Prepared by Amanda OReillyManager, Cansupport

Clinical Oncology, Royal North Shore Hospital

November 2011

Breast Foot Forward

A walking information and support group for early breast cancer patients.

Background Cansupport was established in 1981 to offer information and

support to cancer patients through groups and volunteer peer support.

Cansupport operates within a psychosocial service for cancer patients at Royal North Shore Hospital, Sydney Australia.

A wide range of groups are offered with the following breast cancer specific options.

Breast Cancer Information and Support Services

Early Breast Cancer

6 week series x 4 times per annum

Life After Breast Cancer Workshops x 2 times per annum

Bi-annual Forums

Look Good Feel Better Workshops x 8 per annum

Relaxation and meditation sessions - weekly

Advanced Breast Cancer

Monthly meetings

Barriers to existing services

• Extensive hospital rebuilding program causes access problems

• Parking and Sydney traffic

• Resistance to attending traditional groups

• Childcare causes limitations for younger women

Impetus for Breast Foot Forward Project

• No existing form of ongoing group support provided

• Offering psychological support in a non-threatening non clinical environment

• Evidence for support and information groups promoting social connection and peer support

• Evidence for benefits of physical activity in recovery and rehabilitation

• Evidence suggests a reduction in recurrence risk by up to 50% if a regime of 3-5 hours of moderate exercise per week is maintained

• Patient and Volunteer fundraising $11,000

Project planning

Advisory committee formed with representation of patients, volunteers, breast care specialist nurse, physiotherapist, local community member and a psychologist.

Tasks included finding a venue, planning the route, developing paper work, legal/insurance aspects, promotion of the walk.

Breast Foot Forward - The name and logo

patient approved, distinctive and encouraging

The Venue- Manly, Sydney Australia

Manly Beach

THE MODEL traditional peer support, professional facilitation, topics eg teaching a walking meditation.

THE WELCOME introductions and morning tea.THE ORIENTATION includes safety measures.

The Route - 5kms, level, scenic, regular seating, own pace.

The Members - varied fitness levels, any stage of early breast

cancer journey, female supporters welcome.

Img_1393.lnk

Paperwork

• Information flyer and walking date calendar

• Registration

• Medical approval form

Other preparations

Legal/insurance clearance

First aid training for facilitators

Promotion

Catering

Resources: exercise recording book, pedometers

EVALUATIONS 29 registered participants -14 returned evaluations11 completed treatment - 3 currently in treatment

I have attended the Breast Foot Forward walks on...

0 1 2 3 4 5

6 occasions

5 occasions

4 occasions

3 occasions

2 occasions

1 occasion

Have you attended any other forms of information and support whilst dealing with your EBC diagnosis.?

0 2 4 6 8 10 12

YES

NO

How did you find out about the walks?

0 5 10 15

Breast CareNurse:

Other HealthProfessional:

Cansupportmeeting:

Word ofmouth

Age Group

0 1 2 3 4 5 6 7

Under 30

30 – 45

46 – 60

61 – 75

Over 75

The walks have been helpful in improving my level of exercise

0 2 4 6 8 10 12

Agree:

Neutral:

Disagree:

Attending the walks makes me feel less isolated

0 5 10 15

Disagree

Neutral

Agree

Sharing experiences and feelings with other women is helpful to me

0 5 10 15

Disagree

Neutral

Agree

Being able to interact with other women is helpful to me

0 5 10 15

Disagree

Neutral

Agree

Being able to interact with the facilitators is helpful to me

0 5 10 15

Disagree

Neutral

Agree

I would recommend this group to other women

0 5 10 15

No

Yes

Other Comments

“Motivates me to get off my bum. My husband pulls the covers off me now so I have to go in the mornings too.”

“I appreciate the information from the facilitators.”

“I’m not local but am happy to travel to Manly.”

“I appreciate the support and evolving information on breast cancer.”

“Manly is a very beautiful easy walk and the ocean views, beach and landscape add to the enjoyment.”

“Love walking by the ocean – very therapeutic.”

“Its encouraging to see there is life after the treatment.”`

“Keeping an exercise record book has been helpful to monitor my weekly activity.”

LESSONS LEARNED

Due to varied levels of fitness the walk stretches over distance and requires volunteers to supervise.

Maintaining an email data base allows for monthly reminder notice

Future and recovery focussed rather than disease and clinical focus. Patient enabling.