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OXYGEN THERAPY ESSENTIAL GUIDE

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OXYGENTHERAPY

ESSENTIAL GUIDE

Call our Advice Line FREE on 0808 801 0899

This Essential Guide is about oxygen therapy. It explains:

what oxygen therapy is

what to expect at your oxygen therapy assessment

thedifferentkindsofoxygentherapyequipment

whosuppliesandchecksyouroxygen therapy equipment

whatyouneedtoknowaboutusingoxygenawayfromhome.

www.chss.org.uk

Oxygen and your bodyOxygenisagasfoundintheairyoubreathe.Itisneededbyyourbodyformanydifferentthings.Theseinclude:

buildingnewcells

digestingfood

helpingyourbrainwork

supporting your immune system

musclemovement.

A long-term chest condition, such as chronic obstructivepulmonarydisease(COPD)orbronchiectasis,makesithardertobreathe.Thismeansthatyourbodyisnotgettingtheoxygenitneeds.

Thiscanleadtoaconditioncalledhypoxia.Symptomsofhypoxiaincludebreathlessness,poorconcentration,irritability,tirednessorfatigueandswollenankles.

Call our Advice Line FREE on 0808 801 0899

What is oxygen therapy? Oxygen therapy is a medical treatment that helpsyoutogettheextraoxygenyouneed.

Ifyouarelivingwithalong-termchestconditionthataffectsyouroxygenlevels,oxygentherapymayhelp.Itcanhelptoimprove your symptoms and increase your energylevels,yourlevelofactivityandyourlifeexpectancy.

Youwillneedanoxygenassessmenttofindoutifoxygentherapyisrightforyou.

Oxygentherapywillnotberightforyouifyouroxygenlevelsarenormal,evenifyouarebreathless.Extraoxygenwhenyoudon’tneeditcandamageyourlungsandmakeyourbreathlessnessworse.

www.chss.org.uk

Referral for an oxygen assessmentYoucanbereferredforanoxygenassessmentbyyourdoctor,nurseorrespiratoryteam.

Tofindoutifyouneedanoxygenassessment,theywillaskyouaboutyour symptoms and may do a ‘pulse oximetry’test.

Thistestmeasureshowmuchoxygenisinyourbloodusingasmalldevicecalleda‘pulseoximeter’thatattachestoyourfingerorearlobe.Youmayalsobeaskedtodoashortexerciseorwalkingtest.

Dependingonyoursymptomsandtestresults,youmaybereferredforafulloxygenassessment.Thisisneededtohelpdecideifoxygentherapyisrightforyou.

Call our Advice Line FREE on 0808 801 0899

Your oxygen assessment

Oxygenassessmentswillbecarriedoutbyaspeciallytrainedrespiratorynurseordoctor.

Theyusuallytakeplaceinhospitaloratacommunityclinic.Theycanalsotakeplaceinyourhomeifyoursymptomsareverybad.

Fortheassessment,differenttestswillbedone.Thesewillincludebloodtestsandasimplelungfunctiontestcalleda‘spirometrytest’.Thismeasureshowmuchairyoubreatheoutinonebreath.Youmayalsobeaskedtodoasimpleexerciseorwalkingtest.

Dependingonyourresults,youmaybeaskedtoreturntotheclinicafewweekslatertoseeifyouroxygenlevelshavechangedoverthistime.

www.chss.org.uk

What happens next? Iftheassessmentshowsthatoxygentherapyisrightforyou,thenextstepistofindouthowmuchoxygenyouneed.Todothis,youwillbegivenasmalldoseofoxygenforatleast30minutes.Yourbloodoxygenlevelwillthenbecheckedusingapulseoximeter.

Thisprocesswillberepeatedwithbiggerdosesofoxygeneachtimeuntiltherightdoseisfoundforyou.

Your doctor or nurse will then talktoyouaboutyouroptionsandwhathappensnext.

Itmayhelptotakealistofquestionswithyoutohelpyouremembereverythingyouwouldliketoknowaboutoxygentherapyandhowitmightaffectyou.

Call our Advice Line FREE on 0808 801 0899

Starting oxygen therapy Oxygenisamedicineandneedstobeorderedforyoubyahealthcareprofessional,usuallyyourhospitaldoctororrespiratorynurse.

Dependingonyourconditionandhowmuchoxygen you need, you will need to use either a nasalcannulaorafacemasktobreatheintheoxygen.

Anasalcannulaismadeoflightweighttubingwithtwo‘prongs’thatrestjustinsideyournose.

Afacemaskcoversyournoseandmouthandiskeptinplacebyplasticstrapsthatgoaroundyourhead.

Youshouldonlyusethefacemaskornasalcannulaprovidedtoyoubyyourhomeoxygensupplierorrespiratoryteam.

www.chss.org.uk

Review of your oxygen therapy Once you start oxygen therapy, you will have regularreviewstocheckthat:

theoxygenlevelsinyourbodyareOK

youareusingyouroxygencorrectlyandforenough time each day

youstillneedtouseoxygenifyour

symptomshaveimproved.

Ifyouhaveachestinfectionoranexacerbation(flare-up),youroxygenwillbereviewedandyourequipmentmayneedtobeadjusted.Dependingonyoursymptoms,youmayneedtogointohospital.

Tellyourdoctororrespiratoryteamifyouhave a change in your symptoms or any new symptoms,ifyoucan’tthinkstraightoryoufeelmoretiredorsleepierthanusual.

Call our Advice Line FREE on 0808 801 0899

Your oxygen supplier InScotland,oxygenissuppliedbyacompanycalledDolbyVivisol.

DolbyVivisolareresponsibleforthedelivery,setup,servicing,maintenance,regularchecksandrepairofyouroxygentherapyequipment.

YouwillbegivenaDolbyVivisolPatientInformationPackanddetailedinformationon:

your oxygen equipment, how to use it and howtolookafterit

safetywhenusingandstoringyouroxygenequipment

whattodoifthereisaproblemwithyouroxygen equipment

tellingyourinsuranceproviderabouttheuseofoxygeninyourhomeorinyourcar.

www.chss.org.uk

Home risk assessmentBeforestartingoxygentherapy,DolbyVivisolwillcarryoutariskassessmentinyourhometomakesureitissafeforyoutouseandstoreoxygenequipment.

It is also a good idea to let the Scottish Fire andRescueServiceknowifyouareusingoxygeninyourhome.

InScotland,anyonecanarrangeafreefiresafetycheckandfreesmokealarmfitting.

ContacttheScottishFireandRescueServicetoarrangeafiresafetycheckbycompletingtheonlineformontheirwebsite, www.firescotland.gov.uk, calling 0800 0731 999 or texting “FIRE” to 80800.

Call our Advice Line FREE on 0808 801 0899

Your oxygen equipment What oxygen equipment you need will dependon:

your health condition your symptoms how active you are discussions with your healthcare professionalaboutwhattypeofequipmentisbestforyou.

Examplesofoxygenequipmentinclude:

oxygen cylinders liquid oxygen oxygenconcentrators.

Yourequipmentwillbeadjustedtocontrolhowmuchoxygenyoubreathein.Thisiscalledtheflowrate.Neverchangetheflowrate unless your doctor or respiratory team tellsyoutodoso.

www.chss.org.uk

Oxygen cylinder

Ifyouneedoxygenforonlyshortperiodsoftimeyouwillbeprovidedwithanoxygencylinder.

An oxygen cylinder contains compressedoxygen.YourDolbyVivisolengineerwillshowyouhowtouse your oxygen cylinder with a nasal cannulaorfacemask.

Liquid oxygen

When oxygen is cooled to very cold temperatures,itturnsintoliquid.Liquidoxygentakesuplessspaceandcanbestoredandmovedaroundmoreeasily.

Youmaybegivenliquidoxygenifyouneedalotofoxygenathomeand/oralotofportableoxygen.Liquidoxygenisstoredinatankinyourhome.Itwillcomewitharefillableportableliquidoxygenunitthatyourefillfromthestoragetank.

Call our Advice Line FREE on 0808 801 0899

Oxygen concentrator Ifyouneedoxygenforlongperiodsoftheday,youmaybegivenanoxygenconcentrator.

Thisisamachinethatplugsintoanelectricalsocket.Itfiltersoutoxygenfromtheairandpassesitthroughatubetobreatheinthroughanasalcannulaorfacemask.

Theconcentratorwillcomewithalonglengthoftubingsoyoucanmovearoundyourhomewhileyouuseit.

IfyouhavealungconditionlikeCOPD,oxygentherapyisoftenneededfor15hoursadayormore.Mostpeopleuseitovernightandatquiettimesthroughthedaytomakeupthistime.

www.chss.org.uk

Ifyouareusinganoxygenconcentrator,youwillalsobegivenanoxygencylinderasaback-up.Usethisifyouhaveanyproblemswithyouroxygenconcentratororifyouhaveapowercut.

Ifthereisaproblemwithyouroxygenconcentratororifyouhaveapowercut,useyouroxygencylinderandletDolbyVivisolknowrightaway.

You should also let your electricity supplier knowifyouareusinganoxygenconcentratorsoyoucanbeaddedtothe‘PriorityServicesRegister’.Beingontheregistermeansyoushouldbegivensupporttocoveryourelectricity needs during a planned power cut orinanemergency.

DolbyVivisolwillrefundyoutheelectricitycostsofrunningyouroxygenconcentrator.

Call our Advice Line FREE on 0808 801 0899

Using oxygen safely Oxygencanbeafirehazardandspecialcareisneededwhenusingandstoringoxygen.However,itcanbeusedsafelybyfollowingtheadvicegiventoyouinyourDolbyVivisolPatientInformationPack.Itisimportantthatyoureadthisinformationcarefully.

Itisnormaltofeelabitworriedaboutusingyouroxygenequipmentsafelywhenyoufirststartoxygentherapy.Itisalsocommontohavealotofquestions.

TalktoyourDolbyVivisol engineeraboutanyquestionsorconcernsyoumighthave.

www.chss.org.uk

Safety tips Smokingaroundoxygenisverydangerous.Neversmokearoundoxygenorletotherssmokenearyou.Thisincludessmokinge-cigarettes.

When using oxygen, always stay at least 3 metres(10feet)awayfrom:

sparkingobjects,suchasgascookersnakedflames,suchasalighterorcandleextremeheat,suchasdirectsunlight.

Donotuseoilorgreaseonanypartofyouroxygenequipment.

Onlyusewater-basedcreamsandmoisturisers–oil-basedmoisturiserssuchaspetroleumjelly(e.g.Vaseline)shouldnotbeused.

Nevermakeanyadjustmentstoyouroxygenequipmentunlesstoldtobyyourdoctororrespiratoryteam.

Call our Advice Line FREE on 0808 801 0899

Smoking Thecarbonmonoxideincigarettesmokepreventsoxygentherapyfromworkingeffectively.Ifyouoranyoneinyourhouseholdsmoke–includingsmokinge-cigarettes–youmaynotbeallowedtostartoxygentherapy.

Oxygencanbeafirerisk.Ifoxygentherapyhasbeenrecommendedandyoucontinuetosmoke,ariskassessmentandmedicalreviewwillbecarriedouttodecideifyouareallowedtostartoxygentherapy.

Stoppingsmokingisoneofthebestthingsyoucandoforyourhealthandtopreventfurtherdamagetoyourlungs.

Thereislotsoffreesupportavailabletohelpyoustopsmoking.Askyourdoctor,nurseorpharmacistforinformationorcallQuit Your Way Scotland on 0800 848 484.

www.chss.org.uk

Skin care Oxygentherapycandryoutyourskin,especiallyyourmouth,noseandlips.Tohelp,trytotakelotsofsipsofwater.

Ifyourearsbecomesorewherethetubingsits,youcanaskforoxygentubing protectors.

It can also help to use a moisturiser (sometimescalledanemollient)onyourface.

Be aware, however, that many moisturisers containpetroleumorparaffin.Thismeansthattheycancatchfireandarenotsafetouse.

Checktheingredientslistandavoidmoisturisers that include petroleum jelly, petrolatum,whitepetrolatum,softparaffin,paraffinwaxorsimilaringredients.

Instead, use a water-based moisturiser.Waterwillusuallybethefirstingredientontheingredientslist.

Call our Advice Line FREE on 0808 801 0899

Being active Mostpeopleonoxygentherapycanhaveanactivelifestyle.Ifyouneedoxygentogetoutandabout,thiswillbeconsideredaspartofyouroxygentherapyassessment.

Todoanyexercise,youmayneedextraoxygen.Thisisbecauseyourbodyusesmoreoxygenwhenyouexercise.

Speaktoyourdoctoraboutwhat sortofexerciseoractivitiesarerightforyou.

You may also need an exercise assessment to findouthowmuchyouareabletodo.

As exercise assessment is usually done usingatreadmillorastationarybike.Theassessmentwillcheckyouroxygenlevelsandhowwellyourheartisworking.

www.chss.org.uk

Public transport ItisusuallyOKtotakeoxygenonpublictransport,butitisbesttocheckwiththebusortraincompanyfirst.

Inmostcases,asingleportableoxygencylinderorunitforpersonaluseisallowed.

Whenyouareonpublictransport,makesureyour oxygen equipment is secure and will notmovearound.Remembertoturnoffyourequipmentwhenyouarenotusingit.

Youmayalsobegivenanoxygen alert card.Thisgivesdetailsofhowmuchoxygenyouneedintheeventofanemergency.Alwayskeepthecardwithyouwhenyouareout.Athome,thecardshouldbekeptwherepeoplecanseeit.Forexample,onthefridgedoorornearthetelephone.

Call our Advice Line FREE on 0808 801 0899

UK travelBeforeyoubookanytravel,speaktoyourdoctororrespiratoryteamaboutyourneeds.

YourDolbyVivisolPatientInformationPackalsoprovidesmoredetailedinformationabouttravellingwithoxygen.Thisincludesinformationontravellingonpublicorprivatetransport,stayingawayfromhomeintheUKandtravellingabroad.

ForUKtravel,DolbyVivisolcandeliveroxygenfreeofchargetowhereveryouarestaying.Youmustcheckthatyou are allowed to store and use oxygen where you are staying and thattheywilltakedeliveryofit.

RequestsshouldbesenttoDolbyVivisolforholidaysandoxygendeliveryatleast3weeksbeforeyoutravel.

www.chss.org.uk

Overseas travelIfyouwanttotravelabroad,yourdoctororspecialistnursecantellyouifyouneeda‘fitnesstofly’test.

OxygensuppliedintheUKcannotbetakenabroad.Itisuptoyoutoarrangeoxygenforyourjourneyandatyourdestination.Whatyou need to do to arrange oxygen and how much this will cost will depend on your airline andwhereyouaregoing.DolbyVivisolcangiveyoumoreinformationonthis.

TheUKDepartmentofHealthandSocialCarecangiveyoumoreinformationonusingoxygenabroad(tel. 0207 210 4850).Specialisttravelagenciesarealsoavailablethatcanmakearrangementsforyou.

Call our Advice Line FREE on 0808 801 0899

FlyingIfyouneedoxygenonaflight,checktheairline’spolicybeforemakinganybookings.

Mostairlineswillprovideyouwithoxygenifyouneedit.However,eachairlinehasitsownrulesaboutusingoxygenwhenyouflyandifyouhavetopayforit.Youcanalsoaskyourairlineiftheywillletyoucarryyourownoxygenontheplane.

Remembertocheckwithyourairlineaboutwhether you will need to use your own oxygenintheairportandwhentransferringbetweenflights.

ChestHeart&StrokeScotland’sEssentialGuideon‘Airtravelandholidays’hasmoreinformationontravellingwithalong-termhealthcondition.

www.chss.org.uk

Travel insuranceIfyouaregoingaway,youmust have proper travelinsurance.

Travelinsuranceshouldbearrangedatthetimeofbookingincaseyourtripneedstobecancelled.

Youmayneedtolookaroundforacompanythatwillinsureyou.Yourtravelagentmaybeabletodothisforyou.

DolbyVivisolhasitsownholidayservicecalledVivitravelthatarrangesprivately-fundedUKandoverseasholidays.

Vivitravel holiday serviceTel:03301230305Email:[email protected]

Call our Advice Line FREE on 0808 801 0899

Home and driving insurance

You should tell your home insuranceproviderifyouareusingoxygenathome.

Thisshouldnotaffectthecostofyourinsurancebutitwillmakesureyouarecoveredifyoueverneedtomakeaclaim.

You should tell your driving insurance providerifyouaretransporting oxygen equipment in yourvehicle.

YoudonotneedtotelltheDrivingandVehicleLicensingAgency(DVLA)abouta long-term chest condition* unless you experiencebaddizziness,faintingorlossofconsciousness.

*Notethatpulmonaryhypertension(PH)isconsidereda heartcondition.IfyouhavePH,youneedtotelltheDVLA.

www.chss.org.uk

Dolby Vivisol contact detailsPatient contact centre and helpline Fororders,enquiriesandinformationonusingoxygenawayfromhomeandabroad.Tel:0800833531Email:[email protected]

Electricity refund enquiriesTel:08000113422Email:[email protected]

Oxygen away from home within the UK Writeoremailwithatleast3weeks’notice.Includetheaddress,datesandconfirmationofpermissiontouseanddeliveroxygenequipmentatyourdestination.Email:[email protected]:CustomerServices,DolbyVivisol,NorthSuite,LomondCourt,CastleBusinessPark,Stirling,FK94TU

OurpublicationsareavailableforfreetoanyoneinScotlandwhoneedsthem.Gotowww.chss.org.uk/publicationsforallourresources,includingotherEssentialGuidesinthisseries.

Forfree,confidentialadviceandsupportfromour Advice Line nurses,call:08088010899(Mon-Fri9.30am-4pm),text:NURSEto66777oremail:[email protected].

Across Scotland, over one million people – that’soneinfiveofus–arelivingwiththeeffectsofachest,heartorstrokecondition.Weareheretohelpeveryonewhoneedsus.Butweneedyoursupporttodothis.Gotowww.chss.org.uk/supportustofindouthowyoucanhelpmorepeopleinScotland.

Scottish Charity (no SC018761)

NO LIFE HALF LIVED

E22 PublishedApril2020NextplannedreviewApril2023

If you would like this resource in an alternative format, please contact our Advice Line nurses.

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