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1 SEPTEMBER/ OCTOBER 2016 POSTPOLIOCLUB.WORDPRESS.COM ISSUE 45 When you reach the end of your rope, tie a knot in it and hang on. Franklin D. Roosevelt . POWER OVER POLIO NEWS POWER OVER POLIO NEWS WHATS INSIDE! MEETINGS P—1 YOUR POLIO STORY P - 1 CLIFF AND DIANA P - 2 MEMORY/THINKING P - 3 TRIVIA QUIZ P—5 CHRONIC PAIN P—6 TRIVIA ANSWERS P—9 STEM CELL THERAPY P—10 WEB SITE P—17 POPS CREW P - 18 DIRECTIONS P—19 This newsleer will provide: A posive atude Polio info, local and naonal Tips and advice on healthy living Entertainment Access to interesng Internet sites Space for member parcipa- on Barbara Meyers MEETINGS Meengs for Fall 2016 are in the making. Our first meeng on Oc- tober 14, 2016 will be led by Kay Mosure. Kay has arranged for Lt. Longacre from the Public Safety Department to give a presentaon with video and slides on “Family and Friends CPR”. On November 11, 2016 Barbara Meyers will host a speaker from SHINE, Bey Cunningham, who will discuss and answer quesons regarding changes you may be considering to your health insur- ance during the open enrollment period. Bey will also be able to answer quesons and offer help in regards to the new require- ments to be a paent at The Village Health Centers. December 9, 2016 is the date for our Christmas Celebraon. If you have any ideas and/or would like to volunteer to help get the party together please share it with us at the October meeng or email [email protected]. _____________________________________ POLIO STORIES We are also interested in learning more about our members using individual polio stories. A number of years ago the then members of the POPS group wrote down their stories and the club organized and typed them into a lile book. This me we are thinking of hav- ing volunteers get their stories together and present them at a meeng. We are hoping for a 5 to 10 minute presentaon. We never re of hearing the experiences others had when the malevo- lent polio virus came into their body. We hope one or two stories at each meeng would be presented by the polio survivor and/or caregiver. Tell us how you met the polo virus, how if affected your friends and family, what kind of medical care you received, how you fought back and had a reasonable life before post-polio came to your door step.

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Page 1: POWER OVER POLIO NEWS POWER OVER POLIO NEWSTips for Improv-ing Memory & Thinking C ognition refers to thinking activities such as remembering, paying attention, learning new things,

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SEPTEMBER/ OCTOBER 2016

POSTPOLIOCLUB.WORDPRESS.COM ISSUE 45

When you reach the end of your rope, tie a knot in it and hang on.

Franklin D. Roosevelt

.

POWER OVER POLIO NEWS POWER OVER POLIO NEWS

WHATS INSIDE!

MEETINGS P—1

YOUR POLIO STORY P - 1

CLIFF AND DIANA P - 2

MEMORY/THINKING P - 3

TRIVIA QUIZ P—5

CHRONIC PAIN P—6

TRIVIA ANSWERS P—9

STEM CELL THERAPY P—10

WEB SITE P—17

POPS CREW P - 18

DIRECTIONS P—19

This newsletter will provide:

A positive attitude

Polio info, local and national

Tips and advice on healthy

living

Entertainment

Access to interesting Internet

sites

Space for member participa-

tion

Barbara Meyers

MEETINGS

Meetings for Fall 2016 are in the making. Our first meeting on Oc-

tober 14, 2016 will be led by Kay Mosure. Kay has arranged for Lt.

Longacre from the Public Safety Department to give a presentation

with video and slides on “Family and Friends CPR”.

On November 11, 2016 Barbara Meyers will host a speaker from

SHINE, Betty Cunningham, who will discuss and answer questions

regarding changes you may be considering to your health insur-

ance during the open enrollment period. Betty will also be able to

answer questions and offer help in regards to the new require-

ments to be a patient at The Village Health Centers.

December 9, 2016 is the date for our Christmas Celebration. If you have any ideas and/or would like to volunteer to help get the party together please share it with us at the October meeting or email [email protected].

_____________________________________

POLIO STORIES We are also interested in learning more about our members using

individual polio stories. A number of years ago the then members

of the POPS group wrote down their stories and the club organized

and typed them into a little book. This time we are thinking of hav-

ing volunteers get their stories together and present them at a

meeting. We are hoping for a 5 to 10 minute presentation. We

never tire of hearing the experiences others had when the malevo-

lent polio virus came into their body. We hope one or two stories

at each meeting would be presented by the polio survivor and/or

caregiver. Tell us how you met the polo virus, how if affected your

friends and family, what kind of medical care you received, how

you fought back and had a reasonable life before post-polio came

to your door step.

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To our friends and fellow POPs members:

It is with both joy and sadness that we tell you that we have sold our home in The Villages,

bought a new home in Hendersonville, NC and will be permanently moving to North Carolina

in a few weeks.

We are excited about the move since we will be nearer Cliff’s family and will get to experience

four seasons of the year again, none of which last too long! But we are still sad to be leaving

good friends and leaving the POPs support group.

We are grateful almost beyond words that Don and JoAn Suttle started this group so many

years ago as belonging to POPs was the first time Cliff was able to meet, communicate with

and share experiences with other polio survivors. We have both learned so much that we did

not know before.

We are also thankful for the many people who have contributed, and continue to contribute, to

the success of POPs. Without them there would be no support group. So, as we leave, we urge

each and every one of you to think of ways you can help the leadership as keeping the group

going with programs that meet your needs is no easy task.

Cliff and Diana Kennedy

______________________________________________________________

GOOD BYE!

It is with bittersweet emotions that we say goodbye to Cliff and Diana Kennedy. Cliff and Diana have been the backbone of our support group for six years now. Diana sits quietly, but knows everyone, always has a salad or two to add to our lunches all the while being wife and supporter to Cliff. Cliff leads our meetings with a strong hand and lots of love. In order for them to do more traveling, Cliff has been moving the group toward a different kind of structure, sharing more responsibilities among members but still holding the reins that kept us together. The great big void they leave in our group will take a lot of people to fill. But, as they leave our support group we find ourselves stronger, friendlier and a more caring place Barbara

_________________________________________________________________

PLEASE, NEED TECHNICIAL HELP, PLEASE!

I am searching for specialized assistance on using Skype software on the com-

puter to bring us speakers from other states. Using this method we can have

great guests that can give a presentation we can watch live and then we can ask

questions of the speaker and see and hear the responses. Folks at the rec cen-

ter say it is possible and will work with us. I need someone who can be a tech-

nical advisor for the project we have arranged for our March meeting. Barbara

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Tips for Improv-ing

Memory & Thinking

Cognition refers to thinking activities

such as remembering, paying attention, learning new things, planning, and making decisions.

Some changes in cognition are normal as people get older. For persons who are aging with physical disability, cognitive changes may impact your ability to cope with challeng-es related to your disability.

Some people have minor changes in thinking that occur every once in a while and others have larger thinking problems that occur more often. Even minor changes in thinking as you age can cause challenges in your dai-ly life and affect your overall quality of life.

What are some causes of cogni-tive problems?

Some disabling conditions, such as multiple sclerosis, directly affect structures of the brain, which can lead to cognitive problems.

Symptoms that are often part of a medical condition, such as fatigue, depression, and pain, can cause or contribute to thinking prob-lems.

Cognitive problems can also make medical symptoms worse, creating a negative cycle. As your other symptoms get worse, your thinking problems also get worse.

Some medications may cause thinking diffi-culties, and older adults may be more vulner-able to cognitive problems related to certain medication. It is important to discuss any con-

cerns you have with your health care provid-er.

What kind of thinking problems can happen with aging?

Memory problems are the most common type of thinking problems in aging. It is more diffi-cult to hold information in our mind for a brief period to perform a task, such as following instructions or figuring out how much to tip (referred to as working memory).

Details like names and places are harder to recall.

It is more difficult to remember something you are supposed to do in the future, such as tak-ing your medication or going to a doctor’s ap-pointment. Attention or the ability to concentrate is also commonly affected. You may be more dis-tractible, and multi-tasking is much more diffi-cult.

Thinking can become slower so completing simple tasks can require more concentration and time. Problems with communication may also happen. For example, you may have dif-ficulty finding words or keeping up with a con-versation.

■■Making decisions can be more difficult.

How can thinking problems im-pact your daily life?

Cognitive problems limit how much you may be able to participate in daily activities such as work and social relationships.

Thinking problems may impact your inde-pendence.

If you have difficulties with attention and your thinking has slowed, driving may become dangerous.

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You may also have problems managing your finances due to challenges staying organized and making decisions.

Thinking problems can lead to premature retirement or unemployment.

Changes in thinking can also cause add-ed anxiety and stress in your life.

Fortunately, there are ways you can im-prove your thinking and reduce the nega-tive impact thinking problems may have on your life.

What You Can Do - Tips for Ad-dressing Your Thinking Prob-lems

Changes in thinking can be managed by increasing awareness about your thinking problems, doing activities to improve your thinking, and developing planning strate-gies. It is important to get started early to put supports in place to help with your thinking problems.

Understand your thinking prob-lems

Being aware of your thinking problems and how they may affect you is an im-portant first step.

Problems with cognition are often gradual and may not be immediately noticeable to others, but they may be noticeable to you. Here are some ways to help you un-derstand your thinking problems.

Identify triggers that can worsen your thinking problems, such as lack of sleep, stress, or certain medication and write down these triggers.

Talk with your health care provider about your thinking problems and triggers.

Your health care provider may refer you to a neuropsychologist. A neuropsycholo-gist can provide an assessment of your cognitive function to identify areas of strengths and weaknesses. This may be particularly important if you are working or there is concern about safety.

Simplify your day

Set up a daily routine. This can make your day more predictable and less stressful.

Pace yourself during the day.

Break complex activities down into multi-ple easier parts.

Do one thing at a time when possible. Multitasking can often make thinking more difficult.

Prioritize what needs to be done. Do those things first, then less important things later.

Schedule activities that will require more focus and concentration during times of day your thinking is typically better.

Avoid triggers in your environment that make thinking more difficult.

■■Avoid visual or sound distractions.

■■For example, keep your desk neat at work, and turn down the radio or close the windows if it’s noisy outside.

■■Avoid socializing in crowded and loud environments.

Learn new methods that help with thinking

Try different methods that may help with your thinking problems and see what works best for you. Be open to trying new methods. Some methods you may find

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helpful include:

Writing things down.

Using memory aids such as post-it notes, daily planners, or calendars.

Setting a timer on your watch or phone can be a helpful tool to remind you to take medication or go to an appoint-ment.

Your health care provider may also refer you to a Speech Therapist or a Rehabili-tation Psychologist, who are both skilled professionals that can help you learn new methods and problem-solve. They may also suggest activities and making lifestyle changes that can help reduce problems with thinking or even improve thinking skills. ………………………………………………

TRIVIA QUIZ

Who had the catchphrase "Nanu

Nanu"?

Earl Sinclair

Tony Micelli Ben Seaver Mork from Ork

What famous pop star once caught his

hair on fire while filming a Pepsi com-

mercial? Robin Thicke

Justin Bieber

Justin Timberlake

Michael Jackson

How many time has golf been included

in the Olympic games?

Ten

Zero

Six

Two

What brand uses the slogan "The Ulti-

mate Driving Machine"?

BMW Mercedes-Benz Audi Lexis

See page 5 for answers!

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RehResearch and Training Center on

Aging with Physical Disabilities

The Role of Happiness in People Living with Chronic Pain

What is this research about?

Chronic pain is common among people living with conditions like arthritis, stroke, spinal cord

injury, and multiple sclerosis. Different from acute pain, chronic pain doesn’t go away and lasts

longer than 6 months. Pain can seep into all aspects of our lives – getting out and doing the

activities we enjoy, socializing with our friends, taking care of ourselves and our families, as

well as our health and well-being.

Typically, chronic pain is treated with medication. However, many of these pills do not provide

much relief from pain and even cause negative side effects. Alternative treatments such as

massage, heat, acupuncture and physical therapy show promise. Counseling with a psycholo-

gist or therapist is another way to manage chronic pain. One type of counseling focuses on

changing pain-related thoughts and behaviors that aren’t helpful into ones that help us cope

and adjust. Another type of counseling, called positive psychology, focuses on our strengths

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changing pain-related thoughts and behaviors that aren’t helpful into ones that help us

cope and adjust. Another type of counseling, called positive psychology, focuses on our

strengths and resources to lead us on the path to happiness. In our study, we looked at

whether happiness had any impact on our experience of pain and distress. We also looked

at the role of different approaches to happiness in individuals with chronic pain.

What did the researchers do?

We surveyed 400 individuals with different kinds of conditions, including arthritis, diabetes,

or spinal cord injury who reported having pain. We asked them how bad their pain was

(pain intensity) as well as how much pain got in the way of their daily lives (pain interfer-

ence). We asked other questions about depression, stress, and anxiety (distress). Lastly, we

asked about 3 different ways of experiencing happiness 1) having a life with lasting mean-

ing, 2) living a pleasurable life, and 3) being involved or participating in valued activities.

What did the researchers find?

Happy people were more likely to report lower levels of pain. Happy people reported that

pain was less likely to get in the way of their daily lives and they were less likely to feel dis-

tressed when we also looked at the impact of happiness on pain intensity. We found only

one of the three types of happiness had an impact on chronic pain - people who reported

having a life with lasting meaning were more likely to report lower levels of pain, pain that

didn’t get in the way of their lives, and they experienced less distress. However, as with all

statistical associations, these relationships do not necessarily mean a ‘cause’ and ‘effect’ re-

lationship.

How can you use this research?

Our happiness may influence how and how much pain we experience. Here are a few tips

on how to harness the power of happiness in your life:

Lend a helping hand or give back to others – Taking the focus off ourselves (and our pain)

by connecting with people in need among your family, friends, or people in your communi-

ty. For example, call, write or visit a friend in need; volunteer at a food bank, homeless shel-

ter, church or animal shelter; or simply smile at someone who needs a smile.

.

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Work towards a personal goal – Go after something personally important and reward-

ing. Here are some tips on how to reach your personal goal:

Make your goal “visible.” Discuss your goals and how you would like to pursue

them with your friends and family.

Think about and imagine yourself pursuing and reaching your goal.

Think ahead and anticipate barriers (e.g. lack of time or frustration). Find strategies to

manage them (e.g., set aside time when your energy level is high).

Some people may find meaning in spiritual activities: Becoming more involved in religion

or spirituality by, for example, seeking meaning and purpose, finding the sacred

in ordinary life and mindful meditating.

Nurturing relationships: Strengthening and enjoying relationships by making time for

people, expressing admiration, appreciation, and affection, capitalizing on good fortunes,

being supportive and loyal, managing conflict and sharing your inner life.

Expressing gratitude: writing down things that you are currently grateful for in your life.

Keep a journal and add 3-5 things that happened during the day that you are thankful

for.

Original research article:

Müller, R., Terrill, A.L., Jensen, M.P., Molton, I.R., Ravesloot, C., & Ipsen, C. Happiness,

pain intensity, pain interference and distress in individuals with physical disabilities

About the researchers:

Rachel Müller is a clinical psychologist with a PhD in human biology. She is interested in

strengths- and resource-based psychological interventions to support individuals living

with chronic pain.

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TRIVIA ANSWERS

In 2014, we lost the great Robin Wil-liams and with that the face that went with the saying, "Nanu Nanu". Wil-liams played Mork from Ork, an alien sent to Earth in an egg to investigate humans and report his findings back to the motherland. What you may not remember was that Mork from Ork was actually a spin-off character from Happy Days. In one episode, Mork, the alien from Ork wanted to take Richie Cunningham back to his home planet for research. Oh shazbot! Source: GMA

————————————

In 1983, Michael Jackson was on fire! Okay, okay, bad joke. During the film-ing of a 1983 Pepsi commercial, Jack-son’s hair and jacket caught fire when he moved too close to a pyrotechnics display behind him at the Shrine Audi-torium. Though Jackson had no inten-tion of suing Pepsi for the incident, re-questing instead for Pepsi to build a burn center at Brotman Medical Cen-ter in Culver City where he was treat-ed, his family is a different story. Four years after the singer died, the Jack-sons sued AEG for giving Jackson mi-graines that 20 years later (probably) lead to his death. Sounds like a long shot. Source: Los Angeles Times

———————————— The first Olympic Games in which golf was listed as one of the participating events was the 1900 Paris Olympics. The first American woman to ever win an Olympic gold medal, in any sport, was Margaret Abbott who took home the gold with a 47 over nine holes and looked amazing doing so. Four years

later, golf came back but it wasn't as big of a hit as it had been in the previ-ous Olympics. After that, golf did not return. Until this summer! (Gasp!) Be prepared for golf's big comeback at the Rio Games with some big players like Bubba Watson and Rickie Fowler. Time to start practicing that two-finger clap! Source: Golf Digest

——————————————— It is a slogan that has been around for nearly 40 years. How many brands do you know keep slogans that long? The truth is, it has stood the test of time because it is a slogan that works. The ultimate driving machine could mean anything from a sports car to an SUV and anything in between. In 2006, a rumor surfaced that BMW was dropping the tagline and switch-ing to "A Company of Ideas" but that obviously didn't last. The ultimate driv-ing machine clearly needed to keep the ultimate tagline. Source: The BMW Blog

——————————————————————

A COUPLE OF TRIVIA FACTS! To this day, golf is one of only two sports, along with the javelin throw, to have ever been played on the moon.

There are currently a billion cars in use around the world.

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FDA moves to crack down on unproven stem cell

therapies LOS ANGELES — Federal regulators are preparing to crack down on scores of clinics across the United

States that offer pricey stem cell therapies for conditions ranging from autism to multiple sclerosis to erectile

dysfunction without any scientific evidence that they work.

As many as 200 stem cell clinics have cropped up in recent years, peddling injections, facelifts, and treat-

ments for a number of devastating conditions. They have avoided heavy regulation, in part because they use

cells extracted from a patient’s own body and because they don’t do much to those cells before reinjecting

them.

But the Food and Drug Administration recently issued draft guidelines clarifying that the stem cells used in

most clinics are drugs and require a rigorous approval process before they can be used in patients. A public

hearing is set for April.

The FDA underscored the new approach in a warning letter it sent at the end of December to a network of

stem cell clinics in California, New York, and Florida. Regulators advised the owner that he needed FDA

licenses and approval to sell and use stem cells, which the agency classified in the letter as biological drugs.

Such licenses would require evidence that stem cell treatments are both safe and effective — the sort of

proof that takes drug companies many years of clinical trials to obtain, at a cost of millions of dollars.

Anxious patients plan to flood the public hearing, scheduled for April 13 in Silver Spring, Md., and assert

their rights to use their own cells as they see fit.

The FDA’s moves come after years of pressure from physicians and researchers who have called for a crack-

down on an unproved therapy that they consider dangerous quackery. These critics say there’s no evidence

the treatments work — or that some of them even contain stem cells. Yet clinics charge fees ranging from

$5,000 to $25,000 per treatment, with some patients reportedly racking up bills over $100,000.

While there haven’t been many reports of serious complications from stem cell therapy, two Florida patients

died in recent years after receiving stem cell injections; a California woman developed painful bone frag-

ments in her eyelids after a stem cell facelift; and another patient developed a mucous-secreting growth of

nasal tissue in her spine after undergoing stem cell treatment in an attempt to cure her paralysis.

“It’s a huge, unapproved human experiment,” said Paul Knoepfler, a stem cell researcher at the University of

California at Davis who tracks for-profit stem cell clinics on his blog “The Niche.”

The FDA did issue a public warning about stem cells in 2012 and has sent a series of warning letters to indi-

vidual clinics in recent years, mostly involving issues of sterility and disease prevention. In some cases, reg-

ulators warned that the processes used by the clinics turned the cells into what the FDA would consider

drugs. A handful of clinics targeted by the agency have moved their operations out of the U.S.

But that’s not the norm: Patients don’t have to travel to Mexico or India to get stem cell therapy, as they

would for many other questionable treatments. There are clinics even in rural states like Kansas and Nebras-

ka.

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Leigh Turner, a bioethicist at the University of Minnesota who has been pressing the FDA for years to crack

down on the clinics, said he has been amazed that regulators have allowed the industry to grow so rapidly.

“If it’s not safe and it’s not going to help patients,” Turner said, “it’s just predatory behavior.”

Brushing off charges of ‘quackery’

Dr. Mark Berman has heard such criticism often.

“Doctors say it’s quackery, nonsensical, no better than placebo,” Berman said. “Everyone on the planet

thinks I’m a charlatan and we’re just in it for the money.”

An entrepreneurial cosmetic surgeon based in Beverly Hills, Berman has been providing stem cell treat-

ments since 2010 and cofounded a network of clinics in 2012. He uses liposuction to extract fat from the pa-

tient, then spins it in a centrifuge with various enzymes for about a half-hour to separate a host of cells, in-

cluding stem cells. He says he uses lab tests to verify that stem cells are present.

He then injects this “soup,” as he calls it, back into patients. Berman charges $8,900 per treatment (though

he sometimes gives free or discounted care to financially strapped patients). He says the injections have been

most successful for orthopedic issues, arthritis, and joint pain. But a website for his Cell Surgical Network,

an umbrella for dozens of stem cell clinics nationwide, lists more than two dozen other conditions the physi-

cians are “currently studying,” including Parkinson’s, amyotrophic lateral sclerosis — more commonly

called Lou Gehrig’s disease — congestive heart failure, lung disease, glaucoma, and muscular dystrophy.

The website is careful not to promise that the stem cell injections can cure or treat those diseases, and Ber-

man said he makes it clear to all patients that the work is investigative and not FDA-approved.

Berman acknowledges that he has no published studies to back up his treatment. But he says he’s certain it

works and is safe. As proof of his confidence, he notes that he used the therapy to successfully treat his wife

for hip pain.

He says critics, including pharmaceutical companies and academics, want to profit by patenting stem cells

and fear “disruptive technologies” that come from entrepreneurs rather than from their own incremental re-

search.

Berman plans to attend the FDA hearing to argue, as other clinics have, that the injections are not drugs,

but simple outpatient surgeries that should not be regulated.

Real promise, vastly overhyped

There are two main types of stem cells. Those derived from embryos can turn into almost any other type of

cell in the body. Adult stem cells, specific to certain tissues, are not quite as flexible, but still serve as a kind

of internal repair system.

Because of their remarkable regenerative powers, both embryonic and adult stem cells hold the promise of

curing a variety of ills. Stem cells extracted from bone marrow have long been used to treat cancer and

blood and immune disorders.

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At least one published study shows stem cells extracted from fat tissue can speed healing of grafted tissue.

Clinical trial evidence also suggests the cells might speed wound healing, improve heart function, and treat scleroder-

ma, said Dr. Peter Rubin, a stem cell researcher who chairs the department of plastic surgery at the University of Pitts-

burgh Medical Center. He is running a clinical trial to test the use of stem cells to repair severe facial wounds in sol-

diers. But Rubin says any new treatments based on stem cells are years away.

And there’s no evidence yet that the cells can heal the variety of grave conditions, from stroke to incontinence to lung

disease, that the clinics claim to treat — and no proof, other than the word of clinic operators, that they are harvesting

the stem cells cleanly, or even harvesting them at all.

“What’s in the syringe? My guess is nothing helpful,” Knoepfler said. “It’s really scary to think there are thousands of

people being injected with stuff, and in most cases we don’t know what that stuff is.”

The FDA is charged with regulating the human use of biological products, such as vaccines, blood, tissues, cells, and

genes, and requires many of these items to gain approval as drugs.

But there are exceptions for biological products that are “minimally manipulated” and are taken from and put back

into the same patient during a single surgical procedure, so they pose little risk of spreading infection. Stem cell clinic

operators have long claimed their products fall under these exceptions.

And until now, the FDA has largely left them alone.

Given that history, some industry observers say it’s possible the latest regulatory push will fizzle. Others, however,

believe the agency is ready to insist on higher standards that will force many clinics to shut down or move abroad.

A Kardashian endorsement

Unapproved stem cell therapies came into vogue about a decade ago and have exploded in popularity.

Stem cell lotions, some selling for hundreds of dollars per ounce, claim to reverse aging and erase wrinkles, though

experts say there’s no reason to think stem cells or their extracts would remain active in a lotion — if, indeed, they

were ever added to the jar. “It could be stem cells,” said Rubin. “Or bacon grease.”

One step up from the lotions are $500 stem cell facials, which have quite a following among celebrities; Kim Kar-

dashian gushed about the one she received before her 2014 wedding. Stem cell experts note that these treatments,

which mainly use plant stem cells applied topically, are hardly likely to regenerate human skin.

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Stem cell face-lifts are popular, too: Stem cells or stem cell extracts are injected into the skin along with fat.

An American Society of Plastic Surgeons task force convened in 2012 and cochaired by Rubin found the pro-

cedures offered no improvement over standard facelifts.

Most troubling to many physicians are the stem cell clinics that market to patients desperate for relief from

painful conditions or cures for terminal diseases.

“All of us hate seeing those big billboards for stem cell therapy,” said Rubin, who worries that problems with

unproven stem cell therapies will taint the field. “The key is to move this forward with solid, well conducted

studies.”

He added: “We need to be cautious of spurious, unjustified, and unsubstantiated claims.”

______________________________________________________________________________

I have a copy of an ad from the SUN for Stem Cell Therapy. It appeared in the September

29, 2014 edition. I have made several attempts to reach the telephone numbers in the ad

with no success. I have been promised call backs that came in the form of a voice message

and when I returned them I received no answer. “Buyer Beware” sure applies here. If it

seems to good to be true it probably is. You must take care of your body and be so careful

with untested procedures. Barbara

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After adding the article regarding stem cell treatments I went back into my files and found two articles from

the Villages Daily Sun about stem cells. I have decided to include them in my stem cell story. Saying up front

“patient beware” sure applies here. If it seems to good to be true it probably is. You must take care of your

body and be so careful with untested procedures. Of course, I do always leave it up to you. Well, here is the

first article I saved. I have cut the pieces into sections and assembled them into the several stories contained

in the article. Barbara

MONDAY SEPTEMBER 29TH 2014

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Before I close this newsletter here is one more smile for you to enjoy.

This will take you to a Budweiser commercial. It is hilarious, but I warn

you ahead of time that it is rated ‘R’ for Nudity. I found it so funny, was

not offended, and I think you too will laugh out loud.

Copy the website, put it in your browser and sit back and smile. You

might want to share it after you have watched it. Give someone else a

smile.

Budweiser Commercial

http://www.angelfire.com/ak2/intelligencerreport/bud_lite.html#.VQ727PQbxwU.mailto

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This list is for Polio Survivors who wish to discuss concerns, ideas, and fun as well as sharing

information on a one to one basis.

Barbara Meyers [email protected]

Pat Cochran [email protected]

Jacque BeVier [email protected]

Lydia White [email protected]

Marion Schoeller [email protected]

Marda Hamilton [email protected]

Gayle Hancock [email protected]

It takes dedication to keep the POPs group together, provide infor-mation along with interesting meetings. Our goal is to maintain a friendly welcoming atmosphere for all polio survivors and their caregivers, family And friends.

It takes dedication to keep the POPs group together, provide infor-mation along with interesting meetings. Our goal is to maintain a friendly welcoming atmosphere for all polio survivors and their caregivers, family And friends.

FOUNDING LEADERS DON AND JO AN SUTTLE [email protected]

PAST MEETING LEADERS CLIFF AND DIANA KENNEDY [email protected]

TREASURER BILL HAMILTON [email protected]

PROGRAMS: MARDA HAMILTON [email protected]

KAY MOSURE [email protected]

BARBARA MEYERS [email protected]

JO AN SUTTLE [email protected]

CLIFF AND DIANA KENNEDY [email protected]

ROSEMARY HUGHES [email protected]

PUBLICITY MARIE BOGDONOFF [email protected]

LIBRARIAN MIKE WILLINGHAM [email protected]

NEWSLETTER EDITOR

CONTRIBUTING REPORTER

PROOF READER

BARBARA MEYERS

MARION SCHOELLER

LYDIA WHITE

[email protected]

[email protected]

[email protected]

SOCIAL DENNY MOLL [email protected]

CARE AND CONCERN SUSAN KEENAN [email protected]

Email LYDIA WHITE [email protected]

KEEP IN TOUCH DON SUTTLE [email protected]

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OUR MEETINGS ARE HELD AT THE

SEA BREEZE RECREATION CENTER

THE VILLAGES, FLORIDA

Using the back entrance is an option. Use the driveway so you

won’t have to negotiate the curb. Enter the back door, turn right,

down 2 doorways and turn left. In the kitchen area you will find

coffee and treats, and then step into our room.

DIRECTIONS TO THE CENTER BELOW.

We hope that you will find these directions helpful and we look forward to seeing

you at our meetings.

From the north:

Via Morse Blvd:

Either take Morse down from the north, crossing 466 or turn south onto Morse from 466. In both events,

continue on Morse going over the bridge. Go past the exit into Lake Sumter Landing, continuing south on

Morse. At the next circle (just past Winn Dixie Grocery Store which will be on your right), go one quarter of

the way around and exit onto Stillwater Trail. Go to the end of Stillwater and then go three quarters of the

way around that traffic circle exiting onto Buena Vista Blvd, going south.

Stay on Buena Vista going half way around the next three traffic circles. Just past the third traffic circle you

will see the Sea Breeze Recreation Center on your right and should turn into its entrance off Buena Vista.

Via Buena Vista:

Take Buena Vista south, going through several traffic circles. Once past the Stillwater traffic circle, follow

the directions shown above.

From the south:

You should travel to County Road 466A taking it east if coming from Highway 301 and west if coming from

27/441. Travel to the light at Buena Vista Blvd and turn north on Buena Vista (that will be a left turn com-

ing from 301 and a right turn coming from 27/441). Go one half way around the first traffic circle and con-

tinue north on Buena Vista. Shortly after going around that circle you will see the Sea Breeze Recreation

Center on your left and will come to a left hand lane that will allow you to turn left into the center.