palcare voice - loddon mallee regional palliative care...
TRANSCRIPT
I N S I D E T H I S I S S U E :
Pastoral Care Week 2
Diversity 2011 -
PCA Conference
Overview
3
Diversity 2011 -
Participant reports
4
Diversity 2011 -
Participant reports
continued
5
CareSearch Nurses Hub Update
5
After Hours Project - Recommendations
6
Compassionate Com-munities Network
6
S P E C I A L P O I N T S
O F I N T E R E S T :
Pastoral Care Week 23rd—
29th October
National Palliative Care
Conference - feedback
LMRPCC website is
October 2011 Number 3 - 3 PalCare Voice
WHO DO YOU CALL ??
Your local Palliative Care Service for clinical questions
You can find their details on the Consortium Website
www.lmrpcc.org.au
Office Contacts
Consortium Manager - Trish O’Hara (Mon, Tue, Wed, Thur)
Phone 54711545 / 0447 526 626
Project Worker - David Jenkins (Mon, Tue, Wed)
Phone 54704206 / 0419 283 268
Admin Assistant - Anne Forden (Mon, Tue, Wed)
Phone 54704205
(please note: days indicated are usual days worked, they may vary)
This edition of the ‘PalCare Voice’ has been compiled as a joint
effort by the Anne (Consortium), Bertilla (Sunraysia Palliative Care) and myself. And a special thank-you to all who have contributed
something for inclusion. This issue will include:
Feedback from the recent national Palliative Care Conference, with information and reports from a number of people around
the Region who attended. information about Pastoral Care Week Update from the Nurses Hub of Care-Search
Recommendations from the final report from the regional After Hours Project
Other information from sources such as Palliative Care Victoria We look forward to keeping you up to date with Consortium hap-
penings.
Merrill Cole Palliative Care NP
Castlemaine Palliative Care Service
L O D D O N M A L L E E R E G I O N A L PA L L I AT I V E C A R E C O N S O R T I U M
Origins of Pastoral Care Week: Pastoral Care Week started in 1983 when the National Association of Catholic Chaplains passed a resolution to establish a Pastoral Care Week. It was not until October of 1985 that the first Pastoral Care Week was held by NACC. In December of the following year, the Congress on Minis-tries in Specialized Settings recommended at their annual meeting to establish a committee to implement a National Pastoral Care Week. The first National Pastoral Care Week, "Excellence in Pas-toral Care", was celebrated October 25-31, 1987. Each year since then the last week in October has continued to pro-vide an opportunity for chaplains and pastoral care provid-ers to share their story and to celebrate their various min-istries. By the early 90’s the enthusiasm had spread across the nation and even into Canada and beyond. By 1995 the word national was dropped from National Pastoral Care Week because it was obvious that it was not just a national celebration but, in fact, an international one. Various coun-tries were using our materials and promotional items to help them celebrate. From such a very small start, Pastoral Care Week has grown to an international celebration.
Why Celebrate Pastoral Care Week: The celebration of Pastoral Care Week provides an oppor-tunity for chaplains and pastoral care counselors, educa-tors and providers to share their story and to celebrate various ministries. More specifically, the established ob-jectives of the Pastoral Care Week Committee outline the scope of Pastoral Care Week observance:
To celebrate the education for and practice of spiri-tual care through professional chaplaincy and pastoral counseling.
To interpret and promote pastoral care. To honor and celebrate all practitioners of pastoral care. To express appreciation to institutions and their staff who support pastoral care ministries.
To publicize the work of pastoral care organizations affiliated with COMISS.
To promote continuing education for clergy, laity, and institutional employees regarding the value of pas-toral care.
Each year a new theme brings to the light a certain aspect of pastoral care. A new theme invites us to new and crea-tive ways to tell the story of pastoral care.
This year sees the celebration of 25 years of setting aside a week in the month of October Pastoral Care Week. This year the celebration is being held from October 23-29, 2011. The theme this year is: “SHARED VOICE.” Pastoral Care Week gives opportunity for organiza-tions and institutions of all types to recognize the spiritual care given in the midst of the ministry which the caregivers provide. Some of the main objectives include:
1. To celebrate the education for and practice of Spiritual Care.
2. To interpret and promote spiritual/pastoral care.
3. To honor and celebrate all practitioners of pas-toral care.
4. To express appreciation to institutions and their staff who support pastoral care ministries.
5. To publicize the work of pastoral care organiza-tions within the Commission on Ministry in Spe-cialized Settings.
6. To promote continued education for clergy, laity and institutional servants regarding the values of pastoral/spiritual care.
For more information email the Pastoral Care Week Chairperson:
Linda Walsh-Garrison at: [email protected]
Or go to the website at:
http://www.PastoralCareWeek.org
Pastoral Care Week
23rd - 29th October
Page 2 PalCare Voice
Diversity of our population Dr Megan Evans from Refugee Health gave a very interesting overview of refugees who have settled in Australia, the challenges refugee health can pose to health professionals, and how these challenges can impact on the quality of care given to refugee groups.
The Ian Maddocks lecture The 2011 lecture was given by Claudia Giugni, manager of the National Standards Assessment Program (NSAP), and provided an analysis of the data collected through NSAP and the opportunities this provides for understanding the needs of the sector to enact improvements in care for patients, their families and carers.
Poster Perfect There were over 150 poster presentations on display at Diversity 2011 which gave the judges a hard time in pick-ing a winner.
Pre‐conference Day The pre‐conference day workshops and seminars were extremely popular and completely booked out.
The voice of palliative care Perhaps the most moving presentations at the conference were heard during the ’our stories - interviews from the palliative care sector’ sessions.
Helen Smith (left) is interviewed by Jean Kitson, MC for the Conference
Special thanks to members of the executive, scientific and host state committees.
The full report can be downloaded from the PCA website http://www.palliativecare.org.au and go to the tab under ‘Publications’.
Opening and Closing Ceremonies The Parramatta State School gave two wonderful performances, letting us experience traditional Indigenous and the Torres Strait Islander music and dancing.
Opening Ceremony
International Speakers We were fortunate to be joined by two excellent international speakers in Cairns: Professor Lukas Radbruch, Chair of Palliative Medicine at the University of Bonn, and Dr Philip Larkin, Associate Professor of Clinical Nursing (palliative care) at the University College Dublin and Our Lady’s Hospice, Ireland.
Discussing the key issues in palliative care - highlights Pain Management In a lively debate, Dr Roger Goucke, Professor Lukas Radbruch, Dr Philip Larkin and Professor Janet Hardy exchanged views on approaches to pain management and opioid use.
Controversies at the end of life What do an intensive care specialist, health economist, lawyer and palliative care physician have in common? Well… not very much as it turned out during our final session debate!
Do we help people to live until they die? This was the question posed by Deidre Morgan in her plenary, which was one of the conference highlights.
Diversity of our population Dr Megan Evans from Refugee Health gave a very interesting overview of refugees who have settled in Australia, the challenges refugee health can pose to health professionals, and how these challenges can impact on the quality of care given to refugee groups.
PalCare Voice Page 3
Conference Overview - from the special edition PCA e-bulletin
Page 4 PalCare Voice
Diversity 2011: Participant Reports
Judy Miatke - Bendigo Palliative Care Service
THE CONFERENCE
A range of international and national guest speakers presented papers, research results and ‘speed talks’. In addition, many DVDs were offered. I received DVDs – ‘By your side’, set in a hospice and ‘The patient’s choice’, relating to advanced care plan‐ning. Many workshops ran throughout the day. I attended Music Therapy, Clinical Skills, Carers/Volunteers, Mental Health, Law, Advanced Care Planning, Education Challenges and End of Life panels. The Syringe Driver Workshop included infusion management, community vs. in-patient options, issues with GPs and conversion charts. A discussion relating to compassion posed many interesting questions: How do we deal with it? Have we lost compassion in symptom management? Is compassion just being there and listening - and not 'doing'? Does compassion ask us to 'go where it hurts' - to share in the brokenness, the fear, confusion and anguish? Some of the other interesting sessions included:
Difficulties with pain in the elderly / dementia patients - barriers such as lack of knowledge and time restraints, non-compliance and poly-pharmacy . 60% of patients dying in a nursing home experience distress from pain or shortness of breath. If pain is identified easily it is normally a mild pain. If it is hard to identify it is often a severe pain. Patients with se-vere dementia often receive less analgesics. The nurse normally initiates all options for the patient. Law at the end of life Legal liability in palliative care, intention of treatments, push for advanced care planning. Where is a good place to die? 70% of Australians want to die at home ; 70% of Australians die in institutions. Decisions about allowing someone to die and not use CPR or futile medical treatments when death is inevitable. Breast and genital lymphodema Treatments highlighted the need to be creative, innovative and improve quality of life. Psychological support as a priority. Challenges of Education Does online learning work when a link to a clinical learning environment is becoming more impor-tant? A model involving mentoring and coaching could be more appropriate. European Palliative Care A basic standard is being developed as care varies greatly from region to region. Also mentioned that narcotic legislation is much tighter therefore it is difficult to access physicians with expertise in prescribing opioids.
Throughout the conference there were many opportunities for networking, sharing information and exchanging ideas
POST CONFERENCE TASKS FOR OUR SERVICE
Review and update our own education files and review our resources
Regular education and review of aged care and community services
Increase care planning education and involvement with other services and agencies
Ongoing evaluation of our practices and guidelines
A poster presentation for the National Conference 2013
Provide an opportunity for the team to attend future conferences
Mel Livens - Sunraysia Community Palliative Care Service
I have always felt that I came to palliative care through a set of circumstances rather than a conscious decision. Although once in palliative care I embraced my role, visiting clients, their families, working with Volunteers and extended multidisciplinary groups. I embarked on a short course to gain skills/knowledge so as not to feel like a “fraud”. The years passed gathering knowledge along the way via other staff and the specialist Palliative Care Clinic held by Dr Odette Spruyt. Then the opportunity came to attend the 11th annual Palliative Care Conference – Diversity.
What a wonderful experience, both personally and professionally. To listen to the experts, their passion, knowledge and enthu-siasm, a must for everyone to attend at least once in their career.
Debates and conversations arose with vigor, faces become real, and your opinions challenged. Attending with a colleague we realized that we needed to formalise all the learning and education we do with clients and caregivers. The presentation on Car-ing Safely, an At-Home Standardised resource that supports lay carers to prepare and administer subcutaneous injection & medications was excellent. We provide extensive education to clients and carers; this formalises the process and gives continu-ity of that information.
The topics evoke conversation, debate and motivation to improve your own service and delivery, and to reflect on your own practices. The Palliative Sedation Session was interesting, emotive and informative, sparking a lot of debate in the room.
You get to see the latest and the greatest, from drug reps to books. I now have a greater understanding of the different pro-grams, who is involved and who funds them….. See you in Canberra 2013 ! ! !
PalCare Voice Page 5
Katherine Formica, Dianne Egan & Denise Gowty. Echuca Regional Health Community Palliative Care
Over three days we immersed ourselves in all aspects of palliative care from the how, when and where to die, education, na-tional standards, music therapy and beyond. We were privileged to be involved in discussions with not only Australian experts but some outstanding international speakers who are making enormous changes on how the world views palliative care. We took full advantage of the hands on learning opportunities, exciting presentations and valuable networking. It was a great chance for us to learn more and clarify our vision of our service, in particular looking at advanced care planning and end of life pathways.
We particularly enjoyed listening to Professor Lukas Radbruch, the President of the European Association of Palliative Care. He not only provided us with valuable information around patient care itself, but also gave a very human insight into his work practices and those of other European countries.
Another highlight was the heated panel discussion between the lawyer, the intensivist, the palliative care physician and the health economist. Their debate regarding end of life decisions, the withholding of treatments and procedures and the legal ramifications, ie; ‘double effect and palliative care defences’ and how this can affect staff and families.
Palliative Care Australia did an outstanding job in providing all delegates with a comprehensive and very exciting program, not to mention providing a terrific MC in Jean Kitson who entertained us all with her ever inappropriate references to death and dying, making her a perfect choice to lighten the mood after some very heavy subject matter.
To wind down after three enormous days, we took a cruise up the river to spot some crocodiles and enjoyed a day in beautiful Kuranda. We came back exhausted but inspired and invigorated to take our palliative service further and improve the quality of care we deliver.
We would like to thank the Loddon Mallee Palliative Care Consortium for the opportunity to participate in such a valuable ex-perience and our terrific community nursing service for overseeing our service whilst we were away.
We would also like to thank our NUM Denise Gowty for organising the entire venture.
Diversity 2011: Participant Reports (cont)
The nurses[HUB]news keeps you in touch with what’s hap‐pening. Find out about: Nurses in the Spotlight: Letitia Burridge Discussion Starter: Case Study Clinical Uses: Carers EBP: Clinical Trials Registries What’s new? Achieving quality in prisons and for prisoners The National End of Life Care Program (UK) has published this good practice guide for both prison staff and health and social care professionals. Nursing and Primary Care This PHCRIS infoByte provides information on the role of Australian nurses in providing PHC as part of a reformed health system. Ethical management of people with advanced chronic or terminal conditions in the final months of life The framework published by NHMRC has been designed to guide deliberations over ethical aspects of providing care at the transition phase of a patient’s journey through an
advanced chronic or terminal condition. A consumer guide is also available. National Carer Strategy The Carer Strategy responds to the needs of carers and helps to ensure they have the opportunity to take part in all aspects of society. It is now available as a PDF. Family Companion Films In these three films, families tell their stories of living with, and caring for, their life-limited or life-threatened child. They have been developed to help support parents of chil-dren who may not live to reach adulthood. The stories are told by parents, for parents. Newsletter Basics If you wish to subscribe or unsubscribe go to the website. The next edition will be sent on Wednesday 19 October 2011. To share something, email [email protected] You can view all the CareSearch promotional resources on the website and place an order by downloading an order form.
www.caresearch.com.au
Page 6 PalCare Voice
Newsletter Items
Calling for newsletter items ideas
or suggestions for the next
edition
Email Anne on
Call for Members - Compassionate Communities Network Launched
The Compassionate Communities Network aims to promote and integrate social approaches to dying, death and bereavement in the everyday life of individuals and communities by establishing and strength-ening partnerships that support community capacity building and resilience in issues surrounding dying, death and bereavement. For more information please go to the website
www.compassionatecommunities.net.au or email [email protected] or [email protected] You can also join online at: http://compassionatecommunities.net.au/
Community Palliative Care After Hours Project: Jane Auchettl
The Final Report highlighted the two main elements of the Community Palliative Care Regional Service De-
livery model which is currently being implemented across the Loddon Mallee region.
1. Education, symptom management and support processes for patients and carers through the development of the Guidelines
for Patients and Carers. These are written symptom management plans that assist patients and carers to better manage
symptoms that might occur.
2. An after hours nursing telephone triage service that provides local solutions to a complex problem through three different deliv-
ery options:
Option A A regional after hours nursing telephone triage service provider that supports several community palliative care
services.
Option B The local hospital after hours manager supports the local service
Option C The individual palliative care service or local district nursing service to provide after hours telephone triage support
to the local community.
Each service delivery option accounts for:
Local and regional Infrastructure
Local relationships with health services
Current after hours palliative care statistics
Service specific choice on operating an After Hours home visit roster
Consistency of practice and service delivery is ensured by each service through:
Implementing clinical telephone triage training
Using the Palliative Care Telephone Triage Protocols for Registered Nurses
Reporting directly to specific local or regional palliative care services
Have developed service agreements, policies and protocols.
Final Report Recommendations.
This project has demonstrated the viability of an effective, equitable after hours service for all community palliative care patients
that is sustainable and local. It is recommended that the department provides adequate funding and project management support
to enable consortia to successfully implement the community palliative care after hours regional service delivery model across all
services.
This would be achieved through:
1. Services identifying a “champion” who is provided with time release
to coordinate the implementation of the model.
2. Services increasing the emphasis on symptom management and
education of patients and carers through the Implementation of the
Guidelines for patients and carers.
3. Enabling the provision of after hours telephone triage support to be
regional and local.