500)

45.2 (309)

54.8 (375)

35.6 (69)

64.4 (125)

Attachment loss (mm)

Mean ± SD (n) [dentate only]

% with 1+ sites with AL of 4+mm

3.09 ± 1.54 (789)

58.8 (462)

56.4 (347)

67.3 (115)

2.86 ± 1.34 (618)

3.95 ± 1.86 (171)

Probing depth (mm)

Mean ± SD (n)

% with 1+ sites with PD of 4+mm

2.29 ± 0.04 (789)

32.6 (257)

31.6 (195)

36.3 (62)

2.23 ± 1.06 (618)

2.50 ± 1.26 (171)

Gingival Index (GI)

Mean ± SD (n)

% with GI ≥ 2 at 1+ sites

2.29 ± 0.04 (861)

49.8 (429)

45.7 (310)

65.4 (119)

0.97 ± 0.69 (678)

1.51 ± 0.76 (182)

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Debris Index (DI)

Mean ± SD (n)

0.87 ± 0.02 (873)

0.73 ± 0.49 (683)

1.38 ± 0.64 (190)

Calculus Index (CI)

Mean ± SD (n)

0.77 ± 0.02 (873)

0.68 ± 0.67 (683)

1.10 ± 0.82 (190)

DT = sum of the number of decayed permanent teeth.

DMFT = sum of the number of decayed, missing or filled permanent teeth as a result of dental caries.

DFR = sum of the number of decayed tooth roots.

N.B. Bolded percentages are significant when p ≤0.05 using the Chi-square test.

N.B. Bolded means are significant when p ≤0.05 using the Independent Samples T-test.

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Table 4. Percent of elderly Nova Scotia residents making 1 or more visits to the dentist

Total % (n) Community % (n) LTC % (n)

Age (years) ≥ 1 time

per year

< 1 time

per year

≥ 1 time

per year

< 1 time

per year

≥ 1 time

per year

< 1 time

per year

45- 64 71.9 (471) 28.1 (184) 74.4 (463) 25.6 (159) 24.2 (8) 75.8 (25)

65+ 49.8 (391) 50.2 (394) 64.6 (319) 35.4 (175) 24.7 (72) 75.3 (219)

N.B. Bolded percentages are significant when p ≤0.05 using the Chi-square test.

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Table 5. Distribution of responses to individual OHIP-14 items and mean item scores (n = 1461)

Dimension and description of item Distribution of responses %

Mean (SD) ―Because of trouble with your teeth, mouth or

dentures during the last year, …‖

Never (0)/

Hardly Ever (1) Occasionally (2)

Fairly Often (3)/

Very Often (4)

Comm. LTC Comm. LTC Comm. LTC Community LTC

Functional limitation

have you had trouble pronouncing any words? 92.9 86.7 5.2 7.3 2.0 6.1 0.09 (0.35) 0.19 (0.53)

have you felt that your sense of taste has worsened? 88.5 88.8 7.5 5.9 4.0 5.3 0.16 (0.46) 0.17 (0.49)

Physical pain

have you had painful aching in your mouth? 79.7 83.6 15.2 11.8 5.2 4.5 0.25 (0.54) 0.21 (0.51)

have you found it uncomfortable to eat any foods? 74.8 73.3 17.5 14.6 7.7 12.2 0.33 (0.61) 0.39 (0.69)

Psychological discomfort

have you been self-conscious? 78.7 74.5 13.1 14.0 8.2 11.6 0.29 (0.61) 0.37 (0.68)

have you felt tense? 80.2 84.4 12.4 8.0 7.4 7.6 0.27 (0.59) 0.23 (0.58)

Physical disability

has your diet been unsatisfactory? 86.3 84.5 7.8 7.9 5.9 7.6 0.20 (0.53) 0.23 (0.58)

have you had to interrupt meals? 91.0 88.8 6.0 6.7 2.9 4.6 0.12 (0.41) 0.16 (0.47)

Psychological disability

have you found it difficult to relax? 85.4 88.4 9.6 6.4 5.1 5.2 0.20 (0.51) 0.17 (0.49)

have you been a bit embarrassed? 83.8 82.4 12.2 7.9 4.0 9.7 0.20 (0.49) 0.27 (0.63)

Social disability

have you been a bit irritable with other people? 86.1 89.1 10.6 7.3 3.3 3.6 0.17 (0.46) 0.15 (0.45)

have you had difficulty doing your usual jobs? 93.8 93.9 3.9 3.1 2.3 3.1 0.09 (0.35) 0.09 (0.38)

Handicap

have you felt that life in general was less

satisfying? 89.7 87.2 6.6 6.7 3.7 6.1 0.14 (0.44) 0.19 (0.53)

have you been totally unable to function? 96.1 95.1 2.6 2.4 1.3 2.4 0.05 (0.28) 0.07 (0.34)

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Table 6. Prevalence, extent and severity of impacts by OHIP-14 subscale and total score

Dimension

Prevalence: % reporting

1+ impacts fairly/very

often (no.)

Extent: mean no. of

items reported

fairly/very often (SD)

Severity: mean OHIP-14

score (SD)

Community LTC Community LTC Community LTC

Functional limitation 5.4 (61) 9.4 (31) 0.06 (0.26) 0.11 (0.37) 0.56 (1.20) 0.69 (1.48)

Physical pain 9.6 (109) 13.9 (46) 0.13 (0.42) 0.17 (0.44) 1.25 (1.81) 1.17 (1.85)

Psychological discomfort 12.0 (136) 13.6 (45) 0.15 (0.45) 0.19 (0.51) 1.16 (1.86) 1.14 (2.03)

Physical disability 7.6 (86) 7.9 (26) 0.09 (0.33) 0.12 (0.44) 0.69 (1.40) 0.76 (1.78)

Psychological disability 7.3 (82) 11.5 (38) 0.09 (0.34) 0.15 (0.44) 0.85 (1.59) 0.85 (1.81)

Social disability 4.7 (53) 4.2 (14) 0.06 (0.27) 0.07 (0.33) 0.59 (1.32) 0.46 (1.32)

Handicap 4.1 (46) 6.7 (22) 0.05 (0.26) 0.09 (0.34) 0.47 (1.19) 0.51 (1.43)

Total OHIP-14 score

25.8 (291)

24.8 (82)

0.63 (1.59)

0.89 (2.24)

5.57 (7.57)

5.57 (9.58)

N.B. Bolded percentages are significant when p ≤0.05 using the Chi-square test.

N.B. Bolded means are significant when p ≤0.05 using the Independent Samples T-test.

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Table 7. Prevalence, extent and severity of impacts by OHIP-14 subscale grouped by pre-seniors and seniors

Community LTC

Pre-seniors

(n=629) Seniors (n=501)

P-value Pre-seniors (n=33)

Seniors (n=297)

P-value

Prevalence: % reporting

1+ impacts fairly/very

often (no.) 28.8 (181) 22.0 (110) 0.009

* 21.2 (7) 25.3 (75) 0.610*

Extent: mean no. of items

reported fairly/very often

(SD)

0.73 (1.73) 0.49 (1.40) 0.007**

0.45 (1.33) 0.94 (2.32) 0.456**

Severity: mean OHIP-14

score (SD)

6.22 (8.0) 4.75 (6.92) <0.001**

4.30 (7.29) 5.71 (9.80) 0.867**

*P-value obtained from the Chi-squared test.

**P-value obtained from the Mann-Whitney U test

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Table 8. Prevalence, extent and severity of impacts by OHIP-14 subscale grouped by community and LTC

Pre-seniors Seniors

Community

(n=629) LTC

(n=33)

P-value Community (n=501)

LTC (n=297)

P-value

Prevalence: % reporting

1+ impacts fairly/very

often (no.) 28.8 (181) 21.2 (7) 0.348

* 22.0 (110) 25.3 (75) 0.286*

Extent: mean no. of items

reported fairly/very often

(SD)

0.73 (1.73) 0.45 (1.33) 0.292**

0.49 (1.40) 0.94 (2.32) 0.124**

Severity: mean OHIP-14

score (SD)

6.22 (8.0) 4.30 (7.29) 0.033**

4.75 (6.92) 5.71 (9.80) 0.129**

*P-value obtained from the Chi-squared test.

**P-value obtained from the Mann-Whitney U test.

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Table 9. Bivariate analysis for prevalence of impacts (‘fairly often’ or ‘very often’) for

community residents

Characteristic % (N)

No Impacts 1+ Impacts P- value

Age (yrs)

45 – 64

65 and over

71.2 (448)

78.0 (391)

28.8 (181)

22.0 (110)

0.009

Community Type

Urban

Rural

79.2 (529)

67.1 (310)

20.8 (139)

32.9 (152)

< 0.001

Sex

Male

Female

78.3 (328)

71.9 (511)

21.7 (91)

28.1 (200)

0.017

Education Level

More than high school

High school or less

78.3 (508)

68.6 (328)

21.7 (141)

31.4 (150)

< 0.001

Annual Household Income

More than $30,000

Less than $30,000

77.0 (476)

64.2 (154)

23.0 (142)

35.8 (86)

< 0.001

Dental Insurance

Yes

No

75.9 (431)

73.1 (404)

24.1 (137)

26.9 (149)

0.278

Country of Birth

Canada

Other

74.8 (761)

70.6 (77)

25.2 (256)

29.4 (32)

0.341

Frequency of Dental Visits

1+ times per year

< 1 time per year

77.7 (608)

65.6 (219)

22.3 (174)

34.4 (115)

< 0.001

Dentate Status

Dentate

Edentulous

76.3 (524)

68.3 (41)

23.7 (163)

31.7 (19)

0.169

Smoking Frequency

Occasionally or not at all

Daily

75.8 (747)

64.3 (92)

24.2 (238)

35.7 (51)

0.003

Oral Pain

No

Yes

82.8 (408)

61.8 (157)

17.2 (85)

38.2 (97)

< 0.001

Perceived General Health

Excellent/ very good/ good

Fair or poor

77.9 (740)

55.0 (99)

22.1 (210)

45.0 (81)

< 0.001

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Perceived Mouth Health

Excellent/ very good/ good

Fair or poor

79.7 (730)

50.7 (108)

20.3 (186)

49.3 (105)

< 0.001

Satisfaction with teeth or dentures

Satisfied

Dissatisfied

79.5 (768)

42.9 (70)

20.5 (198)

57.1 (93)

< 0.001

Perceived Quality of Life

Excellent/ very good/ good

Fair or poor

76.5 (803)

44.4 (36)

23.5 (246)

55.6 (45)

< 0.001

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Table 10. Bivariate analysis for prevalence of impacts (‘fairly often’ or ‘very often’) for

LTC residents

Characteristic % (N)

No Impacts 1+ Impacts P- value

Age (yrs)

45 – 64

65 and over

78.8 (26)

74.7 (222)

21.2 (7)

25.3 (75)

0.610

Community Type

Urban

Rural

76.9 (150)

72.6 (98)

23.1 (45)

27.4 (37)

0.371

Sex

Male

Female

73.8 (62)

75.6 (186)

26.2 (22)

24.4 (60)

0.742

Education Level

More than high school

High school or less

84.1 (58)

72.7 (189)

15.9 (11)

27.3 (71)

0.052

Annual Household Income

More than $30,000

Less than $30,000

88.0 (22)

71.8 (168)

12.0 (3)

28.2 (66)

0.081

Dental Insurance

Yes

No

79.2 (42)

73.5 (186)

20.8 (11)

26.5 (67)

0.384

Country of Birth

Canada

Other

74.8 (223)

78.1 (25)

25.2 (75)

21.9 (7)

0.682

Frequency of Dental Visits

1+ times per year

< 1 time per year

76.3 (61)

74.6 (182)

23.8 (19)

25.4 (62)

0.766

Dentate Status

Dentate

Edentulous

75.3 (146)

75.0 (102)

24.7 (48)

25.0 (34)

0.957

Smoking Frequency

Occasionally or not at all

Daily

76.2 (231)

61.5 (16)

23.8 (72)

38.5 (10)

0.096

Oral Pain

No

Yes

79.6 (199)

61.3 (49)

20.4 (51)

38.8 (31)

0.001

Perceived General Health

Excellent/ very good/ good

Fair or poor

81.1 (176)

64.3 (72)

18.9 (41)

35.7 (40)

0.001

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Perceived Mouth Health

Excellent/ very good/ good

Fair or poor

85.7 (210)

40.5 (32)

14.3 (35)

59.5 (47)

< 0.001

Satisfaction with teeth or dentures

Satisfied

Dissatisfied

81.0 (218)

56.3 (27)

19.0 (51)

43.8 (21)

< 0.001

Perceived Quality of Life

Excellent/ very good/ good

Fair or poor

80.5 (206)

54.4 (37)

19.5 (50)

45.6 (31)

< 0.001

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Table 11. Logistic regression model for prevalence of impacts (‘fairly often’ or ‘very often’)

for community residents (n = 565)

Adjusted

Odds Ratio

95% CI for Odds

Ratio

P-value

Living in a rural area 2.07 1.35 – 3.17 0.001

Having oral pain 1.87 1.21 – 2.88 0.005

Born outside of Canada 1.97 1.01 – 3.85 0.048

Poor perceived mouth health 2.19 1.30 – 3.71 0.003

Dissatisfaction with teeth or dentures 5.16 2.87 – 9.27 <0.001

CI = Confidence Interval

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Table 12. Logistic regression model for prevalence of impacts (‘fairly often’ or ‘very often’)

for LTC residents (n = 229)

Adjusted

Odds Ratio

95% CI for Odds

Ratio

P-value

High school education or less 2.61 1.01 – 6.73 0.047

Poor perceived mouth health 9.87 4.93 – 19.75 <0.001

CI = Confidence Interval

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Appendices

Appendix A: OHIP-14 items grouped according to dimension

Dimension

Description of item

Functional limitation

1. ―How often, in the past year, have you had trouble pronouncing any words because of

problems with your teeth, mouth or dentures?‖

2. ―How often, in the past year, have you felt that your sense of taste has worsened because

of problems with your teeth, mouth or dentures?‖

Physical pain

3. ―How often, in the past year, have you had painful aching in your mouth?‖

4. ―How often, in the past year, have you found it uncomfortable to eat any foods because of

problems with your teeth, mouth or dentures?‖

Psychological discomfort

5. ―How often, in the past year, have you been self conscious because of your teeth, mouth

or dentures?‖

6. ―How often, in the past year, have you felt tense because of your teeth, mouth or

dentures?‖

Physical disability

7. ―How often, in the past year, has your diet been unsatisfactory because of problems with

your teeth, mouth or dentures?‖

8. ―How often, in the past year, have you had to interrupt meals because of problems with

your teeth, mouth or dentures?‖

Psychological disability

9. ―How often, in the past year, have your found it difficult to relax because of problems

with your teeth, mouth or dentures?‖

10. ―How often, in the past year, have you been embarrassed because of problems with your

teeth, mouth or dentures?‖

Social disability

11. ―How often, in the past year, have you been irritable with other people because of

problems with your teeth, mouth or dentures?‖

12. ―How often, in the past year, have you had difficulty doing your usual jobs because of

problems with your teeth, mouth or dentures?‖

Handicap

13. ―How often, in the past year, have you felt that life in general was less satisfying

because of problems with your teeth, mouth or dentures?‖

14. ―How often, in the past year, have you been totally unable to function because of

problems with your teeth, mouth or dentures?‖

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Appendix B: Location of LTC sites sampled in Nova Soctia, Canada

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Appendix C: Location of community sites sampled in Nova Soctia, Canada

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Appendix D: Study questionnaire

Dalhousie Oral Health Study

Patient ID code ____________________ Date of Interview ____________________ Interviewer Code ________________ Name of LTC Facility _______________________________ Living situation (circle one): LTC Independent Assisted

Q1 TOHAP_AWC_Q01 Before we begin, can you please provide your year of birth [OPEN]

19 _ _

Q2 If refuse to answer Q1 ask [CLOSED] Is it between

1 1944-1965 2 <1944

Q3 4 Do not ask respondent [OPEN] SEX_Q01 Sex

1 Male 2 Female

Q4 MSWC_Q02 What is your current marital status? [OPEN]

1 Married 2 Living common-law 3 Widowed 4 Separated 5 Divorced 6 Single, never married

25 Refuse to Answer

Q5 TOHAP_ED_Q01-04 What is the highest level of education that you have completed? [OPEN]

1 Lower than Grade 8 2 Grade 9 - 10 3 Grade 11 - 13 4 Completed High School 5 Post-secondary Technical School

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6 Some college or university 7 Completed college diploma 8 Completed university degree 9 Completed post-graduate degree (M.A., Ph.D.)

25 Refuse to Answer

SOCIODEMOGRAPHIC CHARACTERISTICS

Q6 SDC_Q11 In what country were you born? [OPEN]

1 Canada 12 Netherlands/Holland 2 China 13 Philippines 3 France 14 Poland 4 Germany 15 Portugal 5 Greece 16 United Kingdom 6 Guyana 17 United States 7 Hong Kong 18 Vietnam 8 Hungary 19 Sri Lanka 9 India 20 Other

10 Italy 24 Don't Know 11 Jamaica 25 Refused

Q6.a

SDC_S11_OTHER Other: Please specify

_______________________________________________________________________________

Q7 SDC_Q32 What language do you speak most often at home? [OPEN]

1 English 14 Punjabi 2 French 15 Spanish 3 Arabic 16 Tagalog (Pilipino) 4 Chinese (Mandarin & Cantonese) 17 Ukrainian 5 Cree 18 Vietnamese 6 German 19 Dutch 7 Greek 20 Hindi 8 Hungarian 21 Russian 9 Italian 22 Tamil

10 Korean 23 Other 11 Persian (Farsi) 24 Don't Know 12 Polish 25 Refuse to Answer 13 Portuguese

Q7.a SDC_S32 _OTHER

Other: Please specify

________________________________________________________________________________

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Q8 TOHAP What languages can you read? [OPEN] INTERVIEWER: Mark all that apply.

1 English 14 Punjabi 2 French 15 Spanish 3 Arabic 16 Tagalog (Pilipino) 4 Chinese (Mandarin & Cantonese) 17 Ukrainian 5 Cree 18 Vietnamese 6 German 19 Dutch 7 Greek 20 Hindi 8 Hungarian 21 Russian 9 Italian 22 Tamil

10 Korean 23 Other 11 Persian (Farsi) 24 Don't Know 12 Polish 25 Refuse to Answer 13 Portuguese

Q8.a TOHAP_OTHER

If other: Please Specify ________________________________________________________________________________

GENERAL HEALTH

This survey deals with various aspects of your health. By health, we mean not only the absence of disease or injury but also physical, mental and social well-being.

Q9 GEN_Q11 In general, would you say your health is: [CLOSED] INTERVIEWER: Read categories to respondent.

1 Excellent 2 Very Good 3 Good 4 Fair 5 Poor

25 Refuse to Answer

Q10 GEN_Q19 Would you rate your quality of life as: [CLOSED]

1 Excellent 2 Very Good 3 Good 4 Fair 5 Poor

25 Refuse to Answer

Q11 GEN_Q13 How satisfied are you with your life in general? [CLOSED] INTERVIEWER: Read categories to respondent.

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1 Very Satisfied 2 Satisfied 3 Neither satisfied nor dissatisfied 4 Dissatisfied 5 Very Dissatisfied

25 Refuse to Answer

Q12 GEN_Q20 Do you have a regular medical doctor? [OPEN]

1 Yes 2 No

25 Refuse to Answer

ORAL HEALTH

Next, some questions about the health of your mouth, including your teeth or dentures, tongue, gums, lips and jaw joints.

Q13 OHM_Q11 In general, would you say the health of your mouth is: [CLOSED] INTERVIEWER: Read categories to respondent.

1 Excellent 2 Very Good 3 Good 4 Fair 5 Poor

25 Refuse to Answer

Q14 OHM_Q12 How satisfied are you with the appearance of your teeth and/or dentures? [CLOSED]

1 Very satisfied 2 Satisfied 3 Neither satisfied nor dissatisfied 4 Dissatisfied 5 Very Dissatisfied

25 Refuse to Answer

Q15 OHIP/SOHAP 8. How often, in the past year, have you had trouble pronouncing any words because of problems with your teeth, mouth or dentures? [CLOSED]

1 Very Often 2 Fairly Often 3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q16 OHIP/SOHAP 9. How often, in the past year, have you felt that your sense of taste has worsened because of problems with your teeth, mouth or dentures? [CLOSED]

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1 Very Often 2 Fairly Often 3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q17 4.1.1 OHIP/SOHAP 10. How often, in the past year, have you had painful aching in your mouth? [CLOSED]

1 Very Often 2 Fairly Often

3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q18 OHIP/SOHAP 11. How often, in the past year, have you found it uncomfortable to eat any foods because of problems with your teeth, mouth or dentures? [CLOSED]

1 Very Often 2 Fairly Often 3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q19 OHIP/SOHAP 12. How often, in the past year, have you been self conscious because of your teeth, mouth or dentures? [CLOSED]

1 Very Often 2 Fairly Often 3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q20 OHIP/SOHAP 13. How often, in the past year, have you felt tense because of your teeth, mouth or dentures? [CLOSED]

1 Very Often 2 Fairly Often 3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q21 OHIP/SOHAP 14. How often, in the past year, has your diet been unsatisfactory because of problems with your teeth, mouth or dentures? [CLOSED]

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1 Very Often 2 Fairly Often 3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q22 OHIP/SOHAP 15. How often, in the past year, have you had to interrupt meals because of problems with your teeth, mouth or dentures? [CLOSED]

1 Very Often 2 Fairly Often 3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q23 OHIP/SOHAP 16. How often, in the past year, have you found it difficult to relax because of problems with your teeth, mouth or dentures? [CLOSED]

1 Very Often 2 Fairly Often 3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q24 OHIP/SOHAP 17. How often, in the past year, have you been embarrassed because of problems with your teeth, mouth or dentures? [CLOSED]

1 Very Often 2 Fairly Often 3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q25 OHIP/SOHAP 18. How often, in the past year, have you been irritable with other people because of problems with your teeth, mouth or dentures? [CLOSED]

1 Very Often 2 Fairly Often 3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q26 OHIP/SOHAP 19. How often, in the past year, have you had difficulty doing your usual jobs because of problems with your teeth, mouth or dentures? [CLOSED]

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1 Very Often 2 Fairly Often 3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q27 OHIP/SOHAP 20. How often, in the past year, have you felt that life in general was less satisfying because of problems with your teeth, mouth or dentures? [CLOSED]

1 Very Often 2 Fairly Often 3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q28 OHIP/SOHAP 21. How often, in the past year, have you been totally unable to function because of problems with your teeth, mouth or dentures? [CLOSED]

1 Very Often 2 Fairly Often 3 Occasionally 4 Hardly Ever 5 Never

24 Don't Know 25 Refuse to Answer

Q29 TOHAP _OHM_N31 Now a few questions about your regular dental care habits. How often do you usually brush your teeth and/or clean your dentures? [OPEN]

1 Per day 2 Per week 3 Per month 4 Per Year 5 Never

24 Don't Know 25 Refuse to Answer

Q29.a TOHAP _OHM_Q31 Enter amount of times only: ________

Q30 OHM_N32 How often do you usually floss your teeth? [OPEN]

1 Per Day 2 Per week 3 Per month 4 Per Year 5 Never 6 Full set of dentures

24 Don't Know 25 Refuse to Answer

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Q30.a OHM_Q32 Enter amount of times only: ________

Q31 SOHAP_29. Right now, whom do you attend routinely for your dental care? [CLOSED] [Select all that apply.] ?

1 Dentist

2 Dental hygienist

3 Denturist

4 Physician

5 Nobody

6 Other

24 Don't Know

25 Refused

Q32 OHM_Q33 How often do you usually see a dental professional? [CLOSED] INTERVIEWER: Read categories to respondent.

1 More than once a year for check-ups or treatment? 2 About once a year for check-ups or treatment? 3 Less than once a year for check-ups or treatment? 4 Only for emergency care? 5 Never?

24 Don't Know

25 Refuse to Answer

Q33 OHM_Q34 When was the last time you saw a dental professional? [OPEN]

1 Less than 1 year ago

2 1 year to less than 2 years ago

3 2 years to less than 3 years ago

4 3 years to less than 4 years ago

5 4 years to less than 5 years ago

6 5 or more years ago

24 Don't Know

25 Refuse to Answer

Q34 TOHAP In the past 12 months, have you avoided having professional treatment for some or all of your dental/oral problems? [OPEN]

1 Yes 2 No (GO TO Q36)

24 Don’t Know (GO TO Q36) 25 Refuse to Answer (GO TO Q36)

Q35 SOHAP 28 Why have you avoided professional treatment? [OPEN] [Select all that apply]

1 Cannot get an appointment 9 Too busy

2 Do not have dental insurance 10 Don't want to upset my mouth

3 Cannot afford it 11 Cannot be bothered

4 Cannot get to the dentist 12 Too sick to go

5 Previous treatment hasn't helped 13 Not important

6 Treatment is too painful 14 Other

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7 Too afraid 24 Don’t know

8 Too far to travel 25 Refuse

Q35.a Other reasons (please specify): ___________________________________________________________________________________________

Q36 OHM_Q43 Do you have insurance or a government program that covers all or part of your dental expenses? [OPEN]

1 Yes (GO TO Q37) 2 No (GO TO Q38)

24 Don’t Know (GO TO Q38)

25 Refuse to Answer (GO TO Q38)

Q37 OHM_Q44 What is the name of your insurance program? Is it: [CLOSED] INTERVIEWER: Read categories to respondent. Mark all that apply.

1 an employer-sponsored plan? 2 a provincial program for children or seniors? 3 a private plan? 4 a government program for social service (welfare) clients? 5 a government program for First Nations and Inuit?

25 Refuse to Answer

Q38 How much did you spend on dental care last year? [OPEN]

24 Don’t Know

25 Refuse to Answer

Q38.a Enter Amount Here: ___________________

CHRONIC CONDITIONS

Now I’d like to ask about certain chronic health conditions which you may have. We are interested in “long-term conditions” which are expected to last or have already lasted 6 months or more and

that have been diagnosed by a health professional.

4.2 Q39

CCC_Q22 Do you have arthritis or rheumatism? (Rheumatism or Rheumatic disorder is a non-specific term for medical problems affecting the heart, bones, joints, kidney, skin and lung. Arthritis is a group of conditions involving damage to the joints of the body.) [OPEN]

1 Yes 2 No

24 Don't Know 25 Refuse to answer

Q40 4.2.1 CCC_Q51 Have you ever been diagnosed with diabetes? [OPEN] 1 Yes 2 No (GO TO Q43)

24 Don't Know (GO TO Q43) 25 Refuse to answer (GO TO Q43)

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Q41 CCC_Q52 Were you diagnosed with: [CLOSED]

1 Type 1 diabetes (insulin dependent)?

2 Type 2 diabetes (non-insulin dependent)? 3 Gestational diabetes (diabetes only when you were pregnant)? (GO TO Q43)

25 Refuse to Answer

Q42 CCC_Q53 How old were you when this was first diagnosed? [OPEN]

______

Q43 CCC_Q61 Do you have heart disease? [OPEN]

1 Yes 2 No

24 Don't Know 25 Refuse to answer

Q44 CCC_Q63 Have you ever been told by a health professional that you have had a heart attack? [OPEN]

1 Yes 2 No

24 Don't Know

25 Refuse to Answer

Q45 CCC_Q72 Have you ever been diagnosed with cancer? [OPEN]

1 Yes 2 No (GO TO Q49)

24 Don't Know (GO TO Q49) 25 Refuse to answer (GO TO Q49)

Q46 CCC_Q71 Do you currently have cancer? [OPEN]

1 Yes (If Q3 =MALE GO TO 48, If Q3 =FEMALE GO TO Q47) 2 No (If Q3 =MALE GO TO Q48, If Q3 =FEMALE GO TO Q47)

24 Don't Know (If Q3=MALE GO TO Q48, If Q3 =FEMALE GO TO Q47) 25 Refuse to Answer (If Q3 =MALE GO TO Q48, If Q3 =FEMALE GO TO Q47)

Q47 CCC_Q74 What type of cancer did/do you have? (FEMALE) [OPEN]

1 Breast 2 Colorectal 3 Skin - Melanoma 4 Skin - Non-melanoma 5 Other - Specify

25 Refuse to Answer

Q47.a CCC_S74_OTHER

Other (please specify): _______________________________________________________________________________________________

Q48 CCC_Q75 What type of cancer did/do you have? (MALE) [OPEN]

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1 Prostate 2 Colorectal 3 Skin - Melanoma 4 Skin - Non-melanoma 5 Other - Specify

25 Refuse to Answer

Q48.a CCC_S75_OTHER

Other (please specify: ________________________________________________________________________________

Q49 TOHAP_CCC_Q81 Have you ever had a stroke or are you currently suffering from a stroke? [OPEN]

1 Yes 2 No

24 Don't Know 25 Refuse to Answer

MEDICATION USE

Now I’d like to ask a few questions about your use of medications.

Q50 MED_Q100A In the past month, did you take any prescription medications? Prescribed medications could include such things as insulin, nicotine patches and birth control (pills, patches or injections). [OPEN]

1 Yes 2 No (GO TO Q52)

24 Don't Know (GO TO Q52) 25 Refuse to answer (GO TO Q52)

Q51 TOHAP_MED_Q100B How many different prescribed medications did you take? [OPEN]

Don't Know (GO TO Q56)

Refuse to Answer (GO TO Q56)

Q51.a TOHAP_MED_Q100B Enter number of medications taken ____________

Telephone Interviewer: If Q51.a = 1 or more, ask “It would be very helpful if you could bring a list of the names of your prescribed medications with you to your dental exam. “

LTC Interviewer: If Q51.a = 1 or more, ask if they have brought a list of their prescribed medications with them,

- if yes, pass the list along to the dental assistant for entry into the database. - If no, ask if they can remember their medications (name, strength and dose if known), write these

down on a note and pass the list along to the dental assistant for entry into the database.

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SUN EXPOSURE

The next two questions are about your exposure to the sun. For the next questions, think about a typical weekend or day off from work or school in the summer months.

Q52 SEB_Q12 About how much time each day do you spend in the sun between 11 am and 4 pm? [OPEN]

1 None (GO TO Q54) 2 Less than 30 minutes (GO TO Q54) 3 30 to 59 minutes 4 1 hour to less than 2 hours 5 2 hours to less than 3 hours 6 3 hours to less than 4 hours 7 4 hours to less than 5 hours 8 5 hours

24 Don't Know (GO TO Q54) 25 Refuse to Answer (GO TO Q54)

Q53 SEB_Q13 In the summer months, on a typical weekend or day off, when you are in the sun for 30 minutes or more, how often do you use sunscreen? [CLOSED]

1 Always 2 Often 3 Sometimes 4 Rarely 5 Never

24 Don't Know 25 Refuse to Answer

SMOKING

Now, I am going to ask you about cigarette smoking. By cigarettes, we mean both ready-made cigarettes and ones you roll yourself, excluding cigars, cigarillos, marijuana or pipes.

Q54 SMK_Q12 At the present time, do you smoke cigarettes daily, occasionally or not at all? [CLOSED]

1 Daily 2 Occasionally (GO TO Q56) 3 Not at all (GO TO Q57)

24 Don’t Know (GO TO Q61) 25 Refuse to Answer (GO TO Q61)

Q55 SMK_Q31 How many cigarettes do you smoke each day now? [OPEN]

25 Refuse to Answer (GO TO Q59, THEN Q61)

4.3 Q55.a

Enter Amount _____ (GO TO Q59, THEN Q61)

Q56 SMK_Q41 On the days that you smoke, how many cigarettes do you usually smoke? [OPEN]

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25 Refuse to Answer

Q56.a Enter Amount _____

Q57 SMK_Q51 Have you ever smoked cigarettes daily? [OPEN]

1 Yes 2 No (If Q54=NOT AT ALL GO TO Q58, Otherwise GO TO Q61)

24 Don’t Know (GO TO Q61) 25 Refuse to Answer (GO TO Q61)

Q58 TOHAP Have you ever smoked cigarettes occasionally? [OPEN] (ASK ONLY IF Q54=NOT AT ALL)

1 Yes 2 No (GO TO Q61)

24 Don’t Know (GO TO Q61) 25 Refuse to Answer (GO TO Q61)

Q59 TOHAP_SMK_Q52 At what age did you begin to smoke cigarettes? [OPEN]

25 Refuse to Answer

Q59.a Enter Age _____

Q60 TOHAP_SMK_Q54 At what age did you stop smoking cigarettes? [OPEN] (ASK ONLY IF Q54=NOT AT ALL)

25 Refuse to Answer

Q60.a Enter Age _____

Q61 SMK_Q60 In the past month, have you smoked cigars or a pipe or used snuff or chewing tobacco? [OPEN]

1 Yes 2 No

24 Don't Know 25 Refuse to Answer

ALCOHOL

Q62 ALC_Q17 Have you ever had a drink of alcohol? [OPEN]

1 Yes 2 No (GO TO Q66)

24 Don’t Know (GO TO Q66) 25 Refuse to Answer (GO TO Q66)

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Q63 ALC_Q11 During the past 12 months, have you had a drink of beer, wine, liquor or any other alcoholic beverage? [OPEN]

1 Yes 2 No (GO TO Q65)

24 Don't Know (GO TO Q65) 25 Refuse to Answer (GO TO Q65)

Q64 ALC_Q12 During the past 12 months, how often did you drink alcoholic beverages [OPEN]

1 Less than once a month 2 Once a month 3 2 to 3 times a month 4 Once a week 5 2 to 3 times a week 6 4 to 6 times a week 7 Every day

24 Don't Know 25 Refuse to Answer

Q65 ALC_Q18 Did you ever regularly drink more than 12 drinks a week? [OPEN]

1 Yes 2 No

24 Don't Know 25 Refuse to Answer

LABOUR FORCE ACTIVITY

Q66 4.3.1 TOHAP Are you currently employed? [OPEN & CLOSED – YES/NO REQUIRES PROMPTING]

1 Yes – Full Time (GO TO Q68)

2 Yes – Part Time (GO TO Q68)

3 No – Retired

4 No – Unemployed

5 Permanently Unable To Work (GO TO Q68)

24 Don't Know (GO TO Q68)

25 Refuse (GO TO Q68)

Q67 TOHAP Have you performed any sort of work over the past 12 months? (part-time jobs, seasonal work, contract work, self employment, baby-sitting and any other paid work, regardless of the number of hours worked) [OPEN]

1 Yes 2 No

24 Don't Know 25 Refuse to Answer

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INCOME

Although many health expenses are covered by [provincial/territorial] health insurance, there is still a relationship between health and income. Please be assured that, like all other information

you have provided, these answers will be kept strictly confidential.

Q68 INC_Q11 Thinking about the total income for all household members, from which of the following sources did your household receive any income in the past 12 months? INTERVIEWER: Read categories to respondent. Mark all that apply. [CLOSED]

1 Wages and salaries 2 Income from self-employment 3 Dividends and interest (e.g., on bonds, savings) 4 Employment insurance 5 Worker’s compensation 6 Benefits from Canada or Quebec Pension Plan 7 Retirement pensions, superannuation and annuities 8 Old Age Security and Guaranteed Income Supplement 9 Child Tax Benefit

10 Provincial or municipal social assistance or welfare 11 Child support 12 Alimony 13 Other (e.g., rental income, scholarships) 14 None (GO TO END) 24 Don't Know (GO TO END) 25 Refuse to Answer (GO TO END)

4.3.1.1 If more than one source, go to Q69 otherwise go to Q70

Q69 INC_Q12 What was the main source of income? [OPEN BUT PROMPT IF NEED BE]

1 Wages and salaries 2 Income from self-employment 3 Dividends and interest (e.g., on bonds, savings) 4 Employment insurance 5 Worker’s compensation 6 Benefits from Canada or Quebec Pension Plan 7 Retirement pensions, superannuation and annuities 8 Old Age Security and Guaranteed Income Supplement 9 Child Tax Benefit

10 Provincial or municipal social assistance or welfare 11 Child support 12 Alimony 13 Other (e.g., rental income, scholarships) 24 Don't Know 25 Refuse to Answer

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Q71 TOHAP_INC_Q22-28 Was the total household income from all sources: INTERVIEWER: Read categories to respondent. [CLOSED]

1 Less than $10,000 2 $10,000 to less than $20,000 3 $20,000 to less than $30,000 4 $30,000 to less than $40,000 5 $40,000 to less than $50,000 6 $50,000 to less than $60,000 7 $60,000 to less than $80,000 8 $80,000 to less than $100,000 9 $100,000 or more

24 Don't Know 25 Refuse to Answer

Q70 TOHAP_INC_Q38 Was your total personal income: INTERVIEWER: Read categories to respondent. [CLOSED]

1 Less than $50,000 6 $50,000 to less than $60,000 7 $60,000 to less than $80,000 8 $80,000 to less than $100,000 9 $100,000 or more

24 Don't Know 25 Refuse to Answer