patient synthesis map about breast cancer screening · cancer screening process. a process map of...

1
Lorem ipsum dolor sit amet, consectetuer adipiscing elit, sed Variable me to result Variable wait REAST CANCER B doctor Screening promoted Breast Paent makes a request for screening Screening Schedule appointment Variable wait Normal result Inconclusive result Emily wants to know that her screening results didn’t “fall through the cracks” Evidence Support for Cancer Screening Screening “My primary physician encouraged me to parcipate. She wants to then go over the results in person with me." Residents call or meet with primary care provider Public awareness campaigns Conducted at Imaging Centre Some programs serve women in remote l ocaons with mobile imaging vans, bringing mammography to paents in their communies. Appointment referral Awareness Campaign In Canada, organized breast cancer screening programs are available in most provinces and territories except for Nunavut. Breast cancer screening is available for women that are at average risk and have no signs of breast cancer present. In regions of Canada where organized screening programs are not available, screening services are provided opportuniscally, by paent or physician’s request. In most jurisdicons, the regional health authority and provincial cancer agency is responsible for program administraon and coordinaon. Program follow-up with primary care provider Paent nofied by leer and contacted at an interval for next screening by mail Paent contacted by mail or phone for a second mammogram "... the technicians that did the mammograms were always very calm, assuring, competent and knowledgeable.” Schedule diagnosc mammogram Paent navigators bridge the gap in transions of care by helping paents and families understand the resources and services available to receive the care they need. Family doctors and other healthcare providers are encouraged to frame screening as a roune health pracce. "This is just a prevenve measure, it does not always mean we suspect cancer." Conducted at imaging centre Regional / L ocal Imaging Centre Paent responds when convenient to schedule Mammogram screening MENT NOTIFICATION OF RESULTS FOLLOW-UP REFERRAL Challenges and Barriers Abnormal r esult Legend Key Terms Biopsy Mammogram - Screening - Diagnosc n Paent avigator Results “The family physician is an advocate. You have the right to ask for a test. Find a doctor that will do the test that you need.” “While doctors have a responsibility to provide good care to their paents, paents also have a responsibility to follow-up on test results and be pro-acve about their health.” "They would always explain what they are doing and why, and what kind of screen shots they need to capture.” 1 1 2 3 3 2 7 “I got a phone call at work saying they had seen something and they wanted me to go for further tesng and a biopsy.” Health region follow-up for referral Primary care follow-up for referral Mammogram result Abnormal result Normal result Inconclusive result 5 6 4 2018 Canadian Partnership Against Cancer Designed for the Partnership by the OCAD U Health Design Studio A greater reducon in mortality is seen with mammography for women at average risk aged 50-74 years than among similar women 40-49. For those over 75, the benefits of screening may outweigh potenal harms, based on individual experience. Harms of overdiagnosis and unnecessary biopsy may be greater for younger women than for older women. 1 results are normal, as it offers confirmaon, and peace of mind. Paents like to get a leer when screening progr Recruitment to populaon-based am (Recommended for average risk, aged 50-74). 1. Canadian Task Force on Prevenve Health Care, (2011). Recommendaons on screening for breast cancer in average-risk women aged 40-74 years. Canadian Medical Associaon Journal, 183(17) 1991-2001. Reference: Paent nofied of their result by leer or phone, and is referred to follow-up diagnosc mammogram ADMINISTER SCREENING DIAGNOSTIC TEST ENROLMENT INTO PROGRAM Wait or delay Paent step Process step The purpose of the Breast Cancer Screening Pathway map is to illustrate today's Canadian breast screening programs, including how people experience the breast cancer screening process. A process map of the current system for breast cancer screening shows the general steps and points of communicaon of an organized screening program that a paent may experience through to follow-up for a cancer diagnosis. The stages in a screening process are described for two representaves, a rural and an urban resident. We follow Emily to a normal screening result, while Val's pathway experience follows an abnormal screening result through to a cancer diagnosis. The paent experience in these stages of the process are documented by statements from paent interviews and supported by literature. Emily is a 51 year-old rural resident, undergoing breast cancer screening for the first me. She is a high school teacher and drives 30 km to town to see her family doctor. Emily arranges her schedule to see her doctor at a convenient me, and covers as many purposes in one visit as she can. Val is a 64 year-old woman who resides in a major city, and received her bi-annual leer. She has skipped mammograms in the past, as the procedure is painful for her and she has read that they are not needed as oſten as recommended. As it has been four years since her last screen, and with concerns over her increasing age, she decides to schedule an appointment. , STAGES IN THE SCREENING PROCESS 4 Production was made possible through financial support from Health Canada Coordinaon of services and communicaon between levels of care (e.g., primary and specialized care) can improve connuity for paents and support a seamless experience from screening through to diagnosis and treatment. Primary care plays an important role in facilitang screening decisions and can empower paents to ask quesons and have control over their cancer screening. A sense of urgency from a family physician is helpful. Mulple touchpoints with providers lead to more posive health outcomes. Screening programs can proacvely remind paents and help build health literacy, through direct communicaons by mail, phone, and in-person contact. Paent navigators can assist paents between stages of the screening process. Social support from family, relaves, and friends helps sustain a posive atude toward cancer diagnosis. The removal of a ssue sample from a body for diagnosc invesgaon. An x-ray scan of the soſt ssues of the breast. A single-stage scan of the breast ssue to visualize possible pathologies indicave of cancer. Evaluaon of abnormalies detected from a screening mammogram. Addional images of the breast ssue are taken from mulple angles for a paent experiencing symptoms of breast cancer (e.g., lump). Program or clinical staff that support paents on their journey through the health care system. This may include assisng paents with understanding screening procedures and providing psychosocial support to help manage the demands of screening or diagnosis and to ensure paents receive appropriate and quality care. Normal result, no indicaon of pathology (clinically known as a ‘negave’ result). Abnormal result, possible indicaon of pathology based on screening criteria (clinically known as a ‘posive’ result). Inconclusive result, insufficient indicaon from screening to determine pathology based on criteria. Potenal for harm from radiographic screening procedures, and the discomfort or pain from tesng (e.g. mammograms). Service wait me can contribute to anxiety experienced by paents when waing for screening results. Limited access to primary care physician can prevent referral to and parcipaon in cancer screening programs. Paents may delay parcipang in cancer screening due to fear of potenal harms from the test and anxiety about receiving the result. Travel me and associated costs are issues for residents in rural or remote areas, especially given limited access to primary and specialized care in these areas. c Lorem ipsum

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Page 1: Patient synthesis map about breast cancer screening · cancer screening process. A process map of the current system for breast cancer screening shows the general steps and points

Lorem ipsum dolor sit amet, consectetuer adipiscing elit, sed

Variable time to result

Variable wait

REAST CANCERB

doctor

Screening promoted

Breast

Patient makes a request for screening

Screening

“Sc

hedu

le ap

point

ment

Variable wait

Normal result

Inconclusive result

Emily wants to know that herscreening results didn’t “fall throughthe cracks”

Evidence Support for Cancer Screening

Screening

“My primary physicianencouraged me to participate.She wants to then go over the results in person with me."

Residents call or meet with primary care provider

Public awareness campaigns

Conducted at Imaging Centre

Some programs serve women in remote locations with mobile imaging vans, bringing mammography to patients in their communities.

Appointment referral

AwarenessCampaign

In Canada, organized breast cancer screening programs are available in most provinces and territories except for Nunavut. Breast cancer screening is available for women that are at average risk and have no signs of breast cancer present. In regions of Canada where organized screening programs are not available, screening services are provided opportunistically, by patient or physician’srequest. In most jurisdictions, the regional health authority and provincial canceragency is responsible for program administration and coordination.

Program follow-up with primary care provider

Patient notified by letter and contacted at an interval for next screening by mail

Patient contacted by mail orphone for a second mammogram

"... the technicians that did the mammograms were always very calm, assuring, competent and knowledgeable.”

Schedule diagnosticmammogram

Patient navigators bridge the gap intransitions of care by helping patients and families understand the resources and services available to receive the care they need.

Family doctors and other healthcare providers are encouraged to framescreening as a routine health practice. "This is just a preventive measure, it does not always mean we suspect cancer."

Conducted at imaging centre

Regional / Local Imaging Centre

Patient responds whenconvenient to scheduleMammogram screening

MENT NOTIFICATION OF RESULTS FOLLOW-UP REFERRAL

Challenges and Barriers

Abnormal result

LegendKey TermsBiopsy

Mammogram

- Screening

- Diagnostic

nPatient

avigator

Results

“The family physician is an advocate. You have the right to ask for a test. Find a doctor that will do the test that you need.”

“While doctors have a responsibility to provide goodcare to their patients, patientsalso have a responsibility to follow-up on test results and bepro-active about their health.”

"They would always explain what they are doing and why, and what kind of screen shots they need to capture.”

1

1

2

3

3

2

7“I got a phone call at worksaying they had seen something and they wanted me to go forfurther testing and a biopsy.”

Health region follow-upfor referral

Primary care follow-upfor referral

Mammogram result

Abnormal result

Normal result

Inconclusive result

5

6

4

2018 Canadian Partnership Against CancerDesigned for the Partnership by the OCAD U Health Design Studio

A greater reduction in mortality is seen with mammography forwomen at average risk aged 50-74 years than among similar women 40-49. For those over 75, the benefits of screening may outweigh potential harms, based on individual experience. Harmsof overdiagnosis and unnecessary biopsy may be greater for younger women than for older women. 1

results are normal, as it offersconfirmation, and peace of mind.

Patients like to get a letter when

screening progrRecruitment to population-based

am (Recommended for average risk, aged 50-74).

1. Canadian Task Force on Preventive Health Care, (2011). Recommendations on screening for breast cancer in average-risk women aged 40-74 years. CanadianMedical Association Journal, 183(17) 1991-2001.

Reference:

Patient notified of their resultby letter or phone, and is referred to follow-up diagnostic mammogram

ADMINISTER SCREENING DIAGNOSTIC TESTENROLMENT INTO PROGRAM

Wait or delay

Patient step

Process step

The purpose of the Breast Cancer Screening Pathway map is to illustrate today's Canadian breast screening programs, including how people experience the breast cancer screening process. A process map of the current system for breast cancer screening shows the general steps and points of communication of an organized screening program that a patient may experience through to follow-up for a cancer diagnosis.

The stages in a screening process are described for two representatives, a rural and an urban resident. We follow Emily to a normal screening result, while Val's pathway experience follows an abnormal screening result through to a cancer diagnosis. The patient experience in these stages of the process are documented by statements from patient interviews and supported by literature.

Emily is a 51 year-old rural resident, undergoing breast cancer screening for the first time. She is a high school teacher and drives 30 km to town to see her family doctor. Emily arranges her schedule to see her doctor at a convenient time, and covers as many purposes in one visit as she can.

Val is a 64 year-old woman who resides in a major city, and received her bi-annual letter. She has skipped mammograms in the past, as the procedure is painful for her and she has read that they are not needed as often as recommended. As it has been four years since her last screen, and with concerns over her increasing age, she decides to schedule an appointment.

•• ,

““

““

STAGES IN THE SCREENING PROCESS

4

Production was made possible through �nancial support from Health Canada

Coordination of services and communication between levels of care (e.g., primary and specialized care) can improve continuity for patients and support a seamless experience from screening through to diagnosis and treatment.

Primary care plays an important role in facilitating screening decisions and can empower patients to ask questions and have control over their cancer screening. A sense of urgency from a family physician is helpful.

Multiple touchpoints with providers lead to more positive health outcomes.

Screening programs can proactively remind patients and help build health literacy, through direct communications by mail, phone, and in-person contact.

Patient navigators can assist patients between stages of the screening process.

Social support from family, relatives, and friends helps sustain a positive attitude toward cancer diagnosis.

The removal of a tissue sample from a body for diagnostic investigation.

An x-ray scan of the soft tissues of the breast.

A single-stage scan of the breast tissue to visualize possible pathologies indicative of cancer.

Evaluation of abnormalities detected from a screening mammogram. Additional images of the breast tissue are taken from multiple angles for a patient experiencing symptoms of breast cancer (e.g., lump).

Program or clinical staff that support patients on their journey through the health care system. This may include assisting patients with understanding screening procedures and providing psychosocial support to help manage the demands of screening or diagnosis and to ensure patients receive appropriate and quality care.

Normal result, no indication of pathology (clinically known as a ‘negative’ result).Abnormal result, possible indication of pathology based on screening criteria (clinically known as a ‘positive’ result).Inconclusive result, insufficient indication from screening to determine pathology based on criteria.

Potential for harm from radiographic screening procedures, and thediscomfort or pain from testing (e.g. mammograms).

Service wait time can contribute to anxiety experienced by patientswhen waiting for screening results.

Limited access to primary care physician can prevent referral to andparticipation in cancer screening programs.

Patients may delay participating in cancer screening due to fear of potential harms from the test and anxiety about receiving the result.

Travel time and associated costs are issues for residents in rural orremote areas, especially given limited access to primary and specializedcare in these areas.

cLorem ipsum