pan- european network core group uni hh-ims-cko 1 eurofamcare family cargivers’ quality of life...
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Pan-EuropeanNetwork
Uni HH-IMS-CKo
1
CoreGroup
EUROFAMCAREFamily cargivers’ quality of life and experiences of support in
six European countries
Dr Barbro Krevers
Department of Health and SocietyUniversity of Linköping
Sweden
Pan-EuropeanNetwork
Uni HH-IMS-CKo
2
CoreGroup
How long have you been caring for elder?
Months
30
36 36
5248
36
0
10
20
30
40
50
60
70
80
Germany Greece Italy Poland Sweden UK
Mean Median
Pan-EuropeanNetwork
Uni HH-IMS-CKo
3
CoreGroup
Health%
6 5 5 6
16
42
79
52
311
0
10
20
30
40
50
60
70
80
90
100
Germany Greece Italy Polen Sweden UK
excellent-very good good-fair poor
Pan-EuropeanNetwork
Uni HH-IMS-CKo
4
CoreGroup
Quality of life
%
610 8 6 8 10
17
6
87
75
0
10
20
30
40
50
60
70
80
90
100
Germany Greece Italy Polen Sweden UK
very good good-neither good nor poor poor-very poor
Pan-EuropeanNetwork
Uni HH-IMS-CKo
5
CoreGroup
COPE INDEXCare o f Older People in EuropeScreening instrument to detect need in
carers of older people15 items4=Always 3=Often 2=Sometimes 1=Never
Three sub-sections:• Positive value scale 5 items• Negative impact scale 6 items• Quality of support section 4 items
Pan-EuropeanNetwork
Uni HH-IMS-CKo
6
CoreGroup
Positive value scale
• Do you feel you cope well as a caregiver?
• Do you find caregiving is worthwhile?
• Do you feel well supported by your family?
• Do you have a good relationship with the person you care for?
• Do you feel that anyone appreciates you as a caregiver?
Pan-EuropeanNetwork
Uni HH-IMS-CKo
7
CoreGroup
Negative impact scale
• Do you find caregiving too demanding? • Does caregiving cause difficulties in your
relationships with friends? • Does caregiving have a negative effect on your
physical health? • Does caregiving cause difficulties in your
relationship with your family? • Do you feel trapped in your role as a caregiver? • Does caregiving have a negative effect on your
emotional well-being?
Pan-EuropeanNetwork
Uni HH-IMS-CKo
8
CoreGroup
Positive and negative aspectsof the care giving situation
Mean
1,0
1,5
2,0
2,5
3,0
3,5
4,0
Germany Greece Italy Poland Sweden UK
Positive value Negative impact
4=Always 3=Often 2=Sometimes 1=Never
Pan-EuropeanNetwork
Uni HH-IMS-CKo
9
CoreGroup
Quality of support section
• Does caregiving cause you financial difficulties?
• Do you feel well supported by your friends and / or neighbours?
• Do you feel well supported by health and social services? (for example, public, private, voluntary)
• Overall, do you feel well supported in your role of caregiver?
Pan-EuropeanNetwork
Uni HH-IMS-CKo
10
CoreGroup
Quality of supportto the family caregiverMean
2,6
1,92,12,1
2,93,1
1,2
2,9
1,0
1,5
2,0
2,5
3,0
3,5
4,0
Financial difficulties Friend/neigboursupport
Service support Overall support
Germany Greece Italy Poland Sweden UK
4=Always 3=Often 2=Sometimes 1=Never
Pan-EuropeanNetwork
Uni HH-IMS-CKo
11
CoreGroup
Quality of supportMean
1,9
1,2
2,1
2,9
2,1
2,9
2,6
3,1
1,0
1,5
2,0
2,5
3,0
3,5
4,0
Germany Greece Italy Poland Sweden UK
Financial difficultiesFriend/neigbour supportService supportOverall support
4=Always 3=Often 2=Sometimes 1=Never
Pan-EuropeanNetwork
Uni HH-IMS-CKo
12
CoreGroup
Do you feel well supportedby your family?
%
159 10 9 12 14
33
63
0
10
20
30
40
50
60
70
80
90
100
Germany Greece Italy Poland Sweden UK
Never Sometimes Often Always
Pan-EuropeanNetwork
Uni HH-IMS-CKo
13
CoreGroup
If you were ill is there anybody who would step in to help with elder?
%
33
64
10
36
0
10
2030
40
50
60
7080
90
100
Germany Greece Italy Poland Sweden UK
Yes, I could find someone quite easily
Yes, I could find someone but with some difficulty
No
Pan-EuropeanNetwork
Uni HH-IMS-CKo
14
CoreGroup
Overall, do you feel well supported in your role of caregiver? And the distribution of:
If you were ill is there anybody who would step in to help with elder?
%
5
2429
2
1218
33
1 3 3 2
43
0
10
20
30
40
50
Never Sometimes Often Always
Polen
TotalYes, I could find someone quite easilyYes, I could find someone but with some difficultyNo
%
7
19
31
43
38
12 1319
0
10
20
30
40
50
Never Sometimes Often Always
Sweden
Pan-EuropeanNetwork
Uni HH-IMS-CKo
15
CoreGroup
If you were ill is there anybody who would step in to help with ELDER?
And the distribution of:Overall, do you feel well supported in
your role of caregiver?
0%
20%
40%
60%
80%
100%
Sweden
No
Yes, I could find someone but with some difficulty
Yes, I could find someone quite easily
0%
20%
40%
60%
80%
100%Polen
Pan-EuropeanNetwork
Uni HH-IMS-CKo
16
CoreGroup
Quality of supportMean
1,9
1,2
2,1
2,9
2,1
2,9
2,6
3,1
1,0
1,5
2,0
2,5
3,0
3,5
4,0
Germany Greece Italy Poland Sweden UK
Financial difficultiesFriend/neigbour supportService supportOverall support
4=Always 3=Often 2=Sometimes 1=Never
Pan-EuropeanNetwork
Uni HH-IMS-CKo
17
CoreGroup
Thank You!