participatory design, the "making of health", and the future of diabetes technology
DESCRIPTION
We hacked the 2014 Diabetes Technology Meeting! A presentation by John Costik, Adrien de Croy, Weston Nordgren II, The Nightscout community, and Joyce Lee, MD, MPH, Doctor as Designer. John has the video; we will embed when it's available.TRANSCRIPT
John Costik, Adrien de Croy, Weston Nordgren II, The Nightscout community, Joyce Lee, MD, MPH, Doctor as Designer
Participatory Design, the “Making” of Health,
and the Future of Diabetes Technology
Co-director-Mott Mobile
Technology for Enhancing Health
Social Media Editor, JAMA Pediatrics
Healthdesignby.us
Hard to !nd Too many
Uncertain Quality Uncertain Bene!t
Lack of link to provider Lack information on security/data
The promise of mobile health has yet to be realized
Eng DS, Lee JM. The Promise and Peril of Mobile Health Applications for Diabetes and Endocrinology. Pediatric Diabetes 2013: 14: 231–238.
@joyclee
https://medium.com/@joyclee
75% of children fail to achieve recommended
blood sugar goals in Type 1 Diabetes
Diabetes through the eyes of healthcare
But is it really their fault? Look at this series of
#design #fails
What do those buttons mean & why are they so hard to press?
Why are the menus all different and confusing? A green screen? Really?
Why does your doctor ask you to keep a paper
logbook? To practice your penmanship?
Hi-tech #dataviz in the clinic! Circles for highs, triangles for lows?
Which cord? A desktop software program? No cloud connectivity?
Really?
#waiting
#waiting
How many different data displays are there for all the different
meters/pumps?
Not so helpful? Not so Interactive? Not so useful?
Oh and the devices don’t talk to each other, so many caregivers still
use paper for communication
Don’t forget to fax BS to your MD and wait for a rotary phone call!
Kid: “Mom, what’s a fax? Is it compatible with Snapchat?”
“Design was at fault, not the operators”
-Don Norman
http://bit.ly/1xcgR4Z
http://bit.ly/1wIvdc6
75% of health care providers/systems fail to help children achieve recommended blood sugar
goals in Type 1 Diabetes
Diabetes through the eyes of a designer
Patient problems are really
design problems
Joyce Lee Medical Designer
Fix the design, and it’s no longer the
patient’s problem
Joyce Lee Medical Designer
Let patients and caregivers design, and they will
!x the problem!
The Nightscout Project
But we have to overcome the #cultureofhealthcare
which says:
“D!"#$r%&'(e)*+, & d-./0c!123n4567 a-5'8h9:;<p9=#>,?N@A'BaC*;Dt%”
“OEFG0c9=#Hf45I0h9JK8h/iELM>t-N'Br!O;>s4PQ3l%:
sRPMSd?T;0c-5U8iEV'd4JW,t9X'8eYZQ$l!VG”
“D!"#$t%& t%'()o*+,- i. c/012e3 B4 t50 d6'78r &
c69:;n< F=> t50 p?@A$nB”
Have you guys heard about the
Nightscout Project?
http://on.wsj.com/1zFbT1I
Patient as
expert maker
collaborator #thefutureofdiabetestechnology
Patient as
expert http://bit.ly/10IUyph
Patient as
maker
John Costik
Adrien de Croy
Weston Nordgren II
John Costik
Adrien de Croy
Weston Nordgren II
MD to Patient Passive Solitary
#currentdiabetestechinnovation
Patient to Patient Active
Collaborative
#futurediabetestechinnovation
THANK YOU John Costik
Adrien de Croy Weston Nordgren II
The Nightscout/#doc community David Klonoff
Twitter: @NightscoutProj
FB: CGM in the Cloud #wearenotwaiting