In this issue

Policy update 3

News 4

Employment 8

Member updates 9

NSAP update 10

Sector News 11

Conferences and events 13

Have a story? Email

Claire@pallia vecare.org.au

July 2010

Recogni on of pallia ve care on interna onal stage

Pallia ve care has for the first me been accepted as an integral component of health systems worldwide following the adop on of a ground breaking resolu on by the Execu ve Board of the World Health Assembly (WHA).

The Execu ve Board met in Geneva to consider a report by the World Health Organiza on (WHO) secretariat before adop ng the resolu on: ‘Strengthening of pallia ve care as a component of integrated treatment within the con nuum of care’ – the first resolu on on pallia ve care that has ever been considered at this level.

The resolu on urges countries to integrate pallia ve care into healthcare systems, to embed pallia ve care into the basic and con nuing educa on and training curricula for all health workers, and to ensure that relevant medicines, including strong pain medicines, are available to pa ents.

From the President If you are anything like me January 1 already feels like a life me away, but nonetheless I would like to take this opportunity to wish you all a happy New Year and I hope you had a res ul break over the Christmas period. The New Year has really started with a bang for the pallia ve care sector, with the fantas c news that a resolu on on pallia ve care has been adopted by the Execu ve Board of the World Health Assembly. Along with the publica on of the Global Atlas on Pallia ve Care at the End of Life, this gives greater recogni on to pallia ve care on an interna onal level and confirms it as the essen al health service we know it is. At PCA, we’ve already wri en three submissions to the government on various policy issues and held a two day Board mee ng in January – the frene c start to the year is a sure sign of things to come as we have an extremely busy, but exci ng 12 months ahead. Some of the priori es we have for this year include the comple on of the review of the Standards for Providing Quality Care at the End of Life for all

(read more on page 2)

Australians, the 2014 Na onal Pallia ve Care Week campaign, a new brand for Pallia ve Care Australia and the launch of the Specialist Pallia ve Care and Advance Care Planning Advisory Services project. You’ll be hearing all about these projects and much more as we move through the year. It will also be a busy me for our member organisa ons, with the majority of them holding local pallia ve care conferences this year. There are also a number of State elec ons scheduled during which we hope to see pallia ve care issues addressed. I’d like to finish by paying tribute to Professor Ian Maddocks for his tenure as Senior Australian of the Year. Ian really helped to raise awareness of pallia ve care issues throughout 2013 and was extremely generous with his me in suppor ng PCA events. We hope to carry on the momentum he set and look forward to a successful year for pallia ve care. Welcome to 2014 Professor Patsy Yates President

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: pcainc@palliativecare.org.au w: www.palliativecare.org.au

PCA e‐bulle n January 2014

When visi ng government officials to make the case for hospice and pallia ve care programs and services.

When advoca ng for expansion of programs and services.

To bring a en on and understanding to the work that you do in hospice and pallia ve care.

To jus fy grants and applica ons specific to hospice and pallia ve care.

To support pallia ve care educa on and training for all health professionals.

To help you in developing your key messages. The WPCA website also has a range of promo onal materials that PCA helped develop, including promo onal flyers, a template media release and a communica ons toolkit with sample social media messages and key sta s cs. The Global Atlas of Pallia ve Care at the End of Life, quick stats:

Over 40 million pa ents each year need pallia ve care, including 20 million at the end of life.

Less than 10% of people receive pallia ve care rela ve to the need.

Children represent 6% of the need. 69% of people requiring pallia ve care are aged

over 60 years The unmet need for pallia ve care is greatest in

low and middle‐income countries (80%). Those dying from non‐communicable diseases

represent 90% of the burden of end of life pallia ve care.

Only 20 countries have pallia ve care well integrated into their healthcare systems.

42% of countries have no iden fied hospice and pallia ve care service.

The Australian Government played a leading role in bringing this issue to the WHA and was one of the co‐sponsors of the resolu on. It will now be recommended that the 67th World Health Assembly adopts a resolu on on the subject in May 2014. This is a hugely significant event for pallia ve care advocates across the world and is recogni on of the growing importance of this essen al health service. New data on the need for pallia ve care Following the mee ng of the WHA Execu ve Board, the World Health Organiza on and the Worldwide Pallia ve Care Alliance published the Global Atlas of Pallia ve Care at the End of Life. The Atlas is the first ever document to map the need for, and availability of, pallia ve care globally and es mates that every year over 20 million pa ents need pallia ve care at the end of life. This figure rises to at least 40 million if those who could benefit from pallia ve care at an earlier stage of their diagnosis are included. If family members and carers are also taken into considera on, the actual need could double or even triple. The report shows that the Western Pacific Region, of which Australia is part, has the highest distribu on of adults needing pallia ve care. The Region also has the highest percentage of adults (41.5%) and children (14%) in need of pallia ve care for a cancer diagnosis, however the greatest need for pallia ve care overall is for those with progressive chronic illnesses. In Australia we know that we have a dispropor onately high level of access to pallia ve care for those with cancer and it is vital that we are suppor ng people with a variety of diseases, such as heart disease and demen a. Advocacy The Atlas is an important tool to support advocacy for be er pallia ve care services. It demonstrates the World Health Organiza on’s recogni on of, and commitment to, pallia ve care and also provides data about the availability of pallia ve care services. PCA will be able to use the Atlas to encourage the inclusion of pallia ve care in Australian health and aged care policy, but all pallia ve care supporters can use the Atlas to advocate for pallia ve care. Here are some ideas about how you can use the informa on:

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: pcainc@palliativecare.org.au w: www.palliativecare.org.au

Policy update Submission to the Department of Health on the Review of Medicare Local Review Pallia ve care is delivered across a broad range of se ngs including hospitals, hospices, aged care facili es, in the community and in people’s own home. Whilst delivery of complex pallia ve care is best managed by specialist teams, the majority is managed by health professionals delivering generalist pallia ve care. This is especially true of the primary care workforce. All people diagnosed with a life limi ng illness, as an absolute minimum, require access to primary care providers that have knowledge and skills in the care of people with a terminal illness. Medicare Locals provide an important opportunity – and challenge – to be er integrate pallia ve care within the broad health system and thus limit the current barriers to the provision of seamless, quality care for people nearing the end of their life. In its submission, PCA has recommended that the Strategic Objec ves for Medicare Locals should include addi onal points rela ng to pallia ve care, such as the need to include pallia ve care in each Health Communi es Report and to provide educa on about pallia ve care to primary health professionals. For more informa on and to read PCA’s full submission, click here. Submission to the Na onal Commission of Audit PCA recognises the value of the Na onal Commission of Audit in seeking to ensure efficiency in Government opera ons and expenditure, guided by principles which respect the input of all Australians. In response to the Terms of Reference, PCA emphasised the fiscal, individual, system and workforce benefits of priori sing pallia ve care in the Australian health and social care systems. The evidence that a greater emphasis on pallia ve care, delivered by both specialist and generalist health professionals, will reduce unnecessary hospital admissions and diminish financial waste in unnecessary treatment and inves ga ons is strong. However, a thorough economic inquiry conducted by the Produc vity Commission would provide greater local evidence and poten al mechanisms to ensure

that pallia ve care is recognised as an integral component of the Australian health system. The benefits of pallia ve care to those with a terminal illness and their loved ones are myriad and well established. We now need to ensure that the economic benefits are reinforced to generate systemic savings and improvements. To read PCA’s full submission, click here. Pre‐Budget Submission PCA has outlined 10 steps to Budget savings through pallia ve care it its submission to the Treasurer, calling on the Government priori se ac on on pallia ve care and to make it core business in Australia’s health and aged care policy. Among its recommenda ons, our submission calls for government to: Develop a Pallia ve Care Workforce Strategy,

which embeds pallia ve care into the educa on and training of all health professionals across their careers.

Fund Medicare Locals to assist in planning pallia ve care services to meet local needs.

Develop and implement na onally consistent advance care planning legisla on.

Expand the Na onal Disability Insurance Scheme to include pallia ve care.

Priori se pallia ve care research. Fund a na onal 1800 telephone and

informa on service to provide pallia ve care advice and support for pa ents, families and carers.

Fund in‐home respite care for people receiving pallia ve care at home.

As with the submission to the Na onal Commission of Audit, PCA again called for called for a Produc vity Commission Inquiry to undertake local economic analysis of savings achieved through pallia ve care services.

We also highlighted the need to renew funding for exis ng Na onal Pallia ve Care Programs, which are subject to renego a on from July this year. To read the Budget submission, click here.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: pcainc@palliativecare.org.au w: www.palliativecare.org.au

News Health Professional Survey Clinical perspec ves on cancer‐related fa gue Are you a medical, nursing or allied health professional who sees pa ents with a cancer diagnosis in any se ng? We are trying to establish how cancer‐related fa gue is currently managed in Australia and invite your par cipa on in a short research survey that takes 15‐20 minutes to complete. Even if you do not directly work in this area, you are welcome to take part. If you are a health professional and have prac sed within the past 12 months, you are eligible to par cipate. The first 100 responders may register for a chance to receive a cinema pass as a ‘thank you’ gi . Please copy the link below then paste it into your browser. This will not track any iden fying informa on. h ps://latrobe.co1.qualtrics.com/SE/?SID=SV_cZJVHaT5CLxkEJf Evalua on of the Lead Clinicians Group Ini a ve As we have previously reported in the ebulle n, Health Outcomes Interna onal is undertaking the Process and Outcomes Evalua on of the Lead Clinicians Group (LCG) Ini a ve on behalf of the Department of Health. HOI has completed a baseline analysis and is now conduc ng Phase 1 of an impact analysis. They are once again seeking the input of clinicians and others in the health sector. An online survey is now available here. The three (3) LCG Ini a ve strategies are: The Na onal Lead Clinicians Group, to promote

improved clinical engagement. A Na onal Clinicians Network (NCN), to

promote clinical leadership and engagement through forums.

Providing funds to the Australian Medicare Local Alliance to work with Medicare Locals to improve clinical leadership and engagement at the local level.

For further informa on about the LCG Ini a ve please click here. For further informa on about the Evalua on please click here.

Around Australia Queensland St Stephen’s Hospital is in discussion with Queensland Health to turn the Maryborough facility into a pallia ve and transi onal care centre.

The centre will close its doors in September this year following the opening of the $87.5 million Hervey Bay Hospital just 40km away, but could reopen as a repurposed pallia ve care unit.

There is s ll a considerable way to go in terms of securing government grants for the facility to go ahead.

Tasmania The Tasmanian Liberals have promised $100,000 to The Friends of Northern Hospice (FNH) to undertake an independent feasibility study for a new hospice in Launceston.

Mr Michael Ferguson MP released a statement saying they will commit the funding if elected on March 15. He also commi ed to upda ng the 2004 Pallia ve Care Report, which will look at the current unmet and future for pallia ve care in the area. South Australia South Australian State Liberal Leader Steven Marshall has announced that if his party wins in the March elec on, his government will commit to building a designated pallia ve care facility in Port Pirie.

Mr Marshall has pledged $250,000 to refit and refurbish a new facility at the Port Pirie Regional Health Service, if elected, and a suitable area for a pallia ve care unit has been iden fied within the main hospital building at the end of a ward, which has previously been used for physiotherapy.

Chronic diseases the largest cause of death for older Australians A report from the Australian Ins tute of Health and Welfare (AIHW) shows that chronic diseases, such as demen a, cancer, heart disease and chronic obstruc ve pulmonary disease, are responsible for the majority of deaths for those aged over 45. The AIHW Deaths snapshot shows that in 2012 there were 147,098 deaths registered in Australia. There has been a con nuing decline in the number of registered deaths every year since 1907, falling 70 per cent for males and 75 per cent for females.

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Most of the deaths recorded occurred among people aged 75 or over (66%).

This is further evidence of the need to promote the benefits of pallia ve care for people with a variety of diseases. Heart disease is the leading cause of death in Australia (30%) yet accounts for only 14.6% of pallia ve care admissions to hospital. Demen a is the third leading cause of death but represented a ny 0.4% of pallia ve care admissions according to the latest AIHW data. Interna onal Human Rights Watch Report Pallia ve care and access to pain medica ons featured in the latest World Report by Human Rights Watch. The World Report is a review of human rights prac ces throughout the world and further cements pallia ve care as a human right. The World Report provides examples of human rights issues related to pallia ve care. The Russian trial of Dr Ale ina Khorinyak for prescribing pain medica on to a man dying of cancer, and the Indian government’s failure to review obstruc ve opioid policy are two high profile examples included in the document. The report heavily cri cises the ‘War on drugs’ approach adopted by many countries in the efforts to control illicit substances, and states that: “(Governments) should ensure that anyone with a legi mate medical need for controlled medica ons like morphine or methadone has access to them.” The sec ons on Guatemala, Mexico, Armenia and Ukraine all include references to pallia ve care and access to pain medica ons. Download the report from the Human Rights Watch website.

In the media A sample of pallia ve care stories making the headlines this month: A study led by Professor Colleen Cartwright from Southern Cross University has found that many doctors are confused about the legality of advance care direc ves and the authority of subs tute decision makers. Linked to this story, Doctors groups have called for urgent investment in training and incen ves to address significant concerns over doctors’ poor

knowledge of advance care planning. Dr Yvonne Luxford, CEO of Pallia ve Care Australia, said ongoing educa on in this area should be compulsory for all healthcare professionals and backed the AMA’s recommenda ons for financial incen ves to support this as a priority area for GPs. Dr Luxford also said moving to consistent laws and terminology between states and territories would go some way to reducing the confusion and uncertainty about the legality of advance care plans among medical professionals. Read more in Australian Ageing Agenda.

A La Trobe University pilot study on the views of

elderly regional Australians of personally controlled

electronic health records showed that most senior

Australians are willing to grant their GP, specialists,

hospital medical staff and emergency workers full

access to their electronic health record but are not

inclined to do so for other health professionals or

carers.

Educa on is therefore needed about the importance

of all health professionals having a full picture of a

pa ent’s health, says a co‐author of the paper, which

was recently published in the Interna onal Journal of

Medical Informa cs.

Seven of the na on’s leading health advocates and

thinkers were asked to iden fy the five most pressing

health priori es in 2014 in Australian Medicine.

Some highlighted the need to fix personally controlled electronic health records, inves ng in research, demen a and closing the gap on Indigenous health while others acknowledged that end of life care was a key priority for all Australians. Mar n Laverty, Chief Execu ve Officer, Catholic Health Australia— ‘End of life care needs the en re community’s a en on. Health professionals and health consumers need to give new considera on to talking about, determining, and then implemen ng future care plans. Pastoral care for those in the final stages of life, indeed for any person dealing with significant illness, needs eleva on as a priority for health and aged care providers.’

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Dr Brian Morton, Chair, AMA Council of General Prac ce— ‘End of life care – There is an expecta on that modern medical technology and care will extend life, but at what cost to the quality of life? The prepara on of an Advanced Care Direc ve when competent will bridge this gap.’ Pallia ve Care Victoria Chair Michael Bramwell was interviewed on SBS Radio News in late January, where he addressed some common myths about pallia ve care and promoted the upcoming community educa on sessions for PCV’s Culturally Responsive Pallia ve Care Project . Listen to the interview here and head to PCV’s Member’s sec on for more informa on on the Project. Laureate Professor Robert Sanson‐Fisher’s opinion piece in The Herald argues that death needs a plan similar to childbirth. He say that we could learn lessons from preparing for an impending birth and that planning for the other end of life’s con nuum can make a crucial difference to the quality of death. People who receive end of life care consistent with their own preferences are said to experience higher quality of life, and lower physical and psychological distress. ehospice In 2014 we’re dedica ng each month to a specific topic that encapsulates the various elements that exist under the banner of pallia ve care: grief and bereavement, business, consumers, workforce, drugs and pain, just to name a few.

Throughout the month of January, ehospice Australia has been focussing on educa on and standards. All month we’ve addressed various topics such as pallia ve care post graduate op ons for healthcare professionals, new educa on resources, how to write conference abstracts and the importance of competency standards for nurses. For a complete list or more informa on, visit the educa on page on ehospice. February is Grief and Bereavement Month. Already it’s looking to be full of some fantas c and inspiring stories, useful informa on and interes ng ar cles. If you’ve got something that you think would work well on ehospice, please don’t hesitate to call Ross Murray on (02) 6163 8404 or email ross@pallia vecare.org.au to have a chat and see how we can help you get your message out there.

Our Health PCA has worked with the Consumers Health Forum on the OurHealth Project. The project seeks to discover and share the stories of healthcare consumers and use this informa on to improve healthcare in Australia. This is Nicole’s Story. I only have 38 summers to enjoy before I die. The smell of cut grass, ocean breezes on my face, cicadas, summer storms and the sense of new “life”. Perhaps 38 sounds like a lot, but I have only had 36 summers. I am nearly half way through my life. Other people my age have 48, but living with Mul ple Sclerosis means I will enjoy 10 less summers.

I also have a 3 year old. I am a mother and a father to him. He’s amazing. I hope I live long enough and healthy enough to watch him become a man. To teach him to drive, show him the world, watch him get married, become a father himself. But I realise that may not be.

I am also a daughter. My parents are the most loving, gentle, kind and pa ent people I have ever met. They are my inspira on, my mentors and my rock. Without them, I would not have the courage or gump on to face my adversity. They encourage me to excel, be posi ve and make a difference.

We all live together in a three genera on household. We all draw strength from each other. We all raise my child together. We have to, I’m dying, and perhaps sooner than my 38 summers. We’ve had the death talk. We had to.

By all means, I am not an expert on death, I have never died, so how could I be? But I am a Registered Nurse, and have prac ced nursing for nearly two decades, and performed A LOT of pallia ve care counselling and been privileged to be with many people as they passed on to the “Eternal Care Unit”. And the one thing that always astounds me, is our western percep on of death and the taboo nature of it in regards to even talking about death.

There’s the myth that talking about death gets you there quicker, when in fact talking about death gets you there be er.

I wish I lived in a La n American country, where death is not taboo, not hidden and not feared. In many La n American cultures death is embraced, talked about and is front and centre of discussions,

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even joked about, well before the event. It would make my job a whole lot easier. It’s an awkward conversa on to have at 2am, as someone is dying, to ask them what their wishes are. Buried? Cremated? Priest? Celebrant? Church? Grave? Eulogy? Per nent ques ons that need not be le to the last minute.

Nicole and her son.

Most surveys conducted globally conclude the same outcome; people want to die at home. So why do only 16% of people die at home? 84% don’t. They die in the hospital, a hospice or nursing home. So what’s with the 84%? It’s not all about death. Do you value quality of life? Or life above all else? What about CPR? Ven la on? Pain relief? Have you thought about it? What do you want? What’s your choice? There is a document available to all called an Advance Health Care Direc ve. I believe it is one of the most amazing documents ever produced. Not just for death, but for life. It forces the conversa on, and allows ALL your wishes to come true. Yes, that’s right. You are in charge of all your health decisions, not just death. BUT you have to have the talk, an open and transparent conversa on with a person or persons who you entrust to follow your direc ons. Every competent Queensland adult has the right to accept or refuse any health care recommenda ons. It’s legislated. It’s your right. A simple piece of paper that allows YOU to legally state YOUR direc ons, for YOUR health care, for YOUR medical situa on when YOU can’t voice YOUR wishes. Simple. Free.

It is not a euthanasia document, it is a document designed to empower you. It is certainly not able to address each and every possible scenario. That’s for your discussion with whomever you assign Enduring Power of A orney to. But the Advance Health Care Direc ve opens the dialogue for you to discuss your terminal, incurable, irreversible, permanent unconsciousness (coma), persistent vegeta ve state and pallia ve care wishes and ideology. Your decision maker, your Enduring Power of A orney is then able to make decisions in regards to cardiopulmonary resuscita on, assisted ven la on or ar ficial feeding and hydra on based on YOUR wishes. It is all about YOU. In regards to me, I have had the discussion with my wonderful and magnificent parents who have my Enduring Power of A orney. I hope that they never have to make decisions on my behalf. But if they do, they know what I want, what we want, what’s best for me, my son and them.

So perhaps I live in a La n American style house… Hopefully I will see out my 38 summers, perhaps I won’t. But in having the “death” discussion with my parents, I breathe a sigh of relief. My plans and wishes will be followed. Understandably, no parent wants to bury their child, but my gi to my parents will be: that decisions will be made easier for them. I gi to them no guilt or hesitancy. I gi to them peace of mind. I gi to them love. If you love your loved ones, I encourage you to accept your legisla ve right to Advance Health Care Planning and fill out the form. Have the talk. And gi them this simple gi . Talking about death won’t get you there quicker, talking about death gets you there be er. To view more pallia ve care stories visit the Our

Health website.

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Employment Na onal Policy Manager Pallia ve Care Australia Who are we? Our vision at Pallia ve Care Australia is simple – to ensure quality care at the end of life for all Australians. We’re a small not for profit organisa on that represents a sector defined by its passion and dedica on to helping the most vulnerable in our society. We work each day with our commi ed members to foster, influence and promote our vision. Why would you want to work for us? We’re a small team of talented, driven people who work to make a difference. We work hard, but provide a flexible and suppor ve environment with generous leave and salary packaging arrangements. We truly believe we are working in most the fascina ng sector on the most topical health issues. This is an exci ng me for pallia ve care and for you to make your mark. If working at the cu ng edge of health reforms in a collabora ve manner across the country, and indeed the world, does not catch your a en on you should probably stop reading now… Who do we need? The short answer: a Na onal Policy Manager to work at our office in Canberra. The real answer: someone who will produce quality policy material (and lots of it), can represent our organisa on to key stakeholders and effect changes in a policy environment. We want someone who can hit the ground running and leave us wondering how we ever managed without you. What will you do? You will do far more than we could possibly list here, but think developing and implemen ng evidence based policies; consul ng and liaising with a host of stakeholders; engaging with government agencies; managing na onal projects; reading, wri ng, researching and analysis; and being the font of policy knowledge and support for our members.

Who are you? Number one you are passionate about all things health, policy, advocacy and government. You understand the not for profit environment and are not put off by limited resources or pitching in and ge ng your hands dirty when needed. You enjoy a challenge and want to make a difference to the Australian community. You’ll be able to demonstrate your skills and experience in health policy, working collabora vely, research and analysis, poli cal processes and ge ng results. S ll interested? Send a copy of your resume and 100 word descrip on of who you are to: Dr Yvonne Luxford, CEO, Pallia ve Care Australia Yvonne@pallia vecare.org.au Please direct any ques ons about the posi on to Jessica Traficante: Jessica@pallia vecare.org.au 02 6232 4433 Applica ons close Friday 7 February 2014.

Adver se your posi on here We can help you adver se you employment opportuni es through the PCA ebulle n, PCA website and ehospice. Contact pcainc@pallia vecare.org.au f or call (02) 6232 4433 or more details.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: pcainc@palliativecare.org.au w: www.palliativecare.org.au

Pallia ve Care Council South Australia Pallia ve care—a cri cal elec on issue In South Australia we have programs for the preven on, early detec on and high quality treatments for illness and disease, but for those people whom these programs fail, we must improve the availability of high quality pallia ve care.

12,669 South Australians died in 2011, yet only a third of these people were able to access pallia ve care. South Australia must do be er, we can do be er.

PCCSA exists to advocate for the acceptance of pallia ve care as a bona fide treatment op on. We believe in the right of people to know accurately and honestly what is happening to them so they can choose how they want to spend the remaining amount of me in the most purposeful and meaningful ways.

We aspire to helping make pallia ve care available to support all South Australians to live well un l they die regardless of loca on, age, income, diagnosis or prognosis, social or cultural background but we remain a long way from achieving this goal. We’re asking the next South Australian Government to ensure pallia ve care is priori sed to address the now burgeoning demand for pallia ve care.

Our elec on statement sets out what we believe needs to be done to ensure that any person can receive pallia ve care which enhances their quality of life un l the moment of death and if possible, in the place of their choosing.

We are seeking your views. Use this link to tell us how you will know that the people caring for you at the end of life have your interests, comfort and dignity in mind. What are your priori es for end of life care in South Australia to assure all South Australians facing death and bereavement are cared for in a manner that respects their dignity and worth right up un l they die. Read the PCCSA Elec on Pla orm here.

Pallia ve Care WA Strategic Plan The PCWA Strategic Plan for 2013‐2016 is now on our website. The plan outlines PCWA's revised vision, mission, values and objec ves and our strategic priori es for 2013‐2016: Raise the profile of pallia ve care and advance

care planning Increase community understanding of pallia ve

care Build capacity across the pallia ve care sector Improve access to culturally responsive

pallia ve care for Aboriginal people and Culturally and Linguis cally Diverse (CALD) communi es.

Two of the projects we will commence in the New Year to achieve these priori es are a review and reprint of 'Pallia ve Caring at Home' and development of an advance care planning workshop for people in the community. If you are interested in working with us on these projects please let us know: pcwainc@pallia vecarewa.asn.au Pallia ve Care Victoria Culturally Responsive Pallia ve Care Project The Culturally Responsive Pallia ve Care Project will deliver community educa on sessions to the Chinese, Italian, Maltese, Turkish and Vietnamese communi es in Melbourne. This follows valuable consulta ons with community reference groups which have also contributed to the development of educa on resources. An ini a ve of Pallia ve Care Victoria, the Project is being delivered in partnership with the Ethnic Communi es’ Council of Victoria (ECCV) and the Mul cultural Centre for Women’s Health (MCWH). It will improve awareness and access to culturally inclusive and responsive pallia ve care services for people from culturally and linguis cally diverse backgrounds.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: pcainc@palliativecare.org.au w: www.palliativecare.org.au

PCA member organisa on updates Palliative Care Australia’s membership comprises the eight state and territory palliative care organisations and the Australian and New Zealand Society of Palliative Medicine. These organisations created and share the vision, mission and aims of Palliative Care Australia and operate through a federated governance structure.

PCV ini ated the project a er research showed low levels of use of pallia ve care services by older people in these communi es compared to other Victorians. The Mul cultural Centre for Women’s Health (MCWH) has used the community feedback to develop culturally appropriate training resources which will enable a team of bilingual health educators to engage with the respec ve communi es sensi vely and effec vely. ECCV has contracted MCWH to recruit the educators and conduct training sessions in early 2014. It is an cipated that educators will deliver 70 to 90 in‐language culturally specific community educa on sessions in the first half of 2014. The Culturally Responsive Pallia ve Care Project was launched in August 2013 by the Minister for Health David Davis. In addi on to funding from the Department of Health, the project has also received funding from the Lord Mayor’s Charitable Fund and The Trust Company. Five communi es have been selected for the first year of the project – Chinese, Italian, Maltese Turkish and Vietnamese – and an addi onal five will be selected for the second year 2014‐2015. Concurrent to community educa on, Pallia ve Care Victoria is implemen ng a project to build the capacity of pallia ve care service providers to provide more inclusive and culturally responsive services. For more informa on about the Culturally Responsive Pallia ve Care Project, or to register your interest in the community educa on sessions, please contact: Ethnic Communi es’ Council of Victoria – Ca a Nunes

(03) 9349 4122 or 0447 650 778

Tasmanian Associa on for Hospice &Pallia ve Care Reloca on of the Whi le Ward? TAHPC is busy advoca ng for the needs and rights of pa ents and families following a decision to relocate Hobart’s Whi le Ward pallia ve care unit whilst the Royal Hobart Hospital is redeveloped. It is es mated the ward will be relocated for 2.5 years and the new des na on has not yet been decided. TAHPC is very concerned about the lack of consulta on over this decision and the effect it may have on staff, pa ents and families. They have wri en to the State Government to voice their concerns over the move.

Na onal Standards Assessment Program Linking Standards A new document has been developed by the Australian Council on Healthcare Standards which demonstrates how the ACHS EQuIP Na onal Standards 11 to 15 and the Standards for Providing Quality Pallia ve Care for all Australians are linked. This document is specifically relevant for services using the ACHS EQuIP Na onal Standards and will assist them with working towards both sets of Standards. The document will be included in the self assessment resources for Services par cipa ng in NSAP. For a copy please contact the NSAP team. The linkage document for ACHS EQuIP5 and the

Standards for Providing Quality Pallia ve Care for all

Australians will s ll be included in the resources for

Community Services using EQuIP5.

Sector News European Journal of Pallia ve Care Pallia ve Care Policy Development Award Do you know someone who has made a major contribu on to pallia ve care policy development? Do you think they deserve to have their contribu on recognised by their peers? Would you like to nominate them for the inaugural Pallia ve Care Policy Development Award? The Pallia ve Care Policy Development Award, launched by the European Journal of Pallia ve Care (EJPC) in collabora on with the European Associa on for Pallia ve Care (EAPC), is aimed at professionals working in pallia ve care worldwide who have made a substan al contribu on to policy development through research, clinical prac ce or as policy ac vists. Nominated individuals will be judged by a panel of EJPC Editorial Advisory Board members, chaired by EJPC Editor Dr Julia Riley, based on:

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: pcainc@palliativecare.org.au w: www.palliativecare.org.au

The PaCCSC Forum is a wonderful chance to network with like‐minded professionals, learn about new studies and discover what PaCCSC has achieved in the past 12 months. More informa on including registra on forms will be circulated to our members soon. A endance on Thursday, March 20 is free to PaCCSC Members! It is free to join the PaCCSC Membership—for further informa on or to obtain a membership form visit our website at www.caresearch.com.au/paccsc or email us at paccsc@flinders.edu.au

Australian Centre for Grief and Bereavement Educa on Program and Services Guide The Educa on Programs and Services Guide 2014 is a 38 page document that contains detailed informa on, program outlines and learning objec ves for all of the Australian Centre for Grief and Bereavement workshops, courses and special events in 2014, including informa on on: The Australian Grief and Bereavement

Conference 2014 Workshop opportuni es in Melbourne, Sydney,

Brisbane, Adelaide & Perth Intake informa on for ACGB Courses

Download the Programs & Services Guide 2014

Registra ons are now open for the 2014 Educa on program. For further informa on and enquiries, please contact the Centre on (03) 9265 2100 or email educa on@grief.org.au Cultural Diversity In Ageing Conference 2014 Shaping Inclusive Services The Centre for Cultural Diversity in Ageing welcomes the submission of abstracts for both oral and poster presenta ons for the Cultural Diversity in Ageing 2014 Conference to be held on 12‐13 June 2014 in Melbourne. The Cultural Diversity in Ageing Conference provides a forum for service providers to gain insight and inspira on in their pursuit of excellence in mee ng

The degree of their involvement in the policy development

The mul disciplinary nature of the policy The impact of the policy on pa ent and family

care The Pallia ve Care Policy Development Award 2014 will be presented at the 8th World Research Congress of the EAPC in Lleida, Spain (5–7 June 2014). The deadline for applica ons is 20 March 2014. Please nominate the person of your choice using the online form available from the EJPC website.

CareSearch New PubMed searches make finding bereavement literature easy A new Bereavement Search Filter for use in PubMed, the free online version of Medline, makes finding the relevant literature and evidence easy. The Bereavement Search Filter has been combined with 21 topic searches dealing with important aspects of bereavement care such as therapies or assessment, and bereavement in specific popula on groups. RAC Hub Research page Research has an important role in aged care facili es to ensure that residents receive care and treatment according to the best available evidence. The new Research page in the RAC Hub highlights some of the considera ons in carrying out research in the aged care se ng and provides links to a range of resources. PaCCSC Research Forum The 5th Annual PaCCSC Research Forum is scheduled for 19‐21 March in Sydney. Thursday, March 20 will be the major day of “warts‐and‐all” presenta ons, open to all members including: A Special Guest speaker Member Presenta ons New Study Presenta ons

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: pcainc@palliativecare.org.au w: www.palliativecare.org.au

Children (SickKids), Toronto, Canada joins Dr Renee McCulloch on March 7. The day is dedicated to Paediatric Pain Medicine.

For more informa on and to register please visit the website.

Churchill Fellowships 2014 Applica ons open The aim of The Winston Churchill Memorial Trust is to provide an opportunity for Australians to travel overseas to conduct research in their chosen field that is not readily available in Australia. No prescribed qualifica ons are required and the subject of the proposed project is limitless provided a benefit to Australia is evident. Merit of the proposed project is a key factor and a desire to share the research findings with the Australian community must be displayed.

To be eligible to apply for a Churchill Fellowship you must:

• be an Australian Ci zen over the age of 18 • not be enrolled in ter ary studies directly related to the topic of your proposed project • have experience in and commitment to the field of your project • have a project of 4 weeks to approximately 8 weeks that requires overseas inves ga on • be willing to disseminate the results of your research to the broader Australian community • not have been awarded a Churchill Fellowship in the past

There are a number of sponsored fellowships for award na onally in 2014, including:

Dr Dorothea Sandars and Irene Lee ‐ Enhancement of the delivery of pallia ve care

Australian Ins tute of Management ‐ To inves gate leadership and management

Bob and June Pricke ‐ A topic which will benefit the health of Australians

Leslie (Les) J. Fleming ‐ Oncology and cancer research

Vincent Fairfax Ethics in Leadership Founda on ‐ For ethics and leadership

Vincent Fairfax Family Founda on ‐ Leadership and educa on issues for the benefit of Indigenous Australians

For a full list of scholarships and more informa on about how to apply, visit the website .

the needs of a culturally diverse society. This year’s conference theme Shaping Inclusive Services will showcase culturally inclusive measures and models designed to ensure quality outcomes for older Australians from culturally and linguis cally diverse backgrounds.

The deadline for submi ng abstracts is Friday 28 February 2014. Abstracts must be submi ed through the online system at www.culturaldiversity.com.au and follow the appropriate links.

If you have any ques ons, please contact 03 8823 7979 or email info@culturaldiversity.com.au.

Barwon Health Pallia ve Care Program Pallia ve Care Conference The Barwon Health Pallia ve Care Program is holding its Pallia ve Care Conference, Evidence and Wisdom – upda ng professional prac ce in pallia ve care, on 20‐21 March 2014 at the RACV Resort in Torquay, Victoria. The high calibre of presenters include; Professor Michael Ashby, University of

Tasmania Professor Megan‐Jane Johnstone, Deakin

University Dr Daniel Z Sands, Harvard Medical School

Professor Mar ne Powell, Deakin University

To view the full conference program click here. For further informa on on the venue and to register, please visit the website.

Paediatric Pain and Pallia ve Care Symposium Children’s Hospital Westmead The Children’s Hospital at Westmead is hos ng a Paediatric Pain and Pallia ve Care Symposium on March 6 and 7, 2014 for medical, nursing and allied health professionals. The program on March 6 focuses on Paediatric Pallia ve Care and features presenta ons from interna onal guest speakers Dr Chris Feudtner, paediatrician, epidemiologist, historian and ethicist at The Children’s Hospital of Philadelphia and the University of Pennsylvania and, Dr Renee McCulloch, Consultant in Paediatric Pallia ve Medicine at Great Ormond Street Hospital. Dr Jennifer S nson, Nurse Clinician Scien st in Child Health Evalua ve Sciences and Advanced Prac ce Nurse, Chronic Pain Program, The Hospital for Sick

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: pcainc@palliativecare.org.au w: www.palliativecare.org.au

The Second Pallia ve Care Conference Kuwait 3 ‐ 15 April 2014 For more informa on click here Australian Pain Society Annual Scien fic Mee ng 13‐16 April 2014 Hobart, Tasmania W: h p://www.dcconferences.com.au/aps2014/

Australian Wound Management Associa on (AWMA) Na onal Conference Gold Coast Conven on & Exhibi on Centre, Qld 7 ‐ 10 May 2014 To register click here To view the conference program click here

7th World Congress World Ins tute of Pain Maastricht, The Netherlands 7‐10 May 2014 W: h p://www2.kenes.com/wip2014/Pages/Home.aspx

St Francis Hospice 13th Annual Kaleidoscope Interna onal Pallia ve Care Conference Dublin, Ireland 28‐29 May 2014 W: h p://www.s .ie/kaleidoscope

8th World Research Congress of the European Associa on for Pallia ve Care Lleida, Spain 5‐7 June 2014 w: h p://forskningsweb.org/research2014/

Interna onal Conference on Opioids Boston, MA, USA 8‐10 June2014 W: h p://www.opioidconference.org/

10th Interna onal Conference on Grief and Bereavement in Contemporary Society Hong Kong 11‐14 June 2014 w: h p://www.socsc.hku.hk/icgb2014/

Cultural Diversity In Ageing Conference Melbourne Conven on Centre, VIC 12 ‐ 13 June 2014 For more informa on click here T: 03 8823 7979 E: info@culturaldiversity.com.au

Conferences and events

First Interna onal Conference of the Interna onal Children’s Pallia ve Care Network Mumbai India 10‐12 February 2014 w: h p://www.icpcn.org/special‐projects/icpcn‐conference‐in‐india‐2/ 10th Pallia ve Care Congress March 12‐14 2014 Southampton, England W: h p://www.pccongress.org.uk/index.php?pageid=1

4th Global Conference The Pa ent: Therapeu c Approaches Prague, Czech Republic 18—20 March 2014 W: h p://www.inter‐disciplinary.net/probing‐the‐boundaries/persons/the‐pa ent/call‐for‐papers/

PaCCSC 5th Annual Research Forum Sydney, Australia 19 ‐ 21 March 2014 To view a flyer click here To view the registra on form click here E: paccsc@flinders.edu.au

Barwon Health Pallia ve Care Conference RACF Resort, Torquay VIC 20 ‐ 21 March 2014 To register click here To view the conference program click here T: (03) 4215 5700 E: pallia vecare@barwonhealth.org.au

Australian Grief & Bereavement Conference 2014 Bayview Eden Melbourne 24 ‐ 26 March 2014 W:h p://www.grief.org.au/conference

2nd Asian Congress on Pain Taipei, Taiwan 27‐30 March 2014 W: h p://aafps.org/

Pallia ve Care Nurses Australia Conference 2014 Sofitel Hotel, Sydney 6—7 April 2014 W: www.pcna.org.au

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: pcainc@palliativecare.org.au w: www.palliativecare.org.au

20th Interna onal Congress on Pallia ve Care Montréal, Canada 9 – 12 September 2014 E: info@pal2014.com W:www.pal2014.com

ACORD 2014 Coolum, Queensland September 14‐20 2014 W: h p://www.acord.org.au/downloads/ACORD%202014%20FLYER.pdf 2014 Na onal Diversional Therapy Australia Conference Adelaide, South Australia 19‐20 September 2014 W: h p://www.diversionaltherapy.org.au/Events/tabid/59/Default.aspx

Centre for Ageing and Pastoral Studies Conference University House, ANU, Canberra 30 September—2 October 2014 For more informa on click here T: (02) 6272 6205 E: caps@csu.edu.au Pallia ve Care NSW Conference Pallia ve and End of Life care: Making History 22—24 October 2014 W: h p://pallia vecarensw.org.au/site/

Pallia ve Care WA Conference Technology Park Func on Centre, Bentley 31 October 2014 W: h p://pallia vecarewa.asn.au/site/

Pallia ve Care Queensland Conference Fi y Shades of Pain 3—5 December 2014 W: h p://www.pallia vecareqld.org.au/ World Cancer Congress Melbourne Conven on and Exhibi on Centre 3—6 December 2014 W: h p://www.worldcancercongress.org/

Have we missed anything? Please let us know if there are any other conferences or events that we can add to our lis ng, email pcainc@pallia vecare.org.au

Risky Business 2 Interna onal Demen a Conference Sydney, New South Wales 26‐27 June 2014 W: h p://www.demen aconference.com/

6th edi on of the Singapore Pallia ve Conference Singapore Polytechnic Conven on Centre 26 – 29 June 2014 w: www.spcconference.com Cancer Nurses Society of Australia 17th Winter Congress Melbourne, Victoria July 24‐26 2014 W: h p://www.cnsawintercongress.com.au/

20th Interna onal AIDS Conference Melbourne Conven on and Exhibi on Centre 20—25 July 2014 W: h p://www.aids2014.org/

Pallia ve Care Victoria Conference Bayview Eden Hotel, Melbourne 31 July—1 August 2014 W: h p://www.pallcarevic.asn.au/

6th Interna onal Conference on Pa ent and Family Centred Care Vancouver, Canada 6‐8 August 2014 W: h p://www.cvent.com/events/the‐6th‐interna onal‐conference‐on‐pa ent‐and‐family‐centered‐care/event‐summary‐31f718a720e546c7a48870ac806d46f0.aspx?RefID=IPFCC

Interna onal Conference on End of Life: Law, Ethics, Policy and Prac ce 2014 Brisbane 13‐15 August 2014 w: h p://icelconference2014.com/

The Australian and New Zealand Society of Pallia ve Medicine Surfers Paradise Marrio Resort and Spa, Gold Coast 2 – 5 September 2014 W: www.anzspm.org.au/anzspm2014

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: pcainc@palliativecare.org.au w: www.palliativecare.org.au

NSW Pallia ve Care New South Wales PO Box 487 Strawberry Hills NSW 2012

t: +61 2 9206 2094 / 0403 669 491 f: +61 2 9281 0157 w: www.pallia vecarensw.org.au e: info@pallia vecarensw.org.au

QLD Pallia ve Care Queensland PO Box 13167 George Street QLD 4003

t: +61 7 3256 2486 / 1800 660 055 f: +61 7 3256 2671 w: www.pallia vecareqld.org.au e: enquiries@pallia vecareqld.org.au

VIC Pallia ve Care Victoria Suite 3C, Level 2, 182 Victoria Parade East Melbourne VIC 3002

t: +61 3 9662 9644 f: +61 3 9662 9722 w: www.pallcarevic.asn.au e: info@pallcarevic.asn.au

WA Pallia ve Care WA 15 Bedbrook Place Shenton Park WA 6008

t: +61 8 9382 9367 / 1300 551 704 f: 1300 551 704 w: www.pallia vecarewa.asn.au e: pcwainc@pallia vecareswa.asn.au

SA Pallia ve Care Council South Australia PO Box 435 Fullarton SA 5063

t: +61 8 8271 1643 f: +61 8 8271 7494 w: www.pallcare.asn.au e: pallcare@pallcare.asn.au

TAS Tasmanian Associa on for Hospice and Pallia ve Care PO Box 834 Kingston TAS 7050

t: +61 3 6285 2514 f: +61 3 6239 6030 w: www.tas.pallia vecare.org.au e: tahpc@intrepidonline.com.au

ACT Pallia ve Care ACT PO Box 31 Campbell ACT 2612

t: +61 2 6273 9606 f: +61 2 6273 9590 w: www.pallcareact.org.au e: office@pallcareact.org.au

NT Pallia ve Care Northern Territory PO Box 4489 Alice Springs NT 0811

t: +61 8 8951 6762 w: www.nt.pallia vecare.org.au e: pcnt@pallia vecare.org.au

ANZSPM Australian and New Zealand Society of Pallia ve Medicine PO Box 7001 Watson ACT 2602

t: 0458 203 229 f: +61 3 8677 7619 w: www.anzspm.org.au e: execu ve@anzspm.org.au

Acknowledgement—Palliative Care Australia is supported by funding from the Australian Government Department of Health .

Palliative Care Australia Inc. Level 1 | 21 Napier Close | Deakin ACT 2600 PO Box 24 | Deakin West | ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: pcainc@palliativecare.org.au

Connect with Palliative Care Australia

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: pcainc@palliativecare.org.au w: www.palliativecare.org.au