posters - issva · return to toc issva 2020 online workshop – posters arteriovenous malformation...

ISSVA 2020 Online Workshop – Posters

Posters Listing by Category

Category Poster Number(s)

Arteriovenous Malformation (AVM) ................................................ P001 – P017, P133, P139, P142

Basic Science ............................................................................................................................. P018

Capillary Malformations ....................................................................................... P019 – P023, P141

Capillary Malformations -AVM.................................................................................................... P024

Fibro-Adipose Vascular Anomaly (FAVA) ..................................................................... P025 – P028

Hemangiomas, Vascular Tumors, KHE, TA ........................ P029 – P054, P131, P135, P140, P144

Imaging .......................................................................................................................... P055 – P061

Interventional Radiology ........................................................................... P062 – P079, P137, P143

Lymphatic ................................................................................................. P080 – P090, P138, P145

Medical .......................................................................................................................... P091 – P098

Quality of Life ...................................................................................................... P099 – P101, P132

Surgery ................................................................................................................ P102 – P110, P134

VA Centers/Working Groups .................................................................... P111 – P119, P136, P146

Venous and other Malformations .................................................................................. P120 – P130

Return to TOC ISSVA 2020 Online Workshop – Posters

Arteriovenous Malformation (AVM)

P001 Bronchial Artery-Pulmonary Artery Small Fistula: A Subtle Cause of Massive Hemoptysis

Mohamed H. Alomari Mohamed H. Alomari, Rush Chewning, Gulraiz Chaudry, Raja Shaikh, Debra

Boyer, Cindy Kerr Cindy Kerr, Steven Fishman and Ahmad Alomari

P002 High-Flow Arteriovenous Malformations of the Hand: Challenging Excision, Palmar Arch

Reconstruction, and Skin Free Flap Coverage

Amjed Abu-Ghname, Renata Maricevich, William Pederson and Marco Maricevich

P003 Long-term Outcomes of Patients with Auricular Arteriovenous Malformations

Tal Kaufman-Goldberg (*co), Anna McGuire (*co), Darshan Variyam, Ahmad Alomari and John Mulliken

P004 Difficult Case: Retroperitoneal Arteriovenous Malformation with Genetics

Antoinette S. Gomes and Noah C. Federman

P005 Concurrent Presentation of Brain Arteriovenous Malformation, Peripheral Arteriovenous

Malformation, and Cerebellar Astrocytoma

Ayushi Gautam, Zhengda Sun, Ethan Winkler, Hua Su, Tim McCalmont, Helen Kim, Tarik Tihan, William

Hoffman, Chris Dowd, Ilona Frieden and Daniel Cooke

P006 Expression of Cathepsins B, D and G in Extracranial Arterio-venous Malformation

Lauren Hansen, Helen Brasch, Josie Patel, Nicholas Bockett, Erin Paterson, Paul Davis and Swee Tan

P007 Bleomycin Inhibits CLEC14A to Attenuate the Progression of Extracranial Arteriovenous

Malformation

Congzhen Qiao, Yun Zou, Yuanbo Li, Chen Hua, Yunbo Jin and Xiaoxi Lin

P008 A Retrospective Study of Bleomycin Injection in the Treatment of Residual Arteriovenous

Malformations

Congzhen Qiao, Yun Zou, Hechen Jia, Chen Hua, Yunbo Jin and Xiaoxi Lin

P009 Lesion redness fading after embolization of the facial Arteriovenous Malformations

Yuanbo Li, Congzhen Qiao, Chen Hua, Xi Yang, Hao Gu, Yunbo Jin and Xiaoxi Lin

P010 Long-term outcomes of intralesional interstitial bleomycin injection in patients with early-stage

extracranial arteriovenous malformations

Yun Zou, Hechen Jia, Congzhen Qiao, Xi Yang, Chen Hua, Yunbo Jin and Xiaoxi Lin


P011 The underlying AVM in Epithelioid Hemangioma is not uncommon: An angiography study and

inspiration of potential therapeutic option

Chen Hua, Wei Gao, Lizhen Wang, Yunbo Jin, Yuanbo Li and Xiaoxi Lin

P012 Extracranial arteriovenous malformations: prognostic factors and outcomes of surgical treatment

in a series of 67 patients

Marina Ferreira, Dov Goldenberg and Rolf Gemperli

P013 Withdrawn by author

P014 Patients with Unresectable Arteriovenous Malformations: Treatment Considerations and

Introduction of a New Scoring System

Nancy Duan, Harjot Bedi, Jasmine Yao-Mei Tang, Jugpal S. Arneja, Manraj K.S. Heran and Douglas J.

Courtemanche

P015 Unique Angioarchitecture of Focal Intramuscular Small Vessel Rich AVMs

Patricia Burrows and Mohammad Badran

P016 High-flow facial AVM and low-flow NGAVM presenting with high-output cardiac failure in a

neonate

Solveig Ophaug, Mackenzie Deane, Julie Dhossche, Alison Small, Carol MacArthur and Gary Nesbit

P017 How are we doing at treating arteriovenous malformations?

Daniel Demsey, Yuda Shih, Douglas Courtemanche and Jugpal Arneja

P133 The Role of Transarterial Lung Perfusion Scintigraphy in Prediction of Cardiac Failure in Patients

with Extracranial Arteriovenous Malformations

Birute Vaisnyte, Daiva Nevidomskyte, Marius Kurminas and Vyte Maneikiene

P139 Spider naevus: A superficial arteriovenous malformation?

Carolina Whittle, Ximena Fajre and Maria Jose Pereira

P142 Arteriovenous Malformation with Aneurysm in Spinal Canal

Alejandro Celis Jimenez


Basic Science

P018 The STEMdiffTM Blood Vessel Organoid Kit Supports Efficient Generation of Vascular Organoids

from Human Pluripotent Stem Cells

Valentina Marchetti, Ishpreet Dhillon, Sara Pippard, Ravenska Wagey, Reiner Wimmer, Josef Penninger,

Terry E Thomas, Allen Eaves, Sharon A Louis and Stephen Szilvassy

Capillary Malformations

P019 Port-wine stains on the neck respond better to a pulsed dye laser than lesions on the face: An

intrapatient comparison study with histopathology

Wenxin Yu, Jiafang Zhu, Yifei Gu, Yue Han, Gang Ma and Xiaoxi Lin

P020 Port-wine stains on the proximal limb respond better to pulsed-dye laser treatment as compared

to lesions on the distal limb: An intra-patient anatomical and histological comparative study

WenxinYu, Jiafang Zhu, Yue Han, Shihjen Chang, Ying Shang, Gang Ma and Xiaoxi Lin

P021 Multifocal capillary malformation with metameric distribution and central atrophy: Case report of a

new entity with long-term follow-up

Ximena Fajre, Paz Rollan Marzolo, Consuelo Giordano and Carolina Whittle

P022 Special Midline Capillary Malformation: Danger still underlies

Ren Cai, Qingqing Cen, Gang Ma, Yun Liu and Xiaoxi Lin

P023 Dual wavelength and double pass laser treatment of port wine stains in children

Sarah Felton and Neil Walker

P141 Embryonic Stem Cell-like Population in Hypertrophic Port-wine Stain

Jazmean Williams, Helen Brasch, Nicholas Bockett, Josie Patel, Erin Paterson, Paul Davis, Imogen Roth

and Swee Tan

Capillary Malformations-AVM

P024 Capillary Malformation - ArterioVenous Malformation type 2, a Report of 6 Cases

Maria Cordisco, James Prezzano, Agustina Lanoel, Natalia Torres, Flavio Requejo, Susana Persico,

Sergio Sierre, Maria Jose Fiandrino and Miikka Vikkula


Fibro-Adipose Vascular Anomaly (FAVA)

P025 Recognizing many faces of Fibro-adipose Vascular Anomaly: Key to getting acquainted!

Ankur Goyal, Ankit Sangwan, Atin Kumar, Raju Sharma, Devasenathipathy Kandasamy, Ashu Bhalla,

Sudheer Arava, Rakesh Dawar and Maneesh Singhal

P026 Sirolimus leads to rapid symptom improvement in fibro-adipose vascular anomalies (FAVAs) –

experience in 8 children

Muriel Sadlier, Joao Amaral, Michelle Fantauzzi, Philip John and Manuel Carcao

P027 Fibroadipose Vascular Anomaly Patient-Reported Quality of Life Outcomes at Baseline and Post-

Treatment

Richard P. Greiwe, Steven J. Staffa,Raja Shaikh, Ahmad Alomari, Steven J. Fishman MD1, Samantha

Spencer, Cameron C. Trenor III and Denise Adams

P028 Clinical Outcome of Surgical Excision in Patients with Fibro-Adipose Vascular Anomaly (FAVA)

Samantha A. Spencer, Kemble K. Wang, Rachel L. Glenn, Denise M. Adams, Ahmad I. Alomari, Alyaa Al-

Ibraheemi, Megan E. Anderson,Gulraiz Chaudry, Steven J. Fishman, Arin K. Greene, Raja Shaikh,

Cameron C. Trenor III, and Harry P. Kozakewich

Hemangiomas, Vascular Tumors, KHE, TA

P029 Comparing Dermoscopic Features in Infantile Hemangiomas Using Polarized and Non-Polarized

Dermoscopy

Alan Snyder, John Plante, Manuel Valdebran, Dan Lopez, Collen Cotton and Lara Wine-Lee

P030 Aggressive Upper Extremity Intramuscular Hemangioma: A Challenging Case Report

Amjed Abu-Ghname, Matthew Davis, Marco Maricevich, William Pederson and Renata Maricevich

P031 Early propranolol treatment of infantile hemangiomas results in improved outcomes

Ana Giachetti, Ana Carbajosa, Paula Boggio , Roberta Calvano, Florencia Scacchi, Cecilia Martino, Maria

Sol Diaz and Ana Giachetti

P032 Noninvoluting Congenital Hemangioma of the Mediastinum and Retroperitoneum?

Taizo A. Nakano, Aparna Annam, Becky Hill, Lauren Larroque, Paul Jedlicka, Jennifer O. Black, Ann M.

Kulungowski

P033 Topical Timolol Maleate for Treatment of Painful Tufted Angioma in Two Children Cases

Bin Zhang, Nan Zhang, Li Wei, Li Li, Lei Qiu and Lin Ma


P034 Multifocal Rapidly Involuting Congenital Hemangiomas (RICH). A Report of 3 Cases.

Carlos Delgado-Miguel, Antonio J. Muñoz-Serrano, María Velayos, Karla Estefanía, Paloma Triana,

Miriam Miguel-Ferrero, Juan Carlos López-Gutiérrez

P035 Validation Study of an Infantile Hemangioma (IH) Scoring Tool for Primary Clinicians (PCPS) to

Identify Patients Requiring Referral to Expert Centers

Laurence M. Boon , Eulalia Baselga Torres, Lisa Weibel, Maya El Hachem, Christine Leaute-Labreze,

Agneta Troilius, Carine Van Der Vleuten, Jochen Rössler, Fabienne Zumagilini, Christine Cazeau and

Alain Delarue

P036 Ulceration in Infantile Hemangiomas: Incidence and Clinical Risk Factors in the Beta-Blocker Era

Esteban Fernández Faith, Sonal Shah, Mitchell Braun, Elena Pope, Irene Lara-Corrales, Alexandra

Hallagan and Ilona J. Frieden

P037 Congenital Hemangiomas with atypical presentation

Eulalia Baselga, Julian Boix-Vilanova, Angel Vera, Maria del Rosario Gonzalez-Hermosa, Manuel Azaña

and Ana Martin-Santiago

P038 Vascular tumor like lesions in adult patients: Pitfalls on imaging and pathology after assessment

according to ISSVA classification

Clément Marcelin, Josee Dubois, Victor Kokta, Patrick Gilbert, Marie-France Giroux, Alain Danino, Sophie

Mottard and Gilles Soulez

P039 Rapidly involuting congenital hemangioma associated with Kasabach-Merritt syndrome in a 2-

month-old infant successfully treated with surgical excision

Rosalia Ballona, Jean Zevallos and Jeanette Nuñez

P040 Hemangioma endothelium loses VE-CADHERIN after involution: Implications for cell death?

Omeed Modiri, Michael J. Schonning, Carrie J. Shawber and June K. Wu


P042 Rapidly involuting hepatic congenital hemangioma (RICH) with concomitant multifocal cutaneous

and hepatic infantile hemangiomas

Laurel Wessman, West Mori, Kristin Totoraitis, Michael Murati and Sheilagh Maguiness

P043 Does oral propranolol improve the final outcome of involuted Infantile Hemangiomas? A matched

retrospective comparative (cohort) study

Shih-Jen Chang, Hui Chen, Hsiao-Fen Chang, Yajing Qiu, Zhang Yu, Ren Cai, Lei Chang, Yunbo Jin and

Xiaoxi Lin


P044 Successful treatment of infantile hemangiomas with high risk of severe sequelae by microneedle

radiofrequency

Yajing Qiu, Shih-Jen Chang, Lei Chang, Gang Ma, Yunbo Jin and Xiaoxi Lin

P045 Congenital Plaque–Like angiomatous lesion associated with glomus cells: A variant of NICH or a

new glomus entity

Chen Hua, Lizhen Wang, Gang Ma, Xia Gong, Yunbo Jin, Yuanbo Li, Wei Gao and Xiaoxi Lin

P046 Complications of PHACE Syndrome

Marcia Hogeling, Colleen Cotton, Esteban Fernandez Faith, Anita Haggstrom and Ilona Frieden


P048 Characteristics of non, poor, and partial responders with infantile hemaniomas to systemic beta

blocker therapy

Katinna Rodriguez Baisi, Gerilyn Olsen, Mohsen Afarideh, Amy Jo Nopper, Denise Adams, Eulalia

Baselga, Shah Sonal, Catherine McCuaig, Julie Powell, Ilona Frieden, Maria Garzon, Kim Horii, Christine

Lauren, Erin Mathes, Brandon Newell, Kimberly Morel, Megha Tollefson

P049 Where are all the adults with PHACE Syndrome?

Olivia Davies, Ilona Frieden, Laura Eisenmenger, Christopher Hess, Mohit Maheshwari and Dawn Siegel

P050 Non-Involuting Congenital Hemangioma of the Liver

Paloma Triana Junco, Lara Rodríguez-Laguna, Víctor Martínez-González and Juan Carlos López

Gutiérrez

P051 Infantile Hemangioma of Posterior Mediastinum with Spinal Canal Extension and Extensive

Gastrointestinal Tract Involvement

Sally Cohen-Cutler, Minnelly Luu, Joseph Miller, Donna Nowicki; Chadi Zeinati, Leo Mascarenhas and

Dean Anselmo

P052 The Spectrum of Eye Anomalies in a PHACE Syndrome Cohort

Sumaiya Salman, Steve Lander, Sarah Chamlin, Liat Samuelov, Mohit Maheshawri, Michael Kinori,

Anthony Mancini and Dawn Siegel

P053 PHACE syndrome in segmental infantile haemangioma of the head and neck: A 12 year

retrospective study

Janice Nathalie, John Su, Philip Bekhor, Laura Scardamaglia, Rod Phillips, Mark Mackay and Susan

Robertson


P054 Clinical overlap of PHACES and LUMBAR syndromes: A report of two cases

Rachael Davenport, John Su, Janice Nathalie, Christopher Richmond and Susan Robertson

P131 Referral and Access for Infantile Hemangioma (IH) Patients: Timing is Everything

Emma Hignett, Anita Haggstrom, Anthony Mancini, Amy Nopper, Kimberly Horii, Brandon Newell, Lauren

Howser, Celestina Okoye, Annette Wagner, Brandi Kenner-Bell, Amy Paller, Carolyn Kiolbasa and Sarah

Chamlin

P135 Severe/Rare Infantile Hemangioma Pathway from the Vascular Anomaly (VASCA) Working Group

in the European Reference Network (ERN) for Rare Vascular Diseases (VASCERN)

Andrea Diociaiuti, Eulalia Baselga, Laurence M. Boon, Anne Dompmartin, Veronika Dvorakova, May El

Hachem, Nader Ghaffarpour, Alan Irvine, Friedrich G Kapp, Kristiina Kyrklund, Jochen Rössler, Päivi

Salminen, C.T. van den Bosch, Carine Van der Vleuten, Leo Schultze Kool and Miikka Vikkula

P140 Arrested hemangioma. Clinical – Ultrasound correlation

Carolina Whittle, Daniela Kramer, Ximena Fajre and Maria Jose Pereira

P144 A Multi-center retrospective review of pulsed dye laser in infantile hemangioma. A practical

approach

Catherine McCuaig, Julie Powell, Maria Garzon, Kimberly Morel, Christine Lauren, Eulalia Baselga,

Anthony Mancini, Sarah Chamlin, Sonal Shah, Erin Mathes and Ilona J. Frieden

Imaging

P055 Clinic-radiological predictors of sclerotherapy response in low-flow vascular malformations

Ankur Goyal, Barun Bagga, Ashu Bhalla, Abanti Das and Devasenathipathy Kandasamy

P056 Selective Use of Magnetic Resonance Angiography for Diagnosis of Vascular Anomalies

Ann Kulungowski, Taizo A. Nakano, Aparna Annam, Lorna P. Browne, Lauren Larroque and Lauren

Rebecca Synecki Hill

P057 Raster-Scanning Optoacoustic Mesoscopy for the Evuation of Vascular Pathology

Emily L. Geisler, Jeyna K. Perez, Mark P. Pressler, James R. Seaward, Rami R. Hallac and Alex A. Kane

P058 Near InfraRed Technology to detect Venous Malformations

Maria G.Buethe, Farhan Khokhar, Ivan Hand, Ninad Desai, Daniel M. Siegel and Sharon A. Glick

P059 Multispectral optoacoustic tomography of vascular malformations

Moritz Wildgruber, Anne Helfen, Jing Claussen and Max Masthoff


P060 Imaging of Bony Lymphatic Disorders

Luke James, Ahmad Alomari, Richard P. Greiwe, Meghan O’Hare, Steven Fishman, Denise Adams, and

Gulraiz Chaudry

P061 Verrucous Hemangioma, Verrucous Venous Malformation or Verrucous Lymphovascular

Malformation? Based on the Ultrasonic Manifestations of Verrucous Venous Malformation.

Xia Gong, Yajin Qiu, Jia Li, Ping Xiong and Xiaoxi Lin

Interventional Radiology

P062 Sclerosant therapy in low flow vascular malformations involving conjunctiva

Aditi Mehta Grewal and Usha Singh

P063 Rectal Sclerotherapy for Management of Hematochezia and Prolapse

Anna McGuire, Belinda Dickie, Victor Fox and Steven Fishman

P064 Longer Term Clinical Follow up of Balloon Occlusion as an Adjunctive Technique for

Percutaneous Sclerotherapy of Venous Malformations

Abhay Srinivasan, Sri Hari Sundararajan, Sphoorti Shellikeri, David Low and Anne Marie Cahill

P065 Cystoscopy Guided Sclerotherapy for Massive Hematuria from a Large Venous Malformation of

Urinary Bladder in a patient with Klippel Trenaunay Syndrome - an Emerging Novel Method

Arindam Bharadwaz

P066 A Review of Patient Radiation Exposure from Embolo-Sclerotherapy of Vascular Malformations

LeeyingGiet, Nicholas Evans, AnthiePapadopoulou, Mohamed Khalifa, Janice Tsui, George Hamilton,

Jocelyn Brookes and Chung Sim Lim

P067 Embolization of Pancreatico-duodenal arterio-venous malformation

Clément Marcelin, Auh Whan Park, Pierre Perreault, Patrick Gilbert, Marie France Giroux and Gilles

Soulez

P068 Treatment outcomes of embolization for peripheral arteriovenous malformations

Frédérique Bouwman, Sanne Botden, Bas Verhoeven, Leo Schultze Kool, Carine Van der Vleuten, Ivo de

Blaauw and Willemijn Klein

P069 An Experience-Based Protocol for Intralesional Bleomycin Sclerotherapy for Vascular

Malformations: Safety & Monitoring

Joana Mack, Austin DeHart, Gresham Richter, Spencer Lewis, Kelly Stewart, Amber Smith and Shelley

Crary


P070 Successful treatment of Chyluria using interstitial lymphatic embolization with NBCA

Joseph Gemmete

P071 Superselective delivery of platinum-based high-density packing coils can obviate the need for

liquid embolic agents for treatment of arteriovenous malformations

Kirthi Bellamkonda, Andrew Dhanasopon and Naiem Nassiri

P072 Intralesional bleomycin injection for localized Verrucous Venous malformations

Yajing Qiu, Lili Lili Qian, Shih-Jen Chang, Hui Chen, Gang Ma and Xiaoxi Lin

P073 A Comprehensive treatment Algorithm for Giant Gluteal and Thigh Arteriovenous Malformation

Yunbo Jin, Hechen Jia, Xi Yang, Chen Hua, Yuanbo Li, Hao Gu and Xiaoxi Lin

P074 The diameter and density of lymphatic cysts can be predictors for bleomycin sclerotherapy for

microcystic lymphatic malformations: A prospective study

Xi Yang, Yi Sun, Hui Chen, Hao Gu, Ren Cai and Xiaoxi Lin

P075 A sudden decrease in systemic arterial blood pressure might be a predictive factor of

cardiopulmonary collapse during endovascular treatment of arteriovenous malformations with

absolute ethanol: An Animal Study

Chen Hua, Yunbo Jin, Xi Yang, Yifei Gu, Hao Gu, Yuanbo Li, Hechen Jia and Xiaoxi Lin

P076 Feasibility of Computer-assisted MR-guided Sclerotherapy in the treatment of Venous

Malformations in the Deep Regions

Hao Gu, Zimin Zhang, Xi Yang, Zhipeng Xia, Li Hu, Yi Sun, Hui Chen and Xiaoxi Lin

P077 Bleomycin acute life-threatening lung toxicity: How many more before ringing the alarm bell?

Niina Kleiber, Michèle David, Kelly Grzywacz, Sophie Laberge, Sandra Ondrejchak, Jean-François

Delisle and Josée Dubois

P078 Particle and ethanol embolization of a locally aggressive epithelioid hemangioma of the

acetabulum as part of an articular surface- preserving treatment strategy

Salim Abboud, Haran Rajeswaran, Meera Hameed, Christos Kosmas, Vijaya Kosaraju, Navid Faraji,

Peter Young and Patrick Getty

P079 Endovascular Management for Tongue Mycrocistic Lymphatic Malformation - Case Report

Victor H. Garcia, Fernando Velasquez and Natalia Vargas-Navia


P137 Sclerotherapy in the treatment of common lymphatic malformations “Myth or Reality”: A 23-year

single center experience

Heba Elbaaly, Ramy El Jalbout, Françoise Rypens, Julie Powell, Louise Caouette-Laberge, Jean-Nicolas

Racicot, Chantale Lapierre and Josée Dubois

P143 Embolization as an Adjuvant Procedure to Treat a Premature Patient Before Surgery

Alejandro Celis Jimenez

Lymphatic

P080 The innovative method of treatment of superficial microcystic form of lymphatic or lymphovenous

malformation of the tongue in children

Dmitriy Komelyagin, Aleksei Petukhov, Svetlana Iamatina, Orest Topolnitsky, Vladimir Minaev, Sergey

Dubin, Filipp Vladimirov, Alexander Ivanov, Tatyana Gromova, Oleg Blagikh and Elena Striga

P081 Sirolimus Efficacy in Treatment of Pediatric Lymphatic and Chylous Pleural Effusions

Berkley Kingman Anderson, Priya Mahajan, Judith Margolin and Ionela Iacobas

P082 Targeting the PI3K and RAS pathways for the treatment of lymphatic malformations

Jennifer K. Wolter, Alexander J. Osborn, Evan J. Propst and Nikolaus E. Wolter

P083 When is EXIT necessary? A multi-institutional study of outcomes of EXIT for lymphatic

malformation patients

Nancy Wang, Harrison Cash, Randall Bly, Kristina Rosbe, Ilona Frieden, Jonathan Perkins and

Josephine Czechowicz

P084 Primary Medical Therapy to Suppress PIK3CA in a Prenatally Diagnosed Stage V Lymphatic

Malformation Avoided Tracheotomy and Preserved Functional Outcomes

Juliana Bonilla-Velez, Randall Bly, John P. Dahl, Edith Cheng, Shani Delaney, Amy Geddis, Catherine

Bull, Erika Lutsky, Elliott Weiss, James Bennett, Kaitlyn Jenner and Jonathan Perkins

P085 A Multi-Institutional Retrospective Analysis of the Effects of Sirolimus in the Immune Status of

Patients with Non-Complicated Vascular or Lymphatic Anomalies

Karen Fernandez, Kristin A. Shimano, Sara Regina Kreimer, Bhuvana Setty and Michael Jeng

P086 A Multidisciplinary Approach for Managing Complex Cervicofacial Lymphatic Malformations

Michael J. Zobel, Danuta Nowicki, Gabriel Gomez, Jessica Lee, Lori Howell, Joseph Miller, Chadi Zeinati

and Dean M. Anselmo


P087 Patient Pathway for the Management of Lymphatic Malformations (LMs). A European Reference

Network (ERN) collaboration

Nader Ghaffarpour, Eulalia Baselga, Laurence M. Boon, Andrea Diociaiuti, Anne Dompmartin, Veronika

Dvorakova, Maya El Hachem, Alan Irvine, Friedrich Kapp, Kristiina Kyrklund, Jochen Rößler, Päivi

Salminen, Caroline van den Bosch, Carine van der Vleuten, Leo Schultze Kool and Miikka Vikkula

P088 A Single-Center Review of Experiences & Treatment Outcomes for Patients with Lymphatic

Malformations of the Tongue

Shivani Mitra, Cindy Kerr, Ahmad Alomari and Salim Afshar

P089 Using Natural Language Processing (NLP) to Categorize Patients Referred with Diagnosis of

Gorham-Stout Disease of the Head & Neck Region to a Single Vascular Anomalies Center

Shivani Mitra, Pooja Chandrashekar and Salim Afshar

P090 Expression of Components of the Renin-angiotensin System in Microcystic Lymphatic

Malformation

Alexandra Gower, Sam Siljee, Kendra Boyes, Bede van Schaijik, Nicholas Bockett, Helen Brasch, Tinte

Itinteang and Swee Tan

P138 Intra-abdominal lymphatic malformations management in the light of the updated 2014 ISSVA

classification

Heba Elbaaly, Nelson Piché, Françoise Rypens, Niina Kleiber, Chantale Lapierre and Josée Dubois

P145 Why Pediatric Lymphedema is Important and Underdiagnosed

Catherine McCuaig, Julie Powell, Jérome Coulombe, Louise Laberge, Patricia Bortoluzzi, Sophie Turpin,

Raymond Lambert, Sandra Ondrejchak, Chantal Lapointe and Josée Dubois

Medical

P091 Differential Effect of Treatment with Everolimus and Sirolimus in Patients with Vascular

Malformations

Friedrich G Kapp, Stella Arbitmann, Charlotte Niemeyer and Jochen Rößler

P092 A case of venous malformation treated with sirolimus without recurrence after 1-year follow-up

Hongyuan Liu, Hao Gu, Xi Yang, Hui Chen, Li Hu, Yi Sun and Xiaoxi Lin

P093 Venous Malformation of Glans Penis: Classification and Long-pluse 1064nm Nd:YAG Laser

Therapy

Hui Chen, Gang Ma, Yunbo Jin, Xi Yang, Yi Sun, Hao Gu, Li Hu, Yajing Qiu and Xiaoxi Lin



P095 NON-PIK3CA Responders to Sirolimus Treatment

Paloma Triana Junco, Lara Rodríguez-Laguna, Víctor Martínez-González and Juan Carlos López-

Gutiérrez

P096 Successful Treatment of a Complex Vascular Malformation With Sirolimus and Surgical Resection

Rafael Zatz, Marina Ferreira, Rolf Gemperli and Dov Goldenberg

P097 Sirolimus is effective in managing gastrointestinal bleeding in a patient with blue rubber bleb

nevus syndrome (BRBNS), but demonstrates a varied response in cutaneous and central nervous

system manifestations

Stefanos Intzes

P098 Pilot study results of low dose Sirolimus in patients with low flow vascular malformations

Veroniek Harbers, Carine van der Vleuten, Bas Verhoeven, Gerard Rongen, Ingrid van Rijnsoever,

Frédérique Bouwman, Willemijn Klein, Leo Schultze Kool and Maroeska te Loo

Quality of Life

P099 The Importance of Mental Health Screening for Patients with Vascular Anomalies

Jacqueline Wehrli, MSW, LICSW

P100 Development of a disease-specific patient-reported outcome measure for measuring symptoms,

appearance and satisfaction in vascular malformations

Max M. Lokhorst, Sophie E.R. Horbach, Merel L.E. Stor, Danny A. Young-Afat, Phyllis I. Spuls, Chantal

M.A.M. van der Horst on behalf of the OVAMA steering group: Francine Blei, Carine J.M.van der Vleuten,

Ilona J. Frieden, Gresham T. Richter, Swee T. Tan, Tobian Muir, Tony(A.J.)Penington, Laurence M. Boon

P101 Survey Of Females With Klippel-Trenaunay And Similar Vascular Malformations – Focus Of

Obstetric And Gynecologic Issues

Francine Blei, Mellenee Finger and Andrei Rebarber

P132 Use of Pediatric PROMIS® Measures of Physical Function, Pain, Depression and Anxiety in

Children with Vascular Malformations and Tumors

Carolyn Kiolbasa, Julie Chesterton, James Donaldson, Craig Finlayson, Noopur Gangopadhyay, Jerome

Garden, Seth Goldstein, Jared Green, Monica Herron, Emilie Johnson, Douglas Johnston, Brandi

Kenner-Bell, Lacey Kruse, Anthony Mancini, Shankar Rajeswaran, Jennifer Reichek, Ana-Marie Rojas,

Ali Shaibani, Miller Shivers, Karina Vivar, Annette Wagner, Duri Yun and Sarah Chamlin


Surgery

P102 A Case of an Aggressive Intraosseous Arteriovenous Malformation in the Lower Extremity:

Special Considerations for Complete Resection

Lacey Stribling, Amjed Abu-Ghname, Jeffrey Trost, Nicole Montgomery, Sudhen Desai and Renata

Maricevich

P103 Arteriovenous Malformations of the Hand Case Series: Significance of Palmar Arch

Reconstruction

Amjed Abu-Ghname, SarthRaj, Jeffrey Trost, Matthew J. Davis, RenataS. Maricevich, William C.

Pederson, Marco Maricevich

P104 Vascular malformations in the genital area, a special therapeutic challenge: Interventional and/or

vascular surgery

Dirk Loose, Christiane Gebhardt, Martin Schlunz-Hendann and Friedhelm Brassel

P105 Operative Management for Equinus Associated with Lower Limb Venous Malformations

Li Hu, Hui Chen, Xi Yang, Yi Sun, Yongying Wang, Hao Gu, Ming Liu and Xiaoxi Lin

P106 Prefabricated expanded flaps based on superficial temporal vessels: Reconstruction after

resection of large facial PWS lesions with long term follow up

Xiaoxi Lin, Yun Zou, Yunbo Jin , Hui Chen, Gang Ma, Yajing Qiu, Lei Chang, Congzhen and Xiaojie Hu

P107 Local Island Flap as a Useful Method for Closing Skin Defects following Excision of Vascular

Anomalies

Marta Osowicka, Dariusz Wyrzykowski, Barbara Chrzanowska, Stefan Anzelewicz and Piotr Czauderna

P108 Effectiveness and safety of surgical treatment of peripheral vascular malformations: A systematic

review and a proposal for reporting standards

Max M. Lokhorst, Folkert Jolink, Sophie E.R. Horbach, Phyllis I. Spuls and Chantal M.A.M. van der Horst

P109 Cyst – Venous anastomosis for the treatment of recurrent cervical chylous cyst

Miguel Angel Amore, Sofia Salvia, Cristobal Papendieck

P110 Advanced Surgical Planning and Fluid Dynamics Analysis in Treatment of Severe Parkes Weber

Syndrome

Randall Bly, Seth Friedman, Giridhar Shivaram, Juliana Bonilla-Velez, John Dahl, Fanette Chassagne,

Alberto Aliseda, Josiah Penalver, Muhammad Nuri and Jonathan Perkins

P134 Surgical Treatment of Scrotal and Penile Widespread Combined Vascular Malformations

Birute Vaisnyte, Daiva Nevidomskyte, Darius Palionis and Arunas Zelvys


VA Centers/Working Groups

P111 Pediatric Vascular Malformations in the Rural Setting: Barriers to Follow Up

Anthony Kronfli, Chris McLaughlin, Elizabeth Olecki and Christa Grant

P112 The European Reference Network (ERN) for Rare Vascular Diseases (VASCERN): VASCA-Working

Group – Capillary Malformation Pathway

Eulalia Baselga, Laurence M. Boon, Andrea Diociaiuti, Anne Dompmartin, Veronika Dvorakova, May El

Hachem, Nader Ghaffarpour, Alan Irvine, Friedrich Kapp, Kristiina Kyrklund, Jochen Rößler, Päivi

Salminen, Caroline van den Bosch, Carine van der Vleuten, Leo Schultze Kool and Miikka Vikkula

P113 Survey of Adult Patients with Vascular Malformations Reveals Acute Need of Adult Hematologists

to Enter the Field

Ionela Iacobas, Mellenee Finger, Lisa Klepper and Francine Blei

P114 Vascular Anomalies Interactive Education Modules for the Vascular Anomalist

Joana Mack and Shelley Crary

P115 The European Reference Network (ERN) for Rare Vascular Diseases (VASCERN): VASCA-Working

Group – Venous Malformation Pathway

Anne Dompmartin, Eulalia Baselga, Laurence M. Boon, Andrea Diociaiuti, Veronika Dvorakova, Maya El

Hachem, Nader Ghaffarpour, Alan Irvine, Friedrich Kapp, Kristiina Kyrklund, Jochen Rößler, Païvi

Salminen, Caroline van den Bosch, Carine van der Vleuten, Leo Schulze Kool and Miikka Vikkula

P116 Assessment and Framework Development of Disseminated Information to Patients with Vascular

anomalies: Patient Reported Experiences at a Single-Centered Vascular Anomalies Clinic

Minh NQ Huynh, Bahareh Ghaedi, Kelley Zwicker and Claudia Malic


P118 Assessing the Need for Oral Health and Dental Access at Vascular Anomalies Centers Across the

United States

Daniel Shen , Shivani Mitra and Salim Afshar

P119 Systematic data entry to an electronic medical record for continuous audit of vascular anomalies

patients: A preliminary study

Anthony Penington


P136 The European Reference Network (ERN) for Rare Vascular Diseases (VASCERN): Results from two

years collaboration of Patient Advocates with the Vascular Anomalies (VASCA) Workgroup

Caroline van den Bosch, Maria Barea, Eulalia Baselga, Laurence Boon, Petra Borgards, Andrea

Diociaiuti, Anne Dompmartin, Veronika Dvorakova, Maya El Hachem, Nader Ghaffarpour, Alan Irvine,

Friedrich Kapp, Kristiina Kyrklund, Aaike van Oord, Jochen Rößler, Päivi Salminen, Lex van der Heijden,

Carine van der Vleuten, Leo Schultze Kool and Miikka Vikkula

P146 Mimickers of Vascular Anomalies in the Head and Neck: Accurate Diagnosis of Lesions Referred

to a Multidisciplinary Vascular Anomalies Center

James Eng, Ionela Iacobas, Darla Espinoza and Tara Rosenberg

Venous and Other Malformations

P120 Upper Extremity Intramuscular Hemangioma: The First-Ever Systematic Review

Amjed Abu-Ghname, Bryan Luu, Matthew J. Davis, Jeffrey Trost, Marco Maricevich and Renata S.

Maricevich

P121 PIK3CA Is the Culprit Gene Mutation in a Rare Case of an Anomalous Upper Extremity Marginal

Vein in CLOVES Syndrome

Arash Fereydooni, Young Lim, Anand Brahmandam, Alan Dardik, Keith Choate and Naiem Nassiri

P122 A case of recurrent intraabdominal hemorrhage from extensive venolymphatic and arteriovenous

malformations of the abdomen/pelvis treated with splenectomy

Ashley Wentworth, Scott Thompson, Emily Bendel, Damon Houghton and Megha Tollefson

P123 PARKES – WEBER Syndrome of a Left Lower Limb, a Spine AVM and ASD II – 3 ”SHUNTS” in a 2

Y.O.

Dariusz Wyrzykowski, Marta Osowicka, Barbara Chrzanowska and Piotr Czauderna

P124 Changes in von Willebrand Factor in Patients with Vascular Malformations

Friedrich G Kapp, Cedric Schneider, Charlotte Niemeyer, Jochen Rößler and Barbara Zieger

P125 Extensive unilateral whole body venous malformation presenting with bleeding

Iqbal Hussain Dogar and Shazia Riaz

P126 Cloves Syndrome, MDT Management, Really Challenging

Iqbal Hussain Dogar, Asma Altaf and Saima Altaf

P127 Intra-abdominal Vascular Malformations: A Case Series

Jo Cooke-Barber, Gregory Tiao, Adrienne Hammill, Kiersten Ricci, Manish Patel and Roshni Dasgupta


P128 Persistent Embryonic and Orthotopic Venous Anatomy in Klippel-Trenaunay Syndrome

Kyung Kim, Ahmad Alomari, Horacio Padua, Raja Shaikh, Rush Chewning and Gulraiz Chaudry

P129 Genetic variants in venous malformation, lymphatic malformation, and Klippel-Trenaunay

syndrome

Ren Cai, Hao Gu, Xi Yang, Qingqing Cen, Lizhen Wang, Fatao Liu, Hui Chen, Yun Liu and Xiaoxi Lin

P130 Near Fatal Haemorrhage in Neurofibromatosis-Type 1 associated with occult giant cavernous

venous malformation: Case Report and Review of Literature

Sarah Gardiner, Nandoun Abeysekera, Bryce Jackson and Jon A. Mathy

posters - issva · return to toc issva 2020 online workshop – posters arteriovenous malformation...

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