physical health impacts of fasd: preliminary results from ... · 1. established an online survey of...
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Physical health impacts of FASD: Preliminary results from a caregiver survey
Dr Natasha ReidI have no disclosures or conflicts of interest to declare.
Post-PhD submission: Vancouver 2017
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Developmental Origins of Health and Disease
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Presentation by Prof Karen Moritz: Long term chronic disease outcomes following prenatal alcohol exposure
Presentation by Myles Himmelreich, CJ Lutke & Emily Travis: The Lay of the land: Final Results of a health survey of 500 + adults with FASD
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FASD as a whole body condition
How early could these health problems be identified?
1. Established an online survey of caregiver reported health concerns Based on an Adult Health survey developed by Profs Joanne Weinberg
and Claire Coles. We also included questionnaires to assess caregiver health and wellbeing
e.g. impact of FASD on caregivers and other family members. Started collecting April 2018 Initial pilot – 13 caregivers
2. Collect in-person health assessments for local families
Method
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125 caregivers
Who has completed our caregiver survey so far?
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0 5 10 15 20 25 30 35 40 45
USA
Australia
New Zealand
Canada
UK
South Africa
Child demographic details
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Child age 0 – 25 years Mean = 12.22 Standard deviation = 4.42
Child genderFemales
Males48 (38.4%)75 (60%)
Note: Caregivers asked to provide the clinic and Doctor who provided the diagnosis SE = static encephalopathy (alcohol exposed); NB = Neurobehavioural Disorder (alcohol exposed)
FASD Diagnoses
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0 5 10 15 20 25 30 35
FASD with 3 facial features
FASD without 3 facial features
FAS
pFAS
ARND
SE
NB
Unsure
82% reported a diagnosis of at least one health condition
25% reported 2 conditions
37% reported 3 or more
Max 7 diagnosed conditions (2 children)
These included: • Heart problems (33%)• Bowel problems (36%)• Kidney problems (6%)• Pre-diabetes (6%) or diabetes (1%)• Thyroid problems (5%)
• Skin problems e.g. eczema (32%)• Allergies (38%)• Asthma (33%)• Autoimmune disorders (2%)• Chronic infections (22%)
Total diagnosed health problems
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Immune-related conditions
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13
13.5
6.5
32.8
32
22.4
0 5 10 15 20 25 30 35
ASTHMA
ECZEMA OR ANY SKIN ALLERGY
FOOD ALLERGIES
Current sample NHIS 2017
Systematic review results
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Akison, Moritz & Reid. 2018. Reproduction
Akison et al (Revised). ACER – Metabolic
Reid et al (Under Review) – Cardio-renal
Reid et al (Under Review) – Immune
n = 84 Body Mass Index
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0 5 10 15 20 25 30 35 40 45
Underweight
Healthy weight
Overweight
Obese
0 10 20 30 40 50 60 70 80
Getting to sleep
Staying asleep
Waking up early
Sleeping too much
Sleep apnea
Sleep problems – 70%
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0
10
20
30
40
50
60
70
Sleep problems No sleep problems
Tota
l dia
gnos
ed h
ealth
pro
blem
s
Do those with sleep problems have more health problems?
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p = .07
• Some preliminary evidence that children and young people with FASD may be at increased risk of some health conditions – but early days
• Some preliminary evidence that those with sleep problems may have more health problems - but again early days
Conclusions
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Where to from here?
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Looking for more participants!!
Thank youDr Natasha Reid | Clinical Psychologist Postdoctoral Research FellowChild Health Research Centre 62 Graham Street, South Brisbane 07 3069 [email protected]
@DrNatashaReid